Re: scared - For Linds - be cautious not scared

[Guest guest]

Well..I'm really glad to hear how well you're doing.

It gives me hope I will be bite free soon too

On Nov 19, 2011 10:37 PM, " Aggi Assmann " <aggi_assmann@...> wrote:

 

He wasn't really interested in my condition. I think the first time he was shocked was when the mites did have a Go at him. That was coming home after our 10 days trip to the UK. He did not say much, but I could tell from the expression on his face that he was really concerned.  Well, it's been a one time incident only and he seemed to believe me more afterwards.

Von: Elissa <elissarachel@...>

An: bird mites Gesendet: 4:21 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

 I feel lucky that he is supportive but we had our arguments for sure!!! Our relationship was ser...

[Guest guest]

I had lint balls for the 1st 3 months and then they went away.  They were all over the mattress cover especially every morning.

On Nov 19, 2011 10:41 PM, " Aggi Assmann " <aggi_assmann@...> wrote:

 

About the lint balls, I really haven't got a clue. I know I had birdmites, but no lint balls. A friend of mine she had rhodent mites and no lint balls either.

Von: Aggi Assmann <aggi_assmann@...>

An: " bird mites " <bird mites >

Gesendet: 4:30 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

 Gosh Aandraya, you two have been through a lot and that probably really helps the relationship. I...

[Guest guest]

Thanks Elissa! You will get there too, that's for sure. All you need is a little bit of patience, faith and mental support we are all happily willing to provide.

And, most importantly, do not forget to address the internal issues. They are the main source for your condition. That is why healthy people living with us remain unaffected.

Von: Elissa <elissarachel@...>An: bird mites Gesendet: 4:21 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

I feel lucky that he is supportive but we had our arguments for sure!!!

Our relationship was seriously stressed for a while.

This group really helped me not vent to him all of the time and ultimately, he saw what a serious problem this is all around the U.S. and world.

I definitely feel that finding this group saved me and my marriage...this is an internal issue...clean the envirinment but dealing with the infections etc...is so important.

Aggi, was your bf shocked at first when he realized so many others are affected?

On Nov 19, 2011 10:12 PM, "Aggi Assmann" <aggi_assmann@...> wrote:

Me too, Elissa ! I lost 8 precious months of time in the beginning of the infestation, not knowing what i was dealing with.

So good that your husband understands, it is so important !

Von: Elissa <elissarachel@...>An: bird mites Gesendet: 4:06 Sonntag, 20.November 2011

Betreff: Re: scared - For Linds - be cautious not scared

I too have read some of these experiences to my husband. it did make him understand better...I ...

[Guest guest]

They never formed on your clothing?On Nov 19, 2011, at 9:45 PM, Elissa <elissarachel@...> wrote:

I had lint balls for the 1st 3 months and then they went away. They were all over the mattress cover especially every morning.

On Nov 19, 2011 10:41 PM, "Aggi Assmann" <aggi_assmann@...> wrote:

About the lint balls, I really haven't got a clue. I know I had birdmites, but no lint balls. A friend of mine she had rhodent mites and no lint balls either.

Von: Aggi Assmann <aggi_assmann@...>

An: "bird mites " <bird mites >

Gesendet: 4:30 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Gosh Aandraya, you two have been through a lot and that probably really helps the relationship. I...

[Guest guest]

I didn't have lint balls either, but remember I was pressing everything with a steam press... whatever they were, maybe I killed them?From: "Aandraya" <aandraya@...>bird mites Sent: Saturday, November 19, 2011 8:25:01 PMSubject: Re: scared - For Linds - be cautious not scared

They never formed on your clothing?On Nov 19, 2011, at 9:45 PM, Elissa <elissarachel@...> wrote:

I had lint balls for the 1st 3 months and then they went away. They were all over the mattress cover especially every morning.

On Nov 19, 2011 10:41 PM, "Aggi Assmann" <aggi_assmann@...> wrote:

About the lint balls, I really haven't got a clue. I know I had birdmites, but no lint balls. A friend of mine she had rhodent mites and no lint balls either.

Von: Aggi Assmann <aggi_assmann@...>

An: "bird mites " <bird mites >

Gesendet: 4:30 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Gosh Aandraya, you two have been through a lot and that probably really helps the relationship. I...

