Guest guest Posted October 27, 2011 Report Share Posted October 27, 2011 Hi Aandraya,Were you able to find a way to set up a conference call on Friday? If not, we can reschedule for another day, maybe a Saturday or Sunday so Aggi could call in too? I know the ILADS streaming conference is starting tomorrow too and I intend on watching most of it. Streaming conference starts 7:30 am - 12 noon Friday and 5:30 am - 11:15 am on Saturday for me on Pacific time. For you it would start Fri at 9:30 am.Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 I agree the waxy stuff is fungal. I'm not getting it now and I believe the Voriconazole/Itracon. has knocked it out finally have been on those meds daily since April 20, 2011.Sounds like a plan. I still say do a trial run of artemisinin to see if you got the babesia, 800 mg a day for a week and see if you herx because people do not recover if babs is still an issue. I thought mine was completely gone until last Oct. when I decided to try some art. I knew almost immediately I hadn't gotten it. I have to send you the ILADS links, keep sending them to your old email. On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent.1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with.2. Double the Doxycycline dose to 200 mg 2x/day.3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes.4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer.5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin.6. Get liver testing done frequently while doing the above.7. We will be treating for Ehrlichia during this time.8. She believes that the waxy substance on my face is fungal. It is not biofilm.9. The bicillin is what she gives for people who are having severe arthritic symptoms.10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens.It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 1/4 tab of Ivermectin daily? For how long? So how many mg would that be?On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent.1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with.2. Double the Doxycycline dose to 200 mg 2x/day.3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes.4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer.5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin.6. Get liver testing done frequently while doing the above.7. We will be treating for Ehrlichia during this time.8. She believes that the waxy substance on my face is fungal. It is not biofilm.9. The bicillin is what she gives for people who are having severe arthritic symptoms.10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens.It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Schaller was going to give me Ivermectin and then I stopped seeing him. The LLMDs around here are using itOn Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent.1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with.2. Double the Doxycycline dose to 200 mg 2x/day.3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes.4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer.5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin.6. Get liver testing done frequently while doing the above.7. We will be treating for Ehrlichia during this time.8. She believes that the waxy substance on my face is fungal. It is not biofilm.9. The bicillin is what she gives for people who are having severe arthritic symptoms.10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens.It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 She didn't say. 1/4 tab... what sizes do they come?From: "Aandraya" <aandraya@...>bird mites Sent: Monday, January 30, 2012 6:20:37 PMSubject: Re: To Aandraya 1/4 tab of Ivermectin daily? For how long? So how many mg would that be?On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent.1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with.2. Double the Doxycycline dose to 200 mg 2x/day.3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes.4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer.5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin.6. Get liver testing done frequently while doing the above.7. We will be treating for Ehrlichia during this time.8. She believes that the waxy substance on my face is fungal. It is not biofilm.9. The bicillin is what she gives for people who are having severe arthritic symptoms.10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens.It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 I think it has to be used in combination with the Doxy to be effective for this parasite. Nothing else seems to work for it.From: "Aandraya" <aandraya@...>bird mites Sent: Monday, January 30, 2012 6:21:39 PMSubject: Re: To Aandraya Schaller was going to give me Ivermectin and then I stopped seeing him. The LLMDs around here are using itOn Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent.1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with.2. Double the Doxycycline dose to 200 mg 2x/day.3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes.4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer.5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin.6. Get liver testing done frequently while doing the above.7. We will be treating for Ehrlichia during this time.8. She believes that the waxy substance on my face is fungal. It is not biofilm.9. The bicillin is what she gives for people who are having severe arthritic symptoms.10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens.It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 Oh linda It scares me too People havin to put so many chemicals into their system!:-( ------------------------------ On Mon, Jan 30, 2012 16:47 PST Goldstein@... wrote: >I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent. > > >1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with. > > >2. Double the Doxycycline dose to 200 mg 2x/day. > > >3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes. > > >4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer. > > >5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin. > > >6. Get liver testing done frequently while doing the above. > > >7. We will be treating for Ehrlichia during this time. > > >8. She believes that the waxy substance on my face is fungal. It is not biofilm. > > >9. The bicillin is what she gives for people who are having severe arthritic symptoms. > > >10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens. > > >It was a productive appointment and I'm hopeful and scared about ramping it up. