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I was going to start asking similar questions regarding teeth... Jillian will

be 1 next week and has no teeth yet. I was about to ask at what age I should

visit the dentist. My non ds son, age 6 now, had his first visit at age 22

months.. he fell off a chair and hit a wood floor.. mouth wide open and

cracked his front tooth.. it was pulled because it was cracked through to the

root and the pediatric dentist said it was best to pull it. I think I will

call him now and see if he sees children with special needs and if so, when

he would like to see Jillian.

Thanks for all the information.

Mom to Jillian, 1 yr. old on the 11th!! (DS)

Jake 6

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In a message dated 1/4/2003 9:59:02 PM Pacific Standard Time, jls1995@...

writes:

>

> Jordan's 7 and I can't get her to the dentist. Not because I don't have

> the time, but because while there are plenty of dentist that take Medical

> Assistance, NONE of them around here are taking New Assignment on it. So I

> can't get her in unless I pay for it and being a single mom, barely making

> it as it is, that's pretty much out of the question.

>

> Judi

>

>

>

where do you live?

This kind of situation is a real shame, because medical care exists for low

income kids but not dental care, which is every bit as important.

I have a friend who is a dental hygenist who has been active in getting

legislation in MD to allow dental hygenist to do screenings at the schools

for kids who would not otherwise be able to see a dentist.

If you tell me where you live I'll find out from her if there is anything

available in your area where you can take your daughter.

- Becky

- Becky

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Bj didn't get his first tooth till he was nearly 2, and they came

reasonably steady form there. He has all his teeth, altho they did come

in a higilty pigilty way. I was told by our dentist not to stress until

he was about 6 or 7 and then they would do x-rays etc. Teeth are one

thing you cant really change, so try not to stress about it too

much....also just because the baby teeth came thru weird, doesn't

guarantee his/her adult teeth will be the same. BJ has very pointed

teeth on his bottom row, and my dentist also said that his adult teeth

may still come thru normal ( flat)

RSYOSH@... wrote:

> In a message dated 12/30/02 6:15:55 PM Pacific Standard Time,

> kspilious@... writes:

>

> > Now for my question- Myah only has her 2 front teeth and molars on the

> > bottom. I don't really see anything more coming any time soon. Any

> > guesses? On top she has 4 front teeth and molars.

> >

> >

>

> Not unusual for DS kids to have teeth come in in an unusual order due to

> space limitations.

>

> Once she has teeth she gets to go to the dentist for a " get aquainted "

> visit.

> ALso the dentist can do X-Rays to make sure everything is developing

> correctly (even if they are dropping in erratically).

>

> As for the rest... yup, sounds like a TYPICAL 2 year old!

>

> - Becky

>

>

>

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OK, so when should I get her to the dentist for her first visit?

I know that there is NO way she would hold still for an X-ray right now, but

it would be good to know what to expect.

, Mom to Myah, 2

Re: TEETH

> In a message dated 1/4/03 6:01:33 PM Pacific Standard Time,

lisa@...

> writes:

>

> > Bj didn't get his first tooth till he was nearly 2, and they came

> > reasonably steady form there. He has all his teeth, altho they did come

> > in a higilty pigilty way. I was told by our dentist not to stress until

> > he was about 6 or 7 and then they would do x-rays etc. Teeth are one

> > thing you cant really change, so try not to stress about it too

> > much....also just because the baby teeth came thru weird, doesn't

> > guarantee his/her adult teeth will be the same. BJ has very pointed

> > teeth on his bottom row, and my dentist also said that his adult teeth

> > may still come thru normal ( flat)

> >

>

> Yikes - no Xrays until 6 or 7??? My oldest (non-DS) had her first set at

3.

> Every dentist I've had to date uses XRays to diagnose cavities (much more

> accurate that just a visual exam).

>

> - Becky

>

>

>

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ny didn't get any teeth until he was 18 months. he has about 10 now @ 21

months.

They came in a very weird order. Our peds told us the same, don't worry.

