Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Good luck Ann and keep us posted onyuor progress. Don On 8/27/06, Ann <ruby2zdy@...> wrote: > > I've had chondromalacia for 7 years now. It's restricted me to not > getting enough exercise to keep my heart in good condition. Nobody would do > anything but debride the spots or inject synvisc. Those didn't return > mobility. > > In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to > get a correct diagnosis, and then I had a partial meniscectomy. The surgeon > also documented grade IV chondromalacia in that knee. This was important > since MRI's may or may not even show a chondromalacia lesion, much less the > degree of damage. > > I learned about SaluCartilage and kept hoping the FDA would approve it > here, since it's been in use in Europe for over 4 years & Canada for over 1, > but you know the FDA... > > This year I got a torn lateral meniscus in the L knee & had it fixed. > During the arthroscopy, the surgeon documented a few chondromalacia lesions > (ones that I don't feel). > > Meanwhile I've developed another tear in the R lateral meniscus and I can > feel tears in the medial menisci of both knees. > > Heart disease is rampant in my family. A couple of months ago I fell off a > 3-step ladder, and my heart felt like maybe I was going to have a heart > attack -- chest tight & short of bearth for about 15 min. Later that night > the symptoms came back, this time with mild nausea. Next day, they came > back. So I went to emergency. I checked out fine, no heart attack, but they > kept me for observation overnight. That fall may be the best thing that ever > happened to me. > > Now I was able to go to OS's and say " My menisci are falling apart, I have > debilitating chondromalacia, I've done all the chondromalacia exercises, I > can't get aerobic exercise, and when I fell I felt like I was going to have > a heart attack, and pretty much every one of my 12 aunts & uncles on my > mother's side had heart attacks or strokes, and now the cousins are > beginning to die -- of massive heart attacks. Even though my articular > cartilage is fine and I don't have arthritis, my inability to get enough > exercise has made my heart weak and this is going to shorten my life. PLEASE > do a TKR so I can get back to a normal life. " I still had to go through > hoops, cry, beg, etc., but finally got a surgeon (the one who did my L > partial meniscectomy) to agree to do it. > > I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to > strengthen my legs, knees, and upper body to prepare for the post-op stuff. > > I jonied the Total Joint Replacement group and it's been invaluable > -- post-op stories from people who've been there. Not all of them are good, > but most are. I've concluded that it's best, if you have arthritis, NOT to > wait till you've been in excruciating pain for years, but to get a new knee > as soon as you can't use your natural one or rehab it. > > And that's my story. > > Ann > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Thanks. Ann Re: How to regain mobility Good luck Ann and keep us posted onyuor progress. Don On 8/27/06, Ann <ruby2zdy@...> wrote: > > I've had chondromalacia for 7 years now. It's restricted me to not > getting enough exercise to keep my heart in good condition. Nobody would do > anything but debride the spots or inject synvisc. Those didn't return > mobility. > > In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to > get a correct diagnosis, and then I had a partial meniscectomy. The surgeon > also documented grade IV chondromalacia in that knee. This was important > since MRI's may or may not even show a chondromalacia lesion, much less the > degree of damage. > > I learned about SaluCartilage and kept hoping the FDA would approve it > here, since it's been in use in Europe for over 4 years & Canada for over 1, > but you know the FDA... > > This year I got a torn lateral meniscus in the L knee & had it fixed. > During the arthroscopy, the surgeon documented a few chondromalacia lesions > (ones that I don't feel). > > Meanwhile I've developed another tear in the R lateral meniscus and I can > feel tears in the medial menisci of both knees. > > Heart disease is rampant in my family. A couple of months ago I fell off a > 3-step ladder, and my heart felt like maybe I was going to have a heart > attack -- chest tight & short of bearth for about 15 min. Later that night > the symptoms came back, this time with mild nausea. Next day, they came > back. So I went to emergency. I checked out fine, no heart attack, but they > kept me for observation overnight. That fall may be the best thing that ever > happened to me. > > Now I was able to go to OS's and say " My menisci are falling apart, I have > debilitating chondromalacia, I've done all the chondromalacia exercises, I > can't get aerobic exercise, and when I fell I felt like I was going to have > a heart attack, and pretty much every one of my 12 aunts & uncles on my > mother's side had heart attacks or strokes, and now the cousins are > beginning to die -- of massive heart attacks. Even though my articular > cartilage is fine and I don't have arthritis, my inability to get enough > exercise has made my heart weak and this is going to shorten my life. PLEASE > do a TKR so I can get back to a normal life. " I still had to go through > hoops, cry, beg, etc., but finally got a surgeon (the one who did my L > partial meniscectomy) to agree to do it. > > I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to > strengthen my legs, knees, and upper body to prepare for the post-op stuff. > > I jonied the Total Joint Replacement group and it's been invaluable > -- post-op stories from people who've been there. Not all of them are good, > but most are. I've concluded that it's best, if you have arthritis, NOT to > wait till you've been in excruciating pain for years, but to get a new knee > as soon as you can't use your natural one or rehab it. > > And that's my story. > > Ann > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Good luck Ann. I was wondering when they would ever