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 Thanks C. It scares me too.From: "Sad Girl" <wherearetheangels@...>bird mites Sent: Tuesday, January 31, 2012 2:35:17 AMSubject: Re: To AandrayaOh lindaIt scares me tooPeople havin to put so many chemicals into their system!:-(------------------------------On Mon, Jan 30, 2012 16:47 PST Goldstein@... wrote:>I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent. >>>1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with. >>>2. Double the Doxycycline dose to 200 mg 2x/day. >>>3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes. >>>4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer. >>>5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin. >>>6. Get liver testing done frequently while doing the above. >>>7. We will be treating for Ehrlichia during this time. >>>8. She believes that the waxy substance on my face is fungal. It is not biofilm. >>>9. The bicillin is what she gives for people who are having severe arthritic symptoms. >>>10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens. >>>It was a productive appointment and I'm hopeful and scared about ramping it up. >>> >>>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 You might be right about that Aa... we will see. She has other drugs for Bart after this one.From: "Aandraya" <aandraya@...>bird mites Sent: Monday, January 30, 2012 6:17:21 PMSubject: Re: To Aandraya The tendinitis on levaquin is probably a herx. Many herx badly on it including myself. My doctor uses it regularily as oral and IV. Not sure if the Rifampin alone will get the Bart at least in my case. I'm on my second course of it and now pretty much pain free. The babesia treatment was key for me, should have done it longer the first time. On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent.1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with.2. Double the Doxycycline dose to 200 mg 2x/day.3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes.4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer.5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin.6. Get liver testing done frequently while doing the above.7. We will be treating for Ehrlichia during this time.8. She believes that the waxy substance on my face is fungal. It is not biofilm.9. The bicillin is what she gives for people who are having severe arthritic symptoms.10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens.It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 I really don't want to do the artemisinin right now even if I do have Babs. I have to wait to see how my body reacts, esp. the liver to all the new stuff I'm adding in... but thanks! I took 5 caps of Art 2x/day for 6 months before. That was also hard on the liver.From: "Aandraya" <aandraya@...>bird mites Sent: Monday, January 30, 2012 6:14:02 PMSubject: Re: To Aandraya I agree the waxy stuff is fungal. I'm not getting it now and I believe the Voriconazole/Itracon. has knocked it out finally have been on those meds daily since April 20, 2011.Sounds like a plan. I still say do a trial run of artemisinin to see if you got the babesia, 800 mg a day for a week and see if you herx because people do not recover if babs is still an issue. I thought mine was completely gone until last Oct. when I decided to try some art. I knew almost immediately I hadn't gotten it. I have to send you the ILADS links, keep sending them to your old email. On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent.1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with.2. Double the Doxycycline dose to 200 mg 2x/day.3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes.4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer.5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin.6. Get liver testing done frequently while doing the above.7. We will be treating for Ehrlichia during this time.8. She believes that the waxy substance on my face is fungal. It is not biofilm.9. The bicillin is what she gives for people who are having severe arthritic symptoms.10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens.It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2012 Report Share Posted February 4, 2012 Can you do artemisinin while on doxy? From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Monday, January 30, 2012 9:14 PMSubject: Re: To Aandraya I agree the waxy stuff is fungal. I'm not getting it now and I believe the Voriconazole/Itracon. has knocked it out finally have been on those meds daily since April 20, 2011. Sounds like a plan. I still say do a trial run of artemisinin to see if you got the babesia, 800 mg a day for a week and see if you herx because people do not recover if babs is still an issue. I thought mine was completely gone until last Oct. when I decided to try some art. I knew almost immediately I hadn't gotten it. I have to send you the ILADS links, keep sending them to your old email. On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent. 1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with. 2. Double the Doxycycline dose to 200 mg 2x/day. 3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes. 4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer. 5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin. 6. Get liver testing done frequently while doing the above. 7. We will be treating for Ehrlichia during this time. 8. She believes that the waxy substance on my face is fungal. It is not biofilm. 9. The bicillin is what she gives for people who are having severe arthritic symptoms. 10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens. It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2012 Report Share Posted February 4, 2012 I asked Dr. M last week about it and she said no, but I'll ask again on Wednesday when I have her administer my Bicillin shot.From: " Benton" <sarahbenton48@...