scared

[Guest guest]

hi stacie,

if you do what your docs tell you to do, you may just be able to take care

of it. when they told me that my ejection fraction was down to 10 i was

devastated.

i did the cardiac rehab thing and bought me a treadmill and took my meds

faithfully. less than a month ago they did an echo and my e.f. has

improved to 35. now im shootin for 40.

everydays a gift and im taking as many gifts as i can get now. and keep

coming back to the zappers. they darn sure saved my life.

bob in pa

[Guest guest]

the thang is my ef was 10 went to 45 dnow back to 20 they told me if my ef ever dropped again that it would never go back up

stacie,18

[Guest guest]

hi stacie,

i was told i couldnt get better either. my e.f. has risen from 10 to 35

in six months. i attribute that to exercise and attitude. and the people

in this group.

bob in pa

[Guest guest]

Hi Stacie, It's me Sharon we haven't E-mailed in a long time, but I am still

here and so is Bill and everyone else. You told me to hold on and fight so

now I am sending these words right back at you! I am much older than you so

you must listen.

I know things have been very rough for you lately I can tell by your writing

that you are feeling bad. I know that you are frightened and scared. No

doctor no matter how wonderful or educated know all the answers and if they

did could you imagine the line of people who would be waiting to see them and

he fee would be out of this world.

Stacie, you must turn this scary thing around. I KNOW THAT YOU CAN DO IT!

ALL OF US ARE PULLING FOR YOU AND SENDING YOU STRENGTH!

Come on Stacie don't stop fighting now. If you are on a high dose of beta

blockers you my have become asthmatic make sure your doctor is on the look

out for it sometimes they overlook it as congestive heart failure. I my case

breathing treatments and inhalers helped along with singular.

If you have pollen allergies this time of the year can really be effecting

you with the junk in the throat thing even though it may have frosted in your

area already. I wake every morning with the junk and I hate it.

So come on Stacie keep on fighting. Let us hear your dreams where do you want

to be in a month a year 5 years come on. Tell Us!

Love and Prayers

Sharon

[Guest guest]

Stacie... NEVER is a scarey word ... no one truly knows what is in

store for any of us... over 11.5 yrs ago the docs told me I'd be

needing a heart transplant w/in 10 yrs... guess what? ... it's been

almost 12 yrs and I'm doing great... holding my own and my EF is up

to 51% (it never did drop as was predicted) ... all this w/only

exercise & diet... not even coreg or any other med to help increase

heart muscle strength... so don't let them discourage/frighten you

w/that one word... hang in there and NEVER ever give up hope!

> the thang is my ef was 10 went to 45 dnow back to 20 they told me

if my ef

> ever dropped again that it would never go back up

>

> stacie,18

[Guest guest]

Stacie,

Our condition can change. Not everyone continues to slip into "the deep".

My condition goes up and down. A lot of the tests they give you can give different results on different days.

Remember- your attitude will have a great deal of influence on your recovery. I know this sounds over simplified but it is a fact of our condition. As I watch your postings I can see your different moods. We all have them.

You are an inspiration to all of us. I am 55 yrs. old, male, and still I get tears in my eyes as I read your messages. You are such a genuine person and that really stands out in todays world.

I can only say that I wish you were "my" daughter.

in Des Moines

[Guest guest]

Stacie,

I can only appreciate how you are feeling at the moment from my own experiences. I was born with Fallot's Tetralogy and had to have some operations as a baby and later aged 11. My congenital heart condition hardly affected me as a teenager but when I was 22 I had suspected VT. Medication controlled that for a while but over the years my EF continued to drop.

Only about three years ago (28) did I begin to become tired when climbing stairs or walking, an activity I'd always loved. Doctors tried inserting a stent in my pulmonary artery in April 1999 but that failed. In coming months my energy levels dropped further, so much so that by last year even a short walk would have exhausted me. Having had so many happy years of fitness, I was very depressed at the lack of prospect.

