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He did it again!

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Tami

Praise The Lord!

He did it again!

God bless you Tami. God is

sooooooooooooooooooooooooooo------------------------------------

good to us. Who but God can do such things as these?

Love and prayers from cincinnati

Liz

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  • 2 years later...

This is one question that I would like to hear the answer to especially since my

daughter has figured out how to open my mom's front door, get out of the

apartment building and find her way to the parking lot. The neighborhood is

slowly starting to go down hill (due to the drug pushers moving in the area) and

I worry because my mom is almost 60 and twice now, she's turned around for five

minutes and that fast, Jordan was out the door. She doesn't do it here because

I have a dead bolt and a chain that she can't reach and both are used most of

the time. My mom frequently forgets to latch her chain on her door resulting in

temptation for my daughter. She's seven and very smart. When she wants to

learn something, she'll keep at it until she figures it out.

Judi

The big concerns remain: How

will Danny ever become independent or semi-independent (or even stay

alive and well) if he is oblivious to danger and refuses to take rules

seriously?

Bev-- mom to Danny, 11, DS

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,

I understand that it is a behavioral issue for matthew and danny as well,

with no regard for danger. But since Danny is 11, I think he may just be

crying out for some trust and semi-independence. He is still 11, probably

got some hormones raging and may want to be like other 11 year olds.

Bev may just need to work on baby steps of independence to see what he can

handle on his own. Like you are doing now with matthew in the backyard,

which I think is great!

Believe me, I do not love the idea of amanda going to the store in scary

Brooklyn alone, but i've got to start letting go. too is oblivious to

cars in the street, but shes getting better and we practice alot.

I have a Family Service Specialist who come to work with amanda 2x a week and

one of the goals is awarness of the community and involvement in the

community. They work on street crossing and street rules, etc. Tonight they

went out for dinner and amanda ordered for herself. So Bev definately needs

some help from an outside agency with danny.

Look how far has come in just a few months!

~ Mom to 12 DS and Diabetes Type 1 and 8 NY

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Bev,

Try this. Call your CSA office (not sure where yours is..maybe with your local

DSS office) and tell them you want Danny put on the FAPT schedule. I'm not sure

who would case manage this for you -- tell them you do NOT have a case manager,

but you are going to request one being assigned when FAPT meets. I think you

can do the bulk of the paperwork yourself. You will be requesting in home

services to help Danny's behaviors that could lead him to being placed out of

the home (you may feel this is stretching it -- but it is possibly true). You

could also call the CPS worker you had last year and see if she would help with

getting in home services. You could also attempt to get the school's case

manager to take this to FAPT. If that fails, my suggestion would be to get an

MR case manager from your CSB. It's a good idea to get Danny on the wait list

for Waiver and Supportive Living and Group home list.

Another option would be finding a private behavioral psychologist who is

experienced with kids who have developmental disabilities. We take to

Kennedy Krieger at s Hopkins Bayview campus. TIm's insurance covers most of

it. You really could do both -- in home and private.

How is Danny contained in school? If the school has this problem, they would

most likely want a more restrictive setting for him.

He did it again!

Many of you will remember last winter's saga of Danny's running away,

crossing a major highway, and the Child Protective Services that

followed. (Allegations declared unfounded.) Since then, vigilance, a

home security system that dings every time the front door is open (The

front door is really the only one Danny has access to), and a lock that

requires a key from the inside.

Danny has recently been " helping " me a lot taking the dog in and out.

Yesterday, early in the morning, he offered to open the door for me

(Offer declined.), which meant he pretty much had figured out the key

situation. Later, I asked my DH to take over " Danny duty " because I had

caught a nasty cold and needed to sleep. I awoke a little later to a

very quiet house and a dozing DH! Obviously, Danny had not only found

the keys, but learned which one was needed for the door and how to use it.

I called the police and DH started searching the neighborhood. The

policeman arrived and immediately said he was being hailed. A neighbor

from the next street came running to tell me where Danny was and that he

was on his way home with his daddy.

After a big sign of relief, I made the poor police officer listen to

a barrage of complaints about I had repeatedly asked the school, CPS,

and social services(Two conversations last week!) for the help of a

behavior specialist. He just said, " Well, the child has been found. "

and left as soon as he could.