recommend a TKR for you. I am relieved your doctors have finally decided to do something. I went in for a blood screen a week ago after having numerous bouts with pain in both knees, right shoulder and right hip, and came back with a blood marker that was positive for Auto-immune disease. While this marker alone doesn't necessarily mean anything, my GP has me scheduled to see a rheumatologist. I can't get in until 9/14. Mike MT How to regain mobility I've had chondromalacia for 7 years now. It's restricted me to not getting enough exercise to keep my heart in good condition. Nobody would do anything but debride the spots or inject synvisc. Those didn't return mobility. In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to get a correct diagnosis, and then I had a partial meniscectomy. The surgeon also documented grade IV chondromalacia in that knee. This was important since MRI's may or may not even show a chondromalacia lesion, much less the degree of damage. I learned about SaluCartilage and kept hoping the FDA would approve it here, since it's been in use in Europe for over 4 years & Canada for over 1, but you know the FDA... This year I got a torn lateral meniscus in the L knee & had it fixed. During the arthroscopy, the surgeon documented a few chondromalacia lesions (ones that I don't feel). Meanwhile I've developed another tear in the R lateral meniscus and I can feel tears in the medial menisci of both knees. Heart disease is rampant in my family. A couple of months ago I fell off a 3-step ladder, and my heart felt like maybe I was going to have a heart attack -- chest tight & short of bearth for about 15 min. Later that night the symptoms came back, this time with mild nausea. Next day, they came back. So I went to emergency. I checked out fine, no heart attack, but they kept me for observation overnight. That fall may be the best thing that ever happened to me. Now I was able to go to OS's and say " My menisci are falling apart, I have debilitating chondromalacia, I've done all the chondromalacia exercises, I can't get aerobic exercise, and when I fell I felt like I was going to have a heart attack, and pretty much every one of my 12 aunts & uncles on my mother's side had heart attacks or strokes, and now the cousins are beginning to die -- of massive heart attacks. Even though my articular cartilage is fine and I don't have arthritis, my inability to get enough exercise has made my heart weak and this is going to shorten my life. PLEASE do a TKR so I can get back to a normal life. " I still had to go through hoops, cry, beg, etc., but finally got a surgeon (the one who did my L partial meniscectomy) to agree to do it. I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to strengthen my legs, knees, and upper body to prepare for the post-op stuff. I jonied the Total Joint Replacement group and it's been invaluable -- post-op stories from people who've been there. Not all of them are good, but most are. I've concluded that it's best, if you have arthritis, NOT to wait till you've been in excruciating pain for years, but to get a new knee as soon as you can't use your natural one or rehab it. And that's my story. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Uh-oh. Well, I hope it's not RA. Good luck. Here's what I don't understand about auto-immune diseases: People who have one usually only have one. So what determines which one they have? If their body is attacking itself, why is this attack restricted (usually) to one organ or system? So much research needed, so little time. Again, good luck. I hope it's just a nutrient deficiency & you find the cure. Ann How to regain mobility I've had chondromalacia for 7 years now. It's restricted me to not getting enough exercise to keep my heart in good condition. Nobody would do anything but debride the spots or inject synvisc. Those didn't return mobility. In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to get a correct diagnosis, and then I had a partial meniscectomy. The surgeon also documented grade IV chondromalacia in that knee. This was important since MRI's may or may not even show a chondromalacia lesion, much less the degree of damage. I learned about SaluCartilage and kept hoping the FDA would approve it here, since it's been in use in Europe for over 4 years & Canada for over 1, but you know the FDA... This year I got a torn lateral meniscus in the L knee & had it fixed. During the arthroscopy, the surgeon documented a few chondromalacia lesions (ones that I don't feel). Meanwhile I've developed another tear in the R lateral meniscus and I can feel tears in the medial menisci of both knees. Heart disease is rampant in my family. A couple of months ago I fell off a 3-step ladder, and my heart felt like maybe I was going to have a heart attack -- chest tight & short of bearth for about 15 min. Later that night the symptoms came back, this time with mild nausea. Next day, they came back. So I went to emergency. I checked out fine, no heart attack, but they kept me for observation overnight. That fall may be the best thing that ever happened to me. Now I was able to go to OS's and say " My menisci are falling apart, I have debilitating chondromalacia, I've done all the chondromalacia exercises, I can't get aerobic exercise, and when I fell I felt like I was going to have a heart attack, and pretty much every one of my 12 aunts & uncles on my mother's side had heart attacks or strokes, and now the cousins are beginning to die -- of massive heart attacks. Even though my articular cartilage is fine and I don't have arthritis, my inability to get enough exercise has made my heart weak and this is going to shorten my life. PLEASE do a TKR so I can get back to a normal life. " I still had to go through hoops, cry, beg, etc., but finally got a surgeon (the one who did my L partial meniscectomy) to agree to do it. I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to strengthen my legs, knees, and upper body to prepare for the post-op stuff. I jonied the Total Joint Replacement group and it's been invaluable -- post-op stories from people who've been there. Not all of them are good, but most are. I've concluded that it's best, if you have arthritis, NOT to wait till you've been in excruciating pain for years, but to get a new knee as soon as you can't use your natural one or rehab it. And that's my story. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Good luck! I hope it's a better end to a long story. Philip - http://xcskiwinn.org/community/blogs/panmanphil How to regain mobility I've had chondromalacia for 7 years now. It's restricted me to not getting enough exercise to keep my heart in good condition. Nobody would do anything but debride the spots or inject synvisc. Those didn't return mobility. In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to get a correct diagnosis, and then I had a partial meniscectomy. The surgeon also documented grade IV chondromalacia in that knee. This was important since MRI's may or may not even show a chondromalacia lesion, much less the degree of damage. I learned about SaluCartilage and kept hoping the FDA would approve it here, since it's been in use in Europe for over 4 years & Canada for over 1, but you know the FDA... This year I got a torn lateral meniscus in the L knee & had it fixed. During the arthroscopy, the surgeon documented a few chondromalacia lesions (ones that I don't feel). Meanwhile I've developed another tear in the R lateral meniscus and I can feel tears in the medial menisci of both knees. Heart disease is rampant in my family. A couple of months ago I fell off a 3-step ladder, and my heart felt like maybe I was going to have a heart attack -- chest tight & short of bearth for about 15 min. Later that night the symptoms came back, this time with mild nausea. Next day, they came back. So I went to emergency. I checked out fine, no heart attack, but they kept me for observation overnight. That fall may be the best thing that ever happened to me. Now I was able to go to OS's and say " My menisci are falling apart, I have debilitating chondromalacia, I've done all the chondromalacia exercises, I can't get aerobic exercise, and when I fell I felt like I was going to have a heart attack, and pretty much every one of my 12 aunts & uncles on my mother's side had heart attacks or strokes, and now the cousins are beginning to die -- of massive heart attacks. Even though my articular cartilage is fine and I don't have arthritis, my inability to get enough exercise has made my heart weak and this is going to shorten my life. PLEASE do a TKR so I can get back to a normal life. " I still had to go through hoops, cry, beg, etc., but finally got a surgeon (the one who did my L partial meniscectomy) to agree to do it. I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to strengthen my legs, knees, and upper body to prepare for the post-op stuff. I jonied the Total Joint Replacement group and it's been invaluable -- post-op stories from people who've been there. Not all of them are good, but most are. I've concluded that it's best, if you have arthritis, NOT to wait till you've been in excruciating pain for years, but to get a new knee as soon as you can't use your natural one or rehab it. And that's my story. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 Thanks. Ann How to regain mobility I've had chondromalacia for 7 years now. It's restricted me to not getting enough exercise to keep my heart in good condition. Nobody would do anything but debride the spots or inject synvisc. Those didn't return mobility. In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to get a correct diagnosis, and then I had a partial meniscectomy. The surgeon also documented grade IV chondromalacia in that knee. This was important since MRI's may or may not even show a chondromalacia lesion, much less the degree of damage. I learned about SaluCartilage and kept hoping the FDA would approve it here, since it's been in use in Europe for over 4 years & Canada for over 1, but you know the FDA... This year I got a torn lateral meniscus in the L knee & had it fixed. During the arthroscopy, the surgeon documented a few chondromalacia lesions (ones that I don't feel). Meanwhile I've developed another tear in the R lateral meniscus and I can feel tears in the medial menisci of both knees. Heart disease is rampant in my family. A couple of months ago I fell off a 3-step ladder, and my heart felt like maybe I was going to have a heart attack -- chest tight & short of bearth for about 15 min. Later that night the symptoms came back, this time with mild nausea. Next day, they came back. So I went to emergency. I checked out fine, no heart attack, but they kept me for observation overnight. That fall may be the best thing that ever happened to me. Now I was able to go to OS's and say " My menisci are falling apart, I have debilitating chondromalacia, I've done all the chondromalacia exercises, I can't get aerobic exercise, and when I fell I felt like I was going to have a heart attack, and pretty much every one of my 12 aunts & uncles on my mother's side had heart attacks or strokes, and now the cousins are beginning to die -- of massive heart attacks. Even though my articular cartilage is fine and I don't have arthritis, my inability to get enough exercise has made my heart weak and this is going to shorten my life. PLEASE do a TKR so I can get back to a normal life. " I still had to go through hoops, cry, beg, etc., but finally got a surgeon (the one who did my L partial meniscectomy) to agree to do it. I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to strengthen my legs, knees, and upper body to prepare for the post-op stuff. I jonied the Total Joint Replacement group and it's been invaluable -- post-op stories from people who've been there. Not all of them are good, but most are. I've concluded that it's best, if you have arthritis, NOT to wait till you've been in excruciating pain for years, but to get a new knee as soon as you can't use your natural one or rehab it. And that's my story. Ann Quote Link to comment Share on other sites More sharing options...
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