Re: Please help-ONLY 25 YEARS OLD!

[Guest guest]

Hannah, I know how you feel. I just turned 25 Monday, and I was diagnosed

with CP at 23. I also have R. arthritis which causes me terrible pain. It is

very hard to get through some days. My family helps in a lot of ways my

husband helps me get around when he's at home. It's almost like your spirit is

broken, you watch everyone running round, playing with their children, having

fun

and you'll always be on the sidelines. People say you should feel lucky your

not without a limb or living out your time with a fatal disease but, some days

it's hard to take not being able to do anything and so young, people don't

understand that part of it. It makes you angry, it makes you sad. There's

times when I feel pretty good and try to get out and about a bit but there's a

lot

of days where I can barely stand on my own, I can hardly hold a glass to

drink or a fork to eat because of my hands drawing up or just being weak. I

don't

know how to overcome the feelings you have as I have not overcome them

myself. I wish I could, it makes things harder, feeling useless overwhelmed by

pain. But be strong, I wish I had words of wisdom but all I have is an offer of

friendship, if you need to talk email me, lately I haven't been at my computer

but it's upstairs at my home and I haven't been able to get up the steps the

last few days. Hang in there girl, Manda

[Guest guest]

> Hannah, I know how you feel. I just turned 25 Monday, and I was

diagnosed

> with CP at 23. I also have R. arthritis which causes me terrible

pain. It is

> very hard to get through some days. My family helps in a lot of

ways my

> husband helps me get around when he's at home. It's almost like

your spirit is

> broken, you watch everyone running round, playing with their

children, having fun

> and you'll always be on the sidelines. People say you should feel

lucky your

> not without a limb or living out your time with a fatal disease

but, some days

> it's hard to take not being able to do anything and so young,

people don't

> understand that part of it. It makes you angry, it makes you

sad. There's

> times when I feel pretty good and try to get out and about a bit

but there's a lot

> of days where I can barely stand on my own, I can hardly hold a

glass to

> drink or a fork to eat because of my hands drawing up or just

being weak. I don't

> know how to overcome the feelings you have as I have not overcome

them

> myself. I wish I could, it makes things harder, feeling useless

overwhelmed by

> pain. But be strong, I wish I had words of wisdom but all I have

is an offer of

> friendship, if you need to talk email me, lately I haven't been at

my computer

> but it's upstairs at my home and I haven't been able to get up the

steps the

> last few days. Hang in there girl, Manda

>

>

>

[Guest guest]

It all started at 23 for me, but it became disabling at 25. The

physcial therapy doesn't seem to be helping. How can it cure

arthritis? Isn't that what CP is? If PT worked, wouldn't we all be

better by now?

I can hardly do my job anymore. Everyone tells me to stop frowning,

but when I'm in pain each step, I can't smile! I want to scream at

anyone who takes long at a cash register, or cuts in front of me in

line, or even gets on the elevator to push another floor because it

means so much pain for me. All my money goes to cab rides to my pt,

huge parking fees to drive to the city now, gas, meds... and no one

understands. I think I want to give up soon and accept living as a

disabled person- car stickers, wheelchairs, whatever it entails.

> > Hannah, I know how you feel. I just turned 25 Monday, and I was

> diagnosed

> > with CP at 23. I also have R. arthritis which causes me

terrible

> pain. It is

> > very hard to get through some days. My family helps in a lot of

> ways my

> > husband helps me get around when he's at home. It's almost like

> your spirit is

> > broken, you watch everyone running round, playing with their

> children, having fun

> > and you'll always be on the sidelines. People say you should

feel

> lucky your

> > not without a limb or living out your time with a fatal disease

> but, some days

> > it's hard to take not being able to do anything and so young,

> people don't

> > understand that part of it. It makes you angry, it makes you

> sad. There's

> > times when I feel pretty good and try to get out and about a bit

> but there's a lot

> > of days where I can barely stand on my own, I can hardly hold a

> glass to

> > drink or a fork to eat because of my hands drawing up or just

> being weak. I don't

> > know how to overcome the feelings you have as I have not

overcome

> them

> > myself. I wish I could, it makes things harder, feeling useless

> overwhelmed by

> > pain. But be strong, I wish I had words of wisdom but all I

have

> is an offer of

> > friendship, if you need to talk email me, lately I haven't been

at

> my computer

> > but it's upstairs at my home and I haven't been able to get up

the

> steps the

> > last few days. Hang in there girl, Manda

> >

> >

> >

[Guest guest]

Have you tried McConnell taping?