Then the young man from the next street commented on how the cars

were parked in the driveway. It seems that before he escaped into the

woods, Danny had let himself into our mini-van, experimented with a few

switches and levers, and rolled it down the incline of the driveway into

the fender of our four-month-old sedan! I'm certainly glad DH did the

explaining to the insurance company this morning about how both cars

were damaged while in the driveway.

Danny happily came home after his big adventure with a nice hug for

Mommy. He has no idea how much worry and damage he caused. He does

know that he did things he should not have done and that he had to lose

TV privileges because of it.

For our part, we're glad that he didn't go near the major highway he

crossed last spring, and we have set the security system to beep until

turned off whenever the door is opened. The big concerns remain: How

will Danny ever become independent or semi-independent (or even stay

alive and well) if he is oblivious to danger and refuses to take rules

seriously?

Bev-- mom to Danny, 11, DS

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

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I don't know , Danny and have this common problem that I believe is

more complex than a child wanting independence. I can't speak for Bev, but

would not find his way home. Like Danny, lives near a busy road

with ponds and pools nearby.

I am working with on boundries. He can go in the backyard unattended

(well until he broke out in poison ivy). I'm still working with him while in

the front yard. He'll get up and head for the road in a heart beat. He doesn't

stop to look for cars (and we've been working on this for years)..he just goes.

He use to be good about not going out because Snoop would go, too. Now when he

gets mad at me, he'll run for the door and attempt to open it (so Snoop gets

out).

Re: He did it again!

Bev,

I really think that Danny is trying to tell you, " Hey look i can go out by

myself - look what I can do! " like when amanda got lost in the spring at a

street fair and i was frantic, she just said, " I was hungry and wanted a hot

dog. I wasnt lost. "

So to Danny, he just wanted to go for a walk, he wasnt missing - he might

have even gotten back on his own. I think that he may not be as oblivious as

you think. I think you need to rethink the boundaries and like driving is

definately off limits and set different consequences.

OK, take the leaving the house - give him some freedom to leave say 1 or 2

mins and say where he can go. Then after 2-3 mins meet him and keep

increasing it each time until he can get it right. I now let amanda go to

the corner store - no street crossing or into a store for a drink without me

while i wait in the car.

Just start very slowly and start to give him some independence little by

little because i really think thats what he wants. I know its soooo hard,

but we've got to let go eventually........

They see other kids their age doing stuff by themselves and they want to be

like them. Sometimes I tell amanda, - well youre just not ready - tell me

what you want and we will just keep practicing till you can do it by yourself.

~ Mom to 12 DS and Diabetes Type 1 and 8 NY

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HI :)

How would I find out about these organizations? If we have them. I have no

idea who to contact to even find out.

Sara like Danny has a free spirit (hence to escape). For the past couple

months its been to her friends home .... 2 doors down. I have done what

suggested and let her go there with my knowledge and permission but she still

sneaks over there without it :(

At school Sara is watched closely, but she does have a new goal this year,

running errands alone .......... of course someone is lurking around secretly

watching her lol

Kathy mom to Sara 10

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I have a Family Service Specialist who come to work with amanda 2x a week and

one of the goals is awarness of the community and involvement in the

community. They work on street crossing and street rules, etc. Tonight they

went out for dinner and amanda ordered for herself. So Bev definately needs

some help from an outside agency with danny.

It's not easy (any MR services) to get here in Virginia.

I would not want someone working with on how to order while eating

out..b/c I do that and he does order on his own. But, I could definately use

someone to help observe interactions and follow through with behavioral plans

for home, school and daycare.

And Bev..I forgot to mention that you could call and IEP and have the school

refer Danny for FAPT.

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, I see a lot of wisdom in what you are saying. I'm going to print

this out for retired Daddy, who gets to spend a lot more daylight hours

with him than I do.

Thanks.

Bev

P.S. Put me on the Lancaster list. If this runaway business keeps up,

I'll need you guys to help me recover from my nervous breakdown!

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The County social worker agrees with me that we need to go the route of

IEP, Child Study, FBA, and FAPT; maybe call in an advocate, also. The

timing is not good, though, with his regular teacher of the last two

years still out. I don't know anything about the sub--she may not even

have a degree. The aide is also relatively new--just started last spring.

What do all of you think? Should I take the approach that the school

has the responsibility to get involved, regardless of who is currently

working with him, or should I wait for the teacher (the person in the

school who knows him best) to return?