Re: TEETH

Bj didn't get his first tooth till he was nearly 2, and they came

reasonably steady form there. He has all his teeth, altho they did come

in a higilty pigilty way. I was told by our dentist not to stress until

he was about 6 or 7 and then they would do x-rays etc. Teeth are one

thing you cant really change, so try not to stress about it too

much....also just because the baby teeth came thru weird, doesn't

guarantee his/her adult teeth will be the same. BJ has very pointed

teeth on his bottom row, and my dentist also said that his adult teeth

may still come thru normal ( flat)

RSYOSH@... wrote:

> In a message dated 12/30/02 6:15:55 PM Pacific Standard Time,

> kspilious@... writes:

>

> > Now for my question- Myah only has her 2 front teeth and molars on the

> > bottom. I don't really see anything more coming any time soon. Any

> > guesses? On top she has 4 front teeth and molars.

> >

> >

>

> Not unusual for DS kids to have teeth come in in an unusual order due to

> space limitations.

>

> Once she has teeth she gets to go to the dentist for a " get aquainted "

> visit.

> ALso the dentist can do X-Rays to make sure everything is developing

> correctly (even if they are dropping in erratically).

>

> As for the rest... yup, sounds like a TYPICAL 2 year old!

>

> - Becky

>

>

>

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HA!!! Have I got a story for you! Jordan was given her first two teeth on her

first birthday. Come her second birthday she got a whopping SEVEN teeth in at

once! She was such a trooper then :-)

Judi

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Jordan's 7 and I can't get her to the dentist. Not because I don't have the

time, but because while there are plenty of dentist that take Medical

Assistance, NONE of them around here are taking New Assignment on it. So I

can't get her in unless I pay for it and being a single mom, barely making it as

it is, that's pretty much out of the question.

Judi

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BJ sailed thru teething with barely a whimper. Natasha on the other hand

is a banshee-she squealed the whole day before this tooth popped up- and

she only has 1 bottom tooth yet. Lord help me when she gets her

molars.........

Judi Scarpelli wrote:

> HA!!! Have I got a story for you! Jordan was given her first two

> teeth on her first birthday. Come her second birthday she got a

> whopping SEVEN teeth in at once! She was such a trooper then :-)

>

> Judi

>

--

Leis....mum to 5 & Natasha 11 months

Parents were invented to make children happy by giving them something to ignore.

Ogden Nash (1902 - 1971)

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I was going to take BJ to a normal dentist, had even spoken to a few

around town. I then called our Down Syndrome Society, and they told me

of a school dentist that caters to special needs kids. It was a free

service, as it is a govt run service, and the lady there was soooooo

patient with BJ. It is the best dentist visit yet. We were there for

under 1/2 hr, and she said he had no cavities etc- and she got a real

good look in his mouth.

We have a thing called Medicare here in Oz, and money is taken out of

your tax each year to pay for it. When you go to the dr and use your

medicare card it is called Bulk Billing. BJ also gets a disability

pension, and so he can get a few more services free( He even gets $1 bus

trips ) as he has a pension card. Our dentists aren't covered by

medicare either. The dentist BJ went to was one for special needs kids,

on the grounds of one the special needs schools.

Maybe you can find a school dentist, or a similar special needs service

in your area. I hope so. Heathcare is so different from country to

country.........and it seems that dentists are expensive wherever you

are :)

Judi Scarpelli wrote:

> Jordan's 7 and I can't get her to the dentist. Not because I don't

> have the time, but because while there are plenty of dentist that take

> Medical Assistance, NONE of them around here are taking New Assignment

> on it. So I can't get her in unless I pay for it and being a single

> mom, barely making it as it is, that's pretty much out of the question.

>

> Judi

-

Leis....mum to 5 & Natasha 11 months

Parents were invented to make children happy by giving them something to ignore.

Ogden Nash (1902 - 1971)

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Jordan's 7 and I can't get her to the dentist. Not because I don't have

> the time, but because while there are plenty of dentist that take Medical

> Assistance, NONE of them around here are taking New Assignment on it. So I

> can't get her in unless I pay for it and being a single mom, barely making

> it as it is, that's pretty much out of the question.

>

Judi,

Try calling your local health department. Ours does have a dental clinic for

children.

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Leis, so far our school district has not told me about any programs. I talked

to Jordan's father last night and told him the situation. Unfortunately his

dental plan through work is not an actual insurance coverage but a discount

plan. You pay for your own dental work but you get it at like a 20% discount.

That's out of the question for me. I told him that I would find out how much

it's going to cost and let him know what it is.

Judi

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,

The only problem with that is that the dental clinic is run out of York

Hospital. I refuse to have dealings with them where Jordan is concerned because

one time we were at the ER with Jordan and she had a temp of 103. With a heart

condition, anyone knows that anything over 102 " could " cause a febrile seizure.

