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Good luck Ann and keep us posted onyuor progress.

Don

On 8/27/06, Ann <ruby2zdy@...> wrote:

>

> I've had chondromalacia for 7 years now. It's restricted me to not

> getting enough exercise to keep my heart in good condition. Nobody would do

> anything but debride the spots or inject synvisc. Those didn't return

> mobility.

>

> In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to

> get a correct diagnosis, and then I had a partial meniscectomy. The surgeon

> also documented grade IV chondromalacia in that knee. This was important

> since MRI's may or may not even show a chondromalacia lesion, much less the

> degree of damage.

>

> I learned about SaluCartilage and kept hoping the FDA would approve it

> here, since it's been in use in Europe for over 4 years & Canada for over 1,

> but you know the FDA...

>

> This year I got a torn lateral meniscus in the L knee & had it fixed.

> During the arthroscopy, the surgeon documented a few chondromalacia lesions

> (ones that I don't feel).

>

> Meanwhile I've developed another tear in the R lateral meniscus and I can

> feel tears in the medial menisci of both knees.

>

> Heart disease is rampant in my family. A couple of months ago I fell off a

> 3-step ladder, and my heart felt like maybe I was going to have a heart

> attack -- chest tight & short of bearth for about 15 min. Later that night

> the symptoms came back, this time with mild nausea. Next day, they came

> back. So I went to emergency. I checked out fine, no heart attack, but they

> kept me for observation overnight. That fall may be the best thing that ever

> happened to me.

>

> Now I was able to go to OS's and say " My menisci are falling apart, I have

> debilitating chondromalacia, I've done all the chondromalacia exercises, I

> can't get aerobic exercise, and when I fell I felt like I was going to have

> a heart attack, and pretty much every one of my 12 aunts & uncles on my

> mother's side had heart attacks or strokes, and now the cousins are

> beginning to die -- of massive heart attacks. Even though my articular

> cartilage is fine and I don't have arthritis, my inability to get enough

> exercise has made my heart weak and this is going to shorten my life. PLEASE

> do a TKR so I can get back to a normal life. " I still had to go through

> hoops, cry, beg, etc., but finally got a surgeon (the one who did my L

> partial meniscectomy) to agree to do it.

>

> I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to

> strengthen my legs, knees, and upper body to prepare for the post-op stuff.

>

> I jonied the Total Joint Replacement group and it's been invaluable

> -- post-op stories from people who've been there. Not all of them are good,

> but most are. I've concluded that it's best, if you have arthritis, NOT to

> wait till you've been in excruciating pain for years, but to get a new knee

> as soon as you can't use your natural one or rehab it.

>

> And that's my story.

>

> Ann

>

>

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Thanks.

Ann

Re: How to regain mobility

Good luck Ann and keep us posted onyuor progress.

Don

On 8/27/06, Ann <ruby2zdy@...> wrote:

>

> I've had chondromalacia for 7 years now. It's restricted me to not

> getting enough exercise to keep my heart in good condition. Nobody would do

> anything but debride the spots or inject synvisc. Those didn't return

> mobility.

>

> In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to

> get a correct diagnosis, and then I had a partial meniscectomy. The surgeon

> also documented grade IV chondromalacia in that knee. This was important

> since MRI's may or may not even show a chondromalacia lesion, much less the

> degree of damage.

>

> I learned about SaluCartilage and kept hoping the FDA would approve it

> here, since it's been in use in Europe for over 4 years & Canada for over 1,

> but you know the FDA...

>

> This year I got a torn lateral meniscus in the L knee & had it fixed.

> During the arthroscopy, the surgeon documented a few chondromalacia lesions

> (ones that I don't feel).

>

> Meanwhile I've developed another tear in the R lateral meniscus and I can

> feel tears in the medial menisci of both knees.

>

> Heart disease is rampant in my family. A couple of months ago I fell off a

> 3-step ladder, and my heart felt like maybe I was going to have a heart

> attack -- chest tight & short of bearth for about 15 min. Later that night

> the symptoms came back, this time with mild nausea. Next day, they came

> back. So I went to emergency. I checked out fine, no heart attack, but they

> kept me for observation overnight. That fall may be the best thing that ever

> happened to me.