[Guest guest]

-I thought you were getting them on your clothes? Someone besides me was using the lint shaver on clothing. I cut out a lot of cotton pieces out of my clothes.AandrayaOn Nov 19, 2011, at 10:27 PM, Goldstein@... wrote:

I didn't have lint balls either, but remember I was pressing everything with a steam press... whatever they were, maybe I killed them?From: "Aandraya" <aandraya@...>bird mites Sent: Saturday, November 19, 2011 8:25:01 PMSubject: Re: scared - For Linds - be cautious not scared

They never formed on your clothing?On Nov 19, 2011, at 9:45 PM, Elissa <elissarachel@...> wrote:

I had lint balls for the 1st 3 months and then they went away. They were all over the mattress cover especially every morning.

On Nov 19, 2011 10:41 PM, "Aggi Assmann" <aggi_assmann@...> wrote:

About the lint balls, I really haven't got a clue. I know I had birdmites, but no lint balls. A friend of mine she had rhodent mites and no lint balls either.

Von: Aggi Assmann <aggi_assmann@...>

An: "bird mites " <bird mites >

Gesendet: 4:30 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Gosh Aandraya, you two have been through a lot and that probably really helps the relationship. I...

[Guest guest]

I used the lint shaver, but I never associated those with any bug since I never had any sensations from all the lint... maybe it was something to be afraid of, but wasn't? I still cut those lint balls off of things with my handy little lint shaver. P.S. I notice I'm still getting blue and red dust in the house... hmmmmFrom: "Aandraya" <aandraya@...>bird mites Sent: Saturday, November 19, 2011 8:33:06 PMSubject: Re: scared - For Linds - be cautious not scared

-I thought you were getting them on your clothes? Someone besides me was using the lint shaver on clothing. I cut out a lot of cotton pieces out of my clothes.AandrayaOn Nov 19, 2011, at 10:27 PM, Goldstein@... wrote:

I didn't have lint balls either, but remember I was pressing everything with a steam press... whatever they were, maybe I killed them?From: "Aandraya" <aandraya@...>bird mites Sent: Saturday, November 19, 2011 8:25:01 PMSubject: Re: scared - For Linds - be cautious not scared

They never formed on your clothing?On Nov 19, 2011, at 9:45 PM, Elissa <elissarachel@...> wrote:

I had lint balls for the 1st 3 months and then they went away. They were all over the mattress cover especially every morning.

On Nov 19, 2011 10:41 PM, "Aggi Assmann" <aggi_assmann@...> wrote:

About the lint balls, I really haven't got a clue. I know I had birdmites, but no lint balls. A friend of mine she had rhodent mites and no lint balls either.

Von: Aggi Assmann <aggi_assmann@...>

An: "bird mites " <bird mites >

Gesendet: 4:30 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Gosh Aandraya, you two have been through a lot and that probably really helps the relationship. I...

[Guest guest]

I never noticed any sensations from the lint balls, but they showed up during the whole infestation.AaOn Nov 19, 2011, at 10:35 PM, Goldstein@... wrote:

I used the lint shaver, but I never associated those with any bug since I never had any sensations from all the lint... maybe it was something to be afraid of, but wasn't? I still cut those lint balls off of things with my handy little lint shaver. P.S. I notice I'm still getting blue and red dust in the house... hmmmmFrom: "Aandraya" <aandraya@...>bird mites Sent: Saturday, November 19, 2011 8:33:06 PMSubject: Re: scared - For Linds - be cautious not scared

-I thought you were getting them on your clothes? Someone besides me was using the lint shaver on clothing. I cut out a lot of cotton pieces out of my clothes.AandrayaOn Nov 19, 2011, at 10:27 PM, Goldstein@... wrote:

I didn't have lint balls either, but remember I was pressing everything with a steam press... whatever they were, maybe I killed them?From: "Aandraya" <aandraya@...>bird mites Sent: Saturday, November 19, 2011 8:25:01 PMSubject: Re: scared - For Linds - be cautious not scared

They never formed on your clothing?On Nov 19, 2011, at 9:45 PM, Elissa <elissarachel@...> wrote:

I had lint balls for the 1st 3 months and then they went away. They were all over the mattress cover especially every morning.