Thankfully a doctor developed a new technique for stenting pulmonary arteries and I was one of the first patients this procedure was conducted on, in October 2000, and it was very successful. It is amazing how I can do things now that I thought I'd never be able to do. I'm even cycling again now, for the first time in nine years! Though I required an ICD to control arrhythmia, I'm delighted to have a new lease of life.

What I'm saying Stacie is that age is on your side, as it was mine. The doctor who inserted the shunt when I was an infant devised that very shunt; for my operation aged 11, the surgeon travelled to USA to learn about this latest surgery; and I was the first patient in Northern Ireland to successfully have a pulmonary stent inserted. Also, I was one of the first patients in the world to receive an ICD with patient-activated therapy. I have always been at the forefront of cardiac developments. Had I been born a year or two earlier (I'm 31 now) I would probably not have survived adolescence, if I'd been lucky enough to get past infancy.

At present doctors may not think there's anything they can do for you but that does not mean that there'll never be anything they can do for you. New techniques are developing all the time. Hold on Stacie, trust the research, there will be something for you. Fifteen months ago I was very depressed about my health and its prospects: now things are totally different now.

Don't give up Stacie, you're too precious.

God bless,

Tumelty

PS: if you want to email me privately please do so; my address is brian.tumelty@...

[Guest guest]

i am ashtmaic been since birth i have not stopped fighting and i understand and thank you all for your support but as you know it's hard not to be scared i'm just a kid still i have never been nomal and in some ways never want to be i have leaned alot from being sick that i would have never leaned if i was not sick that does not mean i want to be sick or that i like being sick because i dont it's hard to hear to words you fear the most i was almost in tears when i found out my doctor was in tears i'm still waiting for the rest of the test to come back i just scared and i have no where to go with my feeling if i talk to my mom and will get upset and cry my dad who knows what he will do my family could care less how i'm feeling and they just don't understand my dad is being to because now he has heart probloms but i really have no one to talk to but you alla and i thank you for your support and by no means am i giving up i'm a fighter i have been and always will beside what don't kill you makes you stronger i just fear becuase i have been down this road once i know any thang could happen but that dont stop me from feeling scared

stacie,18

[Guest guest]

Stacie... one doesn't have to be 18 to be scared... I think we've all

been there... but I hear what you're saying... and I feel proud to be

part of a group that you've chosen to look to for support... however,

please don't give up on your family... I'm sure they love and care

about you very much... it's hard to watch your child go thru

something like this... I speak from experience... my youngest son was

dx w/lymphoma at 15 ... maybe you could sit down at dinner or around

a bowl of popcorn and let your family know what you're going thru ...

talk about the emotions you're experiencing... give them a chance to

express what they're going thru as well... who knows, it could open

up a whole new line of togetherness and support for all of you...

families are generally more tough than we think when it comes to

handling lifes challenges... God Bless You Stacie...

JES in NJ...

God Bless America

> i am ashtmaic been since birth i have not stopped fighting and i

understand

> and thank you all for your support but as you know it's hard not to

be scared

> i'm just a kid still i have never been nomal and in some ways never

want to

> be i have leaned alot from being sick that i would have never

leaned if i was

> not sick that does not mean i want to be sick or that i like being

sick

> because i dont it's hard to hear to words you fear the most i was

almost in

> tears when i found out my doctor was in tears i'm still waiting for

the rest

> of the test to come back i just scared and i have no where to go

with my

> feeling if i talk to my mom and will get upset and cry my dad who

knows what

> he will do my family could care less how i'm feeling and they just

don't

> understand my dad is being to because now he has heart probloms but

i really

> have no one to talk to but you alla and i thank you for your

support and by

> no means am i giving up i'm a fighter i have been and always will

beside what

> don't kill you makes you stronger i just fear becuase i have been

down this

> road once i know any thang could happen but that dont stop me from

feeling

> scared

>

> stacie,18

[Guest guest]

>

> Ok...someone talk me out of it! I feel like throwing in the towel

right now. Since starting birth control in order to try to regain my

cycle, I have gained 7 pounds (it's only been 2 weeks). I feel

bloated, puffy, and crabby, and I'm hungry all of the time. With my

past of eating disorders, I feel like I'm on the edge of a clif. Not

feeling like I'm in control of how much I weigh is very scary to me.