>

> Now I was able to go to OS's and say " My menisci are falling apart, I have

> debilitating chondromalacia, I've done all the chondromalacia exercises, I

> can't get aerobic exercise, and when I fell I felt like I was going to have

> a heart attack, and pretty much every one of my 12 aunts & uncles on my

> mother's side had heart attacks or strokes, and now the cousins are

> beginning to die -- of massive heart attacks. Even though my articular

> cartilage is fine and I don't have arthritis, my inability to get enough

> exercise has made my heart weak and this is going to shorten my life. PLEASE

> do a TKR so I can get back to a normal life. " I still had to go through

> hoops, cry, beg, etc., but finally got a surgeon (the one who did my L

> partial meniscectomy) to agree to do it.

>

> I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to

> strengthen my legs, knees, and upper body to prepare for the post-op stuff.

>

> I jonied the Total Joint Replacement group and it's been invaluable

> -- post-op stories from people who've been there. Not all of them are good,

> but most are. I've concluded that it's best, if you have arthritis, NOT to

> wait till you've been in excruciating pain for years, but to get a new knee

> as soon as you can't use your natural one or rehab it.

>

> And that's my story.

>

> Ann

>

>

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Good luck Ann. I was wondering when they would ever recommend a TKR for you. I

am relieved your doctors have finally decided to do something.

I went in for a blood screen a week ago after having numerous bouts with pain

in both knees, right shoulder and right hip, and came back with a blood marker

that was positive for Auto-immune disease. While this marker alone doesn't

necessarily mean anything, my GP has me scheduled to see a rheumatologist. I

can't get in until 9/14.

Mike

MT

How to regain mobility

I've had chondromalacia for 7 years now. It's restricted me to not getting

enough exercise to keep my heart in good condition. Nobody would do anything but

debride the spots or inject synvisc. Those didn't return mobility.

In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to get

a correct diagnosis, and then I had a partial meniscectomy. The surgeon also

documented grade IV chondromalacia in that knee. This was important since MRI's

may or may not even show a chondromalacia lesion, much less the degree of

damage.

I learned about SaluCartilage and kept hoping the FDA would approve it here,

since it's been in use in Europe for over 4 years & Canada for over 1, but you

know the FDA...

This year I got a torn lateral meniscus in the L knee & had it fixed. During

the arthroscopy, the surgeon documented a few chondromalacia lesions (ones that

I don't feel).

Meanwhile I've developed another tear in the R lateral meniscus and I can feel

tears in the medial menisci of both knees.

Heart disease is rampant in my family. A couple of months ago I fell off a

3-step ladder, and my heart felt like maybe I was going to have a heart attack

-- chest tight & short of bearth for about 15 min. Later that night the symptoms

came back, this time with mild nausea. Next day, they came back. So I went to

emergency. I checked out fine, no heart attack, but they kept me for observation

overnight. That fall may be the best thing that ever happened to me.

Now I was able to go to OS's and say " My menisci are falling apart, I have

debilitating chondromalacia, I've done all the chondromalacia exercises, I can't

get aerobic exercise, and when I fell I felt like I was going to have a heart

attack, and pretty much every one of my 12 aunts & uncles on my mother's side

had heart attacks or strokes, and now the cousins are beginning to die -- of

massive heart attacks. Even though my articular cartilage is fine and I don't

have arthritis, my inability to get enough exercise has made my heart weak and

this is going to shorten my life. PLEASE do a TKR so I can get back to a normal

life. " I still had to go through hoops, cry, beg, etc., but finally got a

surgeon (the one who did my L partial meniscectomy) to agree to do it.

I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to

strengthen my legs, knees, and upper body to prepare for the post-op stuff.