On Nov 19, 2011 10:41 PM, "Aggi Assmann" <aggi_assmann@...> wrote:

About the lint balls, I really haven't got a clue. I know I had birdmites, but no lint balls. A friend of mine she had rhodent mites and no lint balls either.

Von: Aggi Assmann <aggi_assmann@...>

An: "bird mites " <bird mites >

Gesendet: 4:30 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Gosh Aandraya, you two have been through a lot and that probably really helps the relationship. I...

[Guest guest]

Aggi- he got shot before I met him, but having gone through that and now suffering from chronic pain that others can't see or understand I believe makes him more empathetic to my suddenly becoming ill and this long recovery I'm dealing with. AandrayaOn Nov 19, 2011, at 9:30 PM, Aggi Assmann <aggi_assmann@...> wrote:

Gosh Aandraya, you two have been through a lot and that probably really helps the relationship. I was also lucky in the fact that my boyfriend was working away during the week. It was strange, because on one hand I was sort of glad when he left on a Monday morning, on the other hand I was terryfied being left alone with the mites.

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 4:16 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

To this day I do not know what was making those lintballs! Do mites make them? My boyfriend of two years is a truckdriver and was not around for a lot of the nightmare- which was a very good thing. He was very patient about all my neurosis though. Maybe because he had a life changing traumatic event- he was a police officer and shot in the knee which left him with permanent damage, disabled and chronic pain syndrome- people don't believe he has pain... I don't think anyone else would have stuck around through that hell.

Aandraya

On Nov 19, 2011, at 9:00 PM, Aggi Assmann <aggi_assmann@...> wrote:

That is so spooky... is it really springtails cocooning in the fibers? I am almost certain that and did have them as well.

At least you got support of your parents/ That is one good thing. How did/does your partner cope with the whole subject. At one point I thought I had lost my relationship my job and my home. It turned out I did not :-)

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:45 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Well, they appeared mysteriously overnight when I slept with light blue sheets and a white cotton blanket over them, white lint balls were covering the blue sheets in the morning. And it took multiple washes to get them off the sheets. They stick like glue. I have samples of all the stuff I found on and around me in little baggies inside a metal box. I found the birdmite group after the fact and I've read some of the stories to my parents so they see it wasn't just me.

Aandraya

On Nov 19, 2011, at 8:22 PM, Aggi Assmann <aggi_assmann@...> wrote:

Negative Aandrraya, I never had the lint balls, just got eaten up by the bugs.

Seriously, your mom did know... how could she ? You mean she connected the lint balls to collembola straight away??

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:15 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Did you ever get the lint ball cocoon things on clothing, sheets, furniture, ect. I showed those to my mom and she saw what was going on!

Aandraya

On Nov 19, 2011, at 8:07 PM, Aggi Assmann <aggi_assmann@...> wrote:

I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

[Guest guest]

So true. My husband had or has CFS and that was where we met, in a support group for CFS sufferers. I think that is why he does understand, plus, when we got the mites he did experience them too. He cast them off faster than I did, but I remember how many bites he had on his behind... hundreds. And other places too. He had them going into his ears which never did happen to me. They liked my nose and eyes better and mouth.From: "Aandraya" <aandraya@...>bird mites Sent: Saturday, November 19, 2011 11:12:39 PMSubject: Re: scared - For Linds - be cautious not scared

Aggi- he got shot before I met him, but having gone through that and now suffering from chronic pain that others can't see or understand I believe makes him more empathetic to my suddenly becoming ill and this long recovery I'm dealing with. AandrayaOn Nov 19, 2011, at 9:30 PM, Aggi Assmann <aggi_assmann@...> wrote:

Gosh Aandraya, you two have been through a lot and that probably really helps the relationship. I was also lucky in the fact that my boyfriend was working away during the week. It was strange, because on one hand I was sort of glad when he left on a Monday morning, on the other hand I was terryfied being left alone with the mites.

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 4:16 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

To this day I do not know what was making those lintballs! Do mites make them? My boyfriend of two years is a truckdriver and was not around for a lot of the nightmare- which was a very good thing. He was very patient about all my neurosis though. Maybe because he had a life changing traumatic event- he was a police officer and shot in the knee which left him with permanent damage, disabled and chronic pain syndrome- people don't believe he has pain... I don't think anyone else would have stuck around through that hell.

