Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Thanks so much for your helpful suggestions regarding our son. We planned a short trip away to visit family and we are going to go thru with it for the weekend. I am holding my breath, with much uncertainty as to what to expect but I feel that for the rest of our families sake, we need to go on with our lives. We have prearranged a few things to try to make it easier for him. I will post to the list next week how we made out as well as seeking further suggestions. Again, thank you. Sign me again, WOES Walking On Egg Shells Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 Hi, The school and put in bathroom visits into his schedule throughout the day. My son had about 4 of them. When he got to school part way thru the morning. Afterlunch and after recess. They just sent him. it was on the schedule so he had to follow the plan. Have them give it a try. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 In a message dated 3/12/03 8:56:58 PM Pacific Standard Time, DeeVee2073@... writes: > can imagine him sitting on that > toilet one day and hearing a mumbling lady voice! I guess he don't want to > stay around too long in there. My daughter can go all day without using the bathroom because she absolutely does not like the school bathrooms. Her aide discovered that didn't mind the bathroom in the Kindergarten wing = bright & clean & 2 large stalls and they can manage a visit during part of the day when no one else is likely to be there. Very important now that has her period (!). She has a bladder the size of Lake Superior and can pretty much go all day without using the bathroom. My oldest (non DS) became " impacted " in first grade from not using the bathroom enough. We had to get her into the routine of using the bathroom - and staying there LONG enough - at home. - Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 thanks, his teacher did do the schedule thing and that was working out fine. But tonight he just told me he was scared because a lady was talking and a bell ringing. so maybe he is afraid. I can imagine him sitting on that toilet one day and hearing a mumbling lady voice! I guess he don't want to stay around too long in there. The school office is on the other side of the boys bathroom wall and the assistant principals office is right up against the boys wall so maybe he heard her voice through the wall and maybe the bell sound was her phone ringing. Not sure, but this is what he told be about a bell ringing and a lady mumbling. So I guess i'll bring this up to the teacher tomorrow. But i talked with him and explained the principles office is right there and he heard her talking and maybe her phone ringing. so he felt better and we acted the situation out. I went in the bathroom and closed the door and talked lightly and he tried it also. So he got to see how you can hear things through walls. Plus we live in a townhouse with thin walls so I also explained to him how we hear our neighbors going up and down the steps through the walls. He seemed to have felt better after that. I hope that helped him. >From: angel2cook@... >DeeVee2073@..., >Subject: Re: suggestions >Date: Wed, 12 Mar 2003 14:32:55 EST > >Hi, >The school and put in bathroom visits into his schedule throughout the day. >My son had about 4 of them. When he got to school part way thru the >morning. >Afterlunch and after recess. They just sent him. it was on the schedule so >he >had to follow the plan. Have them give it a try. >Jean > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 In a message dated 3/13/03 7:05:25 AM Pacific Standard Time, deevee2073@... writes: > > > Yes last year in the kindy wing he had no problem either. Same here > brighter > and cleaner. The bathroom he use now is much bigger and dull. > > > Can you arrange that his visits be to the Kindy wing? Maybe to/from one of his pullout activities? (That's what 's aide does.) worth a try to see if it would allieviate the problem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Yes last year in the kindy wing he had no problem either. Same here brighter and cleaner. The bathroom he use now is much bigger and dull. >From: RSYOSH@... > >Subject: Re: suggestions >Date: Thu, 13 Mar 2003 00:03:01 EST > >In a message dated 3/12/03 8:56:58 PM Pacific Standard Time, >DeeVee2073@... writes: > > > can imagine him sitting on that > > toilet one day and hearing a mumbling lady voice! I guess he don't want >to > > stay around too long in there. > >My daughter can go all day without using the bathroom because she >absolutely >does not like the school bathrooms. Her aide discovered that didn't >mind the bathroom in the Kindergarten wing = bright & clean & 2 large >stalls >and they can manage a visit during part of the day when no one else is >likely >to be there. Very important now that has her period (!). She has a >bladder the size of Lake Superior and can pretty much go all day without >using the bathroom. > >My oldest (non DS) became " impacted " in first grade from not using the >bathroom enough. We had to get her into the routine of using the bathroom >- >and staying there LONG enough - at home. > >- Becky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 I would tell the aide to treat the child pretty much like any other typical kid, except for a few areas that he needs special help in. That's what I always told them with Jasmine at that age. Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 A great book is *Count Us In* by Kingsley and Levitz, both of whom have Down syndrome. granny On Thu, Oct 29, 2009 at 6:05 PM, jarms20 <jarms20@...