>bird mites Sent: Saturday, February 4, 2012 7:11:11 AMSubject: Re: To Aandraya Can you do artemisinin while on doxy? From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Monday, January 30, 2012 9:14 PMSubject: Re: To Aandraya I agree the waxy stuff is fungal. I'm not getting it now and I believe the Voriconazole/Itracon. has knocked it out finally have been on those meds daily since April 20, 2011. Sounds like a plan. I still say do a trial run of artemisinin to see if you got the babesia, 800 mg a day for a week and see if you herx because people do not recover if babs is still an issue. I thought mine was completely gone until last Oct. when I decided to try some art. I knew almost immediately I hadn't gotten it. I have to send you the ILADS links, keep sending them to your old email. On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent. 1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with. 2. Double the Doxycycline dose to 200 mg 2x/day. 3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes. 4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer. 5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin. 6. Get liver testing done frequently while doing the above. 7. We will be treating for Ehrlichia during this time. 8. She believes that the waxy substance on my face is fungal. It is not biofilm. 9. The bicillin is what she gives for people who are having severe arthritic symptoms. 10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens. It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2012 Report Share Posted February 4, 2012 Thanx From: "Goldstein@..." <Goldstein@...>bird mites Sent: Saturday, February 4, 2012 10:23 AMSubject: Re: To Aandraya I asked Dr. M last week about it and she said no, but I'll ask again on Wednesday when I have her administer my Bicillin shot. From: " Benton" <sarahbenton48@...>bird mites Sent: Saturday, February 4, 2012 7:11:11 AMSubject: Re: To Aandraya Can you do artemisinin while on doxy? From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Monday, January 30, 2012 9:14 PMSubject: Re: To Aandraya I agree the waxy stuff is fungal. I'm not getting it now and I believe the Voriconazole/Itracon. has knocked it out finally have been on those meds daily since April 20, 2011. Sounds like a plan. I still say do a trial run of artemisinin to see if you got the babesia, 800 mg a day for a week and see if you herx because people do not recover if babs is still an issue. I thought mine was completely gone until last Oct. when I decided to try some art. I knew almost immediately I hadn't gotten it. I have to send you the ILADS links, keep sending them to your old email. On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent. 1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with. 2. Double the Doxycycline dose to 200 mg 2x/day. 3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes. 4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer. 5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin. 6. Get liver testing done frequently while doing the above. 7. We will be treating for Ehrlichia during this time. 8. She believes that the waxy substance on my face is fungal. It is not biofilm. 9. The bicillin is what she gives for people who are having severe arthritic symptoms. 10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens. It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2012 Report Share Posted February 4, 2012 Yes you can do artemisinin while on antibiotics. Start slow on it and work up to 800mg a day pulsed 3 days on 4 days off. AandrayaOn Feb 4, 2012, at 11:45 AM, Benton <sarahbenton48@...> wrote: Thanx From: "Goldstein@..." <Goldstein@...>bird mites Sent: Saturday, February 4, 2012 10:23 AMSubject: Re: To Aandraya I asked Dr. M last week about it and she said no, but I'll ask again on Wednesday when I have her administer my Bicillin shot. From: " Benton" <sarahbenton48@...>bird mites Sent: Saturday, February 4, 2012 7:11:11 AMSubject: Re: To Aandraya Can you do artemisinin while on doxy? From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Monday, January 30, 2012 9:14 PMSubject: Re: To Aandraya I agree the waxy stuff is fungal. I'm not getting it now and I believe the Voriconazole/Itracon. has knocked it out finally have been on those meds daily since April 20, 2011. Sounds like a plan. I still say do a trial run of artemisinin to see if you got the babesia, 800 mg a day for a week and see if you herx because people do not recover if babs is still an issue. I thought mine was completely gone until last Oct. when I decided to try some art. I knew almost immediately I hadn't gotten it. I have to send you the ILADS links, keep sending them to your old email. On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent. 1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with. 2. Double the Doxycycline dose to 200 mg 2x/day. 3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes. 4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer. 5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin. 6. Get liver testing done frequently while doing the above. 7. We will be treating for Ehrlichia during this time. 8. She believes that the waxy substance on my face is fungal. It is not biofilm. 9. The bicillin is what she gives for people who are having severe arthritic symptoms. 10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens. It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2012 Report Share Posted February 4, 2012 -Yes, it works best when used with an abx because the parasites become resistant to art. That's why it's pulsed 3 on 4 off.AaOn Feb 4, 2012, at 9:11 AM, Benton <sarahbenton48@...