I jonied the Total Joint Replacement group and it's been invaluable --

post-op stories from people who've been there. Not all of them are good, but

most are. I've concluded that it's best, if you have arthritis, NOT to wait till

you've been in excruciating pain for years, but to get a new knee as soon as you

can't use your natural one or rehab it.

And that's my story.

Ann

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Uh-oh. Well, I hope it's not RA. Good luck.

Here's what I don't understand about auto-immune diseases: People who have one

usually only have one. So what determines which one they have? If their body

is attacking itself, why is this attack restricted (usually) to one organ or

system?

So much research needed, so little time.

Again, good luck. I hope it's just a nutrient deficiency & you find the cure.

Ann

How to regain mobility

I've had chondromalacia for 7 years now. It's restricted me to not getting

enough exercise to keep my heart in good condition. Nobody would do anything but

debride the spots or inject synvisc. Those didn't return mobility.

In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to get

a correct diagnosis, and then I had a partial meniscectomy. The surgeon also

documented grade IV chondromalacia in that knee. This was important since MRI's

may or may not even show a chondromalacia lesion, much less the degree of

damage.

I learned about SaluCartilage and kept hoping the FDA would approve it here,

since it's been in use in Europe for over 4 years & Canada for over 1, but you

know the FDA...

This year I got a torn lateral meniscus in the L knee & had it fixed. During

the arthroscopy, the surgeon documented a few chondromalacia lesions (ones that

I don't feel).

Meanwhile I've developed another tear in the R lateral meniscus and I can feel

tears in the medial menisci of both knees.

Heart disease is rampant in my family. A couple of months ago I fell off a

3-step ladder, and my heart felt like maybe I was going to have a heart attack

-- chest tight & short of bearth for about 15 min. Later that night the symptoms

came back, this time with mild nausea. Next day, they came back. So I went to

emergency. I checked out fine, no heart attack, but they kept me for observation

overnight. That fall may be the best thing that ever happened to me.

Now I was able to go to OS's and say " My menisci are falling apart, I have

debilitating chondromalacia, I've done all the chondromalacia exercises, I can't

get aerobic exercise, and when I fell I felt like I was going to have a heart

attack, and pretty much every one of my 12 aunts & uncles on my mother's side

had heart attacks or strokes, and now the cousins are beginning to die -- of

massive heart attacks. Even though my articular cartilage is fine and I don't

have arthritis, my inability to get enough exercise has made my heart weak and

this is going to shorten my life. PLEASE do a TKR so I can get back to a normal

life. " I still had to go through hoops, cry, beg, etc., but finally got a

surgeon (the one who did my L partial meniscectomy) to agree to do it.

I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to

strengthen my legs, knees, and upper body to prepare for the post-op stuff.

I jonied the Total Joint Replacement group and it's been invaluable --

post-op stories from people who've been there. Not all of them are good, but

most are. I've concluded that it's best, if you have arthritis, NOT to wait till

you've been in excruciating pain for years, but to get a new knee as soon as you

can't use your natural one or rehab it.

And that's my story.

Ann

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Good luck! I hope it's a better end to a long story.

Philip - http://xcskiwinn.org/community/blogs/panmanphil

How to regain mobility

I've had chondromalacia for 7 years now. It's restricted me to not getting

enough exercise to keep my heart in good condition. Nobody would do anything

but debride the spots or inject synvisc. Those didn't return mobility.

In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to get

a correct diagnosis, and then I had a partial meniscectomy. The surgeon also

documented grade IV chondromalacia in that knee. This was important since MRI's

may or may not even show a chondromalacia lesion, much less the degree of

damage.

I learned about SaluCartilage and kept hoping the FDA would approve it here,

since it's been in use in Europe for over 4 years & Canada for over 1, but you

know the FDA...

This year I got a torn lateral meniscus in the L knee & had it fixed. During

the arthroscopy, the surgeon documented a few chondromalacia lesions (ones that

I don't feel).

Meanwhile I've developed another tear in the R lateral meniscus and I can feel

tears in the medial menisci of both knees.

