Synvisc, Fulkerson, Patellar/Femural Replacement - OH MY!

[Guest guest]

Good Evening Everyone!

I was reading through the posts and realized I hadn't visited in a

while!

A couple of comments:

I think it was Rocco who was asking about the sharp pains...my knee

will pain directly within the joint at times and take my breath away -

is that what you're talking about? I have never found out why - and

as my OS explained - knee pain is a connundrum for doctors because

there are no nerve endings in the actual joint to cause pain. But he

knows it's there so that's a bonus - he doesn't treat me like I'm nuts!

What is a Fulkerson (sp?)? I've seen a couple of posts but have never

heard of this procedure.

Someone mentioned taking Celebrex - my hubby had to take it last

summer for a severe hand injury (darn - I'm allergic!) and he LOVED

it! Said that it took away all those little pains that come from

being in gravity!!

Synvisc/Supartz/Lateral - Been there, done that. I had my lateral

about 15 months ago and then did the Supartz shots last summer. No

relief in sight - but I'm the type of person who doesn't get relief

from cortisone either!

I'm scheduled for a patellar/femural replacement next Tuesday. I'm

VERY freaked!! I know that this will be a welcome relief when the

pain is done - and at least with this surgery I know there will be an

end to the pain (God willing).

The never-ending, no end in sight, pain of CP has done me in. I'm

surrendering!

Wish me luck, pray lots for me, and I'll let you know that all went

well!

Kim

[Guest guest]

Synvisc, Fulkerson, Patellar/Femural

Replacement - OH MY!

I have never found out why - and

> as my OS explained - knee pain is a connundrum for doctors because

> there are no nerve endings in the actual joint to cause pain. But he

> knows it's there so that's a bonus - he doesn't treat me like I'm nuts!

That's not the only part of the body where this is true. The intestinal

tract is the same thing. I went through the same hell with horific

intestinal pain until a gastroenterologist took me seriously seven years

ago.....but that is a whole different story .

>

> What is a Fulkerson (sp?)? I've seen a couple of posts but have never

> heard of this procedure.

It is a type of Tibial Turbicle Transfer (TTT) named after it's founder.

Basically they break your leg in an operation and reposition your patella

tendon;

http://www.wheelessonline.com/ortho/distal_realignment_for_patellar_subluxation

I understand there is at least a several week period of non-weight bearing

involved in the recouperation.

>

> Someone mentioned taking Celebrex - my hubby had to take it last

> summer for a severe hand injury (darn - I'm allergic!) and he LOVED

> it! Said that it took away all those little pains that come from

> being in gravity!!

Vioxx worked even better for me....until it started giving me splitting

headaches.

I'm the type of person who doesn't get relief

> from cortisone either!

I did.....for about 3 days .

> Wish me luck, pray lots for me, and I'll let you know that all went

You got it !

Mike

MT

[Guest guest]

Mike Bernhardt <mlbernhardt@...> wrote:

What is a Fulkerson (sp?)? I've seen a couple of posts but have never

> heard of this procedure.

It is a type of Tibial Turbicle Transfer (TTT) named after it's founder.

Basically they break your leg in an operation and reposition your patella

tendon;

OMG they break your leg?? Has anyone had this done? I am at the end of my

rope, holding on to a little knot I tied but cannot imagine going through this

procedure. Is it possible it sounds worse than it is???? Im in the process of

selling my 2 story home and buying a ranch style, this is as drastic of a step

as i am ready for, let alone a leg break!

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[Guest guest]

:

Thank you for my morning laugh! I had the exact same reaction when I

read what this was!!! Oh my gosh - I can't imagine that - and I'm

doing the replacement thing - with foreign materials that have to stay

in my body!!!

I can't imagine wanting this - but I tell you after the past 2 years,

it may seem plausible if it was the only thing....

Good luck selling your home - we are in the same position, but with 5

kids in school I'm so hesitant to move them.

Hugs to everyone - and I pray for everyone at least 2 minutes of pain

free existence!

Kim

[Guest guest]

Re: Synvisc, Fulkerson, Patellar/Femural

Replacement - OH MY!

Mike Bernhardt <mlbernhardt@...> wrote:

What is a Fulkerson (sp?)? I've seen a couple of posts but have never

> heard of this procedure.

It is a type of Tibial Turbicle Transfer (TTT) named after it's founder.

Basically they break your leg in an operation and reposition your patella

tendon;

OMG they break your leg?? Has anyone had this done? I am at the end of my

rope, holding on to a little knot I tied but cannot imagine going through

this procedure.