I feel like I'm going to keep going up and up until I'm back to

where I started 3 years ago. My natural urge is to start restricting

calories again and doing lots more cardio, but my mind knows that I

shouldn't. Another part of me is feeling like not exercising and

eating whatever b/c I'm not in control anyway. I'm sorry if this all

sounds crazy and if you stop reading, i don't blame you. It's nice

just to write some of this down, b/c I feel ashamed to tell anyone

face to face. I know that at 115 (where I was in the fall), i looked

sickly and too skinny, but now at 127, I feel huge

> and gross. Again, I realize that my problems are insignificant

compared to many others, but I'm so tired of arguing with myself and

being obsessed with every calorie. I'm tired of having no energy and

I'm tired of never being happy with myself. No need to respond to

this if you don't want to. I know it all sounds contradictory and

crazy, but it's how I'm feeling and i just wanted to write it down.

If you're still reading, thanks for listening

>

> Tara

>

>

> ---------------------------------

> Relax. virus scanning helps detect nasty viruses!

>

>

[Guest guest]

Tara,

I just wanted to tell you that I also never felt more huge and gross

in my life than I did at 127, and I've never felt more lean, strong,

happy and totally in control than I do now at 140. So, go figure!

I think in my case it was just seeing my weight come up out of the

teens *very* quickly that made me hysterical. Mentally, I was still

hopelessly clinging to the eating disorder even though my body had had

enough and was heading for " normal " with or without my little pea

brain participating. I felt wildly frighteningly out of control, and

127 pounds was the magic number where I came unhinged. I did cry and

backslide and starve and fight and mentally destroy myself over it. I

made everything a hundred times worse because I didn't know any

better. At that point in my life, I didn't have the first clue about

Body for Life or muscle or metabolism or fitness. YOU DO! Keep doing

what you know is healthy and right even though your brain is

short-circuiting right now.

This is a moment in time, and it's a reaction to feeling out of

control. It has not a damn thing to do with 127 pounds actually being

huge and gross. I was still pretty twiggy and frail at that weight,

even though in my mind I looked like Godzilla after eating three or

four grocery stores. :-)

On 3/18/06, Tara Winnett <twinnett001@...> wrote:

> Ok...someone talk me out of it! I feel like throwing in the towel right now.

Since starting birth control in order to try to regain my cycle, I have gained

7 pounds (it's only been 2 weeks). I feel bloated, puffy, and crabby, and I'm

hungry all of the time. With my past of eating disorders, I feel like I'm on the

edge of a clif. Not feeling like I'm in control of how much I weigh is very

scary to me. I feel like I'm going to keep going up and up until I'm back to

where I started 3 years ago. My natural urge is to start restricting calories

again and doing lots more cardio, but my mind knows that I shouldn't. Another

part of me is feeling like not exercising and eating whatever b/c I'm not in

control anyway. I'm sorry if this all sounds crazy and if you stop reading, i

don't blame you. It's nice just to write some of this down, b/c I feel ashamed

to tell anyone face to face. I know that at 115 (where I was in the fall), i

looked sickly and too skinny, but now at 127, I feel huge

> and gross. Again, I realize that my problems are insignificant compared to

many others, but I'm so tired of arguing with myself and being obsessed with

every calorie. I'm tired of having no energy and I'm tired of never being happy

with myself. No need to respond to this if you don't want to. I know it all

sounds contradictory and crazy, but it's how I'm feeling and i just wanted to

write it down. If you're still reading, thanks for listening

>

> Tara

>

>

> ---------------------------------

> Relax. virus scanning helps detect nasty viruses!

>

>

[Guest guest]

Thank you so much for the support everyone! It's so great to hear that I'm not

alone. This forum is so helpful to me. I don't want to go back to my crazy days

of working out 2 times a day and counting every single calorie! Well, I'm off to

the gym to lift some weights and build some muscle!

