awareness

[Guest guest]

I'm so proud to see so many people wearing those shorts and try to

tell people more about CMT, especially the purple ribbon..very good

idea. Living in the south one must get cooler anyway.

spy

[Guest guest]

We did this a while ago when Tony Braxton was talking about her autistic son's

apraxia and incorrectly described it. We got nothing from Harpo but it certainly

can't hurt to keep trying.

Martha

Liz <lizlaw@...> wrote: I am

getting annoyed at the thought of so many kids not getting what

they need, particularly because so many moms know way earlier than the

professionals what this is. I decided to drop Oprah a line. Who knows if

they'll take it seriously but I am now thinking I'll just keep bugging

them. What will it cost me? A few emails time or some stamps. If anyone

wants to join me in bugging Harpo Productions about this please do. I

think each of us can describe the effects of this disease on our kids,

our familes, differently. We can also describe this group as Oprah seems

to love community stuff, especially women banding together for a common

cause. Yes, I know this is likely cheesy, as most things are that you

have to do to get publicity for a worthy cause but hey, I think there is

no worthier cause than our children. It may even seem hopeless but if I

have gotten anything from this experience and particularly this group,

it is hope.

We could do a form letter but it might be better if we do individual

requests (even if it is the same one) repeatedly so they take us

seriously, see various sides of the story to decide what angle they want

to take, etc.

If this is too much for some folks I so get it. Please know my heart is

in the right place.

Liz

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