> wrote: > > > Hi, > > My name is , I'm a sister of a down syndrome male. Could anybody > suggest any really good books, websites, family oriented associations or > support groups in NE Ohio for someone caring for a ds person. > > It is ok to contact me off-list with any suggestion, I'll compile the > results and send the group back the results in a few weeks. > > Thank you for any help you can give, > > > > > -- Not for ourselves but for the whole world we were born Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 I can think of a few members here that are from NE Ohio..if they dont' respond privately,let me know. Suggestions > Hi, > > My name is , I'm a sister of a down syndrome male. Could anybody > suggest any really good books, websites, family oriented associations or > support groups in NE Ohio for someone caring for a ds person. > > It is ok to contact me off-list with any suggestion, I'll compile the > results and send the group back the results in a few weeks. > > Thank you for any help you can give, > > > > > > > ------------------------------------ > > Click reply to all for messages to go to the list. Just hit reply for > messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Hi My first thought is that you are getting yourself onto a downward spiral, so just do something to lift yourself back upwards - it can be a small step - not something major to solve all your problems. Say something nice to someone else, go for a walk in the sunshine (if you have sunshine today). Do something to self correct/rebalance now and at the end of today, write your success journal and recognise the positive parts of your day. It can take just one thing to knock you down, but then it also only takes one thing to start you back up again. First thing for your sucess journal tonight might be " recognised I needed support and asked for it " Best wishes Viv > > I have had two weeks of really awful disordered eating and behaviors related to food and body. I thought every thing in my life was moving in a good direction but about two weeks ago I began to feel more seriously compulsed in my behavior surrounding food again -- it has only gotten worse. > > Now I am feeling depressed about it....and that depression is bleeding into the way I am feeling about everything. And, I thought everything was going well. > > It's so discouraging. Any suggestions? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Hi ! Thanks for sharing. I know exactly what you are feeling. I am there too! SELF-CORRECTING and TIME are the only things i know to help me get out of negative thinking. Try a gratitude list, too.. might help. Today, I am grateful for the sun and for sweatpants how about you? with love, Avie On Mon, Mar 28, 2011 at 7:45 AM, Vivienne <ruffed.lemur@...> wrote: > > > Hi > > My first thought is that you are getting yourself onto a downward spiral, > so just do something to lift yourself back upwards - it can be a small step > - not something major to solve all your problems. Say something nice to > someone else, go for a walk in the sunshine (if you have sunshine today). Do > something to self correct/rebalance now and at the end of today, write your > success journal and recognise the positive parts of your day. > > It can take just one thing to knock you down, but then it also only takes > one thing to start you back up again. > > First thing for your sucess journal tonight might be " recognised I needed > support and asked for it " > > Best wishes > > Viv > > > > > > > I have had two weeks of really awful disordered eating and behaviors > related to food and body. I thought every thing in my life was moving in a > good direction but about two weeks ago I began to feel more seriously > compulsed in my behavior surrounding food again -- it has only gotten worse. > > > > Now I am feeling depressed about it....and that depression is bleeding > into the way I am feeling about everything. And, I thought everything was > going well. > > > > It's so discouraging. Any suggestions? > > > > > -- Avie Linden University of Michigan - Anthropology Program in the Environment, History of Art 248.535.0521 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Good advice Viv. It's something I also needed, right now. Best Joy On Mon, Mar 28, 2011 at 7:45 AM, Vivienne <ruffed.lemur@...> wrote: > > > Hi > > My first thought is that you are getting yourself onto a downward spiral, > so just do something to lift yourself back upwards - it can be a small step > - not something major to solve all your problems. Say something nice to > someone else, go for a walk in the sunshine (if you have sunshine today). Do > something to self correct/rebalance now and at the end of today, write your > success journal and recognise the positive parts of your day. > > It can take just one thing to knock you down, but then it also only takes > one thing to start you back up again. > > First thing for your sucess journal tonight might be " recognised I needed > support and asked for it " > > Best wishes > > Viv > > > > > > I have had two weeks of really awful disordered eating and behaviors > related to food and body. I thought every thing in my life was moving in a > good direction but about two weeks ago I began to feel more seriously > compulsed in my behavior surrounding food again -- it has only gotten worse. > > > > Now I am feeling depressed about it....and that depression is bleeding > into the way I am feeling about everything. And, I thought everything was > going well. > > > > It's so discouraging. Any suggestions? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Hi ... Whenever I find myself in a downward spiral...eating out of control, eating sweets all day long I start talking positively to myself and think of one step I can take to get back into balance. Maybe it's making a green juice or having a big salad for lunch. One positive thing and then one more and soon it's been a good day food wise and then I'm feeling more confident about myself and maybe dress a bit nicer and that makes me want to eat healthier..etc etc. So take that first step and do ONE good thing! and let it lead to another....  From: Joy Barber <saublezoika@...> weightloss Sent: Wednesday, March 30, 2011 6:51 PM Subject: Re: Re: suggestions  Good advice Viv. It's something I also needed, right now. Best Joy On Mon, Mar 28, 2011 at 7:45 AM, Vivienne <ruffed.lemur@...