Skwigg <skwigg@...> wrote: Tara,

I just wanted to tell you that I also never felt more huge and gross

in my life than I did at 127, and I've never felt more lean, strong,

happy and totally in control than I do now at 140. So, go figure!

I think in my case it was just seeing my weight come up out of the

teens *very* quickly that made me hysterical. Mentally, I was still

hopelessly clinging to the eating disorder even though my body had had

enough and was heading for " normal " with or without my little pea

brain participating. I felt wildly frighteningly out of control, and

127 pounds was the magic number where I came unhinged. I did cry and

backslide and starve and fight and mentally destroy myself over it. I

made everything a hundred times worse because I didn't know any

better. At that point in my life, I didn't have the first clue about

Body for Life or muscle or metabolism or fitness. YOU DO! Keep doing

what you know is healthy and right even though your brain is

short-circuiting right now.

This is a moment in time, and it's a reaction to feeling out of

control. It has not a damn thing to do with 127 pounds actually being

huge and gross. I was still pretty twiggy and frail at that weight,

even though in my mind I looked like Godzilla after eating three or

four grocery stores. :-)

On 3/18/06, Tara Winnett <twinnett001@...> wrote:

> Ok...someone talk me out of it! I feel like throwing in the towel right now.

Since starting birth control in order to try to regain my cycle, I have gained

7 pounds (it's only been 2 weeks). I feel bloated, puffy, and crabby, and I'm

hungry all of the time. With my past of eating disorders, I feel like I'm on the

edge of a clif. Not feeling like I'm in control of how much I weigh is very

scary to me. I feel like I'm going to keep going up and up until I'm back to

where I started 3 years ago. My natural urge is to start restricting calories

again and doing lots more cardio, but my mind knows that I shouldn't. Another

part of me is feeling like not exercising and eating whatever b/c I'm not in

control anyway. I'm sorry if this all sounds crazy and if you stop reading, i

don't blame you. It's nice just to write some of this down, b/c I feel ashamed

to tell anyone face to face. I know that at 115 (where I was in the fall), i

looked sickly and too skinny, but now at 127, I feel huge

> and gross. Again, I realize that my problems are insignificant compared to

many others, but I'm so tired of arguing with myself and being obsessed with

every calorie. I'm tired of having no energy and I'm tired of never being happy

with myself. No need to respond to this if you don't want to. I know it all

sounds contradictory and crazy, but it's how I'm feeling and i just wanted to

write it down. If you're still reading, thanks for listening

>

> Tara

>

>

> ---------------------------------

> Relax. virus scanning helps detect nasty viruses!

>

>

[Guest guest]

Tara,

You need to call your doctor and talk about your response to the b/c

and your emotional reactions. There are dozens of b/c formulas out

there, it is possible a different one will be more beneficial to you.

You know that you did not gain 7 pounds of fat in two weeks. that

would mean you were eating an extra 1700 calories a day. You KNOW

you have not been doing that. So, it is obviously bloating from the

b/c.

Call you doc, and don't ever think you can't come on here and freak

out in front of us. That is what we are here for.

Barbara

>

> Ok...someone talk me out of it! I feel like throwing in the towel

right now. Since starting birth control in order to try to regain my

cycle, I have gained 7 pounds (it's only been 2 weeks). I feel

bloated, puffy, and crabby, and I'm hungry all of the time. With my

past of eating disorders, I feel like I'm on the edge of a clif. Not

feeling like I'm in control of how much I weigh is very scary to me.

