Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 I got custom ortho inserts. Didn't work. Nothing works for CP nothing. Well not yet anyway. I could provide a very long list of things I've tried to no avail. We'll see. > HI People > > New physio today. He picked up that Hayley was walking incorrectly > (feet wide apart like a duck), and he felt that was contributing > greatly to her CP, also because she has short/tight muscles from her > bum down to her ankles. > > So quite good info.. he felt that exercising and walking correctly > would be enough to cure her. > > Yay for that, I can go back to just worrying about the arthritis LOL!! > > I hadn't read anywhere on CP that walking with your feet not in line > with your knees could be a contributing factor. > > Donna > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Re: The physio today >I got custom ortho inserts. Didn't work. Nothing works for CP > nothing. Well not yet anyway. I could provide a very long list of > things I've tried to no avail. We'll see. The problem here is that Chondromalacia Patella is NOT a medically definable diagnosis. It is simply a convenient term that unschooled or uncaring doctors use to label all types of anterior knee pain. I'm sure orthotics help some CP sufferers. Orthotics did help alleviate pain in my feet caused by high arches and heavy labor, but also did nothing for MY CP. Mike MT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi Mike I am finding that too. I am finding the orthotics/just walking with her feet straight are helping Hayley in terms of walking around at school. It seems to make a difference. But other things cause the knee pain. The physiotherapist recommended 15 minutes on an exercise bike everyday. She did that wednesday night and was in severe pain afterwards to the next day. Once she gets her shoes on and walks with her feet straight, the pain does eventually settle down, but something else will set it off. Other times her knees just start hurting for no reason, they seem to hurt and night and morning mostly, and during the day she is mostly ok (not always though). Doesn't help when her brother kicks her on her knee. Got to try and remember to do the exercises when her knees aren't in severe pain. When she is in pain her walking style goes out the window and she walks with her feet wide apart and out like a duck and knees straight. I guess she should try keeping her shoes in until she goes to bed to see if that will make a difference. She definately seems to have less pain with her shoes on (just regular running shoes), but it might be a coincidence with the time of day she wears shoes. Quick question about bike riding.. so if the exercise bike caused her so much knee pain, is bike riding a problem with CP? Seems pretty awful to think she wont be able to ride her bike (real one) anymore. Donna Re: The physio today Re: The physio today >I got custom ortho inserts. Didn't work. Nothing works for CP > nothing. Well not yet anyway. I could provide a very long list of > things I've tried to no avail. We'll see. The problem here is that Chondromalacia Patella is NOT a medically definable diagnosis. It is simply a convenient term that unschooled or uncaring doctors use to label all types of anterior knee pain. I'm sure orthotics help some CP sufferers. Orthotics did help alleviate pain in my feet caused by high arches and heavy labor, but also did nothing for MY CP. Mike MT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 I don't agree that chondromalacia is not a medically definable diagnosis. It may be diagnosed wrong a lot of the time, but it's a definite condition -- spot damage of the articular cartilage due to injury, which can be a one-time injury or ongoing contact between the patella and the femur. Sometimes it's only identifiable by exploratory arthroscopy, unfortunately. It -- or the extent of it -- doesn't always show up on MRI. I think patello-femoral syndrome is not a medically definable diagnosis. It's what doctors say you have when they acknowledge that there's knee pain but don't now what it is. It should be thrown out of the medical books and doctors should try harder to find the cause of the pain. Ann Re: The physio today >I got custom ortho inserts. Didn't work. Nothing works for CP > nothing. Well not yet anyway. I could provide a very long list of > things I've tried to no avail. We'll see. The problem here is that Chondromalacia Patella is NOT a medically definable diagnosis. It is simply a convenient term that unschooled or uncaring doctors use to label all types of anterior knee pain. I'm sure orthotics help some CP sufferers. Orthotics did help alleviate pain in my feet caused by high arches and heavy labor, but also did nothing for MY CP. Mike MT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Donna, When I first start PT about 2 months ago, I was in pain riding a stationary bike. We would just do what I could do with out pain.. That was about 5 minutes on zero resistance. Over the past two months, through strengthening exercises, I have been able to increase my bike riding to 10 minutes on level 2. I know all bikes are different because my bike at home I now set on 4 and ride 10 minutes. Just start slow and gradually increase. My problem before I started PT was that I would increase the levels too fast and cause too much pain. Then I would set myself back as far as strengthening exercises. Don On 5/4/06, Donna Dwyer <donnadwyer@...