Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Tami Praise The Lord! He did it again! God bless you Tami. God is sooooooooooooooooooooooooooo------------------------------------ good to us. Who but God can do such things as these? Love and prayers from cincinnati Liz ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 This is one question that I would like to hear the answer to especially since my daughter has figured out how to open my mom's front door, get out of the apartment building and find her way to the parking lot. The neighborhood is slowly starting to go down hill (due to the drug pushers moving in the area) and I worry because my mom is almost 60 and twice now, she's turned around for five minutes and that fast, Jordan was out the door. She doesn't do it here because I have a dead bolt and a chain that she can't reach and both are used most of the time. My mom frequently forgets to latch her chain on her door resulting in temptation for my daughter. She's seven and very smart. When she wants to learn something, she'll keep at it until she figures it out. Judi The big concerns remain: How will Danny ever become independent or semi-independent (or even stay alive and well) if he is oblivious to danger and refuses to take rules seriously? Bev-- mom to Danny, 11, DS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 , I understand that it is a behavioral issue for matthew and danny as well, with no regard for danger. But since Danny is 11, I think he may just be crying out for some trust and semi-independence. He is still 11, probably got some hormones raging and may want to be like other 11 year olds. Bev may just need to work on baby steps of independence to see what he can handle on his own. Like you are doing now with matthew in the backyard, which I think is great! Believe me, I do not love the idea of amanda going to the store in scary Brooklyn alone, but i've got to start letting go. too is oblivious to cars in the street, but shes getting better and we practice alot. I have a Family Service Specialist who come to work with amanda 2x a week and one of the goals is awarness of the community and involvement in the community. They work on street crossing and street rules, etc. Tonight they went out for dinner and amanda ordered for herself. So Bev definately needs some help from an outside agency with danny. Look how far has come in just a few months! ~ Mom to 12 DS and Diabetes Type 1 and 8 NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 Bev, Try this. Call your CSA office (not sure where yours is..maybe with your local DSS office) and tell them you want Danny put on the FAPT schedule. I'm not sure who would case manage this for you -- tell them you do NOT have a case manager, but you are going to request one being assigned when FAPT meets. I think you can do the bulk of the paperwork yourself. You will be requesting in home services to help Danny's behaviors that could lead him to being placed out of the home (you may feel this is stretching it -- but it is possibly true). You could also call the CPS worker you had last year and see if she would help with getting in home services. You could also attempt to get the school's case manager to take this to FAPT. If that fails, my suggestion would be to get an MR case manager from your CSB. It's a good idea to get Danny on the wait list for Waiver and Supportive Living and Group home list. Another option would be finding a private behavioral psychologist who is experienced with kids who have developmental disabilities. We take to Kennedy Krieger at s Hopkins Bayview campus. TIm's insurance covers most of it. You really could do both -- in home and private. How is Danny contained in school? If the school has this problem, they would most likely want a more restrictive setting for him. He did it again! Many of you will remember last winter's saga of Danny's running away, crossing a major highway, and the Child Protective Services that followed. (Allegations declared unfounded.) Since then, vigilance, a home security system that dings every time the front door is open (The front door is really the only one Danny has access to), and a lock that requires a key from the inside. Danny has recently been " helping " me a lot taking the dog in and out. Yesterday, early in the morning, he offered to open the door for me (Offer declined.), which meant he pretty much had figured out the key situation. Later, I asked my DH to take over " Danny duty " because I had caught a nasty cold and needed to sleep. I awoke a little later to a very quiet house and a dozing DH! Obviously, Danny had not only found the keys, but learned which one was needed for the door and how to use it. I called the police and DH started searching the neighborhood. The policeman arrived and immediately said he was being hailed. A neighbor from the next street came running to tell me where Danny was and that he was on his way home with his daddy. After a big sign of relief, I made the poor police officer listen to a barrage of complaints about I had repeatedly asked the school, CPS, and social services(Two conversations last week!) for the help of a behavior specialist. He just said, " Well, the child has been found. " and left as soon as he could. Then the young man from the