They refused to give her a chest x-ray or anything and sent us home, not once,

but twice. I finally called her cardiologist in Hershed (an hour away). He

told me to get her up there ASAP. I did and they discovered not only a double

ear infection, but double pneumonia as well.

I wouldn't have Savannah at York either. I drove up to Hershey with my

contractions being 3 minutes apart.

Judi

Judi,

Try calling your local health department. Ours does have a dental clinic for

children.

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Judi,

And if her dad is anything like Karrie's dad, when you call with the cost,

he'll say, " Wow, how you gonna come up with that? " He went against a court

order and had her medical insurance cancelled. My lawyer said wait till we

get to court. Easy for her to say, Karrie has an appointment with an

neurosurgeon on January 23. She has AAI and is being followed to see if she

has to have the vertebrae fused.

What a guy, huh?

And yep, I've been on my own for 2 years now (2 years yesterday) and better

off for it!

Sue mom to Kate 13 and Karrie 6 w/ds

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Hi,

For those who have reasonably easy access to a Children's hospital, you

might check and see if they have a dental clinic for kids with medical

complications. I took Ramona to ours here in Seattle for years and was happy

with the treatment she received. They were great working with any fears she

had, it probably took three or four visits before she was comfortable enough

to let them really clean her teeth.

Ramona was eligible for this clinic because of her heart condition, not

ds. I figure with so many of our kids having heart and other conditions,

many would be able to use this service.

It wasn't easy to find an adult dentist that we both felt comfortable

with, but we finally have and Ramona did super there for her first cleaning.

Such a grown up young lady, I was so proud of her!

Hope this provides an option for some.

Mom to Ramona 19ds

<< I was going to start asking similar questions regarding teeth... Jillian

will

be 1 next week and has no teeth yet. I was about to ask at what age I

should

visit the dentist. My non ds son, age 6 now, had his first visit at age 22

months.. he fell off a chair and hit a wood floor.. mouth wide open and

cracked his front tooth.. it was pulled because it was cracked through to

the

root and the pediatric dentist said it was best to pull it. I think I will

call him now and see if he sees children with special needs and if so, when

he would like to see Jillian.

>>

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Sue,

Jordan's biological father has been pretty good for the most part these past two

years. I even took him back for an increase and it was really no big deal.

Since he's been made aware of it, I don't think there will be a problem.

Judi

Re: TEETH

Judi,

And if her dad is anything like Karrie's dad, when you call with the cost,

he'll say, " Wow, how you gonna come up with that? " He went against a court

order and had her medical insurance cancelled. My lawyer said wait till we

get to court. Easy for her to say, Karrie has an appointment with an

neurosurgeon on January 23. She has AAI and is being followed to see if she

has to have the vertebrae fused.

What a guy, huh?

And yep, I've been on my own for 2 years now (2 years yesterday) and better

off for it!

Sue mom to Kate 13 and Karrie 6 w/ds

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that is rediculous Judi. i really get annoyed with the system at times like

that.

heather

Re: TEETH

Jordan's 7 and I can't get her to the dentist. Not because I don't have the

time, but because while there are plenty of dentist that take Medical

Assistance, NONE of them around here are taking New Assignment on it. So I

can't get her in unless I pay for it and being a single mom, barely making it as

it is, that's pretty much out of the question.

Judi

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In a message dated 1/5/03 3:15:05 PM Central Standard Time, thrill@...

writes:

> He has not yet had an x-rays, though...just QUICK cleanings and a

> check by the dentist. I

did not have x rays until she was about 9 or 10. And even then we went

in a couple of times before they got a real good picture. So don't worry

about getting xrays. what i mostly worry about is more the gum diesease

thing. She's have very few cavities.

We did use a ped. dentist, but I always felt like he was rushing things and

she'd go in and come out with lots of tears in her eyes. And he did do alot

of sp needs kids. UGH. so we switched to our family dentist who has some

great assistants who evidently made the process of cleaning teeth fun. hehe.

we now use a ped. dentist who pulled the chunk of tooth that didn't

completely fall out. She's wonderful. :-)

Joy

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I just took Mac to the dentist this past week---this is getting as bad as

haircuts (which continue to be a NIGHTMARE!!), but the office/staff is very

efficient and we are in and out in a matter of minutes. Mac has been going

to the dentist every six months since he was just over 2--about 2 years 2

months and the dentist told me I should have brought him in between 12-18

months. He has not yet had an x-rays, though...just QUICK cleanings and a

check by the dentist. I made an appt. for Kit to go, too, when we go back

in June...she will be 22 months at that time.