> wrote: > > Hi Mike > > I am finding that too. I am finding the orthotics/just walking with her > feet straight are helping Hayley in terms of walking around at school. It > seems to make a difference. But other things cause the knee pain. The > physiotherapist recommended 15 minutes on an exercise bike everyday. She > did that wednesday night and was in severe pain afterwards to the next > day. > Once she gets her shoes on and walks with her feet straight, the pain does > eventually settle down, but something else will set it off. Other times > her > knees just start hurting for no reason, they seem to hurt and night and > morning mostly, and during the day she is mostly ok (not always though). > Doesn't help when her brother kicks her on her knee. > > Got to try and remember to do the exercises when her knees aren't in > severe > pain. When she is in pain her walking style goes out the window and she > walks with her feet wide apart and out like a duck and knees straight. > > I guess she should try keeping her shoes in until she goes to bed to see > if > that will make a difference. She definately seems to have less pain with > her shoes on (just regular running shoes), but it might be a coincidence > with the time of day she wears shoes. > > Quick question about bike riding.. so if the exercise bike caused her so > much knee pain, is bike riding a problem with CP? Seems pretty awful to > think she wont be able to ride her bike (real one) anymore. > > Donna > Re: The physio today > > > > Re: The physio today > > > >I got custom ortho inserts. Didn't work. Nothing works for CP > > nothing. Well not yet anyway. I could provide a very long list of > > things I've tried to no avail. We'll see. > > The problem here is that Chondromalacia Patella is NOT a medically > definable > diagnosis. It is simply a convenient term that unschooled or uncaring > doctors use to label all types of anterior knee pain. I'm sure > orthotics > help some CP sufferers. Orthotics did help alleviate pain in my feet > caused > by high arches and heavy labor, but also did nothing for MY CP. > > Mike > MT > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Donna, If 15 minutes on the bike is too hard on her, I would back it way down to 5 minutes, try it for a few weeks, add 2 mintues and so on. No reason she should suffer any more than she is!! Donna Dwyer <donnadwyer@...> wrote: Hi Mike I am finding that too. I am finding the orthotics/just walking with her feet straight are helping Hayley in terms of walking around at school. It seems to make a difference. But other things cause the knee pain. The physiotherapist recommended 15 minutes on an exercise bike everyday. She did that wednesday night and was in severe pain afterwards to the next day. Once she gets her shoes on and walks with her feet straight, the pain does eventually settle down, but something else will set it off. Other times her knees just start hurting for no reason, they seem to hurt and night and morning mostly, and during the day she is mostly ok (not always though). Doesn't help when her brother kicks her on her knee. Got to try and remember to do the exercises when her knees aren't in severe pain. When she is in pain her walking style goes out the window and she walks with her feet wide apart and out like a duck and knees straight. I guess she should try keeping her shoes in until she goes to bed to see if that will make a difference. She definately seems to have less pain with her shoes on (just regular running shoes), but it might be a coincidence with the time of day she wears shoes. Quick question about bike riding.. so if the exercise bike caused her so much knee pain, is bike riding a problem with CP? Seems pretty awful to think she wont be able to ride her bike (real one) anymore. Donna Re: The physio today Re: The physio today >I got custom ortho inserts. Didn't work. Nothing works for CP > nothing. Well not yet anyway. I could provide a very long list of > things I've tried to no avail. We'll see. The problem here is that Chondromalacia Patella is NOT a medically definable diagnosis. It is simply a convenient term that unschooled or uncaring doctors use to label all types of