> wrote: Can you do artemisinin while on doxy? From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Monday, January 30, 2012 9:14 PMSubject: Re: To Aandraya I agree the waxy stuff is fungal. I'm not getting it now and I believe the Voriconazole/Itracon. has knocked it out finally have been on those meds daily since April 20, 2011. Sounds like a plan. I still say do a trial run of artemisinin to see if you got the babesia, 800 mg a day for a week and see if you herx because people do not recover if babs is still an issue. I thought mine was completely gone until last Oct. when I decided to try some art. I knew almost immediately I hadn't gotten it. I have to send you the ILADS links, keep sending them to your old email. On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent. 1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with. 2. Double the Doxycycline dose to 200 mg 2x/day. 3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes. 4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer. 5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin. 6. Get liver testing done frequently while doing the above. 7. We will be treating for Ehrlichia during this time. 8. She believes that the waxy substance on my face is fungal. It is not biofilm. 9. The bicillin is what she gives for people who are having severe arthritic symptoms. 10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens. It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2012 Report Share Posted February 5, 2012 Does it matter if I eat ith it or not? s From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Saturday, February 4, 2012 11:06 PMSubject: Re: To Aandraya - Yes, it works best when used with an abx because the parasites become resistant to art. That's why it's pulsed 3 on 4 off. Aa On Feb 4, 2012, at 9:11 AM, Benton <sarahbenton48@...> wrote: Can you do artemisinin while on doxy? From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Monday, January 30, 2012 9:14 PMSubject: Re: To Aandraya I agree the waxy stuff is fungal. I'm not getting it now and I believe the Voriconazole/Itracon. has knocked it out finally have been on those meds daily since April 20, 2011. Sounds like a plan. I still say do a trial run of artemisinin to see if you got the babesia, 800 mg a day for a week and see if you herx because people do not recover if babs is still an issue. I thought mine was completely gone until last Oct. when I decided to try some art. I knew almost immediately I hadn't gotten it. I have to send you the ILADS links, keep sending them to your old email. On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent. 1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with. 2. Double the Doxycycline dose to 200 mg 2x/day. 3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes. 4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer. 5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin. 6. Get liver testing done frequently while doing the above. 7. We will be treating for Ehrlichia during this time. 8. She believes that the waxy substance on my face is fungal. It is not biofilm. 9. The bicillin is what she gives for people who are having severe arthritic symptoms. 10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens. It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2012 Report Share Posted February 6, 2012 We should not feel guilty at all, because our health is priceless and the most precious we have or should I say used to have... Once again, the so-called professional society should be feeling guilty by letting us down big time, but I guess they're still sleeping wonderfully at night unlike many people here. Von: "Goldstein@..." <Goldstein@...>An: bird mites Gesendet: 0:59 Freitag, 3.Februar 2012Betreff: Re: To Aandraya Wow, that is really useful Aandraya. My doc things it is fungal too, so she will start me on the Fluconazole DAILY and then move on to Sporanox (probably should be Sporanox first), but this is what she wants to do, so I'm willing. Did find it from Canadian pharmacy for $200+ but a lot less than the $450. The 100 tabs of Fluconazole from a Texas pharmacy was about $100. I'm still going broke. I feel so guilty about spending money on myself for health stuff. I know I shouldn't, but I do. From: "Aandraya" <aandraya@...>bird mites Sent: Tuesday, January 31, 2012 5:54:51 PMSubject: Re: To Aandraya - A patient of my naturopath scraped a bunch of that waxy stuff off her skin and sent it to some lab where they identified it as a mold called stachybotrys. I tested positive for it on his electrodermal screening. And I think I had multiple molds, they identified the black specks as another one- something like Mortriella(sp). Aandraya On Jan 30, 2012, at 6:47 PM, Goldstein@... wrote: I thought you might want to hear what Dr. M said about the next phase of my treatment... she also believes Lyme now plays less of a role for me and the coinfections are most prominent. 1. Stay on the Rifampin- (start it again)--everyone she has put on Levaquin has started getting tendinitis. Have no idea how many patients she has used this with. 2. Double the Doxycycline dose to 200 mg 2x/day. 3. Injections of Bicillin (have first dose by her next week), and then once a week injection by husband in rump. I have everything bicillin in frig alrady for it plus syringes. 4. Fluconazole (same as Diflucan) once a day (this is usually given once a week) for a month or longer. 5. After the next 3 months of this she wants me to continue the Doxy and start taking Ivermectin. (The parasite my husband and I had taken in 2009 from Meta Metrix as an unidentified parasite is most likely what they refer to as SL1953). Testing at Fry's labs is $500, but she says everyone she has sent to Fry's labs with similar symptoms has a positive for SL1953. She says save money and start treating for it. It is a protozoan parasite. Treatment is Doxy + 1/4 tab of Ivermectin. 6. Get liver testing done frequently while doing the above. 7. We will be treating for Ehrlichia during this time. 8. She believes that the waxy substance on my face is fungal. It is not biofilm. 9. The bicillin is what she gives for people who are having severe arthritic symptoms. 10. Bicillin has to be given first by medical person; even if person thinks they are not allergic to penicillin some people react to bicillin which is a form of penicillin so have to have epinephrine for allergic reaction if that happens. It was a productive appointment and I'm hopeful and scared about ramping it up. Quote Link to comment Share on other sites More sharing options...
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