Bev

wrote:

> I have a Family Service Specialist who come to work with amanda 2x a

> week and

> one of the goals is awarness of the community and involvement in the

> community. They work on street crossing and street rules, etc.

> Tonight they

> went out for dinner and amanda ordered for herself. So Bev definately

> needs

> some help from an outside agency with danny.

>

> It's not easy (any MR services) to get here in Virginia.

>

> I would not want someone working with on how to order while

> eating out..b/c I do that and he does order on his own. But, I could

> definately use someone to help observe interactions and follow through

> with behavioral plans for home, school and daycare.

>

> And Bev..I forgot to mention that you could call and IEP and have the

> school refer Danny for FAPT.

>

>

>

>

>

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How scary for you Bev AGAIN!!. Do you have a university hospital near you (I

don't know where you live). They usually have behavioral specialists on staff.

Worth a try. Loree

He did it again!

Many of you will remember last winter's saga of Danny's running away,

crossing a major highway, and the Child Protective Services that

followed. (Allegations declared unfounded.) Since then, vigilance, a

home security system that dings every time the front door is open (The

front door is really the only one Danny has access to), and a lock that

requires a key from the inside.

Danny has recently been " helping " me a lot taking the dog in and out.

Yesterday, early in the morning, he offered to open the door for me

(Offer declined.), which meant he pretty much had figured out the key

situation. Later, I asked my DH to take over " Danny duty " because I had

caught a nasty cold and needed to sleep. I awoke a little later to a

very quiet house and a dozing DH! Obviously, Danny had not only found

the keys, but learned which one was needed for the door and how to use it.

I called the police and DH started searching the neighborhood. The

policeman arrived and immediately said he was being hailed. A neighbor

from the next street came running to tell me where Danny was and that he

was on his way home with his daddy.

After a big sign of relief, I made the poor police officer listen to

a barrage of complaints about I had repeatedly asked the school, CPS,

and social services(Two conversations last week!) for the help of a

behavior specialist. He just said, " Well, the child has been found. "

and left as soon as he could.

Then the young man from the next street commented on how the cars

were parked in the driveway. It seems that before he escaped into the

woods, Danny had let himself into our mini-van, experimented with a few

switches and levers, and rolled it down the incline of the driveway into

the fender of our four-month-old sedan! I'm certainly glad DH did the

explaining to the insurance company this morning about how both cars

were damaged while in the driveway.

Danny happily came home after his big adventure with a nice hug for

Mommy. He has no idea how much worry and damage he caused. He does

know that he did things he should not have done and that he had to lose

TV privileges because of it.

For our part, we're glad that he didn't go near the major highway he

crossed last spring, and we have set the security system to beep until

turned off whenever the door is opened. The big concerns remain: How

will Danny ever become independent or semi-independent (or even stay

alive and well) if he is oblivious to danger and refuses to take rules

seriously?

Bev-- mom to Danny, 11, DS

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

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, What is FAPT? Juat interested. Loree

He did it again!

Many of you will remember last winter's saga of Danny's running away,

crossing a major highway, and the Child Protective Services that

followed. (Allegations declared unfounded.) Since then, vigilance, a

home security system that dings every time the front door is open (The

front door is really the only one Danny has access to), and a lock that

requires a key from the inside.

Danny has recently been " helping " me a lot taking the dog in and out.

Yesterday, early in the morning, he offered to open the door for me

(Offer declined.), which meant he pretty much had figured out the key

situation. Later, I asked my DH to take over " Danny duty " because I had

caught a nasty cold and needed to sleep. I awoke a little later to a

very quiet house and a dozing DH! Obviously, Danny had not only found

the keys, but learned which one was needed for the door and how to use it.

I called the police and DH started searching the neighborhood. The

policeman arrived and immediately said he was being hailed. A neighbor

from the next street came running to tell me where Danny was and that he

was on his way home with his daddy.

After a big sign of relief, I made the poor police officer listen to

a barrage of complaints about I had repeatedly asked the school, CPS,

and social services(Two conversations last week!) for the help of a

behavior specialist. He just said, " Well, the child has been found. "

and left as soon as he could.

Then the young man from the next street commented on how the cars

were parked in the driveway. It seems that before he escaped into the

woods, Danny had let himself into our mini-van, experimented with a few

switches and levers, and rolled it down the incline of the driveway into

the fender of our four-month-old sedan! I'm certainly glad DH did the

explaining to the insurance company this morning about how both cars

were damaged while in the driveway.