next street commented on how the cars were parked in the driveway. It seems that before he escaped into the woods, Danny had let himself into our mini-van, experimented with a few switches and levers, and rolled it down the incline of the driveway into the fender of our four-month-old sedan! I'm certainly glad DH did the explaining to the insurance company this morning about how both cars were damaged while in the driveway. Danny happily came home after his big adventure with a nice hug for Mommy. He has no idea how much worry and damage he caused. He does know that he did things he should not have done and that he had to lose TV privileges because of it. For our part, we're glad that he didn't go near the major highway he crossed last spring, and we have set the security system to beep until turned off whenever the door is opened. The big concerns remain: How will Danny ever become independent or semi-independent (or even stay alive and well) if he is oblivious to danger and refuses to take rules seriously? Bev-- mom to Danny, 11, DS Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 I don't know , Danny and have this common problem that I believe is more complex than a child wanting independence. I can't speak for Bev, but would not find his way home. Like Danny, lives near a busy road with ponds and pools nearby. I am working with on boundries. He can go in the backyard unattended (well until he broke out in poison ivy). I'm still working with him while in the front yard. He'll get up and head for the road in a heart beat. He doesn't stop to look for cars (and we've been working on this for years)..he just goes. He use to be good about not going out because Snoop would go, too. Now when he gets mad at me, he'll run for the door and attempt to open it (so Snoop gets out). Re: He did it again! Bev, I really think that Danny is trying to tell you, " Hey look i can go out by myself - look what I can do! " like when amanda got lost in the spring at a street fair and i was frantic, she just said, " I was hungry and wanted a hot dog. I wasnt lost. " So to Danny, he just wanted to go for a walk, he wasnt missing - he might have even gotten back on his own. I think that he may not be as oblivious as you think. I think you need to rethink the boundaries and like driving is definately off limits and set different consequences. OK, take the leaving the house - give him some freedom to leave say 1 or 2 mins and say where he can go. Then after 2-3 mins meet him and keep increasing it each time until he can get it right. I now let amanda go to the corner store - no street crossing or into a store for a drink without me while i wait in the car. Just start very slowly and start to give him some independence little by little because i really think thats what he wants. I know its soooo hard, but we've got to let go eventually........ They see other kids their age doing stuff by themselves and they want to be like them. Sometimes I tell amanda, - well youre just not ready - tell me what you want and we will just keep practicing till you can do it by yourself. ~ Mom to 12 DS and Diabetes Type 1 and 8 NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 HI How would I find out about these organizations? If we have them. I have no idea who to contact to even find out. Sara like Danny has a free spirit (hence to escape). For the past couple months its been to her friends home .... 2 doors down. I have done what suggested and let her go there with my knowledge and permission but she still sneaks over there without it At school Sara is watched closely, but she does have a new goal this year, running errands alone .......... of course someone is lurking around secretly watching her lol Kathy mom to Sara 10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 I have a Family Service Specialist who come to work with amanda 2x a week and one of the goals is awarness of the community and involvement in the community. They work on street crossing and street rules, etc. Tonight they went out for dinner and amanda ordered for herself. So Bev definately needs some help from an outside agency with danny. It's not easy (any MR services) to get here in Virginia. I would not want someone working with on how to order while eating out..b/c I do that and he does order on his own. But, I could definately use someone to help observe interactions and follow through with behavioral plans for home, school and daycare. And Bev..I forgot to mention that you could call and IEP and have the school refer Danny for FAPT. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 , I see a lot of wisdom in what you are saying. I'm going to print this out for retired Daddy, who gets to spend a lot more daylight hours with him than I do. Thanks. Bev P.S. Put me on the Lancaster list. If this runaway business keeps up, I'll need you guys to help me recover from my nervous breakdown! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 The County social worker agrees with me that we need to go the route of IEP, Child Study, FBA, and FAPT; maybe call in an advocate, also. The timing is not good, though, with his regular teacher of the last two years still out. I don't know anything about the sub--she may not even have a degree. The aide is also relatively new--just started last spring. What do all of you think? Should I take the approach that the school has the responsibility to get involved, regardless of who is currently working with him, or should I wait for the teacher (the person in the school who knows him best) to return? Bev wrote: > I have a Family Service Specialist who come to work with amanda 2x a > week and > one of the goals is awarness of the community and involvement in the > community. They work on street crossing and street rules, etc. > Tonight they > went out for dinner and amanda ordered for herself. So Bev definately > needs > some help from an outside agency with danny. > > It's not easy (any MR services) to get here in Virginia. > > I would not want someone working with on how to order while > eating out..b/c I do that and he does order on his own. But, I could > definately use someone to help observe interactions and follow through > with behavioral plans for home, school and daycare. > > And Bev..I forgot to mention that you could call and IEP and have the > school refer Danny for FAPT. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 How scary for you Bev AGAIN!!. Do you have a university hospital near you (I don't know where you live). They usually have behavioral specialists on staff. Worth a try. Loree He did it again! Many of you will remember last winter's saga of Danny's running away, crossing a major highway, and the Child Protective Services that followed. (Allegations declared unfounded.) Since then, vigilance, a home security system that dings every time the front door is open (The front door is really the only one Danny has access to), and a lock that requires a key from the inside. Danny has recently been " helping " me a lot taking the dog in and out. Yesterday, early in the morning, he offered to open the door for me (Offer declined.), which meant he pretty much had figured out the key situation. Later, I asked my DH to take over " Danny duty " because I had caught a nasty cold and needed to sleep. I awoke a little later to a very quiet house and a dozing DH! Obviously, Danny had not only found the keys, but learned which one was needed for the door and how to use it. I called the police and DH started searching the neighborhood. The policeman arrived and immediately said he was being hailed. A neighbor from the next street came running to tell me where Danny was and that he was on his way home with his daddy. After a big sign of relief, I made the poor police officer listen to a barrage of complaints about I had repeatedly asked the school, CPS, and social services(Two conversations last week!) for the help of a behavior specialist. He just said, " Well, the child has been found. " and left as soon as he could. Then the young man from the next street commented on how the cars were parked in the driveway. It seems that before he escaped into the woods, Danny had let himself into our mini-van, experimented with a few switches and levers, and rolled it down the incline of the driveway into the fender of our four-month-old sedan! I'm certainly glad DH did the explaining to the insurance company this morning about how both cars were damaged while in the driveway. Danny happily came home after his big adventure with a nice hug for Mommy. He has no idea how much worry and damage he caused. He does know that he did things he should not have done and that he had to lose TV privileges because of it. For our part, we're glad that he didn't go near the major highway he crossed last spring, and we have set the security system to beep until turned off whenever the door is opened. The big concerns remain: How will Danny ever become independent or semi-independent (or even stay alive and well) if he is oblivious to danger and refuses to take rules seriously? Bev-- mom to Danny, 11, DS Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 , What is FAPT? Juat interested. Loree He did it again! Many of you will remember last winter's saga of Danny's running away, crossing a major highway, and the Child Protective Services that followed. (Allegations declared unfounded.) Since then, vigilance, a home security system that dings every time the front door is open (The front door is really the only one Danny has access to), and a lock that requires a key from the inside. Danny has recently been " helping " me a lot taking the dog in and out. Yesterday, early in the morning, he offered to open the door for me (Offer declined.), which meant he pretty much had figured out the key situation. Later, I asked my DH to take over " Danny duty " because I had caught a nasty cold and needed to sleep. I awoke a little later to a very quiet house and a dozing DH! Obviously, Danny had not only found the keys, but learned which one was needed for the door and how to use it. I called the police and DH started searching the neighborhood. The policeman arrived and immediately said he was being hailed. A neighbor from the next street came running to tell me where Danny was and that he was on his way home with his daddy. After a big sign of relief, I made the poor police officer listen to a barrage of complaints about I had repeatedly asked the school, CPS, and social services(Two conversations last week!) for the help of a behavior specialist. He just said, " Well, the