Re: Re: Candida & water kefir/kombucha (OT Sjogrens Syndrome)

[Guest guest]

Anybody else out there with the dry, cracking skin which may be

psoriasis like at times, find out that they actually have Sjogren's

Syndrome as I did some years ago? I am still finding various

manifestations of it. I found out through my " dry eyes " . It is quite

often a combination of all dry " mucosal membranes " (e.g., eyes, mouth,

skin, digestive system, the joint fluids, etc). It can be harsher at

one point in time in one of those areas and less in others and then

switch. It can be operative in all those areas at once which was where

I started observations of it's symptoms about 15 years ago. It has

significantly lessened in some ways but I am aware that it is never

" gone " so I have to constantly be aware of my diet, and environment, my

daily rituals to " manage " the symptoms. Kefir has definitely helped my

overall management of health, as has iodine supplementation, currently

experimenting with adding coconut oil daily and getting back to use of

wheat germ oil, but am very sporadic on these & even the basic diet now

when moving. It is harder to stick to routines when one is not quite

aware where everything IS located! My sister has never been diagnosed

with it but with psoriatic arthritis and a few other things which have

made both of us consider that many of these symptoms overlap from one

thing to another with formal diagnoses and may be partly genetic in

origin and partly other environments.

I would suggest that whatever formal diagnoses that supernutrition is

needed for all of us just to halfway keep up with our food adulterations

today, other environmental assaults, life's stresses and traumas and

losses which play havoc with general health IF we don't try to keep our

" system " up to par. For Dave & I that includes 1-2 cups of kefir a day.

Cheers, Joyce Simmerman

[Guest guest]

Are you Scandinavian or one of the colder northern ethnic groups? I know that

it is very prevelant in Swedes (my mother is from Lappland and had it as did her

mother). It's rather like we of the northern climes have higher cholesterol,

naturally. Our body over produces cholesterol and my naturopath claims it isn't

dangerous to us.

Shari

[Guest guest]

Thanks for that information Joyce. I will look into this too as this skin stuff

and joint problems is really putting a damper on my life. I am into major stress

right now that hopefully just resolved itself a few days ago. I can not go into

it here just to say it was HUGE stress. Even though resolved my body is not

shutting off the stress horromones like I wished it would. FAST.......... I

mentally know my problem is over now but it is taking my body a little  longer

to figure it out. Even went into a big time flair of this skin and joint problem

as this resolved problem unfolded.

I have been taking as much kefir as I can. Since I am so over loaded with the

water grains I have been putting at least 1/4 cup a day in a smoothie with fresh

fruit. Still they are taking over my kitchen. I also drink the juice twice a

day. Too much and it gives me a tummy ache.

This morning just lifting a TV tray with small plate made me want to howl from

joint pain. Course it is pouring down rain all night here. I am going to get a

handle on all of this and be healthy again and feel good and loving life. Cheers

to kefir for a good long and happy life. I do think it is helping. I should not

have stopped it. At the time I just did not want it any more. Thought my body

was just telling me some thing??? Now I want it again so started all over with

it.

Thanks Again Saving this information in special file to refer to and study on a

bit. I think you are on to some thing here.

Chris

________________________________

From: Joyce M. Simmerman <nativelegal@...>

Sent: Sunday, October 16, 2011 11:34 AM

Subject: Re: Re: Candida & water kefir/kombucha (OT Sjogrens

Syndrome)

Anybody else out there with the dry, cracking skin which may be

psoriasis like at times, find out that they actually have Sjogren's

Syndrome as I did some years ago?  I am still finding various

manifestations of it.  I found out through my " dry eyes " .  It is quite

often a combination of all dry " mucosal membranes " (e.g., eyes, mouth,

skin, digestive system, the joint fluids, etc).  It can be harsher at

one point in time in one of those areas and less in others and then

switch.  It can be operative in all those areas at once which was where

I started observations of it's symptoms about 15 years ago.  It has

significantly lessened in some ways but I am aware that it is never

" gone " so I have to constantly be aware of my diet, and environment, my

daily rituals to " manage " the symptoms.  Kefir has definitely helped my

overall management of health, as has iodine supplementation, currently

experimenting with adding coconut oil daily and getting back to use of

wheat germ oil, but am very sporadic on these & even the basic diet now

when moving.  It is harder to stick to routines when one is not quite

aware where everything IS located! My sister has never been diagnosed

with it but with psoriatic arthritis and a few other things which have

made both of us consider that many of these symptoms overlap from one

thing to another with formal diagnoses and may be partly genetic in

origin and partly other environments.