Ann

Re: Please help-ONLY 25 YEARS OLD!

It all started at 23 for me, but it became disabling at 25. The

physcial therapy doesn't seem to be helping. How can it cure

arthritis? Isn't that what CP is? If PT worked, wouldn't we all be

better by now?

I can hardly do my job anymore. Everyone tells me to stop frowning,

but when I'm in pain each step, I can't smile! I want to scream at

anyone who takes long at a cash register, or cuts in front of me in

line, or even gets on the elevator to push another floor because it

means so much pain for me. All my money goes to cab rides to my pt,

huge parking fees to drive to the city now, gas, meds... and no one

understands. I think I want to give up soon and accept living as a

disabled person- car stickers, wheelchairs, whatever it entails.

> > Hannah, I know how you feel. I just turned 25 Monday, and I was

> diagnosed

> > with CP at 23. I also have R. arthritis which causes me

terrible

> pain. It is

> > very hard to get through some days. My family helps in a lot of

> ways my

> > husband helps me get around when he's at home. It's almost like

> your spirit is

> > broken, you watch everyone running round, playing with their

> children, having fun

> > and you'll always be on the sidelines. People say you should

feel

> lucky your

> > not without a limb or living out your time with a fatal disease

> but, some days

> > it's hard to take not being able to do anything and so young,

> people don't

> > understand that part of it. It makes you angry, it makes you

> sad. There's

> > times when I feel pretty good and try to get out and about a bit

> but there's a lot

> > of days where I can barely stand on my own, I can hardly hold a

> glass to

> > drink or a fork to eat because of my hands drawing up or just

> being weak. I don't

> > know how to overcome the feelings you have as I have not

overcome

> them

> > myself. I wish I could, it makes things harder, feeling useless

> overwhelmed by

> > pain. But be strong, I wish I had words of wisdom but all I

have

> is an offer of

> > friendship, if you need to talk email me, lately I haven't been

at

> my computer

> > but it's upstairs at my home and I haven't been able to get up

the

> steps the

> > last few days. Hang in there girl, Manda

> >

> >

> >

[Guest guest]

My therapist did that tuesday & today. On the feet, right? He said

this would show if orthodics would be good for me. The first day I

thought it helped, but I don't know if that was just a good day

anyway. I'll see what happens today. Thanks.

> > > Hannah, I know how you feel. I just turned 25 Monday, and I

was

> > diagnosed

> > > with CP at 23. I also have R. arthritis which causes me

> terrible

> > pain. It is

> > > very hard to get through some days. My family helps in a

lot of

> > ways my

> > > husband helps me get around when he's at home. It's almost

like

> > your spirit is

> > > broken, you watch everyone running round, playing with their

> > children, having fun

> > > and you'll always be on the sidelines. People say you

should

> feel

> > lucky your

> > > not without a limb or living out your time with a fatal

disease

> > but, some days

> > > it's hard to take not being able to do anything and so

young,

> > people don't

> > > understand that part of it. It makes you angry, it makes

you

> > sad. There's

> > > times when I feel pretty good and try to get out and about a

bit

> > but there's a lot

> > > of days where I can barely stand on my own, I can hardly

hold a

> > glass to

> > > drink or a fork to eat because of my hands drawing up or

just

> > being weak. I don't

> > > know how to overcome the feelings you have as I have not

> overcome

> > them

> > > myself. I wish I could, it makes things harder, feeling

useless

> > overwhelmed by

> > > pain. But be strong, I wish I had words of wisdom but all I

> have

> > is an offer of

> > > friendship, if you need to talk email me, lately I haven't

been

> at

> > my computer

> > > but it's upstairs at my home and I haven't been able to get

up

> the

> > steps the

> > > last few days. Hang in there girl, Manda

> > >

> > >

> > >

[Guest guest]

No, on the knees. You push the kneecap medially (assuming your problem is

lateral pain) and tape it down. . I can tell you how, or you can ask your PT

person. Everyone's different, needs to tape for different effects. Special

tape that hold through sweat. White " sports tape " at drugstore won't hold.

In a hurry. More later if you're interest.

Ann

Re: Please help-ONLY 25 YEARS OLD!

My therapist did that tuesday & today. On the feet, right? He said

this would show if orthodics would be good for me. The first day I

thought it helped, but I don't know if that was just a good day

anyway. I'll see what happens today. Thanks.