child has been found. " and left as soon as he could. Then the young man from the next street commented on how the cars were parked in the driveway. It seems that before he escaped into the woods, Danny had let himself into our mini-van, experimented with a few switches and levers, and rolled it down the incline of the driveway into the fender of our four-month-old sedan! I'm certainly glad DH did the explaining to the insurance company this morning about how both cars were damaged while in the driveway. Danny happily came home after his big adventure with a nice hug for Mommy. He has no idea how much worry and damage he caused. He does know that he did things he should not have done and that he had to lose TV privileges because of it. For our part, we're glad that he didn't go near the major highway he crossed last spring, and we have set the security system to beep until turned off whenever the door is opened. The big concerns remain: How will Danny ever become independent or semi-independent (or even stay alive and well) if he is oblivious to danger and refuses to take rules seriously? Bev-- mom to Danny, 11, DS Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Kent, I think I might try this with Austin, but for good conduct reports at school, lol. He's getting a bad one about once a week. Mostly for running AWAY from the school at the end of recess...I mean, full day kindy, with one 20 minute recess, he's just not ready to go in, lol. So, thanks for the ideas. LOL, Beth, Mom to Austin, 5/Ds and Dakota, 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 on 9/23/02 6:02 PM, WebMom at web4mom@... wrote: For our part, we're glad that he didn't go near the major highway he crossed last spring, and we have set the security system to beep until turned off whenever the door is opened. The big concerns remain: How will Danny ever become independent or semi-independent (or even stay alive and well) if he is oblivious to danger and refuses to take rules seriously? Hi! Damn!!! That was scary!!!! What about designing a positive reinforcement program for no episodes of running off? It's a low incidence behavior but quite dangerous (as you already know). Maybe Danny could earn 50 cents a day (which is banked) and on Fri. or Sat if he's gone the whole week w/o running off he earns a trip to the local store of his choice to spend his fortune. If Danny does run off, the money earned is carried over to the next week. At the beginning of the 2nd. week the per diem increases to 60 cents a day. At the beginning of the 3rd week w/ no running off he earns 70 cents a day (the maximum). If Danny has an episode of running off he starts over at 50 cents a day and has to work back up to 70 cents a day. If Danny goes an entire month w/o running off then he gets to go to the movies, roller skating to the restaurant of his choice... Mark Danny's choice on a calendar so he has a visual reminder of what he's working for (see below). To make the program even more powerful, use a calendar placed in his bedroom to track Danny's progress for the month. You can also create a really cool puzzle by pasting a poster of something Danny loves to a piece of foam core poster board. Cut the now pasted poster into 7 pieces and place adhesive backed velcro to each puzzle piece and to a second piece of poster board which will serve as the puzzle board. Each day Danny goes w/o running off (at the end of the day) he gets a puzzle piece. If he can go 7 days the puzzle is completed. Hope this helps!!! Take care, Kent -- A Society should be Judged by how it's members treat the Young, the Old and the Infirmed. B. F. Skinner Kent Moreno Rt 1 Box 128-X Burlington, WV 26710 knm@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Oh my gosh Bev, how scary! We lost this weekend while we were in Cape May and I was frantic. It was only for about 5 minutes and it ended up that he was hiding (hoping this isn't a new game), but my heart was beating soooo fast. I really understand your concerns. too has NO fear. He did it again! > Many of you will remember last winter's saga of Danny's running away, > crossing a major highway, and the Child Protective Services that > followed. (Allegations declared unfounded.) Since then, vigilance, a > home security system that dings every time the front door is open (The > front door is really the only one Danny has access to), and a lock that > requires a key from the inside. > Danny has recently been " helping " me a lot taking the dog in and out. > Yesterday, early in the morning, he offered to open the door for me > (Offer declined.), which meant he pretty much had figured out the key > situation. Later, I asked my DH to take over " Danny duty " because I had > caught a nasty cold and needed to sleep. I awoke a little later to a > very quiet house and a dozing DH! Obviously, Danny had not only found > the keys, but learned which one was needed for the door and how to use it. > I called the police and DH started searching the neighborhood. The > policeman arrived and immediately said he was being hailed. A neighbor > from the next street came running to tell me where Danny was and that he > was on his way home with his daddy. > After a big sign of relief, I made the poor police officer listen to > a barrage of complaints