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wrote:

>

> From: " " <lauranra@...>

>

> > Does anyone know if teeth in a baby with Ds comes in late also? My twins

> > are going on 9 months. has 4 teeth and another coming in, Tara has

> > none so far, but seems to be teething terribly lately. We're waiting and

> > checking her gums all the time! I don't see any teeth even trying to

> > come in, no reddness or anything! And my other two kids all had teeth

> > already by this time.

>

> Hi Gail;

> Nicala got her first tooth at 4 months, had his first at 16

> months. Nicala walked at 12 months, walked at 24 months. Everything

> seems to be a year apart with Nicala and .

>

> , mom to Nicala & ,ds (3 in 5 days) and (13 months)

>

> > http://DSyndrome.com/Multiples

Hi !

Wow your twins will be 3 in just 5 days! Can you believe it? How is

doing? At 9 months, that seems so far away. How is walking

and talking! I have been told that as soon as Tara turns 3, Early

Intervention therapies will stop and she will go into pre-school ASAP,

what will I do with ? What pre-school will take him mid-year{

March}? Everyone will be in school but .

Gail

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> Hi !

> Wow your twins will be 3 in just 5 days! Can you believe it? How is

> doing? At 9 months, that seems so far away. How is walking

> and talking! I have been told that as soon as Tara turns 3, Early

> Intervention therapies will stop and she will go into pre-school ASAP,

> what will I do with ? What pre-school will take him mid-year{

> March}? Everyone will be in school but .

Hi Gail;

is doing really well, especially within the past few weeks. He

walks perfect, he still would rather slid down the stairs then walk but does

know how to walk down the stairs. If you ask him to do a summersault/dance,

he will. He has his pincer grasp now and feeds himself very nicely. As for

speech, he doesn't. That is 's #1 fall back right now but he does

seem to be trying much harder lately. I got him all cleaned up and ready to

get out of his chair tonight after super BUT didn't take him out. I think

he was surprised that I didn't get him down right away....then finally after

a few minutes he said " down, down " ....its a start. I have to stop doing

everything for him automatically and wait for him to try and ask for things.

As for the school thing, I can't really help with that one because I live in

Canada and things are totally different. gets OT,ST and PT every

other week at home.

The kids now have their computer and I don't know how long this is

going to last. Nicala is the only one that really knows what she is doing

on it but and like to get in on things too. knows when

and why to click the easy ball but still has trouble moving it to the right

locations. just likes to click. All three are fighting about who

gets to use the computer. My three do NOT know how to share. The computer

finally went off when Nicala picked the easy ball up and hit over the

head with it.

, I think a lite brite is an excellent gift and we have one that

we are giving to for x-mas. It satisfies the touch and sight senses

AND is great for eye-hand coordination (fine motor skills).

,mom to Nicala & ,ds (3 in 4days) and (13 months)

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  • 8 months later...
Guest guest

What is Pan-Away? I was interested in the thieves oil for the teeth,

etc. I don't think most dentists understand what can be done with teeth

healing-wise. I am interested in tooth regeneration. Is it genetic

that we only get two sets? A man on the Rife list told me once that

people who have been struck by lightning have formed new teeth, so it

must be electrically related. I wish my body would eject a few of

mine. They are the biggest problem I have, or maybe the only problem.

J.

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Guest guest

,

PanAway is an essential oil mixture made by Young Living Oils that contains

helichrysum, birch, clove, peppermint & " other " essential oils. It is terrific

for making pain go away.

jim :)

jackson wrote:

> What is Pan-Away?

> ---

" Coming events cast their shadows before. " --

jlambert@... http://www.entrance.to/madscience

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Guest guest

J. wrote:

> I am interested in tooth regeneration. Is it genetic that we

> only get two sets? A man on the Rife list told me once that

> people who have been struck by lightning have formed new teeth,

> so it must be electrically related.

excerpt from:

http://www.infostream.net/fred/bobbeck/

Total Cancer Remissions through Blood Electrification ...

Copyright 1996 C. Beck, D.Sc.