> > > Hannah, I know how you feel. I just turned 25 Monday, and I

was

> > diagnosed

> > > with CP at 23. I also have R. arthritis which causes me

> terrible

> > pain. It is

> > > very hard to get through some days. My family helps in a

lot of

> > ways my

> > > husband helps me get around when he's at home. It's almost

like

> > your spirit is

> > > broken, you watch everyone running round, playing with their

> > children, having fun

> > > and you'll always be on the sidelines. People say you

should

> feel

> > lucky your

> > > not without a limb or living out your time with a fatal

disease

> > but, some days

> > > it's hard to take not being able to do anything and so

young,

> > people don't

> > > understand that part of it. It makes you angry, it makes

you

> > sad. There's

> > > times when I feel pretty good and try to get out and about a

bit

> > but there's a lot

> > > of days where I can barely stand on my own, I can hardly

hold a

> > glass to

> > > drink or a fork to eat because of my hands drawing up or

just

> > being weak. I don't

> > > know how to overcome the feelings you have as I have not

> overcome

> > them

> > > myself. I wish I could, it makes things harder, feeling

useless

> > overwhelmed by

> > > pain. But be strong, I wish I had words of wisdom but all I

> have

> > is an offer of

> > > friendship, if you need to talk email me, lately I haven't

been

> at

> > my computer

> > > but it's upstairs at my home and I haven't been able to get

up

> the

> > steps the

> > > last few days. Hang in there girl, Manda

> > >

> > >

> > >

[Guest guest]

Taping your feet is different than the mc connel taping.

They are taping your feet into a position that they are suppose

to be in.

My podiatrist did this, and I could tell right away it

was working. I was able to walk without shoes and

not be in pain, with every step I took.

I will say, once the tapes starts to slip, you loose the

benefits. I think the tape only stayed in place for

like 1-2 days. Then I could tell it moved. I think I left

it on longer, then had to remove it.

How well the tape stays on probably depends on how active you are,

and how much your foot likes to move around. Pay attention

to the type of support it gives you, and how your foot

is " supported " with the tape, later if they do the

orthodics, thats " probably " the support you want then.

This will of course depend on how well of a taping job

they did. Did they put wax on it, so the edges don't

stick to things, and after you shower, etc your suppose

to baby powder the area to help absorb the moisture from the tape.

This tape is different than the mc connel tape.

I would also advise asking the people to evaluate the

type of tennis (workout) shoe you are wearing.

They don't always do this unless you ask. I was

not wearing an appropriate shoe. Getting the right

stability shoe really helped me out. They might be

able to recommend a shoe specifically, or a couple brands,

and possibly a store, where they help you fit them better

than big mall stores. Don't just goto the store, you want

to find out from the doc, or your pt what the recommended shoe

is for your particular issue. If you are getting orthodics, you

have to keep that in mind.

I haven't had problems fitting my orthodics into a workout shoe,

however fitting them into dress shoes is another matter.

To fit the orthodic in the shoe, you take out the cushion

material and stick the orthodic in. I've never had a store

tell me I couldn't take the cushion out to try on a shoe, but

who knows about all stores.

Ann, mentioned mc connel taping. This is where they tape

your knee, and it helps the knee cap from moving, so it

keeps the knee cap in place. You have to ask about this too. THey

can train you to do this on your own. You have to ask

to be trained. If it does help, it helped me, then learning

to do it yourself, can mean the difference between being

able to workout, and be more pain free or stuck at home on the

couch.

Another thing to ask about is how ofter this person

does orthodics, does foot tapings, etc. If they are

doing this every day and have lots of experience you can

more likely assume they " really " are doing this correctly.

I had a bad experience with my pt place, it was obvious to

me they were very in-experience at doing orthodics, and adjusting

them. It really delayed my healing with those original set

of orthodics, don't be afraid to goto a podiatrist, or someone

else if you don't think they have appropriate experience.

My podiatrist probably does 500 every couple months, and has

literally done thousands of them. So, he has worked with people

who have all kinds of foot issues, worked with people who like

to workout, and exercise, more athletic people, couch potatoes,

etc. If you do get orthodics, remember they can be adjusted

if they aren't a perfect " support " the first try.

Of course it does take some patients when breaking in the

orthodics.

Best of luck,

Connie

> > Have you tried McConnell taping?