Aandraya

On Nov 19, 2011, at 9:00 PM, Aggi Assmann <aggi_assmann@...> wrote:

That is so spooky... is it really springtails cocooning in the fibers? I am almost certain that and did have them as well.

At least you got support of your parents/ That is one good thing. How did/does your partner cope with the whole subject. At one point I thought I had lost my relationship my job and my home. It turned out I did not :-)

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:45 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Well, they appeared mysteriously overnight when I slept with light blue sheets and a white cotton blanket over them, white lint balls were covering the blue sheets in the morning. And it took multiple washes to get them off the sheets. They stick like glue. I have samples of all the stuff I found on and around me in little baggies inside a metal box. I found the birdmite group after the fact and I've read some of the stories to my parents so they see it wasn't just me.

Aandraya

On Nov 19, 2011, at 8:22 PM, Aggi Assmann <aggi_assmann@...> wrote:

Negative Aandrraya, I never had the lint balls, just got eaten up by the bugs.

Seriously, your mom did know... how could she ? You mean she connected the lint balls to collembola straight away??

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:15 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Did you ever get the lint ball cocoon things on clothing, sheets, furniture, ect. I showed those to my mom and she saw what was going on!

Aandraya

On Nov 19, 2011, at 8:07 PM, Aggi Assmann <aggi_assmann@...> wrote:

I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

[Guest guest]

I don't recall them on my clothing.  Just my mattress cover mostly under my sheets.  I thought it was so weird at first.  I had my husband look at them under a microscope.  Then I read it was a sign of morgellons...which scared me .  My husband lived apart from us for 6 weeks with a co-worker while the baby and I moved in with his parents...i wouldn't stay in our apartment.

He separately would find lint balls on his mattress cover!!!!  That's how I initially knew they were related to the infestation.

On Nov 20, 2011 6:38 PM, <Goldstein@...> wrote:

 

So true.  My husband had or has CFS and that was where we met, in a support group for CFS sufferers.  I think that is why he does understand, plus, when we got the mites he did experience them too.  He cast them off faster than I did, but I remember how many bites he had on his behind... hundreds.  And other places too.  He had them going into his ears which never did happen to me.  They liked my nose and eyes better and mouth.

From: " Aandraya " <aandraya@...>bird mites

Sent: Saturday, November 19, 2011 11:12:39 PMSubject: Re: scared - For Linds - be cautious not scaredAggi- he got shot before...

[Guest guest]

Just before I came down with any of this, I noticed the lint. I told my sister and father it was as if it were alive and waiting for me. I believe it can grow in the dryer. That's why I trashed the 1st dryer and continually clean the inside of my new dryer and lint trap. I do it with vinegar after every use.

From: Elissa <elissarachel@...>bird mites Sent: Sunday, November 20, 2011 7:25 PMSubject: Re: scared - For Linds - be cautious not scared

I don't recall them on my clothing. Just my mattress cover mostly under my sheets. I thought it was so weird at first. I had my husband look at them under a microscope. Then I read it was a sign of morgellons...which scared me . My husband lived apart from us for 6 weeks with a co-worker while the baby and I moved in with his parents...i wouldn't stay in our apartment.

He separately would find lint balls on his mattress cover!!!! That's how I initially knew they were related to the infestation.

On Nov 20, 2011 6:38 PM, <Goldstein@...> wrote:

So true. My husband had or has CFS and that was where we met, in a support group for CFS sufferers. I think that is why he does understand, plus, when we got the mites he did experience them too. He cast them off faster than I did, but I remember how many bites he had on his behind... hundreds. And other places too. He had them going into his ears which never did happen to me. They liked my nose and eyes better and mouth.

From: "Aandraya" <aandraya@...>bird mites Sent: Saturday, November 19, 2011 11:12:39 PM

Subject: Re: scared - For Linds - be cautious not scaredAggi- he got shot before...

[Guest guest]

They are morgellons related, but there are multiple interpretations and theories as to what morgellons is. They all do have Lyme, it's like a subgroup of Lyme patients. I had the Morgellons symptoms- but the lesions are also typical of bartonella so I believe it's a combination of pathogens, my LLMD agrees with me. The bugs are a manifestation of the infections. Bugs rarely bother people with healthy immune systems.AandrayaOn Nov 20, 2011, at 6:25 PM, Elissa <elissarachel@...> wrote:

I don't recall them on my clothing. Just my mattress cover mostly under my sheets. I thought it was so weird at first. I had my husband look at them under a microscope. Then I read it was a sign of morgellons...which scared me . My husband lived apart from us for 6 weeks with a co-worker while the baby and I moved in with his parents...i wouldn't stay in our apartment.