> wrote: > > > Hi > > My first thought is that you are getting yourself onto a downward spiral, > so just do something to lift yourself back upwards - it can be a small step > - not something major to solve all your problems. Say something nice to > someone else, go for a walk in the sunshine (if you have sunshine today). Do > something to self correct/rebalance now and at the end of today, write your > success journal and recognise the positive parts of your day. > > It can take just one thing to knock you down, but then it also only takes > one thing to start you back up again. > > First thing for your sucess journal tonight might be " recognised I needed > support and asked for it " > > Best wishes > > Viv > > > > > > I have had two weeks of really awful disordered eating and behaviors > related to food and body. I thought every thing in my life was moving in a > good direction but about two weeks ago I began to feel more seriously > compulsed in my behavior surrounding food again -- it has only gotten worse. > > > > Now I am feeling depressed about it....and that depression is bleeding > into the way I am feeling about everything. And, I thought everything was > going well. > > > > It's so discouraging. Any suggestions? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Thanks so much for your response (and everyone else -- as well as those who regularly contribute, even if not to my message). I appreciate your insight and knowing that you cared enough to reach out to me. Jen ________________________________ From: e v <evergos@...> " weightloss " <weightloss > Sent: Wed, March 30, 2011 1:54:40 PM Subject: Re: Re: suggestions  Hi ... Whenever I find myself in a downward spiral...eating out of control, eating sweets all day long I start talking positively to myself and think of one step I can take to get back into balance. Maybe it's making a green juice or having a big salad for lunch. One positive thing and then one more and soon it's been a good day food wise and then I'm feeling more confident about myself and maybe dress a bit nicer and that makes me want to eat healthier..etc etc. So take that first step and do ONE good thing! and let it lead to another....  From: Joy Barber <saublezoika@...> weightloss Sent: Wednesday, March 30, 2011 6:51 PM Subject: Re: Re: suggestions  Good advice Viv. It's something I also needed, right now. Best Joy On Mon, Mar 28, 2011 at 7:45 AM, Vivienne <ruffed.lemur@...> wrote: > > > Hi > > My first thought is that you are getting yourself onto a downward spiral, > so just do something to lift yourself back upwards - it can be a small step > - not something major to solve all your problems. Say something nice to > someone else, go for a walk in the sunshine (if you have sunshine today). Do > something to self correct/rebalance now and at the end of today, write your > success journal and recognise the positive parts of your day. > > It can take just one thing to knock you down, but then it also only takes > one thing to start you back up again. > > First thing for your sucess journal tonight might be " recognised I needed > support and asked for it " > > Best wishes > > Viv > > > > > > I have had two weeks of really awful disordered eating and behaviors > related to food and body. I thought every thing in my life was moving in a > good direction but about two weeks ago I began to feel more seriously > compulsed in my behavior surrounding food again -- it has only gotten worse. > > > > Now I am feeling depressed about it....and that depression is bleeding > into the way I am feeling about everything. And, I thought everything was > going well. > > > > It's so discouraging. Any suggestions? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 , I read this last night & thought of you: The first thing you might do is revisit your past successes. I know you've got 'em, because how else could you be in a slump? A slump means you've fallen from former grace; you can't have cold without heat, and you can't have a slump without past success. Think about what you did right and how you felt doing it. This was from Mark Sisson's site -- and the words rang really true with me when I've fallen off the wagon (or more to the truth, been thrown under it and rolled over by it!) ... I like the part about thinking how I felt doing it as that's how I generally capture what I need to pull myself up from the wagon wheel ruts. Colleen I have had two weeks of really awful disordered eating and behaviors related to food and body. I thought every thing in my life was moving in a good direction but about two weeks ago I began to feel more seriously compulsed in my behavior surrounding food again -- it has only gotten worse. Now I am feeling depressed about it....and that depression is bleeding into the way I am feeling about everything. And, I thought everything was going well. It's so discouraging. Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 , I read this last night & thought of you: The first thing you might do is revisit your past successes. I know you've got 'em, because how else could you be in a slump? A slump means you've fallen from former grace; you can't have cold without heat, and you can't have a slump without past success. Think about what you did right and how you felt doing it. This was from Mark Sisson's site -- and the words rang really true with me when I've fallen off the wagon (or more to the truth, been thrown under it and rolled over by it!) ... I like the part about thinking how I felt doing it as that's how I generally capture what I need to pull myself up from the wagon wheel ruts. Colleen I have had two weeks of really awful disordered eating and behaviors related to food and body. I thought every thing in my life was moving in a good direction but about two weeks ago I began to feel more seriously compulsed in my behavior surrounding food again -- it has only gotten worse. Now I am feeling depressed about it....and that depression is bleeding into the way I am feeling about everything. And, I thought everything was going well. It's so discouraging. Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2011 Report Share Posted June 16, 2011 The best idea that I have seen in the kefir listservs regarding WKG has been presented very recently, so I am just reiterating it. We are sort of shooting with our eyes closed if we don't take notes. I am using sticky notes right now. I am unsure if they will last on the jar for 48 hours. But without notes, it is all deductive reasoning, memory, and speculation. and Katrina Bird's Incredibly Lucky Daddy Quote Link to comment Share on other sites More sharing options...
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