Danny happily came home after his big adventure with a nice hug for

Mommy. He has no idea how much worry and damage he caused. He does

know that he did things he should not have done and that he had to lose

TV privileges because of it.

For our part, we're glad that he didn't go near the major highway he

crossed last spring, and we have set the security system to beep until

turned off whenever the door is opened. The big concerns remain: How

will Danny ever become independent or semi-independent (or even stay

alive and well) if he is oblivious to danger and refuses to take rules

seriously?

Bev-- mom to Danny, 11, DS

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

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Kent, I think I might try this with Austin, but for good conduct reports at

school, lol. He's getting a bad one about once a week. Mostly for running

AWAY from the school at the end of recess...I mean, full day kindy, with one

20 minute recess, he's just not ready to go in, lol. So, thanks for the

ideas. LOL, Beth, Mom to Austin, 5/Ds and Dakota, 5

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on 9/23/02 6:02 PM, WebMom at web4mom@... wrote:

For our part, we're glad that he didn't go near the major highway he

crossed last spring, and we have set the security system to beep until

turned off whenever the door is opened. The big concerns remain: How

will Danny ever become independent or semi-independent (or even stay

alive and well) if he is oblivious to danger and refuses to take rules

seriously?

Hi!

Damn!!! That was scary!!!! What about designing a positive reinforcement

program for no episodes of running off? It's a low incidence behavior but

quite dangerous (as you already know). Maybe Danny could earn 50 cents a

day (which is banked) and on Fri. or Sat if he's gone the whole week w/o

running off he earns a trip to the local store of his choice to spend his

fortune. If Danny does run off, the money earned is carried over to the

next week. At the beginning of the 2nd. week the per diem increases to 60

cents a day. At the beginning of the 3rd week w/ no running off he earns 70

cents a day (the maximum). If Danny has an episode of running off he starts

over at 50 cents a day and has to work back up to 70 cents a day.

If Danny goes an entire month w/o running off then he gets to go to the

movies, roller skating to the restaurant of his choice... Mark Danny's

choice on a calendar so he has a visual reminder of what he's working for

(see below).

To make the program even more powerful, use a calendar placed in his bedroom

to track Danny's progress for the month. You can also create a really cool

puzzle by pasting a poster of something Danny loves to a piece of foam core

poster board. Cut the now pasted poster into 7 pieces and place adhesive

backed velcro to each puzzle piece and to a second piece of poster board

which will serve as the puzzle board. Each day Danny goes w/o running off

(at the end of the day) he gets a puzzle piece. If he can go 7 days the

puzzle is completed.

Hope this helps!!!

Take care,

Kent

--

A Society should be Judged by how it's members treat the Young, the Old and

the Infirmed.

B. F. Skinner

Kent Moreno

Rt 1 Box 128-X

Burlington, WV 26710

knm@...

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Oh my gosh Bev, how scary! We lost this weekend while we were in

Cape May and I was frantic. It was only for about 5 minutes and it ended up

that he was hiding (hoping this isn't a new game), but my heart was beating

soooo fast. I really understand your concerns. too has NO fear.

He did it again!

> Many of you will remember last winter's saga of Danny's running away,

> crossing a major highway, and the Child Protective Services that

> followed. (Allegations declared unfounded.) Since then, vigilance, a

> home security system that dings every time the front door is open (The

> front door is really the only one Danny has access to), and a lock that

> requires a key from the inside.

> Danny has recently been " helping " me a lot taking the dog in and out.

> Yesterday, early in the morning, he offered to open the door for me

> (Offer declined.), which meant he pretty much had figured out the key

> situation. Later, I asked my DH to take over " Danny duty " because I had

> caught a nasty cold and needed to sleep. I awoke a little later to a

> very quiet house and a dozing DH! Obviously, Danny had not only found

> the keys, but learned which one was needed for the door and how to use it.

> I called the police and DH started searching the neighborhood. The

> policeman arrived and immediately said he was being hailed. A neighbor

> from the next street came running to tell me where Danny was and that he

> was on his way home with his daddy.

> After a big sign of relief, I made the poor police officer listen to

> a barrage of complaints about I had repeatedly asked the school, CPS,

> and social services(Two conversations last week!) for the help of a

> behavior specialist. He just said, " Well, the child has been found. "

> and left as soon as he could.