Reissued January 15, 1998

My archives contain a tantalizing report from several decades ago

describing an authenticated record of an older man who was struck by

lightning, survived, and subsequently grew a third set of teeth and

a bushy head of youthful new dark hair. His grossly metastasized,

inoperable cancers vanished. He threw away his glasses and cane,

and appeared much younger and was totally healthy for the first time

ever. This fascinated scientists and years later almost encouraged

some highly illegal and bizarre human experiments in an abandoned

aircraft hangar in Wendover, Utah where Tesla coil research with

ball lightning was underway. The incident generated wide

speculation but few insights at the time. This mystery remained

sleeping until 1990 when an astounding discovery was reported at

Albert Einstein College of Medicine in NYC by Drs. Kaali and Wyman.

Not surprisingly, the revolutionary data were apparently immediately

suppressed. (See Science News, March 30, 1991, page 207; and

Longevity, December 1992 page 14.)

As a totally unexpected and unpredictable outcome of the writer's

self-funded research into " blood electrification " with microcurrents

for AIDS (currently showing excellent results), a growing number of

users previously unknown to me began independently reporting

" spontaneous remissions " of numerous other diseases including

cancer. ....

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  • 11 months later...
Guest guest

Wow Kay,

Potty training. . . . . all 3 at once?? I'm sending you lots of positive thoughts and PATIENCE and will be eager to hear all your "do" and "don't do" suggestions when that comes up in our house. Good luck!

Casey, mom to (DS) and , 20mo.

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  • 2 weeks later...
Guest guest

Teeth

I have two molars out and replaced one with a bridge of the new white

materials a few months ago, for $2000, and it broke recently, so I'd have to

fork out the same amount to get it replaced.

The other one has had a metal " land bridge " glued in for 20 years, but

it's coming out next week to get the metal out of my mouth.

I've heard of the new steel pins they put into the bone and place the tooth on

top. What do you think of them?

>>>>>> More metal means more disruption of chi. More different types metals

means more batteries created in your mouth.

I have teeth problems too.

ED

I presume they're not a good idea, as bacteria can probably get into the

bone.

Maybe I should just leave the two blanks??

Greg

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Called implants. Made of titanium. I have 11. Lost 3. Don't all take. Can eat

corn and beef jerky.

Wong

In a message dated 08/09/2001 9:25:38 PM Pacific Daylight Time,

vilik@... writes:

> I've heard of the new steel pins they put into the bone and place the tooth

> on top. What do you think of them? I presume they're not a good idea, as

> bacteria can probably get into the bone.

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I have had all the metal removed from my mouth. All metal bridges

were replaced with a denture made of a material called DentalD. All

crowns and fillings were replaced with DiamondCrown materials.

Go to the group DentalCleanse and do a search on DiamondCrown. I have

posted some of the correspondence I had with the distributor.

Garry

>

> Message: 10

> Date: Wed, 8 Aug 2001 19:04:06 -0400

> From: " Crook " <gwc@i...>

> Subject: Teeth

>

> I have two molars out and replaced one with a bridge of the new

white

> materials a few months ago, for $2000, and it broke recently, so

I'd have

> to fork out the same amount to get it replaced.

>

> The other one has had a metal " land bridge " glued in for 20

years, but

> it's coming out next week to get the metal out of my mouth.

>

> I've heard of the new steel pins they put into the bone and place

the tooth

> on top. What do you think of them? I presume they're not a good

idea, as

> bacteria can probably get into the bone.

>

> Maybe I should just leave the two blanks??

>

> Greg

> ~~~~~~~

> Hi Greg,

>

> I investigated this at some length. From what I understand, the

material

> (titanium?) is extremely nonreactive. And the technology is now very

> advanced and few of them, if any, fail. Personally if I had the

> bucks (they're quite expensive) I would go for it.

>

> ~^^V^^~

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I have had all the metal removed from my mouth. All metal bridges

were replaced with a denture made of a material called DentalD. All

crowns and fillings were replaced with DiamondCrown materials.

Go to the group DentalCleanse and do a search on DiamondCrown. I have

posted some of the correspondence I had with the distributor.

Garry

>

> Message: 10

> Date: Wed, 8 Aug 2001 19:04:06 -0400

> From: " Crook " <gwc@i...>

> Subject: Teeth

>

> I have two molars out and replaced one with a bridge of the new

white

> materials a few months ago, for $2000, and it broke recently, so

I'd have

> to fork out the same amount to get it replaced.