I feel like I'm going to keep going up and up until I'm back to

where I started 3 years ago. My natural urge is to start restricting

calories again and doing lots more cardio, but my mind knows that I

shouldn't. Another part of me is feeling like not exercising and

eating whatever b/c I'm not in control anyway. I'm sorry if this all

sounds crazy and if you stop reading, i don't blame you. It's nice

just to write some of this down, b/c I feel ashamed to tell anyone

face to face. I know that at 115 (where I was in the fall), i looked

sickly and too skinny, but now at 127, I feel huge

> and gross. Again, I realize that my problems are insignificant

compared to many others, but I'm so tired of arguing with myself

and being obsessed with every calorie. I'm tired of having no

energy and I'm tired of never being happy with myself. No need to

respond to this if you don't want to. I know it all sounds

contradictory and crazy, but it's how I'm feeling and i just wanted

to write it down. If you're still reading, thanks for listening

>

> Tara

>

>

> ---------------------------------

> Relax. virus scanning helps detect nasty viruses!

>

>

[Guest guest]

ah , I am so sorry. I don't have any info for you, unfortunately, but do keep letting us know what happens.

I do think I had read somewhere that the liver is one of the good body parts that can do some regrowing if it loses part of itself...

Hopefully they will find all benign....

hugs, Jean

Scared

I was recently told that I have several tumors on my liver and am going in 4 days for a biopsy, I'm really scared it's going to be cancerous, and i don't know what to do. Does someone have any advice? BTW, I just turned 22.

[Guest guest]

HI ERIN I DO NOT KNOW MUCH ABOUT THE LIVER BUTI WILL KEEP YOU IN MY THOUGHTS AND PRAYERS IT IS UNDERSTANDABLE THAT YOU ARE SCARED PEACE ANNA <mathlion8@...> wrote: I was recently told that I have several tumors on my liver and am going in 4 days for a biopsy, I'm really scared it's going to be cancerous, and i don't know what to do. Does someone have any advice? BTW, I just turned 22.

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

I have either heard that or read that also.....it can heal itself (under certain circumstances) or regrow. Guess we could look it up!!Take Care, gettingthere35 <gettingthere35@...> wrote: ah , I am so sorry. I don't have any info for you, unfortunately, but do keep letting us know what happens. I do think I had read somewhere that the liver is one of the good body parts that can do some regrowing if it loses

part of itself... Hopefully they will find all benign.... hugs, Scared I was recently told that I have several tumors on my liver and am going in 4 days for a biopsy, I'm really scared it's going to be cancerous, and i don't know what to do. Does someone

have any advice? BTW, I just turned 22. Take Care, B. in ILLINOIS

[Guest guest]

THAT IS REALLY YOUNG TO HAVE THIS HAPPEN TO YOU PRAYERS FOR YOU FROM MICH HEALING((HUGS)) DORT <mathlion8@...> wrote: I was recently told that I have several tumors on my liver and am going in 4 days for a biopsy, I'm really scared it's going to be cancerous, and i don't know what to do. Does someone have any advice? BTW, I just turned 22.

[Guest guest]

Is it possible to get overcorrected in the cast and cause

another curve?

*

Ive seen children develop very slight compensatory curves during treatment.

Some resolve, some do not……The body/spine is finding a way to realign/balance

itself.

I don’t think a week will cause regression. Try not to worry. A

weeks time may just strengthen her muscles a bit to prepare for the next cast.

Try not to worry Aim.

HRH

From:

infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of aimeeschwartz68

Sent: Thursday, March 25, 2010 7:05 AM

infantile scoliosis treatment

Subject: scared

Hi,

I know I have not been on the site in some time. We have been going through

alot this winter with the flu and it turns out that my two older boys have

gluten, casin and egg allergies and have been running around getting them

better and finding them food that they like. Anyway. Emma was casted in January

and she was again at 0 in the cast. She got the cast off on Friday the 19th and

her xray standing was 24 degrees where she was 22 in November. She did move

during the xray. I noticed that she has a " new curve " in the lumbar

region that I believe was not there before my husband thinks I am nuts. I of

course am the one to find the original curve to begin with. Is it possible to

get overcorrected in the cast and cause another curve?