> Then the young man from the next street commented on how the cars

> were parked in the driveway. It seems that before he escaped into the

> woods, Danny had let himself into our mini-van, experimented with a few

> switches and levers, and rolled it down the incline of the driveway into

> the fender of our four-month-old sedan! I'm certainly glad DH did the

> explaining to the insurance company this morning about how both cars

> were damaged while in the driveway.

> Danny happily came home after his big adventure with a nice hug for

> Mommy. He has no idea how much worry and damage he caused. He does

> know that he did things he should not have done and that he had to lose

> TV privileges because of it.

> For our part, we're glad that he didn't go near the major highway he

> crossed last spring, and we have set the security system to beep until

> turned off whenever the door is opened. The big concerns remain: How

> will Danny ever become independent or semi-independent (or even stay

> alive and well) if he is oblivious to danger and refuses to take rules

> seriously?

> Bev-- mom to Danny, 11, DS

>

>

>

>

> Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

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In a message dated 9/24/02 6:55:00 PM Central Daylight Time,

web4mom@... writes:

> BTW We took one of the cars to the body shop for an estimate today. It

> will be a little over $1,000. And the car that hit it only rolled about

> 15 feet down the driveway.

>

LOL,

mary ( 4 or 5 at the time) totaled ($2500, I believe) her sisiters car by

rolling it down the hill into a tractor. (tractor was fine, hehe) luckily

she was belted in at the time she pulled the gear shift into nutral so she

wasn't badly hurt either.

And to make that morning even more exciting her other sister totaled her car

when she got hit while tring to turn onto the highway. No injuries

thankfully.

In the end both cars were fixed up using used parts, cost alot less. (and on

the bright side since the car that mary totaled never did run exactly right

we actually didn't compltely lose our shirts from that bad buy, hehe)

Joy

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Kent, you always come through! The money thing is something I've

actually been thinking about, but I wasn't sure how to put it all

together. Maybe I can download logos of some of his favorite places to

visit (Toys R US, Mcs, etc.) to put on the jar for his money.

It also seems like it's time for Danny and me to have an outing with

the digital camera to take photos for his social story.

I have the parts for an invisible dog fence. Maybe we can spend time

in the yard and have Danny carry the beeper the dog will wear on his

collar. Uh oh! How will I keep him from getting the electric shocks?

Now that the ideas are flowing, all I need is some time at home.

Thanks again.

Bev

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Isn't it just about the worst feeling a parent can have???!!!

Bev

BTW We took one of the cars to the body shop for an estimate today. It

will be a little over $1,000. And the car that hit it only rolled about

15 feet down the driveway.

Ronca wrote:

>Oh my gosh Bev, how scary! We lost this weekend while we were in

>Cape May and I was frantic. It was only for about 5 minutes and it ended up

>that he was hiding (hoping this isn't a new game), but my heart was beating

>soooo fast. I really understand your concerns. too has NO fear.

>

>

> He did it again!

>

>

>>Many of you will remember last winter's saga of Danny's running away,

>>crossing a major highway, and the Child Protective Services that

>>followed. (Allegations declared unfounded.) Since then, vigilance, a

>>home security system that dings every time the front door is open (The

>>front door is really the only one Danny has access to), and a lock that

>>requires a key from the inside.

>> Danny has recently been " helping " me a lot taking the dog in and out.

>>Yesterday, early in the morning, he offered to open the door for me

>>(Offer declined.), which meant he pretty much had figured out the key

>>situation. Later, I asked my DH to take over " Danny duty " because I had

>>caught a nasty cold and needed to sleep. I awoke a little later to a

>>very quiet house and a dozing DH! Obviously, Danny had not only found

>>the keys, but learned which one was needed for the door and how to use it.

>> I called the police and DH started searching the neighborhood. The

>>policeman arrived and immediately said he was being hailed. A neighbor

>>from the next street came running to tell me where Danny was and that he

>>was on his way home with his daddy.

>> After a big sign of relief, I made the poor police officer listen to

>>a barrage of complaints about I had repeatedly asked the school, CPS,

>>and social services(Two conversations last week!) for the help of a

>>behavior specialist. He just said, " Well, the child has been found. "

>>and left as soon as he could.