I would suggest that whatever formal diagnoses that supernutrition is

needed for all of us just to halfway keep up with our food adulterations

today, other environmental assaults, life's stresses and traumas and

losses which play havoc with general health IF we don't try to keep our

" system " up to par.  For Dave & I that includes 1-2 cups of kefir a day.

Cheers, Joyce Simmerman

------------------------------------

[Guest guest]

  I am Swiss ,English , Irish, with a little Italian thrown into the mix on my

Swiss

 family side. Very fair skin red hair before it went totally gray at about 30.

Chris

________________________________

From: ShariV <shavig@...>

Sent: Sunday, October 16, 2011 11:44 AM

Subject: Re: Re: Candida & water kefir/kombucha (OT Sjogrens

Syndrome)

Are you Scandinavian or one of the colder northern ethnic groups?  

Shari

[Guest guest]

Hahaha, Chris!!! You just described me - I was born with red hair, fair skin,

freckles, and green eyes. I went platinum at 30 as well!!! Mom was 100% Swede,

dad 100% Irish. Talk about an interesting childhood..............

Shari

[Guest guest]

Maggie, Do you also drink milk kefir? To me that is very important for

the many more beneficial microflora ...many more various kinds than

either kombucha or water kefir, plus the special proteins. I am not

sure right off hand if either of the others develops the extra folic

acid and B vitamins on 2nd ferment like the milk kefir does. Those are

sooo needed for all functions. The kombucha had some factor which the

other 2 don't, (I don't recall the name of it right off hand, but I

consider it a probable necessary for max. nutrition.) There is so much

to learn and sort out but am feeling fairly confident with it. I do

believe there is still some " deficiency " on meeting full needs of mine

to really put the effects of the Sjogren's to rest. My digestive system

has improved sooo much over the past 10-15 years which helps, but the

dry skin, dry mouth, and especially troublesome yet to me are the dry

eyes and the conditions I've had which I feel now are probably

" causative " from Sjogren's but it isn't recognized as such in the med.

literature or consciousness yet, specifically, Macular Pucker.

I do know that when the Sjogrens was first diagnosed was when I was

having bout after bout with " pink eye " which actually had eyes

bleeding. Scared the sh.. out of me! I don't believe now it even was

pink eye. I think it was related to the dry eyes " cracking " or some

such just enough to get infected. I had a friend in Alaska who had such

dry eyes, (at that time neither of us had any acquaintence with

Sjogrens), but her dry eyes were so bad she had to have oily gel put in

at night and taped shut so she wouldn't have them open at all at night

and still the cracks in them eventually ruined her eyesight completely

to where she was legally blind. My Macular Pucker was operated on once

now (it is different than the Macular Degeneration which is the common

one). It has discouragingly started coming back ...and in the other

eye. Both of those are unusual even in persons with it. So, I am

constantly trying to find better answers. And was pleasantly surprised

at my first 3 mo. checkup after identification of the regrowth and new

one that while they had not regressed at least they had stayed the

same. That is sometimes progress!

I've been doing some unusual and possibly extreme remedial things hoping

for reversal, like trying eye drops I've made alternatively with DMSO,

coconut milk, coconut oil, Brite Eye capsule tea with extra C in a

" liposomal encapsulation " and most lately not doing any of those

directly to the eye, but a DMSO infused with cayenne, tumeric and black

pepper which permeates the whole system quickly and is also helping my

heart, (I think). (At least not worsening).

I do know that we are NOT discreet symptoms and disorders .. we are

wholistic so anything that helps heal in one part of our body is going

to help elsewhere too.

Cheeres, Joyce Simmerman

[Guest guest]

Shari, I am a " Heinz-57 " of background ethnics with some Swedish &

Norwegian, some Irish, mostly German, some Dane, tiny portion Indian. I

am type O negative and I understand that may have descended through

other European countries, (Bulgarian near Switzerland area?? .. possibly

gypsy?) I have always tanned easily whereas my sister 'burns'. But

have never looked into all that much and have a hard time remembering

what I did read about it. Thanks, Joyce

[Guest guest]

Hi Joyce,

I read up on Sjogrens Syndrome and I do not have those symptoms at all. Just the

dry and 

overly fast growing and cracking skin of Plaque Psoriasis. I am also having

troubles with joint and tendon pains. I like the water kefir. To be honest I do

not want to deal with the milk kefir. We are too far

in the middle of nowhere to be getting the milk I would need. I can barely keep

up with the water 

kefir. I imagine the milk Kefir would be good and have had a very kind offer for

some to be sent here.