> >

> > Ann

[Guest guest]

Re: Re: Please help-ONLY 25 YEARS OLD!

> My understanding has always been that technically CP

> isn't arthritis, but can eventually lead to arthritis.

You must be talking about osteoarthritis. Actually, CP is more true

arthritis than osteoarthritis, even though the largest percentage of

" arthritis " cases are in fact osteoarthritis. Arthritis means an

inflammation of the joint. Many if not most osteoarthritis cases don't in

fact come with inflammation. Gout, CP, and reumatoid arthritis are

generally more a true arthritis than osteoarthritis. Now this may mean

little to most of the members of this group, but it is a little something I

have picked up in my extensive research of CP in the last year. I have two

of the true types of arthritis, CP and gout, and have been tested

extensively to make sure I don't have in fact reumatoid arthritis.

I am also saying this so no one gets caught up in the same mistake a lot of

physicians do. I have had physicians seem to try and minimize the severity

of CP because it doesn't show up on X-rays like osteoarthritis. The fact of

the matter is, a severe case of CP can be much more painful than a severe

case of osteoarthritis on an X-ray. In fact some people can have a severe

case of osteoarthritis diagnosed by X-ray and have very little pain at all.

Mike

[Guest guest]

Regarding having CP and Gout, are these two conditons interrelated? On the

other hand are they two distinct, separate problems for you?

[Guest guest]

Re: Re: Please help-ONLY 25 YEARS OLD!

> Regarding having CP and Gout, are these two conditons interrelated? On the

> other hand are they two distinct, separate problems for you?

They are two seperate things, although interestingly enough, I have had gout

in my right knee about 5 years ago. I have taken allopurinol for the last 5

years to keep the gout in check. When I was diagnosed with both gout and

CP, they did blood tests to see if I had reumatoid arthritis, something my

father has. Gout is also something that can be diagnosed with a blood test.

ly, I would be happy to deal with the pain of osteoarthritis than

either gout or CP. Scientifically, none of them are connected, but maybe

there will be a connection found in the future. The point was correctly

made that CP can lead to osteoarthritis.

Gout is an inflammation of joints caused by a buildup of uremic crystals in

the soft tissue surrounding the joint. CP is an inflammation of the

cartilage itself in the kneecap joint.

Mike

MT

>

>

>

[Guest guest]

:

What do you mean CP is more " true arthritis " than osteoarthritis????? Please

define " true arthritis " .

Ann

Re: Re: Please help-ONLY 25 YEARS OLD!

> My understanding has always been that technically CP

> isn't arthritis, but can eventually lead to arthritis.

You must be talking about osteoarthritis. Actually, CP is more true

arthritis than osteoarthritis, even though the largest percentage of

" arthritis " cases are in fact osteoarthritis. Arthritis means an

inflammation of the joint. Many if not most osteoarthritis cases don't in

fact come with inflammation. Gout, CP, and reumatoid arthritis are

generally more a true arthritis than osteoarthritis. Now this may mean

little to most of the members of this group, but it is a little something I

have picked up in my extensive research of CP in the last year. I have two

of the true types of arthritis, CP and gout, and have been tested

extensively to make sure I don't have in fact reumatoid arthritis.

I am also saying this so no one gets caught up in the same mistake a lot of

physicians do. I have had physicians seem to try and minimize the severity

of CP because it doesn't show up on X-rays like osteoarthritis. The fact of

the matter is, a severe case of CP can be much more painful than a severe

case of osteoarthritis on an X-ray. In fact some people can have a severe

case of osteoarthritis diagnosed by X-ray and have very little pain at all.

Mike

[Guest guest]

I was told by my doc that CP is " arthritis related " and that it

causes arthritis later in life with the need for knee cap

replacement... I'm confused about it. If I do have CP, I don't

really understand what it means. If there are no measurements, no

tests, how can they be sure when someone has it? Does CP just

mean " mysterious, but crippling, knee pain? "

Is it really curable? If I realign my body, will it really stop? My

PT guy taped my feet pretty well, but just as a trial. He said there

are so many causes, from the feet up to the hips and he watches me

move and tries to work on all the weaknesses and misalignments in my

body. But it's all so subtle, I'm not sure it will work. Yeah, my

hips were very weak, I could see and feel that with the excercises.

Now, I have stronger hips, but that doesn't change my knee pain.