>

> The other one has had a metal " land bridge " glued in for 20

years, but

> it's coming out next week to get the metal out of my mouth.

>

> I've heard of the new steel pins they put into the bone and place

the tooth

> on top. What do you think of them? I presume they're not a good

idea, as

> bacteria can probably get into the bone.

>

> Maybe I should just leave the two blanks??

>

> Greg

> ~~~~~~~

> Hi Greg,

>

> I investigated this at some length. From what I understand, the

material

> (titanium?) is extremely nonreactive. And the technology is now very

> advanced and few of them, if any, fail. Personally if I had the

> bucks (they're quite expensive) I would go for it.

>

> ~^^V^^~

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Thanks much for the information.

Will be looking into this

D

Teeth

>

> I have two molars out and replaced one with a bridge of the new

white

> materials a few months ago, for $2000, and it broke recently, so

I'd have

> to fork out the same amount to get it replaced.

>

> The other one has had a metal " land bridge " glued in for 20

years, but

> it's coming out next week to get the metal out of my mouth.

>

> I've heard of the new steel pins they put into the bone and place

the tooth

> on top. What do you think of them? I presume they're not a good

idea, as

> bacteria can probably get into the bone.

>

> Maybe I should just leave the two blanks??

>

> Greg

> ~~~~~~~

> Hi Greg,

>

> I investigated this at some length. From what I understand, the

material

> (titanium?) is extremely nonreactive. And the technology is now very

> advanced and few of them, if any, fail. Personally if I had the

> bucks (they're quite expensive) I would go for it.

>

> ~^^V^^~

OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

THERE IS NO MEDICAL ADVICE HERE!

This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

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without consulting a medical professional, unless you are a researcher or health

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You can unsubscribe via e-mail by sending A NEW e-mail to the following

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Thanks much for the information.

Will be looking into this

D

Teeth

>

> I have two molars out and replaced one with a bridge of the new

white

> materials a few months ago, for $2000, and it broke recently, so

I'd have

> to fork out the same amount to get it replaced.

>

> The other one has had a metal " land bridge " glued in for 20

years, but

> it's coming out next week to get the metal out of my mouth.

>

> I've heard of the new steel pins they put into the bone and place

the tooth

> on top. What do you think of them? I presume they're not a good

idea, as

> bacteria can probably get into the bone.

>

> Maybe I should just leave the two blanks??

>

> Greg

> ~~~~~~~

> Hi Greg,

>

> I investigated this at some length. From what I understand, the

material

> (titanium?) is extremely nonreactive. And the technology is now very

> advanced and few of them, if any, fail. Personally if I had the

> bucks (they're quite expensive) I would go for it.

>

> ~^^V^^~

OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

THERE IS NO MEDICAL ADVICE HERE!

This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

responsibility for your own actions. By joining the list you agree to hold

yourself FULLY responsible FOR yourself. Do not use any ideas found here

without consulting a medical professional, unless you are a researcher or health

care provider.

You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

oxyplus-unsubscribeegroups

oxyplus-normalonelist - switch your subscription to normal mode.

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,

Am reading your post with interest. Where did you have this done? I live

in Southern CA and need a crown. I visited the DiamondCrown website, but no

referral there. rose

>Date: Fri, 10 Aug 2001 21:58:45 -0000

>

>I have had all the metal removed from my mouth. All metal bridges

>were replaced with a denture made of a material called DentalD. All

>crowns and fillings were replaced with DiamondCrown materials.

>

>Go to the group DentalCleanse and do a search on DiamondCrown. I have

>posted some of the correspondence I had with the distributor.

>

>Garry

_________________________________________________________________

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,

Am reading your post with interest. Where did you have this done? I live

in Southern CA and need a crown. I visited the DiamondCrown website, but no

referral there. rose

>Date: Fri, 10 Aug 2001 21:58:45 -0000

>

>I have had all the metal removed from my mouth. All metal bridges

>were replaced with a denture made of a material called DentalD. All

>crowns and fillings were replaced with DiamondCrown materials.

>

>Go to the group DentalCleanse and do a search on DiamondCrown. I have

>posted some of the correspondence I had with the distributor.

>

>Garry

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Hello Rose,

I did this in Sydney, Australia. It costs about $1000 AUS per crown

to be done.

