Tired of it!

[Guest guest]

Don't you all just get so sick of your knees! I

find myself looking around when we are out and

wondering who else has knee pain. I would give anything

just to have ONE day of no knee pains. I think it is

just so hard to go day and after day knowing it's

never going to go away. That's the hardest part for me,

knowing it's only going to get worse. I'm sorry, I know

we try and stay positive on here but I just need to

voice my complete frustration. My husband tries but

when he's bounding around and he's knees don't hurt he

can't possibly understand. He says " well, you're still

walking " and that is true but it's not without pain.

Chronic pain wears on a person. I htink it might be

easier if there was light at the end of the tunnel but

there isn't - well I supposed knee replacements are the

light but at 33 that's a number of years away.

Sometimes I wish I was older so I knew I only had a few

years left before they can replace them. I wonder why

some people get to live their lives playing sports and

being active and others get knocked down early in life

and have to try and cope the best they can. I do

everything I can to try and make this better, doing the knee

exercises every day and taking the supplements and they are

still deteriorating. I am scared for my future. Anyhow

I don't mean to be a downer, I just needed ot vent

to someone who understands. <br>Thanks for

listening,<br>

[Guest guest]

Hi .<br><br>I'm very tired of it! And I

had to leave my job as an exercise instructor, a job

I love and will miss very much. I had to give my

notice Monday, because teaching three classes a day,

five days a week is just too much, as you can imagine.

I wouldn't even participate in the exercises. Just

standing and walking around and demonstrating a little bit

was too much. <br><br>But, I will miss teaching

something terrible. Even if they offered to let me teach

just one a day or something, I think it would be too

much. And they never do that anyway. I was actually

being pressured to teach four a day. <br><br>Life goes

on. Anyway, yes I know what you mean. For weeks at a

time, I'll be all depressed about my knees. Then the

pain won't be as bad for a while and I can start to

feel normal. But as soon as I try to get back to

normal, like cleaning around the house, etc, they start

acting up again. I took a little walk the other day and

today my ankles and knees are sore. This is all stuff I

love to do! I feel deprived of all the things I like

to do! Exercise for one, then cleaning, which I

really do love to do, walking instead of driving or

taking the bus, the list goes on.<br><br>I, too, wonder

how many people are walking around with knee, or

other, pain. Especially when I see what most people wear

on thier feet!!<br><br>It isn't fair. But , to quote

from " The Princess Bride, " who ever said life is

fair?<br><br>Take care and I hope it helps to know you're not alone

in your frustration. Just remember that as long as

we can walk, even with pain, we are doing pretty

good. Try to appreciate your knees for what they are.

And keep doing your exercises. It helped me so

much.<br><br>Take care,<br>Jeannine

[Guest guest]

Hi <br><br>Yep I know exactly what you

mean. I've found that nobody understands unless they

suffer the same condition. My best friends, my family,

they listen and they know I'm in trouble, but they

still don't understand. It would be nice if my brother

phoned every now and then to see how I was. If he really

KNEW what I was going through he'd phone every day.

But he doesn't UNDERSTAND, so he doesn't think to

phone. Still I try to stay positive. I think if you try

to stay positive you will get a bit better, maybe a

lot better. There has to be a light at the end

somewhere!!! Keep praying you'll get better. It worked for my

friend's mother who had terrible rheumatoid arthritis -

she got better! I reckon your husband is trying to

get your spirits up by reminding you of the positive

things (ie you can walk etc). But this doesn't

necessarily work I know. Don't give up hope ! Keep

praying... keep positive... you never know... Good

luck!<br><br>Joe

[Guest guest]

Hi Joe,<br> I just wanted to say thanks for your

reply. I am trying to stay positive and I found a really

good book title Living Well with a Hidden Disability -

you might look for it online. I cried reading most of

it because it hit home on so many levels. I am

trying to adapt a less fearful attitude and go ahead and

do some of the things I love in spite of the pain. I

look at it like this - it hurts whether I do or don't

and although I don't want to speed up the

degeneration it's going to happen anyway. I went hiking

yesterday - not up the really steep inclines but I still

got to go with everyone and it was alot of fun. I

know in 20 years I'll get the old knees replaced and

then HOPEFULLY pain won't be part of my everyday life.

It's not too bad a pain and I guess the more I deal

with it and just say " so what " then the less it will

bother me. The book has really helped me and I do

realize that this has made me alot more sympathetic to

others. My husband told me he feels powerless and it

hurts for him to see me hurting (whatta guy!) Guess I

never really considered his feelings too in all this. I

have been mad at God for the last two years playing

out the " why me, what have I done " scenario but I

realize that bad things happen to good people and there

really is no explanation. I'm grateful it's me and not

my son that has this, plus I got to enjoy 30 years

of hardcore sports and never gave my knees a second

thought, goodness I'm rambling - I just wanted to say

thanks. You always have kind words and just getting on

here helps me a bunch. Have a great day!<br>Steph

[Guest guest]

Hi Jeannine,<br> I just wanted to thank you for

your reply. I'm sorry to hear you had to quit

instructing, I can honestly say I would have had to quit a job

like that two years ago. I will have to have a

" sit-down " job from here on out - or till I'm old enough to

have my knees replaced. I think I'm going to quit

worrying about hurting them so much and try to do the

things I love but in extreme moderation. My friend asked

me if I'd be waterskiing this summer and I said yes

but probably only once on Sat and once on Sunday

instead of being out there all day (which I love) nothing

better than getting in the boat to get some more

strength and then getting right back out there. I figure

my poor knees are going to get worse I get older

whether I sit on my butt the rest of more life or try and

get out there and do what I still can. I'm thinking

of switching from OS's to rhuematologists. Think

they will be better adapt at treating instead of

trying to cure or just dismissing. Anyhow I hope you're

having a good knee day, I'm getting ready to walk over

to the park for my lunch break and I'm not going to

pay much attention to my old creaky knees.<br>Take

care,<br>

[Guest guest]

,<br><br>I agree, we have to keep doing

some of the stuff we love! I took a walk in the park a

couple days ago because it was so nice out. I went on my

" old " route, the one I used to walk all the time before

my CP came into my life. It was very good. I might

still take some classes at the place I'm leaving. Maybe

I can build my strength back and someday return to

instructing the classes. But for now, it's a desk for

me!!<br><br>I almost didn't go out with my husband and a friend

last night to see a band because my knees were aching

and I figured sitting at a bar wouldn't help. But I

went anyway and I'm so glad I did. Just hearing a

great band put me in a wonderful mood. So for me a lot

of times, getting totally out of my own head is what

I need, out of my body!!<br><br>My Physical

Therapist suggested I go see a rheumatologist. I haven't

yet, but you just reminded me. Thanks.<br><br>Keep up

the positive attitude!<br>Jeannine.

[Guest guest]

on 11/21/04 4:56 PM, Carissa at i_am_not_saying@... wrote:

> So sick and tired of my oldest son's behavior. I swear I'm ready to put him

> in a children's home. He is nothing but a little brat anymore. He breaks

> stuff, he hits us, he calls us names, he is very mouthy, he has no respect for

> me or his brothers. It's almost as if he is freakin psychotic. I just can't

> stand it anymore. Why is he like this? His meds aren't stopping this

> behavior. UGH, I'm about ready to give up on him and stick him in a home for

> special needs kids. I'm stressed out and very close to the end of my rope

> with him.

> Sorry for venting.....

> Carissa

Why is this email addressed to:

Becky gel70@... ?

thanks,