He separately would find lint balls on his mattress cover!!!! That's how I initially knew they were related to the infestation.

On Nov 20, 2011 6:38 PM, <Goldstein@...> wrote:

So true. My husband had or has CFS and that was where we met, in a support group for CFS sufferers. I think that is why he does understand, plus, when we got the mites he did experience them too. He cast them off faster than I did, but I remember how many bites he had on his behind... hundreds. And other places too. He had them going into his ears which never did happen to me. They liked my nose and eyes better and mouth.

From: "Aandraya" <aandraya@...>bird mites

Sent: Saturday, November 19, 2011 11:12:39 PMSubject: Re: scared - For Linds - be cautious not scaredAggi- he got shot before...

[Guest guest]

Same here, the lint balls appeared on a load of laundry at the very beginning. Then they started appearing on anything I wore. So I wore only nylon, Lycra, leather, or vinyl- they couldn't make lint balls then. Yes, if you tap gently the lint balls they will slide across a surface or jump- did this a thousand times. I thought maybe some magnetic property... or there were live organisms inside. I have some put away. Someday I will take them out and see if they still move. The lab did find an adult insect inside one. Never found info if springtails make cocoons. I boiled them, baked them, and tried every chemical on them.AaOn Nov 20, 2011, at 6:31 PM, Benton <sarahbenton48@...> wrote:

Just before I came down with any of this, I noticed the lint. I told my sister and father it was as if it were alive and waiting for me. I believe it can grow in the dryer. That's why I trashed the 1st dryer and continually clean the inside of my new dryer and lint trap. I do it with vinegar after every use.

From: Elissa <elissarachel@...>bird mites Sent: Sunday, November 20, 2011 7:25 PMSubject: Re: scared - For Linds - be cautious not scared

I don't recall them on my clothing. Just my mattress cover mostly under my sheets. I thought it was so weird at first. I had my husband look at them under a microscope. Then I read it was a sign of morgellons...which scared me . My husband lived apart from us for 6 weeks with a co-worker while the baby and I moved in with his parents...i wouldn't stay in our apartment.

He separately would find lint balls on his mattress cover!!!! That's how I initially knew they were related to the infestation.

On Nov 20, 2011 6:38 PM, <Goldstein@...> wrote:

So true. My husband had or has CFS and that was where we met, in a support group for CFS sufferers. I think that is why he does understand, plus, when we got the mites he did experience them too. He cast them off faster than I did, but I remember how many bites he had on his behind... hundreds. And other places too. He had them going into his ears which never did happen to me. They liked my nose and eyes better and mouth.

From: "Aandraya" <aandraya@...>bird mites Sent: Saturday, November 19, 2011 11:12:39 PM

Subject: Re: scared - For Linds - be cautious not scaredAggi- he got shot before...

[Guest guest]

- maybe it was the dryer vent because this happened to me when I moved to a new apt and had a washer/dryer in my unit.On Nov 20, 2011, at 6:31 PM, Benton <sarahbenton48@...> wrote:

Just before I came down with any of this, I noticed the lint. I told my sister and father it was as if it were alive and waiting for me. I believe it can grow in the dryer. That's why I trashed the 1st dryer and continually clean the inside of my new dryer and lint trap. I do it with vinegar after every use.

From: Elissa <elissarachel@...>bird mites Sent: Sunday, November 20, 2011 7:25 PMSubject: Re: scared - For Linds - be cautious not scared

I don't recall them on my clothing. Just my mattress cover mostly under my sheets. I thought it was so weird at first. I had my husband look at them under a microscope. Then I read it was a sign of morgellons...which scared me . My husband lived apart from us for 6 weeks with a co-worker while the baby and I moved in with his parents...i wouldn't stay in our apartment.

He separately would find lint balls on his mattress cover!!!! That's how I initially knew they were related to the infestation.