I'm getting a second opinion to make sure CP is what I have and that

I'm doing all I can. I trust the doc, but he told me in seconds and

Temple Health is one of the best in the nation, so I want to see

what they have to say about my " pain that shows no evidence. "

> :

>

> What do you mean CP is more " true arthritis " than

osteoarthritis????? Please define " true arthritis " .

>

> Ann

>

>

> Re: Re: Please help-ONLY 25

YEARS OLD!

>

>

> > My understanding has always been that technically CP

> > isn't arthritis, but can eventually lead to arthritis.

>

> You must be talking about osteoarthritis. Actually, CP is more

true

> arthritis than osteoarthritis, even though the largest

percentage of

> " arthritis " cases are in fact osteoarthritis. Arthritis means an

> inflammation of the joint. Many if not most osteoarthritis

cases don't in

> fact come with inflammation. Gout, CP, and reumatoid arthritis

are

> generally more a true arthritis than osteoarthritis. Now this

may mean

> little to most of the members of this group, but it is a little

something I

> have picked up in my extensive research of CP in the last year.

I have two

> of the true types of arthritis, CP and gout, and have been tested

> extensively to make sure I don't have in fact reumatoid

arthritis.

>

> I am also saying this so no one gets caught up in the same

mistake a lot of

> physicians do. I have had physicians seem to try and minimize

the severity

> of CP because it doesn't show up on X-rays like osteoarthritis.

The fact of

> the matter is, a severe case of CP can be much more painful than

a severe

> case of osteoarthritis on an X-ray. In fact some people can

have a severe

> case of osteoarthritis diagnosed by X-ray and have very little

pain at all.

>

> Mike

>

>

>

>

[Guest guest]

Have you had an MRI done? CP may (or may not) show up on MRI.

May docs lump CP in with arthritis. I don't believe they're the same. See my

other post. CP is damage cause by the rubbing of two bones together (kneecap &

femur), probably due to malalignment. (Finding the cause of the malalignment is

a real challenge.) Arthritis is a " natural " progressive softening and wearing

away of the bone and is not restricted to the small area that CP is.

Ann

I was told by my doc that CP is " arthritis related " and that it

causes arthritis later in life with the need for knee cap

replacement... I'm confused about it. If I do have CP, I don't

really understand what it means. If there are no measurements, no

tests, how can they be sure when someone has it? Does CP just

mean " mysterious, but crippling, knee pain? "

Is it really curable? If I realign my body, will it really stop? My

PT guy taped my feet pretty well, but just as a trial. He said there

are so many causes, from the feet up to the hips and he watches me

move and tries to work on all the weaknesses and misalignments in my

body. But it's all so subtle, I'm not sure it will work. Yeah, my

hips were very weak, I could see and feel that with the excercises.

Now, I have stronger hips, but that doesn't change my knee pain.

I'm getting a second opinion to make sure CP is what I have and that

I'm doing all I can. I trust the doc, but he told me in seconds and

Temple Health is one of the best in the nation, so I want to see

what they have to say about my " pain that shows no evidence. "

> :

>

> What do you mean CP is more " true arthritis " than

osteoarthritis????? Please define " true arthritis " .

>

> Ann

>

>

> Re: Re: Please help-ONLY 25

YEARS OLD!

>

>

> > My understanding has always been that technically CP

> > isn't arthritis, but can eventually lead to arthritis.

>

> You must be talking about osteoarthritis. Actually, CP is more

true

> arthritis than osteoarthritis, even though the largest

percentage of

> " arthritis " cases are in fact osteoarthritis. Arthritis means an

> inflammation of the joint. Many if not most osteoarthritis

cases don't in

> fact come with inflammation. Gout, CP, and reumatoid arthritis

are

> generally more a true arthritis than osteoarthritis. Now this

may mean

> little to most of the members of this group, but it is a little

something I

> have picked up in my extensive research of CP in the last year.

I have two

> of the true types of arthritis, CP and gout, and have been tested

> extensively to make sure I don't have in fact reumatoid

arthritis.

>

> I am also saying this so no one gets caught up in the same

mistake a lot of

> physicians do. I have had physicians seem to try and minimize

the severity

> of CP because it doesn't show up on X-rays like osteoarthritis.

The fact of

> the matter is, a severe case of CP can be much more painful than

a severe

> case of osteoarthritis on an X-ray. In fact some people can

have a severe

> case of osteoarthritis diagnosed by X-ray and have very little

pain at all.