Heart disease is rampant in my family. A couple of months ago I fell off a

3-step ladder, and my heart felt like maybe I was going to have a heart attack

-- chest tight & short of bearth for about 15 min. Later that night the

symptoms came back, this time with mild nausea. Next day, they came back. So I

went to emergency. I checked out fine, no heart attack, but they kept me for

observation overnight. That fall may be the best thing that ever happened to

me.

Now I was able to go to OS's and say " My menisci are falling apart, I have

debilitating chondromalacia, I've done all the chondromalacia exercises, I can't

get aerobic exercise, and when I fell I felt like I was going to have a heart

attack, and pretty much every one of my 12 aunts & uncles on my mother's side

had heart attacks or strokes, and now the cousins are beginning to die -- of

massive heart attacks. Even though my articular cartilage is fine and I don't

have arthritis, my inability to get enough exercise has made my heart weak and

this is going to shorten my life. PLEASE do a TKR so I can get back to a normal

life. " I still had to go through hoops, cry, beg, etc., but finally got a

surgeon (the one who did my L partial meniscectomy) to agree to do it.

I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to

strengthen my legs, knees, and upper body to prepare for the post-op stuff.

I jonied the Total Joint Replacement group and it's been invaluable --

post-op stories from people who've been there. Not all of them are good, but

most are. I've concluded that it's best, if you have arthritis, NOT to wait

till you've been in excruciating pain for years, but to get a new knee as soon

as you can't use your natural one or rehab it.

And that's my story.

Ann

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Share on other sites

Thanks.

Ann

How to regain mobility

I've had chondromalacia for 7 years now. It's restricted me to not getting

enough exercise to keep my heart in good condition. Nobody would do anything but

debride the spots or inject synvisc. Those didn't return mobility.

In 2002 I got a torn lateral meniscus in that knee ®. It took 2 years to get

a correct diagnosis, and then I had a partial meniscectomy. The surgeon also

documented grade IV chondromalacia in that knee. This was important since MRI's

may or may not even show a chondromalacia lesion, much less the degree of

damage.

I learned about SaluCartilage and kept hoping the FDA would approve it here,

since it's been in use in Europe for over 4 years & Canada for over 1, but you

know the FDA...

This year I got a torn lateral meniscus in the L knee & had it fixed. During

the arthroscopy, the surgeon documented a few chondromalacia lesions (ones that

I don't feel).

Meanwhile I've developed another tear in the R lateral meniscus and I can feel

tears in the medial menisci of both knees.

Heart disease is rampant in my family. A couple of months ago I fell off a

3-step ladder, and my heart felt like maybe I was going to have a heart attack

-- chest tight & short of bearth for about 15 min. Later that night the symptoms

came back, this time with mild nausea. Next day, they came back. So I went to

emergency. I checked out fine, no heart attack, but they kept me for observation

overnight. That fall may be the best thing that ever happened to me.

Now I was able to go to OS's and say " My menisci are falling apart, I have

debilitating chondromalacia, I've done all the chondromalacia exercises, I can't

get aerobic exercise, and when I fell I felt like I was going to have a heart

attack, and pretty much every one of my 12 aunts & uncles on my mother's side

had heart attacks or strokes, and now the cousins are beginning to die -- of

massive heart attacks. Even though my articular cartilage is fine and I don't

have arthritis, my inability to get enough exercise has made my heart weak and

this is going to shorten my life. PLEASE do a TKR so I can get back to a normal

life. " I still had to go through hoops, cry, beg, etc., but finally got a

surgeon (the one who did my L partial meniscectomy) to agree to do it.

I'm scheduled for Oct. 17. It gives me 2 months to do whatever I can do to

strengthen my legs, knees, and upper body to prepare for the post-op stuff.

I jonied the Total Joint Replacement group and it's been invaluable --

post-op stories from people who've been there. Not all of them are good, but

most are. I've concluded that it's best, if you have arthritis, NOT to wait till

you've been in excruciating pain for years, but to get a new knee as soon as you

can't use your natural one or rehab it.

And that's my story.

Ann

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