I just do not feel I can give it the time and attention it requires much less

drink it. I know many love it. I

can barely stomach milk.

Thank you so much for the information and concern.

Chris

________________________________

From: Joyce M. Simmerman <nativelegal@...>

Sent: Sunday, October 16, 2011 2:05 PM

Subject: Re: Re: Candida & water kefir/kombucha (OT Sjogrens

Syndrome)

Maggie,  Do you also drink milk kefir?  To me that is very important for

the many more beneficial microflora ...many more various kinds than

[Guest guest]

Hi Joyce,

I was reading back through emails and was especially moved by your account. I

too had issues similar. Going off of gluten made a huge difference for me. I

have learned that any autoimmune issues could be caused by gluten intolerance.

I was tested and had high antibodies. Going off of gluten helped me so much.

Alice

Anybody else out there with the dry, cracking skin which may be

psoriasis like at times, find out that they actually have Sjogren's

Syndrome as I did some years ago? I am still finding various

manifestations of it. I found out through my " dry eyes " . It is quite

often a combination of all dry " mucosal membranes " (e.g., eyes, mouth,

skin, digestive system, the joint fluids, etc). It can be harsher at

one point in time in one of those areas and less in others and then

switch. It can be operative in all those areas at once which was where

I started observations of it's symptoms about 15 years ago. It has

significantly lessened in some ways but I am aware that it is never

" gone " so I have to constantly be aware of my diet, and environment, my

daily rituals to " manage " the symptoms. Kefir has definitely helped my

overall management of health, as has iodine supplementation, currently

experimenting with adding coconut oil daily and getting back to use of

wheat germ oil, but am very sporadic on these & even the basic diet now

when moving. It is harder to stick to routines when one is not quite

aware where everything IS located! My sister has never been diagnosed

with it but with psoriatic arthritis and a few other things which have

made both of us consider that many of these symptoms overlap from one

thing to another with formal diagnoses and may be partly genetic in

origin and partly other environments.

I would suggest that whatever formal diagnoses that supernutrition is

needed for all of us just to halfway keep up with our food adulterations

today, other environmental assaults, life's stresses and traumas and

losses which play havoc with general health IF we don't try to keep our

" system " up to par. For Dave & I that includes 1-2 cups of kefir a day.

Cheers, Joyce Simmerman

[Guest guest]

Thanks for the hint re. possibly a gluten intolerance on the dry,

cracked skin. Mine " seems " to be responding to the heavy kefir rigimine

we're on which eliminates a lot of bread for me although I do use wheat

germ at times in the kefir blend, but I understand it is converted by

the kefirizing. I think I understand (how's that for " not sure but

likely " ) from the Iodine forums that having sufficient iodine replaces

the bromine from the flour, etc. from causing symptoms of bromism which

is also like gluten insensitivity.

I will try to be aware to see I also watch the gluten sensitivity

possibility, although I was just now thinking ..when I was younger, I

had no cracked, dry skin and apparently no gluten sensitivity then as I

used to make homemade breads all the time and would add some pure gluten

to make the otherwise heavy breads rise so much better. I even have

made " gluten steaks " (substitute for real steak with high protein)

...back when. All the dried skin, etc. Sjogren-like symptoms have only

been there and bothersome for about the last 10-15 years. I am trying

to supplement my diet now with coconut oil daily to see if that will

help and should get back to wheat germ oil too for the whole e in it and

other. It is an old trick for beautiful " coat " and fertility and

stamina in dogs, and horses. I used to use it too.

Thanks for the suggestions. Perhaps a gluten sensitivity is just

another " old age " management issue so will watch it.

Joyce Simmerman

[Guest guest]

Hi Joyce.

Not on this topic, but I emailed you a bit ago looking for your suggestions on

2nd fermenting ingredients and you gave me your website for a reference. I have

lost your web address. Would you mind forwarding it to me again. I have been

enjoying a breakfast of 2nd day kefir with soaking oats and flax seeds then

topped with banana and honey. So good. I didn't get to spend enough time on

your site when I have lost track of it.

Thank you. Ilyse

From: nativelegal@...