>

> Mike

>

>

>

>

[Guest guest]

My employer makes knee braces for osteoarthritis. Here's what I've

learned at work.

Osteoarthritis (DJD) of the knee can occur in any of the three

compartments - medial, lateral, or patellofemoral. For example,

after the meniscus is removed, osteoarthritis of the femur and tibia

of that compartment often occurs because the protective meniscus is

gone.

Chondromalacia is technically a softening of the cartilage, which

can lead to osteoarthritis if the mechanical factors are not

corrected. Like osteoarthritis, chondromalacia can occur in any of

the three knee compartments - medial, lateral, or patellofemoral. In

our group, when we say " chondromalacia " , we mean damage to the

patellofemoral cartilage. But chondromalacia (progressing to

osteoarthritis) of the other compartments is extremely common and is

why I have a job...

> > :

> >

> > What do you mean CP is more " true arthritis " than

> osteoarthritis????? Please define " true arthritis " .

> >

> > Ann

> >

> >

> > Re: Re: Please help-ONLY

25

> YEARS OLD!

> >

> >

> > > My understanding has always been that technically CP

> > > isn't arthritis, but can eventually lead to arthritis.

> >

> > You must be talking about osteoarthritis. Actually, CP is

more

> true

> > arthritis than osteoarthritis, even though the largest

> percentage of

> > " arthritis " cases are in fact osteoarthritis. Arthritis

means an

> > inflammation of the joint. Many if not most osteoarthritis

> cases don't in

> > fact come with inflammation. Gout, CP, and reumatoid

arthritis

> are

> > generally more a true arthritis than osteoarthritis. Now

this

> may mean

> > little to most of the members of this group, but it is a

little

> something I

> > have picked up in my extensive research of CP in the last

year.

> I have two

> > of the true types of arthritis, CP and gout, and have been

tested

> > extensively to make sure I don't have in fact reumatoid

> arthritis.

> >

> > I am also saying this so no one gets caught up in the same

> mistake a lot of

> > physicians do. I have had physicians seem to try and

minimize

> the severity

> > of CP because it doesn't show up on X-rays like

osteoarthritis.

> The fact of

> > the matter is, a severe case of CP can be much more painful

than

> a severe

> > case of osteoarthritis on an X-ray. In fact some people can

> have a severe

> > case of osteoarthritis diagnosed by X-ray and have very

little

> pain at all.

> >

> > Mike

> >

> >

> >

> >

[Guest guest]

Debby -- chondromalacia in the other compartments -- what causes it?

Ann

Re: Re: Please help-ONLY

25

> YEARS OLD!

> >

> >

> > > My understanding has always been that technically CP

> > > isn't arthritis, but can eventually lead to arthritis.

> >

> > You must be talking about osteoarthritis. Actually, CP is

more

> true

> > arthritis than osteoarthritis, even though the largest

> percentage of

> > " arthritis " cases are in fact osteoarthritis. Arthritis

means an

> > inflammation of the joint. Many if not most osteoarthritis

> cases don't in

> > fact come with inflammation. Gout, CP, and reumatoid

arthritis

> are

> > generally more a true arthritis than osteoarthritis. Now

this

> may mean

> > little to most of the members of this group, but it is a

little

> something I

> > have picked up in my extensive research of CP in the last

year.

> I have two

> > of the true types of arthritis, CP and gout, and have been

tested

> > extensively to make sure I don't have in fact reumatoid

> arthritis.

> >

> > I am also saying this so no one gets caught up in the same

> mistake a lot of

> > physicians do. I have had physicians seem to try and

minimize

> the severity

> > of CP because it doesn't show up on X-rays like

osteoarthritis.

> The fact of

> > the matter is, a severe case of CP can be much more painful

than

> a severe

> > case of osteoarthritis on an X-ray. In fact some people can

> have a severe

> > case of osteoarthritis diagnosed by X-ray and have very

little

> pain at all.

> >

> > Mike

> >

> >

> >

> >

[Guest guest]

Re: Re: Please help-ONLY 25 YEARS

OLD!

>

>

> > My understanding has always been that technically CP

> > isn't arthritis, but can eventually lead to arthritis.