Also Emma was supposed to get her cast back on yesterday and now we have to

wait until next weds because she got an ear infectin and they wont cast her

whiel she is sick. I am soooo nervous that she will get so mcuh worse with her

cast off this long. We have been going through this for one year now and I feel

that we are no where to the end. Would have thought she wsould be in a brace by

now. Dr. P says we will know more in Sept at her 18 month " cast " .

Aimee

Emma 21 months waiting for her cast (one year aniversary in her cast)

[Guest guest]

Is it possible to get overcorrected in the cast and cause

another curve?

*

Ive seen children develop very slight compensatory curves during treatment.

Some resolve, some do not……The body/spine is finding a way to realign/balance

itself.

I don’t think a week will cause regression. Try not to worry. A

weeks time may just strengthen her muscles a bit to prepare for the next cast.

Try not to worry Aim.

HRH

From:

infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of aimeeschwartz68

Sent: Thursday, March 25, 2010 7:05 AM

infantile scoliosis treatment

Subject: scared

Hi,

I know I have not been on the site in some time. We have been going through

alot this winter with the flu and it turns out that my two older boys have

gluten, casin and egg allergies and have been running around getting them

better and finding them food that they like. Anyway. Emma was casted in January

and she was again at 0 in the cast. She got the cast off on Friday the 19th and

her xray standing was 24 degrees where she was 22 in November. She did move

during the xray. I noticed that she has a " new curve " in the lumbar

region that I believe was not there before my husband thinks I am nuts. I of

course am the one to find the original curve to begin with. Is it possible to

get overcorrected in the cast and cause another curve?

Also Emma was supposed to get her cast back on yesterday and now we have to

wait until next weds because she got an ear infectin and they wont cast her

whiel she is sick. I am soooo nervous that she will get so mcuh worse with her

cast off this long. We have been going through this for one year now and I feel

that we are no where to the end. Would have thought she wsould be in a brace by

now. Dr. P says we will know more in Sept at her 18 month " cast " .

Aimee

Emma 21 months waiting for her cast (one year aniversary in her cast)

[Guest guest]

Hi all,

Actually, at my daughters last x-ray, her spine had slightly overcorrected (in cast).

Melinda

RE: scared

Is it possible to get overcorrected in the cast and cause another curve? * Ive seen children develop very slight compensatory curves during treatment. Some resolve, some do not……The body/spine is finding a way to realign/balance itself.

I don’t think a week will cause regression. Try not to worry. A weeks time may just strengthen her muscles a bit to prepare for the next cast.

Try not to worry Aim.

HRH

From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of aimeeschwartz68Sent: Thursday, March 25, 2010 7:05 AMinfantile scoliosis treatment Subject: scared

Hi,I know I have not been on the site in some time. We have been going through alot this winter with the flu and it turns out that my two older boys have gluten, casin and egg allergies and have been running around getting them better and finding them food that they like. Anyway. Emma was casted in January and she was again at 0 in the cast. She got the cast off on Friday the 19th and her xray standing was 24 degrees where she was 22 in November. She did move during the xray. I noticed that she has a "new curve" in the lumbar region that I believe was not there before my husband thinks I am nuts. I of course am the one to find the original curve to begin with. Is it possible to get overcorrected in the cast and cause another curve? Also Emma was supposed to get her cast back on yesterday and now we have to wait until next weds because she got an ear infectin and they wont cast her whiel she is sick. I am soooo nervous that she will get so mcuh worse with her cast off this long. We have been going through this for one year now and I feel that we are no where to the end. Would have thought she wsould be in a brace by now. Dr. P says we will know more in Sept at her 18 month "cast".AimeeEmma 21 months waiting for her cast (one year aniversary in her cast)

[Guest guest]

So you mean that it actually stared curving the other way?? Joanmom to Hayden 339 degrees down from 62Cast number 4Treated at ish Rite Hospital Dallas, TX

From: Melinda Lee <mindylee1@...>infantile scoliosis treatment Sent: Thu, March 25, 2010 1:08:46 PMSubject: Re: scared

Hi all,

Actually, at my daughters last x-ray, her spine had slightly overcorrected (in cast).