anterior knee pain. I'm sure orthotics help some CP sufferers. Orthotics did help alleviate pain in my feet caused by high arches and heavy labor, but also did nothing for MY CP. Mike MT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Good to know. My PT said her philosophy is do (whatever) exercise until you feel pain, and back off a notch for a week, then try upping it a notch. I hadn't been having any problems using the treadmill at 8% grade at 2.7 mph for half an hour until one day I did it with stiff-arch insoles (never used them again), but last time at the gym I also used the lying-down squat machine, only squatting to 90 degrees, but the weight must have been too much because my knee's been hurting ever since (couple of days). Sigh. I'm not sure there's enough time left in my life to build up to reasonable resistance. However, your advice is good & I'll try that. Ann Re: The physio today > > > >I got custom ortho inserts. Didn't work. Nothing works for CP > > nothing. Well not yet anyway. I could provide a very long list of > > things I've tried to no avail. We'll see. > > The problem here is that Chondromalacia Patella is NOT a medically > definable > diagnosis. It is simply a convenient term that unschooled or uncaring > doctors use to label all types of anterior knee pain. I'm sure > orthotics > help some CP sufferers. Orthotics did help alleviate pain in my feet > caused > by high arches and heavy labor, but also did nothing for MY CP. > > Mike > MT > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 Thanks Don The resistance on our exercise bike was set at 8, so no wonder she had so many troubles. I've put it down to 1 (lowest setting) and I'll get her to try 5 minutes today afterschool. Taking it very slow seems to be the only way. Thanks so much :-) Donna Re: The physio today > > > > Re: The physio today > > > >I got custom ortho inserts. Didn't work. Nothing works for CP > > nothing. Well not yet anyway. I could provide a very long list of > > things I've tried to no avail. We'll see. > > The problem here is that Chondromalacia Patella is NOT a medically > definable > diagnosis. It is simply a convenient term that unschooled or uncaring > doctors use to label all types of anterior knee pain. I'm sure > orthotics > help some CP sufferers. Orthotics did help alleviate pain in my feet > caused > by high arches and heavy labor, but also did nothing for MY CP. > > Mike > MT > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 Can you all really ride a bike even at level 1. I find I can't do anything that bends my knee. Walking the treadmill seems to be the only thing that I can do and even that hurts me. Should I be asking my orthopedic for an MRI. My pain is more lateral...near the outside of my knee. Hurts to bend my knee too much. The cho-pat band sometimes help but if I put it too tight seems to compress too much. Maybe my diagnosis isn't right. Donna Dwyer <donnadwyer@...> wrote: Thanks Don The resistance on our exercise bike was set at 8, so no wonder she had so many troubles. I've put it down to 1 (lowest setting) and I'll get her to try 5 minutes today afterschool. Taking it very slow seems to be the only way. Thanks so much :-) Donna Re: The physio today > > > > Re: The physio today > > > >I got custom ortho inserts. Didn't work. Nothing works for CP > > nothing. Well not yet anyway. I could provide a very long list of > > things I've tried to no avail. We'll see. > > The problem here is that Chondromalacia Patella is NOT a medically > definable > diagnosis. It is simply a convenient term that unschooled or uncaring > doctors use to label all types of anterior knee pain. I'm sure > orthotics > help some CP sufferers. Orthotics did help alleviate pain in my feet > caused > by high arches and heavy labor, but also did nothing for MY CP. > > Mike > MT > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 Actually, I was told to stay away from my treadmill. I was able to do the exercise bike (resistence set to almost nil) when the seat was HIGH up and my knee barely had to bend upwards at all from that position. As time went by, I could do it longer and longer. Now I'm using an elliptical (I sold my treadmill and used the money partly to buy the elliptical). I find it's much easier on my knees than the treadmill. Mind you, I'm still working up my time slowly ... -- Re: The physio today > > > > Re: The physio today > > > >I got custom ortho inserts. Didn't work. Nothing works for CP > > nothing. Well not yet anyway. I could provide a very long list of > > things I've tried to no avail. We'll see. > > The problem here is that Chondromalacia Patella is NOT a medically > definable > diagnosis. It is simply a convenient term that unschooled or uncaring > doctors use to label all types of anterior knee pain. I'm sure > orthotics > help some CP sufferers. Orthotics did help alleviate pain in my feet > caused > by high arches and heavy labor, but also did nothing for MY CP. > > Mike > MT > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 I find it amazing how different our pain is and how we are all diagnosed with c.p. I sold my eliptical and bought a top of the line treadmill, could not use the eliptical at all, left knee wanted to hyper extend not to mention constant pain while using it. I tried to make sure the treadmill I bought would not have any jerky motions and had as much give in the track as possible, to make it much easier for me since walking on cement for any period of time can bring me to tears. Caney <susan.caney@...