Sorry about the delay in replying, I am currently in Stockton CA on

holidays and won't get access to the internet until I get back to

Australia next week.

I will go into more detail next week.

Garry

> ,

> Am reading your post with interest. Where did you have this done?

I live

> in Southern CA and need a crown. I visited the DiamondCrown

website, but no

> referral there. rose

>

>

> >Date: Fri, 10 Aug 2001 21:58:45 -0000

> >

> >I have had all the metal removed from my mouth. All metal bridges

> >were replaced with a denture made of a material called DentalD. All

> >crowns and fillings were replaced with DiamondCrown materials.

> >

> >Go to the group DentalCleanse and do a search on DiamondCrown. I

have

> >posted some of the correspondence I had with the distributor.

> >

> >Garry

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at

http://explorer.msn.com/intl.asp

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Hello Rose,

The reason I chose DiamondCrown products is that the website provided

the most detailed information on biocompatability that I could find.

I had contacted a lot of the dental material suppliers and requested

information on their products. Most of them supplied data sheets

specifying the ingredients but it was very hard to obtain the results

of any biocompatibility tests. So there may be products out there

that are as good as, if not better than DiamondCrown, however due to

lack of biocompatibility data, I went for the DiamondCrown.

The one negative thing that put me off DiamondCrown is that they use

metals eg Aluminium, to obtain the appropriate shade or colour. I

found out 2 things that countered this:

1 My dentist has a friend who is a professor of dental materials and

when he looked at the structure of DiamondCrown, he was extremely

impressed in that it was made of PEX. This made it an extremely tight

structure ie it was not porous like other normal dental materials

allowing metals to leach out of the filling or crown. This material

also makes it a lot more expensive as well.

2 Someone else (I think in the Hulda group) was looking at this

material as well and asked if someone could use a Synchrometer to

test this material. Someone eventually did and said that they found

it to be a good material.

So the only down side I could find was that as the DiamondCrown wore

away (at the same rate as your natural teeth), you would swallow it.

But that did not seem to bother me as I think not much of it will be

absorbed and it will just be excreted (this is my own assumption).

Also the previous crowns and bridges I had were harder than my own

teeth and had worn away my own teeth. There are other biocompatible

materials like CERES, but they are very hard and may wear down your

normal teeth.

There may be another disadvantage of having a metallic tint in the

DiamondCrown and that may be some electromagnetic influence on the

body. This I really don't know and just hope for the best.

Also I found out later that you get DiamondCrown in a clear form

without metal additives called INCISAL CLEAR (I think) and this

material would have been good for all the back teeth or where the

work done would not be visible.

If you use the Diamond products, make sure you use only the Diamond

products ie Crown, Link and Bond. Some dentists use Glass Ionomer

Cements (GICs) (which are loaded with fluoride) as a glue instead of

the DiamondBond. The crowns may actually fall out, and this has

happened.

The most important thing in getting work done on your teeth is that

you get a craftsman rather than a butcher to work on your teeth and I

have had a few butchers. That is why I travelled from Melbourne to

Sydney to have the work done by my regular dentist.

Garry

> > > ,

> > > Am reading your post with interest. Where did you have this

done?

> >I live

> > > in Southern CA and need a crown. I visited the DiamondCrown

> >website, but no

> > > referral there. rose

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at

http://explorer.msn.com/intl.asp

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  • 5 months later...

I sent this yesterday but for some reason it didn't get through so I'm trying

again.

teeth

Has anyone in the group had problems with their children's teeth during IVIG?

My son's front teeth have started getting white spots on them; the color of

typing paper. He saw the dentist about 2 months ago for his 6 mo. check - up

and he was fine. I just noticed it today. He gets IVIG every 3 weeks. Any

information would be greatly appreciated.

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  • 2 months later...
Guest guest

,

Sounds like you might be talking about sealants that are put on the molars

after they erupt. Both our kids have them and so far (knock on wood) they

have not had any trouble with decay. Even though Cassie is on steroids they

have kept the decay out of the teeth. But, I am also very careful about

taking her to the dentist every 3 months just to make sure nothing is

starting to brew. I hope this does help. They are widely used here in the

states. I don't think I know any child who has all their molars that does

not have sealants put on them. But, of course, that is one person's point of

view. Good luck.