Melinda

[infantile_scoliosi s] scared

Hi,I know I have not been on the site in some time. We have been going through alot this winter with the flu and it turns out that my two older boys have gluten, casin and egg allergies and have been running around getting them better and finding them food that they like. Anyway. Emma was casted in January and she was again at 0 in the cast. She got the cast off on Friday the 19th and her xray standing was 24 degrees where she was 22 in November. She did move during the xray. I noticed that she has a "new curve" in the lumbar region that I believe was not there before my husband thinks I am nuts. I of course am the one to find the original curve to begin with. Is it possible to get overcorrected in the cast and cause another curve? Also Emma was supposed to get her cast back on yesterday and now we have to wait until next weds because she got an ear infectin and they wont cast her whiel she is sick. I am soooo nervous that she will get so

mcuh worse with her cast off this long. We have been going through this for one year now and I feel that we are no where to the end. Would have thought she wsould be in a brace by now. Dr. P says we will know more in Sept at her 18 month "cast".AimeeEmma 21 months waiting for her cast (one year aniversary in her cast)

[Guest guest]

As always thanks !!

This journey has been a difficult one, as I know you know as well....

>

> Is it possible to get overcorrected in the cast and cause another curve?

> * Ive seen children develop very slight compensatory curves during

> treatment. Some resolve, some do not..The body/spine is finding a way to

> realign/balance itself.

>

>

>

> I don't think a week will cause regression. Try not to worry. A weeks time

> may just strengthen her muscles a bit to prepare for the next cast.

>

> Try not to worry Aim.

>

>

>

> HRH

>

>

>

> From: infantile scoliosis treatment

> [mailto:infantile scoliosis treatment ] On Behalf Of aimeeschwartz68

> Sent: Thursday, March 25, 2010 7:05 AM

> infantile scoliosis treatment

> Subject: scared

>

>

>

>

>

> Hi,

> I know I have not been on the site in some time. We have been going through

> alot this winter with the flu and it turns out that my two older boys have

> gluten, casin and egg allergies and have been running around getting them

> better and finding them food that they like. Anyway. Emma was casted in

> January and she was again at 0 in the cast. She got the cast off on Friday

> the 19th and her xray standing was 24 degrees where she was 22 in November.

> She did move during the xray. I noticed that she has a " new curve " in the

> lumbar region that I believe was not there before my husband thinks I am

> nuts. I of course am the one to find the original curve to begin with. Is it

> possible to get overcorrected in the cast and cause another curve?

>

> Also Emma was supposed to get her cast back on yesterday and now we have to

> wait until next weds because she got an ear infectin and they wont cast her

> whiel she is sick. I am soooo nervous that she will get so mcuh worse with

> her cast off this long. We have been going through this for one year now and

> I feel that we are no where to the end. Would have thought she wsould be in

> a brace by now. Dr. P says we will know more in Sept at her 18 month " cast " .

>

> Aimee

> Emma 21 months waiting for her cast (one year aniversary in her cast)

>

[Guest guest]

Joan,

yes her original curve was on her right side of her thoracic spine and bumped

out away from her spine. Now I see a curve in her lumbar spine on her left side

pushing away...

Aimee

>

> So you mean that it actually stared curving the other way?? 

>  Joan

> mom to Hayden 3

> 39 degrees down from 62

> Cast number 4

> Treated at ish Rite Hospital

> Dallas, TX

>

>

>

>

> ________________________________

> From: Melinda Lee <mindylee1@...>

> infantile scoliosis treatment

> Sent: Thu, March 25, 2010 1:08:46 PM

> Subject: Re: scared

>

>  

> Hi all,

>  

> Actually, at my daughters last x-ray, her spine had slightly overcorrected (in

cast).