about I had repeatedly asked the school, CPS, > and social services(Two conversations last week!) for the help of a > behavior specialist. He just said, " Well, the child has been found. " > and left as soon as he could. > Then the young man from the next street commented on how the cars > were parked in the driveway. It seems that before he escaped into the > woods, Danny had let himself into our mini-van, experimented with a few > switches and levers, and rolled it down the incline of the driveway into > the fender of our four-month-old sedan! I'm certainly glad DH did the > explaining to the insurance company this morning about how both cars > were damaged while in the driveway. > Danny happily came home after his big adventure with a nice hug for > Mommy. He has no idea how much worry and damage he caused. He does > know that he did things he should not have done and that he had to lose > TV privileges because of it. > For our part, we're glad that he didn't go near the major highway he > crossed last spring, and we have set the security system to beep until > turned off whenever the door is opened. The big concerns remain: How > will Danny ever become independent or semi-independent (or even stay > alive and well) if he is oblivious to danger and refuses to take rules > seriously? > Bev-- mom to Danny, 11, DS > > > > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 In a message dated 9/24/02 6:55:00 PM Central Daylight Time, web4mom@... writes: > BTW We took one of the cars to the body shop for an estimate today. It > will be a little over $1,000. And the car that hit it only rolled about > 15 feet down the driveway. > LOL, mary ( 4 or 5 at the time) totaled ($2500, I believe) her sisiters car by rolling it down the hill into a tractor. (tractor was fine, hehe) luckily she was belted in at the time she pulled the gear shift into nutral so she wasn't badly hurt either. And to make that morning even more exciting her other sister totaled her car when she got hit while tring to turn onto the highway. No injuries thankfully. In the end both cars were fixed up using used parts, cost alot less. (and on the bright side since the car that mary totaled never did run exactly right we actually didn't compltely lose our shirts from that bad buy, hehe) Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Bev, Youre right kents got some great ideas - how about a sabbatical now????? I'll tell you, youll love it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Kent, you always come through! The money thing is something I've actually been thinking about, but I wasn't sure how to put it all together. Maybe I can download logos of some of his favorite places to visit (Toys R US, Mcs, etc.) to put on the jar for his money. It also seems like it's time for Danny and me to have an outing with the digital camera to take photos for his social story. I have the parts for an invisible dog fence. Maybe we can spend time in the yard and have Danny carry the beeper the dog will wear on his collar. Uh oh! How will I keep him from getting the electric shocks? Now that the ideas are flowing, all I need is some time at home. Thanks again. Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Isn't it just about the worst feeling a parent can have???!!! Bev BTW We took one of the cars to the body shop for an estimate today. It will be a little over $1,000. And the car that hit it only rolled about 15 feet down the driveway. Ronca wrote: >Oh my gosh Bev, how scary! We lost this weekend while we were in >Cape May and I was frantic. It was only for about 5 minutes and it ended up >that he was hiding (hoping this isn't a new game), but my heart was beating >soooo fast. I really understand your concerns. too has NO fear. > > > He did it again! > > >>Many of you will remember last winter's saga of Danny's running away, >>crossing a major highway, and the Child Protective Services that >>followed. (Allegations declared unfounded.) Since then, vigilance, a >>home security system that dings every time the front door is open (The >>front door is really the only one Danny has access to), and a lock that >>requires a key from the inside. >> Danny has recently been " helping " me a lot taking the dog in and out. >>Yesterday, early in the morning, he offered to open the door for me >>(Offer declined.), which meant he pretty much had figured out the key >>situation. Later, I asked my DH to take over " Danny duty " because I had >>caught a nasty cold and needed to sleep. I awoke a little later to a >>very quiet house and a dozing DH! Obviously, Danny had not only found >>the keys, but learned which one was needed for the door and how to use it. >> I called the police and DH started searching the neighborhood. The >>policeman arrived and immediately said he was being hailed. A neighbor >>from the next street came running to tell me where Danny was and that he >>was on his way home with his daddy. >> After a big sign of relief, I made the poor police officer listen to >>a barrage of complaints about I had repeatedly asked the school, CPS, >>and social services(Two conversations last week!) for the help of a >>behavior specialist. He just said, " Well, the child has been found. " >>and left as soon as he could. >> Then the young man from the next