On Nov 20, 2011 6:38 PM, <Goldstein@...> wrote:

So true. My husband had or has CFS and that was where we met, in a support group for CFS sufferers. I think that is why he does understand, plus, when we got the mites he did experience them too. He cast them off faster than I did, but I remember how many bites he had on his behind... hundreds. And other places too. He had them going into his ears which never did happen to me. They liked my nose and eyes better and mouth.

From: "Aandraya" <aandraya@...>bird mites Sent: Saturday, November 19, 2011 11:12:39 PM

Subject: Re: scared - For Linds - be cautious not scaredAggi- he got shot before...

[Guest guest]

i definitely have the lint balls, everywhere. i have seen a lot of cocoon like

things also. they truly look like something more than a lint ball. most of this

stuff i have had to ignore and go about life because this experience has made me

paranoid and freaked out. just talking about parasites and stuff makes people

itch so i am wondering what's real and what is not. my mom asked me how long i

was going to keep clothes in bins and my house like it is. it made me soo mad. i

told her when i go 2 weeks without a bite i might hang my clothes back in the

closet. the weather has been warm the past few days and i got a few bites, so

they must not be active when the temp drops, but just hanging around waiting.

ugh! i had to pull out my magnifying glass tonight i knew i felt them crawling.

> >>>>

> >>>>

> >>>> 

> >>>>I didn't know Krys was a birdmite researcher. Does he study how they

affect humans? I found an article on a woman quarantined in New York because she

was covered in birdmites. An entomologist at the State of Washington was

mentioned in the article. He said humans can play hosts to birdmites. The woman

stated she had them going in her eyes, nose, mouth and " other places " . I picked

up the phone and called that entomolgist and he acted like he didn't know what I

was talking about. I scanned the article and emailed it to him. He said it was

rare and not likely as if he never said any of it.

> >>>>

> >>>>

> >>>>From: " Goldstein@... " <Goldstein@...>

> >>>>bird mites Sent: Friday, November 18, 2011 2:01 PM

> >>>>

> >>>>Subject: Re: scared - For Linds - be cautious not scared

> >>>>

> >>>> 

> >>>>

> >>>>Your husband most likely does not have systemic fungal issues going on.

 Even Krys, who is a birdmi...

> >>>>

> >>>>

> >>>>

> >>>>From: " Linds J " <lj_mom11@...>

> >>>>bird mites

> >>>>Sent: Friday, November 18, 20...

> >>>>

> >>>>

> >>>

> >>>

> >>>

> >>>

> >>>

> >>

> >>

> >

> >

>

[Guest guest]

You are right, they are NOT regular lint balls. They are lint cocoons. Have you tried tapping them while they sit on a flat surface? They move. You need to wear silky, smooth polyester like textures that they cannot attach to. Store all cotton things away. I even cut the cotton panties out of my underwear. Anything that they could attach to. My lab DID find an insect inside one.AandrayaOn Nov 20, 2011, at 10:08 PM, alaire73 <alaire_fetters@...> wrote:

i definitely have the lint balls, everywhere. i have seen a lot of cocoon like things also. they truly look like something more than a lint ball. most of this stuff i have had to ignore and go about life because this experience has made me paranoid and freaked out. just talking about parasites and stuff makes people itch so i am wondering what's real and what is not. my mom asked me how long i was going to keep clothes in bins and my house like it is. it made me soo mad. i told her when i go 2 weeks without a bite i might hang my clothes back in the closet. the weather has been warm the past few days and i got a few bites, so they must not be active when the temp drops, but just hanging around waiting. ugh! i had to pull out my magnifying glass tonight i knew i felt them crawling.

> >>>>

> >>>>

> >>>>Â

> >>>>I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

> >>>>

> >>>>

> >>>>From: "Goldstein@..." <Goldstein@...>

> >>>>bird mites Sent: Friday, November 18, 2011 2:01 PM

> >>>>

> >>>>Subject: Re: scared - For Linds - be cautious not scared

> >>>>

> >>>>Â

> >>>>

> >>>>Your husband most likely does not have systemic fungal issues going on. Â Even Krys, who is a birdmi...

> >>>>

> >>>>

> >>>>

> >>>>From: "Linds J" <lj_mom11@...>

> >>>>bird mites

> >>>>Sent: Friday, November 18, 20...