>

> You must be talking about osteoarthritis. Actually, CP is more true

> arthritis than osteoarthritis, even though the largest percentage of

> " arthritis " cases are in fact osteoarthritis. Arthritis means an

> inflammation of the joint. Many if not most osteoarthritis cases don't

in

> fact come with inflammation. Gout, CP, and reumatoid arthritis are

> generally more a true arthritis than osteoarthritis. Now this may mean

> little to most of the members of this group, but it is a little

something I

> have picked up in my extensive research of CP in the last year. I have

two

> of the true types of arthritis, CP and gout, and have been tested

> extensively to make sure I don't have in fact reumatoid arthritis.

>

> I am also saying this so no one gets caught up in the same mistake a lot

of

> physicians do. I have had physicians seem to try and minimize the

severity

> of CP because it doesn't show up on X-rays like osteoarthritis. The

fact of

> the matter is, a severe case of CP can be much more painful than a

severe

> case of osteoarthritis on an X-ray. In fact some people can have a

severe

> case of osteoarthritis diagnosed by X-ray and have very little pain at

all.

>

> Mike

>

>

>

>

[Guest guest]

I'm sorry, but I can't agree with that article at all. Rheumatic diseases are

autoimmune diseases. There are blood tests that will show high levels of

various things, like sed rate and anti-nuclear antibodies and rheumatoid factor.

Osteoarthritis is not a rheumatic disease. I can't tell who wrote the article.

..It could have been anyone. The way it's written is confusing.

Ann

Re: Re: Please help-ONLY 25 YEARS

OLD!

>

>

> > My understanding has always been that technically CP

> > isn't arthritis, but can eventually lead to arthritis.

>

> You must be talking about osteoarthritis. Actually, CP is more true

> arthritis than osteoarthritis, even though the largest percentage of

> " arthritis " cases are in fact osteoarthritis. Arthritis means an

> inflammation of the joint. Many if not most osteoarthritis cases don't

in

> fact come with inflammation. Gout, CP, and reumatoid arthritis are

> generally more a true arthritis than osteoarthritis. Now this may mean

> little to most of the members of this group, but it is a little

something I

> have picked up in my extensive research of CP in the last year. I have

two

> of the true types of arthritis, CP and gout, and have been tested

> extensively to make sure I don't have in fact reumatoid arthritis.

>

> I am also saying this so no one gets caught up in the same mistake a lot

of

> physicians do. I have had physicians seem to try and minimize the

severity

> of CP because it doesn't show up on X-rays like osteoarthritis. The

fact of

> the matter is, a severe case of CP can be much more painful than a

severe

> case of osteoarthritis on an X-ray. In fact some people can have a

severe

> case of osteoarthritis diagnosed by X-ray and have very little pain at

all.

>

> Mike

>

>

>

>

[Guest guest]

Re: Re: Please help-ONLY 25

YEARS

> OLD!

> >

> >

> > > My understanding has always been that technically CP

> > > isn't arthritis, but can eventually lead to arthritis.

> >

> > You must be talking about osteoarthritis. Actually, CP is more true

> > arthritis than osteoarthritis, even though the largest percentage of

> > " arthritis " cases are in fact osteoarthritis. Arthritis means an

> > inflammation of the joint. Many if not most osteoarthritis cases

don't

> in

> > fact come with inflammation. Gout, CP, and reumatoid arthritis are

> > generally more a true arthritis than osteoarthritis. Now this may

mean

> > little to most of the members of this group, but it is a little

> something I

> > have picked up in my extensive research of CP in the last year. I

have

> two

> > of the true types of arthritis, CP and gout, and have been tested

> > extensively to make sure I don't have in fact reumatoid arthritis.

> >

> > I am also saying this so no one gets caught up in the same mistake a

lot

> of

> > physicians do. I have had physicians seem to try and minimize the

> severity

> > of CP because it doesn't show up on X-rays like osteoarthritis. The

> fact of

> > the matter is, a severe case of CP can be much more painful than a

> severe

> > case of osteoarthritis on an X-ray. In fact some people can have a

> severe

> > case of osteoarthritis diagnosed by X-ray and have very little pain

at

> all.

> >

> > Mike

> >

> >

> >

> >

[Guest guest]

Mike Bernhardt <mlbernhardt@...> wrote:

Re: Please help-ONLY 25 YEARS OLD!

> Thanks, I had an MRI that showed nothing. It's hard to believe that

> all this pain has no evidence.

