Re: Trying to live with this unbearable

[Guest guest]

Are you taking any medications for the pain?

Celebrex, Vioxx, Lodine? Lodine has worked the best for me,

almong with a stronger pain med sometimes for night. I

also had Synvisc injections over Christmas Holiday and

I really think they are working. Pain is much less

and am only taking my Lodine once a day instead of

twice. May give it another month and try to stop taking

the Lodine so I maybe don't end up with an ulcer by

the time I am 30! <br> Talk to your doctor. They

might not can do much for the cause of the pain, but

they CAN TREAT the pain! Good luck!

[Guest guest]

I was takeing paion medication for the pain but

it really messed my stomach up pretty

bad.<br><br>only thing i take now is ibuprofin.<br><br>i tried the

shots in the knees, but they did not help that much and

it hurt like a dicken's<br><br>ty for your reply

[Guest guest]

I sympathize with you Mark, some days I just

don't want to try anymore. I've tried all the pain

medications and they just cause stomach problems on top of my

knee problems.<br><br>The things that help me

are:<br>Ice - 20 minutes a couple of times a day<br>McConnel

taping - Have a PT show you how to do this<br>No running

- I find these people goofy that keep on running

when their legs are giving out, if I would have never

ran I don't think I would be having these problems

now. Walking and swimming are much better for

you.<br>EMT machines - Use this to stimulate the muscles

around the top of your knee.<br><br>Good luck to you,

I'm going in for surgery Thursday, I'll let you know

how it turns out.<br><br>Mare

[Guest guest]

thanks for the advice I will try them.<br>Today has been a farely good day for

my knees.<br><br>prasie the lord<br><br>hope everyones knees have a good

day<br>mark

[Guest guest]

goodluck wiht your surgery

[Guest guest]

Hiya Mark,<br><br>I'm new here and tried

yesterday to reply to this post..(a bit late I

know!)..anyway I sent it to the wrong person..lol.<br><br>I am

45 yrs old and I am beginning to despair of this

pain ever ending..my dr also says that there is no

cure for this..I have never known pain like this and I

often cry with it..I also have days when I take a

sleeping pill so I can have some respite from the

pain..not a good idea..but when it becomes unbearable I do

it...hope we can both get some help on this

site.<br><br>take care<br><br>anne

[Guest guest]

HI ann:<br><br>I can sypmathise with you.<br>I am

35 years old Climded trees for 17 years but caant do

that anymore.<br><br>Always been very active untilt he

last 3 yrs, but I am trying to get used to living a

not so active life.<br><br>I find myself taking

sleeping meds so that i can sleep at night.<br><br>I am

going to a new os for a opinion on surgery.<br><br>if

you ever wanan caht just look me up on

messenger.<br><br>I hope your knees have a good day<br><br>god

bless<br>mark

[Guest guest]

Anne - you don't say why you have so much

pain.<br>Please don't give up, just keep tring new things. I'm 8

months out of surgery and still battle what use to be

normal things. Slowly my knee is improving. One thing I

try to do is keep a jornal each day and find creative

ways to do new things that sound fun and that I can

do. I was very active and plan to still be if it

takes a year, 2 years etc... Please try to find

positive ways. You already started by joining this chat

club.<br>You can email me any if you need to chat,

judddianne@...<br>Dianne

[Guest guest]

Hiya Dianne,<br><br>Thank you so much for your

post...and your offer to chat. I have been diagnosed with cp

for 7 yrs..I also have cervical sponylosis..I have

had an arthroscopy on my left leg (5 yrs ago) and a

'rinse out'..it felt easier at first but soon felt lousy

again. I am in constant pain but with differing degrees

of severity..sometimes the pain goes beyond

tolerable and I get to the end of my tether..the drs appear

to be 'ignorant' of what to do and I find it so hard

to explain the agony I am in at times..I go again to

the consultant on the 1st feb and I am determined

that this time I will be given some hope...because

quite simply I can no longer cope with the

pain.<br><br>What was the op you had? how long have you had

cp?<br><br>thanks again for your reply<br><br>take

care<br><br>annex

[Guest guest]

Hiya Mark,<br><br>Thanks for your reply..after being active it is so hard not to

be.<br><br>Good luck with your new os...chat soon<br><br>take care<br><br>annex