Date: Mon, 14 Nov 2011 10:02:41 -0600

Subject: Re: Re: Candida & water kefir/kombucha (OT Sjogrens

Syndrome)

Thanks for the hint re. possibly a gluten intolerance on the dry,

cracked skin. Mine " seems " to be responding to the heavy kefir rigimine

we're on which eliminates a lot of bread for me although I do use wheat

germ at times in the kefir blend, but I understand it is converted by

the kefirizing. I think I understand (how's that for " not sure but

likely " ) from the Iodine forums that having sufficient iodine replaces

the bromine from the flour, etc. from causing symptoms of bromism which

is also like gluten insensitivity.

I will try to be aware to see I also watch the gluten sensitivity

possibility, although I was just now thinking ..when I was younger, I

had no cracked, dry skin and apparently no gluten sensitivity then as I

used to make homemade breads all the time and would add some pure gluten

to make the otherwise heavy breads rise so much better. I even have

made " gluten steaks " (substitute for real steak with high protein)

...back when. All the dried skin, etc. Sjogren-like symptoms have only

been there and bothersome for about the last 10-15 years. I am trying

to supplement my diet now with coconut oil daily to see if that will

help and should get back to wheat germ oil too for the whole e in it and

other. It is an old trick for beautiful " coat " and fertility and

stamina in dogs, and horses. I used to use it too.

Thanks for the suggestions. Perhaps a gluten sensitivity is just

another " old age " management issue so will watch it.

Joyce Simmerman

[Guest guest]

Hi, I am glad you are enjoying the 2nd day kefir w/fixings. We've been

experimenting with a lot of new mixtures for it. One has been with

frozen blueberries with dried cranberry, some frozen lemonade spooned

into it at serving, but the flax seed and oats in the ferment. A little

stevia for sweetening. Another mix we've enjoyed is mixed nut trail mix

heavy on peanuts, about 4-5 dates, the flax and oats or wheat germ and

then a dollop or two of peanut butter, some coconut oil (for my dry

skin), vanilla and stevia and cinnamon. It is really filling and

satisfies the old sweet tooth somewhat. Cheers, Joyce Simmerman

it is at http://recipesandremedials.wikidot.com

On 11/14/2011 10:03 PM, Ilyse Brawer wrote:

>

>

>

> Hi Joyce.

>

> Not on this topic, but I emailed you a bit ago looking for your

> suggestions on 2nd fermenting ingredients and you gave me your website

> for a reference. I have lost your web address. Would you mind

> forwarding it to me again. I have been enjoying a breakfast of 2nd day

> kefir with soaking oats and flax seeds then topped with banana and

> honey. So good. I didn't get to spend enough time on your site when I

> have lost track of it.

>

> Thank you. Ilyse

>

> <mailto:%40>

> From: nativelegal@... <mailto:nativelegal%40gpcom.net>

> Date: Mon, 14 Nov 2011 10:02:41 -0600

> Subject: Re: Re: Candida & water kefir/kombucha

> (OT Sjogrens Syndrome)

>

> Thanks for the hint re. possibly a gluten intolerance on the dry,

>

> cracked skin. Mine " seems " to be responding to the heavy kefir rigimine

>

> we're on which eliminates a lot of bread for me although I do use wheat

>

> germ at times in the kefir blend, but I understand it is converted by

>

> the kefirizing. I think I understand (how's that for " not sure but

>

> likely " ) from the Iodine forums that having sufficient iodine replaces

>

> the bromine from the flour, etc. from causing symptoms of bromism which

>

> is also like gluten insensitivity.

>

> I will try to be aware to see I also watch the gluten sensitivity

>

> possibility, although I was just now thinking ..when I was younger, I

>

> had no cracked, dry skin and apparently no gluten sensitivity then as I

>

> used to make homemade breads all the time and would add some pure gluten

>

> to make the otherwise heavy breads rise so much better. I even have

>

> made " gluten steaks " (substitute for real steak with high protein)

>

> ..back when. All the dried skin, etc. Sjogren-like symptoms have only

>

> been there and bothersome for about the last 10-15 years. I am trying

>

> to supplement my diet now with coconut oil daily to see if that will

>

> help and should get back to wheat germ oil too for the whole e in it and

>

> other. It is an old trick for beautiful " coat " and fertility and

>

> stamina in dogs, and horses. I used to use it too.

>

> Thanks for the suggestions. Perhaps a gluten sensitivity is just

>

> another " old age " management issue so will watch it.

>

> Joyce Simmerman

>

>

>

>