street commented on how the cars >>were parked in the driveway. It seems that before he escaped into the >>woods, Danny had let himself into our mini-van, experimented with a few >>switches and levers, and rolled it down the incline of the driveway into >>the fender of our four-month-old sedan! I'm certainly glad DH did the >>explaining to the insurance company this morning about how both cars >>were damaged while in the driveway. >> Danny happily came home after his big adventure with a nice hug for >>Mommy. He has no idea how much worry and damage he caused. He does >>know that he did things he should not have done and that he had to lose >>TV privileges because of it. >> For our part, we're glad that he didn't go near the major highway he >>crossed last spring, and we have set the security system to beep until >>turned off whenever the door is opened. The big concerns remain: How >>will Danny ever become independent or semi-independent (or even stay >>alive and well) if he is oblivious to danger and refuses to take rules >>seriously? >>Bev-- mom to Danny, 11, DS >> >> >> >> >>Click reply to all for messages to go to the list. Just hit reply for >> >messages to go to the sender of the message. > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 FAPT is Virginia's Family Assessment and Planning Team. Each locality (state and some cities) is represented by staff from DSS, the school system, health department, mental health, private provider and parent representative. Together, the team (with input from the parents) makes treatment/services. Then there are the financial hoops for approval. There are very few MR waiver slots allocated and kids who need services may get that faster through FAPT if they are at risk of placement. My arguement for (well, it's a mute point now) is that when 's behaviors were escalating, he would be moved to a more restrictive setting in school and if we didn't nip things in the bud, then he may eventually need residental. THings are under control for now -- but if we weren't successful in what we are doing now, then the ideal situation would be to have a professional work with the psychologist at Kennedy Krieger and then help implement the plan in all of 's settings (home, daycare and school). I'm 's mom and a professional, but I can tell you that there are times I could use help dealing with -- even if that means someone pointing out what I could change about how I interact or react to him. He did it again! Many of you will remember last winter's saga of Danny's running away, crossing a major highway, and the Child Protective Services that followed. (Allegations declared unfounded.) Since then, vigilance, a home security system that dings every time the front door is open (The front door is really the only one Danny has access to), and a lock that requires a key from the inside. Danny has recently been " helping " me a lot taking the dog in and out. Yesterday, early in the morning, he offered to open the door for me (Offer declined.), which meant he pretty much had figured out the key situation. Later, I asked my DH to take over " Danny duty " because I had caught a nasty cold and needed to sleep. I awoke a little later to a very quiet house and a dozing DH! Obviously, Danny had not only found the keys, but learned which one was needed for the door and how to use it. I called the police and DH started searching the neighborhood. The policeman arrived and immediately said he was being hailed. A neighbor from the next street came running to tell me where Danny was and that he was on his way home with his daddy. After a big sign of relief, I made the poor police officer listen to a barrage of complaints about I had repeatedly asked the school, CPS, and social services(Two conversations last week!) for the help of a behavior specialist. He just said, " Well, the child has been found. " and left as soon as he could. Then the young man from the next street commented on how the cars were parked in the driveway. It seems that before he escaped into the woods, Danny had let himself into our mini-van, experimented with a few switches and levers, and rolled it down the incline of the driveway into the fender of our four-month-old sedan! I'm certainly glad DH did the explaining to the insurance company this morning about how both cars were damaged while in the driveway. Danny happily came home after his big adventure with a nice hug for Mommy. He has no idea how much worry and damage he caused. He does know that he did things he should not have done and that he had to lose TV privileges because of it. For our part, we're glad that he didn't go near the major highway he crossed last spring, and we have set the security system to beep until turned off whenever the door is opened. The big concerns remain: How will Danny ever become independent or semi-independent (or even stay alive and well) if he is oblivious to danger and refuses to take rules seriously? Bev-- mom to Danny, 11, DS Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Bev, It's the school social worker who needs to take this to FAPT. I'm pretty sure you can take this to FAPT yourself and then ask for a case manager to be assigned. The services can be tapped on to his IEP as a related services. I don't think you need his teacher involved - other than pulling information and participating in the IEP. Do you ever have dreams of using duct tape with Danny? When was at the height of his wandering, I'd have all kinds of dreams about containing him. I even dreamt of tying his leg to mine at night. The thought of duct tape has crossed my mind...not that I would use it, but just exploring all options...j/k! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Kathy, Check with your local mental health agency. I know you have said repeatedly that the autism group in your area gets all kinds of services -- it wouldn't hurt to ask them what and how services are delivered. I'd get Sara on the MR Waiver wait list, too. BTW, drove through Fredricksburg on Monday and thought of you Hope you end up here in VA and then talk Mike into moving south in 6 years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 When we put BJ into his own bed and he would wander around, I had dreams of sewing a strip of velcro to his PJ's and the other strip to the bed,. and velcroing him to the bed wrote: >Bev, > >It's the school social worker who needs to take this to FAPT. I'm pretty sure you can take this to FAPT yourself and then ask for a case manager to be assigned. The services can be tapped on to his IEP as a related services. I don't think you need his teacher involved - other than pulling information and participating in the IEP. > >Do you ever have dreams of using duct tape with Danny? When was at the height of his wandering, I'd have all kinds of dreams about containing him. I even dreamt of tying his leg to mine at night. The thought of duct tape has crossed my mind...not that I would use it, but just exploring all options...j/k! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 I will take these ideas and keep them. We are sending BJ to big school next year,a nd he is also a runner. I have been told that they will teach him that there are areas he isn't allowed to leave etc.,. The boundaries are painted. I think that BJ will be frightening us with the escaping soon-he cant reach the front door yet, and the back yard is fully enclosed.........he hasn't found a way out...yet Leis wrote: >When we put BJ into his own bed and he would wander around, I had dreams >of sewing a strip of velcro to his PJ's and the other strip to the bed,. >and velcroing him to the bed > > wrote: > >>Bev, >> >>It's the school social worker who needs to take this to FAPT. I'm pretty sure you can take this to FAPT yourself and then ask for a case manager to be assigned. The services can be tapped on to his IEP as a related services. I don't think you need his teacher involved - other than pulling information and participating in the IEP. >> >>Do you ever have dreams of using duct tape with Danny? When was at the height of his wandering, I'd have all kinds of dreams about containing him. I even dreamt of tying his leg to mine at night. The thought of duct tape has crossed my mind...not that I would use it, but just exploring all options...j/k! >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 LOL!! I sew and I can actually see doing this.... taking a gigantic strip of Velcro and sewing it to the bed! That's too funny! Made my day! Judi ----- Original Message ----- When we put BJ into his own bed and he would wander around, I had dreams of sewing a strip of velcro to his PJ's and the other strip to the bed,. and velcroing him to the bed wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 What wonderful ideas these are! I could use you at the next IEP meeting that I'm about to encounter. Not fun stuff there. Judi ----- Original Message ----- Hi! Damn!!! That was scary!!!! What about designing a positive reinforcement program for no episodes of running off? It's a low incidence behavior but quite dangerous (as you already know). Maybe Danny could earn 50 cents a day (which is banked) and on Fri. or Sat if he's gone the whole week w/o running off he earns a trip to the local store of his choice to spend his fortune. If Danny does run off, the money earned is carried over to the next week. At the beginning of the 2nd. week the per diem increases to 60 cents a day. At the beginning of the 3rd week w/ no running off he earns 70 cents a day (the maximum). If Danny has an episode of running off he starts over at 50 cents a day and has to work back up to 70 cents a day. If Danny goes an entire month w/o running off then he gets to go to the movies, roller skating to the restaurant of his choice... Mark Danny's choice on a calendar so he has a visual reminder of what he's working for (see below). To make the program even more powerful, use a calendar placed in his bedroom to track Danny's progress for the month. You can also create a really cool puzzle by pasting a poster of something Danny loves to a piece of foam core poster board. Cut the now pasted poster into 7 pieces and place adhesive backed velcro to each puzzle piece and to a second piece of poster board which will serve as the puzzle board. Each day Danny goes w/o running off (at the end of the day) he gets a puzzle piece. If he can go 7 days the puzzle is completed. Hope this helps!!! Take care, Kent Quote Link to comment Share on other sites More sharing options...
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