>> Then the young man from the next street commented on how the cars

>>were parked in the driveway. It seems that before he escaped into the

>>woods, Danny had let himself into our mini-van, experimented with a few

>>switches and levers, and rolled it down the incline of the driveway into

>>the fender of our four-month-old sedan! I'm certainly glad DH did the

>>explaining to the insurance company this morning about how both cars

>>were damaged while in the driveway.

>> Danny happily came home after his big adventure with a nice hug for

>>Mommy. He has no idea how much worry and damage he caused. He does

>>know that he did things he should not have done and that he had to lose

>>TV privileges because of it.

>> For our part, we're glad that he didn't go near the major highway he

>>crossed last spring, and we have set the security system to beep until

>>turned off whenever the door is opened. The big concerns remain: How

>>will Danny ever become independent or semi-independent (or even stay

>>alive and well) if he is oblivious to danger and refuses to take rules

>>seriously?

>>Bev-- mom to Danny, 11, DS

>>

>>

>>

>>

>>Click reply to all for messages to go to the list. Just hit reply for

>>

>messages to go to the sender of the message.

>

>>

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FAPT is Virginia's Family Assessment and Planning Team. Each locality (state

and some cities) is represented by staff from DSS, the school system, health

department, mental health, private provider and parent representative.

Together, the team (with input from the parents) makes treatment/services. Then

there are the financial hoops for approval. There are very few MR waiver slots

allocated and kids who need services may get that faster through FAPT if they

are at risk of placement.

My arguement for (well, it's a mute point now) is that when 's behaviors

were escalating, he would be moved to a more restrictive setting in school and

if we didn't nip things in the bud, then he may eventually need residental.

THings are under control for now -- but if we weren't successful in what we are

doing now, then the ideal situation would be to have a professional work with

the psychologist at Kennedy Krieger and then help implement the plan in all of

's settings (home, daycare and school). I'm 's mom and a

professional, but I can tell you that there are times I could use help dealing

with -- even if that means someone pointing out what I could change

about how I interact or react to him.

He did it again!

Many of you will remember last winter's saga of Danny's running away,

crossing a major highway, and the Child Protective Services that

followed. (Allegations declared unfounded.) Since then, vigilance, a

home security system that dings every time the front door is open (The

front door is really the only one Danny has access to), and a lock that

requires a key from the inside.

Danny has recently been " helping " me a lot taking the dog in and out.

Yesterday, early in the morning, he offered to open the door for me

(Offer declined.), which meant he pretty much had figured out the key

situation. Later, I asked my DH to take over " Danny duty " because I had

caught a nasty cold and needed to sleep. I awoke a little later to a

very quiet house and a dozing DH! Obviously, Danny had not only found

the keys, but learned which one was needed for the door and how to use it.

I called the police and DH started searching the neighborhood. The

policeman arrived and immediately said he was being hailed. A neighbor

from the next street came running to tell me where Danny was and that he

was on his way home with his daddy.

After a big sign of relief, I made the poor police officer listen to

a barrage of complaints about I had repeatedly asked the school, CPS,

and social services(Two conversations last week!) for the help of a

behavior specialist. He just said, " Well, the child has been found. "

and left as soon as he could.

Then the young man from the next street commented on how the cars

were parked in the driveway. It seems that before he escaped into the

woods, Danny had let himself into our mini-van, experimented with a few

switches and levers, and rolled it down the incline of the driveway into

the fender of our four-month-old sedan! I'm certainly glad DH did the

explaining to the insurance company this morning about how both cars

were damaged while in the driveway.

Danny happily came home after his big adventure with a nice hug for

Mommy. He has no idea how much worry and damage he caused. He does

know that he did things he should not have done and that he had to lose

TV privileges because of it.

For our part, we're glad that he didn't go near the major highway he

crossed last spring, and we have set the security system to beep until

turned off whenever the door is opened. The big concerns remain: How

will Danny ever become independent or semi-independent (or even stay

alive and well) if he is oblivious to danger and refuses to take rules

seriously?

Bev-- mom to Danny, 11, DS

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

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Bev,

It's the school social worker who needs to take this to FAPT. I'm pretty sure

you can take this to FAPT yourself and then ask for a case manager to be

assigned. The services can be tapped on to his IEP as a related services. I

don't think you need his teacher involved - other than pulling information and

participating in the IEP.