>  

> Melinda

>

> [infantile_scoliosi s] scared

> > 

> >Hi,

> >I know I have not been on the site in some time. We have been going through

alot this winter with the flu and it turns out that my two older boys have

gluten, casin and egg allergies and have been running around getting them better

and finding them food that they like. Anyway. Emma was casted in January and she

was again at 0 in the cast. She got the cast off on Friday the 19th and her xray

standing was 24 degrees where she was 22 in November. She did move during the

xray. I noticed that she has a " new curve " in the lumbar region that I believe

was not there before my husband thinks I am nuts. I of course am the one to find

the original curve to begin with. Is it possible to get overcorrected in the

cast and cause another curve?

> >

> >Also Emma was supposed to get her cast back on yesterday and now we have to

wait until next weds because she got an ear infectin and they wont cast her

whiel she is sick. I am soooo nervous that she will get so mcuh worse with her

cast off this long. We have been going through this for one year now and I feel

that we are no where to the end. Would have thought she wsould be in a brace by

now. Dr. P says we will know more in Sept at her 18 month " cast " .

> >

> >Aimee

> >Emma 21 months waiting for her cast (one year aniversary in her cast)

>

[Guest guest]

Joan,

yes her original curve was on her right side of her thoracic spine and bumped

out away from her spine. Now I see a curve in her lumbar spine on her left side

pushing away...

Aimee

>

> So you mean that it actually stared curving the other way?? 

>  Joan

> mom to Hayden 3

> 39 degrees down from 62

> Cast number 4

> Treated at ish Rite Hospital

> Dallas, TX

>

>

>

>

> ________________________________

> From: Melinda Lee <mindylee1@...>

> infantile scoliosis treatment

> Sent: Thu, March 25, 2010 1:08:46 PM

> Subject: Re: scared

>

>  

> Hi all,

>  

> Actually, at my daughters last x-ray, her spine had slightly overcorrected (in

cast).

>  

> Melinda

>

> [infantile_scoliosi s] scared

> > 

> >Hi,

> >I know I have not been on the site in some time. We have been going through

alot this winter with the flu and it turns out that my two older boys have

gluten, casin and egg allergies and have been running around getting them better

and finding them food that they like. Anyway. Emma was casted in January and she

was again at 0 in the cast. She got the cast off on Friday the 19th and her xray

standing was 24 degrees where she was 22 in November. She did move during the

xray. I noticed that she has a " new curve " in the lumbar region that I believe

was not there before my husband thinks I am nuts. I of course am the one to find

the original curve to begin with. Is it possible to get overcorrected in the

cast and cause another curve?

> >

> >Also Emma was supposed to get her cast back on yesterday and now we have to

wait until next weds because she got an ear infectin and they wont cast her

whiel she is sick. I am soooo nervous that she will get so mcuh worse with her

cast off this long. We have been going through this for one year now and I feel

that we are no where to the end. Would have thought she wsould be in a brace by

now. Dr. P says we will know more in Sept at her 18 month " cast " .

> >

> >Aimee

> >Emma 21 months waiting for her cast (one year aniversary in her cast)

>

[Guest guest]



Well, they said just a bit but that was in cast so it wasnt a bad thing

[infantile_scoliosi s] scared

Hi,I know I have not been on the site in some time. We have been going through alot this winter with the flu and it turns out that my two older boys have gluten, casin and egg allergies and have been running around getting them better and finding them food that they like. Anyway. Emma was casted in January and she was again at 0 in the cast. She got the cast off on Friday the 19th and her xray standing was 24 degrees where she was 22 in November. She did move during the xray. I noticed that she has a "new curve" in the lumbar region that I believe was not there before my husband thinks I am nuts. I of course am the one to find the original curve to begin with. Is it possible to get overcorrected in the cast and cause another curve? Also Emma was supposed to get her cast back on yesterday and now we have to wait until next weds because she got an ear infectin and they wont cast her whiel she is sick. I am soooo nervous that she will get so mcuh worse with her cast off this long. We have been going through this for one year now and I feel that we are no where to the end. Would have thought she wsould be in a brace by now. Dr. P says we will know more in Sept at her 18 month "cast".AimeeEmma 21 months waiting for her cast (one year aniversary in her cast)