I'm sorry if I scared you. I have talked to a lot of people who were very

happy they had the proceedure done. The bone isn't necessarily even broke

all the way through (please see the link I posted). My biggest scare was

that I couldn't have both knees done at the same time. I would have to have

one done, go through a several month recovery time, have the other one done,

then another several month recovery time. All this without an assurance it

would even help. When I first went to a specialist the worst I thought I

was facing was a couple month recovery from a double TKR, not a totally life

changing experience.

Mike

MT

[Guest guest]

Re: Synvisc, Fulkerson, Patellar/Femural

Replacement - OH MY!

I do plan on reading the link you sent, but I have a 16 month old trying to

take over my keyboard and computer. As for scaring me, lol, I get scared

every morning when my feet hit the floor.....what is the pain going to be

like today!

I really feel for the young parents with this condition. When my knees

reached a crisis situation was a year after our youngest son got out of high

school. I remember a year ago after virtually giving up ever getting relief

when my wife and I were discussing whether or not we could get along with

just her pay check. What a dark time. I " think " I have turned the corner,

but there are no assurances.

Mike

MT

[Guest guest]

I knew I had ITBS, and I knew I had CP, but I got a new pain once, that was

inside my knee. Went to the OS. Without doing an MRI, he told me I had

arthritis. I knew it wasn't arthritis, so I asked for an X-ray. He does the

X-ray & says, OK, it's not arthritis, it's patellar tendinitis. I knew it

wasn't PT, it was INSIDE the knee and it hurt like hell. Tried several other

OS's, no help. Finally, after a couple of years of being run around, having to

wait months for appts, etc., I switched clinics. I picked my doctor out based

on his photo -- looked liked he had a sense of humor & would be a patient type

-- and I was right. And he did an MRI and told me I had a torn meniscus. Went

in, cut off the torn part, smoothed out some CP spots, and, although it didn't

help the CP, it took away that interior knee pain. In fact, I never had

post-surgery pain, could walk the next day w/o crutches.

Ann

Synvisc, Fulkerson, Patellar/Femural

Replacement - OH MY!

Good Evening Everyone!

I was reading through the posts and realized I hadn't visited in a

while!

A couple of comments:

I think it was Rocco who was asking about the sharp pains...my knee

will pain directly within the joint at times and take my breath away -

is that what you're talking about? I have never found out why - and

as my OS explained - knee pain is a connundrum for doctors because

there are no nerve endings in the actual joint to cause pain. But he

knows it's there so that's a bonus - he doesn't treat me like I'm nuts!

What is a Fulkerson (sp?)? I've seen a couple of posts but have never

heard of this procedure.

Someone mentioned taking Celebrex - my hubby had to take it last

summer for a severe hand injury (darn - I'm allergic!) and he LOVED

it! Said that it took away all those little pains that come from

being in gravity!!

Synvisc/Supartz/Lateral - Been there, done that. I had my lateral

about 15 months ago and then did the Supartz shots last summer. No

relief in sight - but I'm the type of person who doesn't get relief

from cortisone either!

I'm scheduled for a patellar/femural replacement next Tuesday. I'm

VERY freaked!! I know that this will be a welcome relief when the

pain is done - and at least with this surgery I know there will be an

end to the pain (God willing).

The never-ending, no end in sight, pain of CP has done me in. I'm

surrendering!

Wish me luck, pray lots for me, and I'll let you know that all went

well!

Kim

[Guest guest]

> What is a Fulkerson (sp?)? I've seen a couple of posts but have never

> heard of this procedure.

It is a type of Tibial Turbicle Transfer (TTT) named after it's founder.

Basically they break your leg in an operation and reposition your patella

tendon;

Well, I wouldn't go so far as to say they break your leg. They saw off the

tibial tubercle & move it over. Isn't that right? I haven't had it done (and I

wouldn't -- I think it the kneecap is subluxing, the problem lies with some

other structure: tight lateral retinaculum, loose medial retinaculum, shallow

trochlea, too-tight vastus lateralis and/or lateral ham -- I think a TTT is just

too radical -- and irreversible.

I think a lot of surgery is still in its infancy, and that includes the knee.

Ann

http://www.wheelessonline.com/ortho/distal_realignment_for_patellar_subluxation

I understand there is at least a several week period of non-weight bearing

involved in the recouperation.

>

> Someone mentioned taking Celebrex - my hubby had to take it last

> summer for a severe hand injury (darn - I'm allergic!) and he LOVED

> it! Said that it took away all those little pains that come from

> being in gravity!!

Vioxx worked even better for me....until it started giving me splitting

headaches.

I'm the type of person who doesn't get relief

> from cortisone either!

I did.....for about 3 days .

> Wish me luck, pray lots for me, and I'll let you know that all went

You got it !

Mike

MT