Belinda Rose,

Mom to Allyssa (10) and Cassie (7), igg immunodeficient, asthma, sinusitis,

IVIG for 5 years (off for retesting)

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Guest guest

When Macey had her dental surgery last week they put sealants on all her baby

teeth she had left. That might be what

he's talking about.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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Guest guest

Even though Cassie is on steroids they

have kept the decay out of the teeth.

Belinda Rose,

Could you tell me what kind of steriods you are talking about?

My daughter has had 4 cavities (they were small ones). She is very upset to

visit the dentist. She takes several asthma/allergy inhalers.

Thanks for any info. I was just interested in your info. She does not have

sealants and I will check into that.

Jan

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Guest guest

Jan,

Cassie is taking Prelone usually 2 times monthly because of the asthma

trouble she has been having lately. She is also on the Advair, which took

the place of Flovent which she was on since she was about 3. She also takes

a daily antihistamine for allergies which tends to dry the mouth (which is a

favorable condition for decay). She just got her sealants on last month, but

for my older daughter, they have kept the decay to nothing. I guess I

shouldn't have said they have kept the decay out of Cassie's teeth, because

she just got them. But, it didn't hurt and the dentist could not wait for

her to be able to get them because of the medications that she is on. It is

a painless procedure. I think it is something to look into for your

daughter.

: Thanks for the compliment on my name. That was very kind of you.

Belinda Rose,

Mom to Allyssa (10) and Cassie (7), igg immunodeficient, asthma, sinusitis,

IVIG for 5 years (off for retesting)

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  • 8 months later...

In a message dated 1/4/03 6:01:33 PM Pacific Standard Time, lisa@...

writes:

> Bj didn't get his first tooth till he was nearly 2, and they came

> reasonably steady form there. He has all his teeth, altho they did come

> in a higilty pigilty way. I was told by our dentist not to stress until

> he was about 6 or 7 and then they would do x-rays etc. Teeth are one

> thing you cant really change, so try not to stress about it too

> much....also just because the baby teeth came thru weird, doesn't

> guarantee his/her adult teeth will be the same. BJ has very pointed

> teeth on his bottom row, and my dentist also said that his adult teeth

> may still come thru normal ( flat)

>

Yikes - no Xrays until 6 or 7??? My oldest (non-DS) had her first set at 3.

Every dentist I've had to date uses XRays to diagnose cavities (much more

accurate that just a visual exam).

- Becky

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In a message dated 1/4/03 7:28:34 PM Pacific Standard Time,

kspilious@... writes:

>

> OK, so when should I get her to the dentist for her first visit?

> I know that there is NO way she would hold still for an X-ray right now,

> but

> it would be good to know what to expect.

> , Mom to Myah, 2

>

FIrst you need to find a good pediatric dentist who specifically deals with

kids with special needs. You may have to call around or ask parents in your

area for a referral. It makes a HUGE difference to have a dentist who is

experienced at accomodating special needs kids as well as one who understands

issues specific to DS.

Usually by age 3 it's good to start getting a visit into the dentist. My

oldest (non-DS) already had cavities by her first visit at age 4. Some

dentists like to see kids as early as age one or two... or shortly after the

first teeth start erupting. In any case, the first time may be spread over

more than one visit depending on the issues. At the very least it's a " get

to know you " visit, so the kids can explore the equipment, learn the dental

routine, before more invasive procedures are required. Talk to the dentist's

office - they should be able to set your mind at ease. If not, keep hunting

for a dentist that will!

In our case, my DS daughter will sit still for some minor stuff, but to

really get in and fill cavities, our dentist brings in an anesthesiologist

once a year and groups all the special needs kids together on that day that

need to be unconscous for the procedures. Last time we got Xrays, full

cleaning, cavities filled, and 2 loose teeth extracted while we were at it.

- Becky

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,

Try to find a special needs dentist one that actually likes kids and is

patient and has many helping hands in their office. I would say ive been

taking amanda to the dentist since shes 5 or so and my son since hes around

4. They both use the special needs dentist.

My son non ds is the one with problems. Hes always got cavities and already

needed a baby root canal. :( has no problems except she prob needs

braces which im reluctant to persue.

~ Mom to 12 DS and Diabetes Type 1 and 8 NY

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