> wrote: Actually, I was told to stay away from my treadmill. I was able to do the exercise bike (resistence set to almost nil) when the seat was HIGH up and my knee barely had to bend upwards at all from that position. As time went by, I could do it longer and longer. Now I'm using an elliptical (I sold my treadmill and used the money partly to buy the elliptical). I find it's much easier on my knees than the treadmill. Mind you, I'm still working up my time slowly ... -- Re: The physio today > > > > Re: The physio today > > > >I got custom ortho inserts. Didn't work. Nothing works for CP > > nothing. Well not yet anyway. I could provide a very long list of > > things I've tried to no avail. We'll see. > > The problem here is that Chondromalacia Patella is NOT a medically > definable > diagnosis. It is simply a convenient term that unschooled or uncaring > doctors use to label all types of anterior knee pain. I'm sure > orthotics > help some CP sufferers. Orthotics did help alleviate pain in my feet > caused > by high arches and heavy labor, but also did nothing for MY CP. > > Mike > MT > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 > > Quick question about bike riding.. so if the exercise bike caused her so > much knee pain, is bike riding a problem with CP? Seems pretty awful to > think she wont be able to ride her bike (real one) anymore. > As already discussed, make sure the resistance is zero to low to start. Also, make sure the fit is good. It sounds like an exercise bike, so I'm assuming it has toe clips or flat pedals. Wear the shoes with the orthotics in them. Seat height is really important too. Too high or too low places stress all over the knee. And if the seat moves forward or back, you want that just right as well. It's worth reading a little about for doing a quick fit/adjustment. (If it actually has clip-less pedals then I'd recommend going to a good bike store and having a fit done.) / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 I guess that each activity places its own particular loading stress on the Patella. My CP was triggered through cycling, therefor an eliptical machine reproduces the pain after a while, whereas I can keep going until my lungs burst on the treadmill. Runners might be fine on the stationary bike but in pain on the treadmill Cross-training or varying activity within your limits is surely a good thing. No matter how damaged the cartlage becomes, it still likes to be tested. I'm finding tennis to be quite helpful at the moment, mainly because it works on building those quick fire muscle fibres. Though an hour is my limit. Re: The physio today > > > >I got custom ortho inserts. Didn't work. Nothing works for CP > > nothing. Well not yet anyway. I could provide a very long list of > > things I've tried to no avail. We'll see. > > The problem here is that Chondromalacia Patella is NOT a medically > definable > diagnosis. It is simply a convenient term that unschooled or uncaring > doctors use to label all types of anterior knee pain. I'm sure > orthotics > help some CP sufferers. Orthotics did help alleviate pain in my feet > caused > by high arches and heavy labor, but also did nothing for MY CP. > > Mike > MT > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 I can only do exercise that requires knee-bending if I use knee tape. Have you looked into ITBS? There's a good ITBS group. Ann Re: The physio today > > > >I got custom ortho inserts. Didn't work. Nothing works for CP > > nothing. Well not yet anyway. I could provide a very long list of > > things I've tried to no avail. We'll see. > > The problem here is that Chondromalacia Patella is NOT a medically > definable > diagnosis. It is simply a convenient term that unschooled or uncaring > doctors use to label all types of anterior knee pain. I'm sure > orthotics > help some CP sufferers. Orthotics did help alleviate pain in my feet > caused > by high arches and heavy labor, but also did nothing for MY CP. > > Mike > MT > > > > > Quote Link to comment Share on other sites More sharing options...
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