Do you ever have dreams of using duct tape with Danny? When was at the

height of his wandering, I'd have all kinds of dreams about containing him. I

even dreamt of tying his leg to mine at night. The thought of duct tape has

crossed my mind...not that I would use it, but just exploring all options...j/k!

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Kathy,

Check with your local mental health agency. I know you have said repeatedly

that the autism group in your area gets all kinds of services -- it wouldn't

hurt to ask them what and how services are delivered. I'd get Sara on the MR

Waiver wait list, too.

BTW, drove through Fredricksburg on Monday and thought of you ;) Hope you end

up here in VA and then talk Mike into moving south in 6 years.

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When we put BJ into his own bed and he would wander around, I had dreams

of sewing a strip of velcro to his PJ's and the other strip to the bed,.

and velcroing him to the bed :)

wrote:

>Bev,

>

>It's the school social worker who needs to take this to FAPT. I'm pretty sure

you can take this to FAPT yourself and then ask for a case manager to be

assigned. The services can be tapped on to his IEP as a related services. I

don't think you need his teacher involved - other than pulling information and

participating in the IEP.

>

>Do you ever have dreams of using duct tape with Danny? When was at the

height of his wandering, I'd have all kinds of dreams about containing him. I

even dreamt of tying his leg to mine at night. The thought of duct tape has

crossed my mind...not that I would use it, but just exploring all options...j/k!

>

>

>

>

>

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I will take these ideas and keep them. We are sending BJ to big school

next year,a nd he is also a runner. I have been told that they will

teach him that there are areas he isn't allowed to leave etc.,. The

boundaries are painted. I think that BJ will be frightening us with the

escaping soon-he cant reach the front door yet, and the back yard is

fully enclosed.........he hasn't found a way out...yet :)

Leis wrote:

>When we put BJ into his own bed and he would wander around, I had dreams

>of sewing a strip of velcro to his PJ's and the other strip to the bed,.

>and velcroing him to the bed :)

>

> wrote:

>

>>Bev,

>>

>>It's the school social worker who needs to take this to FAPT. I'm pretty sure

you can take this to FAPT yourself and then ask for a case manager to be

assigned. The services can be tapped on to his IEP as a related services. I

don't think you need his teacher involved - other than pulling information and

participating in the IEP.

>>

>>Do you ever have dreams of using duct tape with Danny? When was at

the height of his wandering, I'd have all kinds of dreams about containing him.

I even dreamt of tying his leg to mine at night. The thought of duct tape has

crossed my mind...not that I would use it, but just exploring all options...j/k!

>>

>>

>>

>>

>>

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LOL!! I sew and I can actually see doing this.... taking a gigantic strip of

Velcro and sewing it to the bed! That's too funny! Made my day!

Judi

----- Original Message -----

When we put BJ into his own bed and he would wander around, I had dreams

of sewing a strip of velcro to his PJ's and the other strip to the bed,.

and velcroing him to the bed :)

wrote:

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What wonderful ideas these are! I could use you at the next IEP meeting that

I'm about to encounter.

Not fun stuff there.

Judi

----- Original Message -----

Hi!

Damn!!! That was scary!!!! What about designing a positive reinforcement

program for no episodes of running off? It's a low incidence behavior but

quite dangerous (as you already know). Maybe Danny could earn 50 cents a

day (which is banked) and on Fri. or Sat if he's gone the whole week w/o

running off he earns a trip to the local store of his choice to spend his

fortune. If Danny does run off, the money earned is carried over to the

next week. At the beginning of the 2nd. week the per diem increases to 60

cents a day. At the beginning of the 3rd week w/ no running off he earns 70

cents a day (the maximum). If Danny has an episode of running off he starts

over at 50 cents a day and has to work back up to 70 cents a day.

If Danny goes an entire month w/o running off then he gets to go to the

movies, roller skating to the restaurant of his choice... Mark Danny's

choice on a calendar so he has a visual reminder of what he's working for

(see below).

To make the program even more powerful, use a calendar placed in his bedroom

to track Danny's progress for the month. You can also create a really cool

puzzle by pasting a poster of something Danny loves to a piece of foam core

poster board. Cut the now pasted poster into 7 pieces and place adhesive

backed velcro to each puzzle piece and to a second piece of poster board

which will serve as the puzzle board. Each day Danny goes w/o running off

(at the end of the day) he gets a puzzle piece. If he can go 7 days the

puzzle is completed.

Hope this helps!!!

Take care,

Kent

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