Jill

Subject: Re: TEETH

> OK, so when should I get her to the dentist for her first visit?

> I know that there is NO way she would hold still for an X-ray right now,

but

> it would be good to know what to expect.

> , Mom to Myah, 2

>

>

>

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Oh hey, that makes two of us. It's amazing that there are people who can get

away with taking advantage of the system and then there are those, like myself,

who get punished when the system fails to admit their own mistakes. I know...

that had absolutely nothing to do with the topic, but since I'm annoyed with the

system, I thought I'd throw my $0.02 in there.

Re: TEETH

that is rediculous Judi. i really get annoyed with the system at times like

that.

heather

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i have been trying to get services from the state since johnny was born for

help. he doesn't get SSI, we were turned down for long term healthcare because

he isn't DELAYED ENOUGH!!!!!!!!! so until he is or turns 18 we cover ALL health

insuraance etc. it's not like i want to take advantage of the system but i t

would be nice to get what alot of others get. i have been fighting with this

since his birth.

heather

Re: TEETH

that is rediculous Judi. i really get annoyed with the system at times like

that.

heather

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In a message dated 1/5/03 10:08:27 PM Pacific Standard Time,

batwife97@... writes:

>

>

> i have been trying to get services from the state since johnny was born for

> help. he doesn't get SSI, we were turned down for long term healthcare

> because he isn't DELAYED ENOUGH!!!!!!!!! so until he is or turns 18 we

> cover ALL health insuraance etc. it's not like i want to take advantage of

> the system but i t would be nice to get what alot of others get. i have

> been fighting with this since his birth.

> heather

>

WHat state are you in?

-Becky

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Arizona

Re: TEETH

In a message dated 1/5/03 10:08:27 PM Pacific Standard Time,

batwife97@... writes:

>

>

> i have been trying to get services from the state since johnny was born for

> help. he doesn't get SSI, we were turned down for long term healthcare

> because he isn't DELAYED ENOUGH!!!!!!!!! so until he is or turns 18 we

> cover ALL health insuraance etc. it's not like i want to take advantage of

> the system but i t would be nice to get what alot of others get. i have

> been fighting with this since his birth.

> heather

>

WHat state are you in?

-Becky

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Jordan's 7 and I can't get her to the dentist. Not because I don't have the

time, but because while there are plenty of dentist that take Medical

Assistance, NONE of them around here are taking New Assignment on it. So I

can't get her in unless I pay for it and being a single mom, barely making it as

it is, that's pretty much out of the question.

Judi

Judi,

I do not have dental insurance nor medical assistance; however, I do not have

to pay for my son's () cleaning. 's dental treatments are covered by

The Grottoes of North America under a program called " Dental Care for Children

with Special Needs " . This program does NOT cover patients under Medicaid/Medical

Care. I have a pamphlet that I received from this organization that states " An

application for this service for Children with Special Needs can be made through

any Grotto in the United States and Canada " . Here's their website:

http://www.scgrotto.com/Text%20documents/Dental%20Care%20Program.htm

I chose a dentist who has worked with special needs children because I felt

this was important. was 6.5 when he started going to the dentist.

Jeanne, mom to (9, nda) and (8, DS)

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  • 1 month later...

lost your teeth again? check the last pub you were in rod!

:o)

Tom G

Camp Arifjan, Kuwait

>From: " Rod Eglin " <rodegg@...>

>Reply-

> " " < >

>Subject: Teeth

>Date: Tue, 18 Feb 2003 20:31:12 -0000

>

>Anymore on the tooth problem scenario????

>

>Rod Eglin

>

>

>

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In a message dated 2/25/03 3:46:43 PM Eastern Standard Time,

carole@... writes:

> Luckily, we have a

> really good dentist who specializes in special needs patients -- he

> actually has a degree in special ed as well as dentistry. Have to drive

> a bit to see him, but it's worth it.

> Carole

>

Wow, Carole what a good find. The little things in life we can appreciate.

But, then again when I found a good dentist for myself I was thrilled. Going

to the dentist now adays is so less painful.

Diane :)

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