Did it show any inflammation? The only definitive symptom my MRI showed was

massive inflammation. From that, right or wrong, was what the radiologist

made the dianosis. I read his report that went with the MRI. Actually, my

doctor never actually told me if that was also his diagnosis (partly my

fault for not asking, I was in a tremendous amount of pain). My doctor

suggested a synvectomy (cleanout?) and lateral release, and I was all too

happy to try something. I am definitely in less pain. It has been less

than 2 months since my first knee was done, and one month since my second

one was done. I got off of pain medication for the first time in a couple

months in two days after surgery, and I am currently trying to cut out

inflammatories (my last Vioxx was on Saturday) for the first time in over a

year.

Mike

MT

[Guest guest]

Re: Re: Please help-ONLY 25 YEARS OLD!

> I have had five doctors who have diagnosed me with this. CP is a form of

osteoarthritis.

Osteoarthritis is simply worn out cartilage. CP can be osteoarthritis, CP

can lead to osteoarthritis, or there are many very young girls who have

severe CP which never develops into osteoarthritis in their lifetime. You

might ask your doctors if this isn't true. I am simply making this clear

for the young person (and others like them) who started this thread.

Mike

MT

[Guest guest]

Re: Re: Please help-ONLY 25 YEARS OLD!

> hi mark?? I do have osteoarthritis and cp of the knee tool I dont know

if that caused the cp or not. I don't have a grade either. I didnt even

know that I have a considerable amount until I went and got the Dr's report

and read it. I kept asking him what was causing the swelling and he did not

know. He does want m to take anti-inflam. tho but at this time I'm hesitant

as to other meds I'm on. dont know if this helps any. LIN

I wouldn't be afraid to try anti-inflammatories if your doctor recommends

them. They helped me a lot for several years. If they can help you stay

off the operating table it would be worth it in my view.

Mike

MT

[Guest guest]

But isn't osteoarthritis progressive? Whereas CP only progresses if the

surfaces keep rubbing against ea. other?

Ann

Re: Re: Please help-ONLY 25 YEARS OLD!

> I have had five doctors who have diagnosed me with this. CP is a form of

osteoarthritis.

Osteoarthritis is simply worn out cartilage. CP can be osteoarthritis, CP

can lead to osteoarthritis, or there are many very young girls who have

severe CP which never develops into osteoarthritis in their lifetime. You

might ask your doctors if this isn't true. I am simply making this clear

for the young person (and others like them) who started this thread.

Mike

MT

[Guest guest]

Yeah, but it's like irritation of an already inflamed spot, vs. CP (if you had

CP and rested your leg for a month so that no rubbing occurred, the inflammation

[though not, of course, the rubbed away spots] would go away, whereas if you

have arthritis and rest your joint for a month, you still have arthritis, and

it'll hurt just sitting there). I have arthritis in some of my finger joints

and know what you mean about the hammering. And it really hurts when you miss

the nail and hit the joint!!

Ann

Re: Re: Please help-ONLY 25 YEARS OLD!

So does arthritis. Try to hammer a nail in a board with it in your nuckles. It

aggravates and they swell.

Mark

ruby2zdy@... wrote:

But it's not systemically inflammatory. The spot gets inflamed because of

irritation.

Ann

[Guest guest]

Re: Re: Please help-ONLY 25 YEARS OLD!

> Osteo is progressive, but so can CP be once it hits a certain point. In

general most docs list CP as osteo because it is accepted better by the

insurance company. If you look at the codes on your slip the next time you

see a an ortho you'll see no listings for CP, so they either list it under

osteo or patella-femoral pain syndrome.

CP and patella-femoral pain syndrome are one and the same.

Mike

MT

[Guest guest]

Unless patello-femoral pain means patellar tendinitis, which one of my OS's

said. I think getting a diagnosis is like reaching in a jar & picking out a

piece of paper. Sometimes you get CP, sometimes you get arthritis, sometimes

you get patello-femoral pain, sometimes you get patellar tendinitis, and

sometimes you get a torn meniscus (my torn meniscus caused pain (among other

places) on the outside (I mean near the skin) on the lateral side of my knee

just below where ITBS hurts, so for a long time I thought I had ITBS.

Ann

Re: Re: Please help-ONLY 25 YEARS OLD!

> Osteo is progressive, but so can CP be once it hits a certain point. In

general most docs list CP as osteo because it is accepted better by the

insurance company. If you look at the codes on your slip the next time you

see a an ortho you'll see no listings for CP, so they either list it under

osteo or patella-femoral pain syndrome.

CP and patella-femoral pain syndrome are one and the same.

Mike

MT