> >>>>

> >>>>

> >>>

> >>>

> >>>

> >>>

> >>>

> >>

> >>

> >

> >

>

[Guest guest]

You are right about having to continue going about life, and you must treat internally. I promise you I thought the nightmare would never end. It did.Aandraya On Nov 20, 2011, at 10:08 PM, alaire73 <alaire_fetters@...> wrote:

i definitely have the lint balls, everywhere. i have seen a lot of cocoon like things also. they truly look like something more than a lint ball. most of this stuff i have had to ignore and go about life because this experience has made me paranoid and freaked out. just talking about parasites and stuff makes people itch so i am wondering what's real and what is not. my mom asked me how long i was going to keep clothes in bins and my house like it is. it made me soo mad. i told her when i go 2 weeks without a bite i might hang my clothes back in the closet. the weather has been warm the past few days and i got a few bites, so they must not be active when the temp drops, but just hanging around waiting. ugh! i had to pull out my magnifying glass tonight i knew i felt them crawling.

> >>>>

> >>>>

> >>>>Â

> >>>>I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

> >>>>

> >>>>

> >>>>From: "Goldstein@..." <Goldstein@...>

> >>>>bird mites Sent: Friday, November 18, 2011 2:01 PM

> >>>>

> >>>>Subject: Re: scared - For Linds - be cautious not scared

> >>>>

> >>>>Â

> >>>>

> >>>>Your husband most likely does not have systemic fungal issues going on. Â Even Krys, who is a birdmi...

> >>>>

> >>>>

> >>>>

> >>>>From: "Linds J" <lj_mom11@...>

> >>>>bird mites

> >>>>Sent: Friday, November 18, 20...

> >>>>

> >>>>

> >>>

> >>>

> >>>

> >>>

> >>>

> >>

> >>

> >

> >

>

[Guest guest]

Hi,Linds!I understand the horror of not letting your kids have a normal life. We were islated for 8 months before we moved and threw away everything. From then on we have had people at home and friends for the kids and noone had been affected, even if we still have some strange infectins and aftersymptoms from the mites.

I really just wanted to let you know that it can be ok again!

You and your kids need to be able to see frineds etc again, it is awful to be isolated.

Take care!Cecilia

From: Linds J <lj_mom11@...>"bird mites " <bird mites > Sent: Saturday, November 19, 2011 5:41 PMSubject: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

[Guest guest]

Well, could be. My dryer was mine and new, but the outtake vent had 5 abandoned bird's nest in it. My dryer wouldn't dry for the lack of air. When cleaned, the mess came out in wet, soggy globs. Yuck!

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Sunday, November 20, 2011 7:47 PMSubject: Re: scared - For Linds - be cautious not scared

- maybe it was the dryer vent because this happened to me when I moved to a new apt and had a washer/dryer in my unit.

On Nov 20, 2011, at 6:31 PM, Benton <sarahbenton48@...> wrote:

Just before I came down with any of this, I noticed the lint. I told my sister and father it was as if it were alive and waiting for me. I believe it can grow in the dryer. That's why I trashed the 1st dryer and continually clean the inside of my new dryer and lint trap. I do it with vinegar after every use.

From: Elissa <elissarachel@...>bird mites Sent: Sunday, November 20, 2011 7:25 PMSubject: Re: scared - For Linds - be cautious not scared

I don't recall them on my clothing. Just my mattress cover mostly under my sheets. I thought it was so weird at first. I had my husband look at them under a microscope. Then I read it was a sign of morgellons...which scared me . My husband lived apart from us for 6 weeks with a co-worker while the baby and I moved in with his parents...i wouldn't stay in our apartment.

He separately would find lint balls on his mattress cover!!!! That's how I initially knew they were related to the infestation.

On Nov 20, 2011 6:38 PM, <Goldstein@...> wrote:

So true. My husband had or has CFS and that was where we met, in a support group for CFS sufferers. I think that is why he does understand, plus, when we got the mites he did experience them too. He cast them off faster than I did, but I remember how many bites he had on his behind... hundreds. And other places too. He had them going into his ears which never did happen to me. They liked my nose and eyes better and mouth.

From: "Aandraya" <aandraya@...>bird mites Sent: Saturday, November 19, 2011 11:12:39 PM Subject: Re: scared - For Linds - be cautious not scaredAggi- he got shot before...