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Re: scared - For Linds - be cautious not scared

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Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmite researcher, has handled mites and no problems... I know for certain he has a healthy diet! So again the attraction is an issue. Don't ask me why so many more women get this, but it could be because 1) we are home more and 2) we are cooking for family and 3) hormones may play a part too.From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 2011 11:42:15 AMSubject: Re: scared - For Linds - be cautious not scared

No, but it makes sense being that my husband took a dead bird out of a nest about the time I started itching. After getting no where with drs, about 4 weeks later, I decided to research which is where I came to birdmites.org. I realized then that we needed to get rid of the nest he left but symptoms didn't resolve.

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 1:36 PMSubject: Re: scared - For Linds - be cautious not scared

How do you know it's birdmites on you? Did you capture them and send to a specialist? Or look under a microscope to identify?

Aa

On Nov 18, 2011, at 1:34 PM, Linds J <lj_mom11@...> wrote:

How long once you start treating? I guess my biggest problem is the anticipation of this all coming back in spring. Its eating me up even when the critters are not. Or at least I don't think they are. I really don't know if they are since I can't feel the crawlies non-stop. Even if I treat myself won't the bird mites just go to another member of my family? I would think they would find the next best thing in my house.

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 1:28 PMSubject: Re: scared - For Linds - be cautious not scared

When you start treating the skin sensations will go away. Whatever is in your environment will stop bothering you as well.

Aa

On Nov 18, 2011, at 1:27 PM, Linds J <lj_mom11@...> wrote:

Thanks, . I am driving over 500 miles to get there. I've decided even though we don't have any money we are taking the kids with us and going to have a little family fun and try to forget about our troubles while away. I wish the LLMD would have the answers but I am sure he won't. If I continue to be bitten though, how is going to the LLMD going to help?

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 1:17 PMSubject: Re: scared - For Linds - be cautious not scared

Proud of you Lind that you are taking the bull by the horns and seeing a LLMD!

From: "Elissa " <elissarachel@...>bird mites Sent: Friday, November 18, 2011 11:12:06 AMSubject: Re: scared - For Linds - be cautious not scared

I keep cleaning, doing laundry, washing/ bathing with epsoms, and spread baking soda around the bed.

If your kids don't have symptoms they might not be affected. My son isn't anymore.

Also, I put baking soda under the cushions and in the crevices of my couch.

I think for your dog, you can use Duatimacios (sp) earth on him.

Don't stop the rituals!! Your environment with slowly be rid of them.

Also, research Lyme. Have a plan for when you go to the dr. list everything you think it could be...and discuss with them.

On Nov 18, 2011 2:04 PM, "Linds J" <lj_mom11@...> wrote:

What did you do when you moved? You said you still felt the crawlies and had scalp itching. Weren't they still on you? I've not had anything come out of skin and neither have my kids. I took the advice of others and made myself a very expensive appt. to an LLMD. I just don't know what to do now.

From: Doris Kennedy <kean2465@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 12:18 PM Subject: Re: scared - For Linds - be cautious not scared

I had those same things in my ears, nose etc.(other places)and the crawlies. After I moved, it too...

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Lyme and chronic bacterial infections feed off of sugar, it will make symptoms worse.AaOn Nov 18, 2011, at 1:59 PM, Linds J <lj_mom11@...> wrote:

I've been a sugar junky up until now. If I eat sugar my symptoms get worse. Actually, my whole family is sugar junkies. Even my husband who has no problems as of yet. It will be very hard to change the kids. My kids are so picky.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 1:52 PMSubject: Re: scared - For Linds - be cautious not scared

Really excellent advice! I would not move or throw anything else away either. If you are frightened of sitting on something, cover it with plastic for yourself temporarily, even if the rest of the furniture is not covered. See I've had a food addiction, particularly sugar for most of my adult life, and I believe these organisms are attracted to carbos, wheat, sugar, honey, anything like that. Change the diet (at least for yourself). Take probiotics, especially when on antibiotics! A must.

From: "Elissa " <elissarachel@...>bird mites Sent: Friday, November 18, 2011 11:40:03 AMSubject: Re: scared - For Linds - be cautious not scared

Put the thought of moving aside right now sincE it is not practical for you & your fam.

It helps but if symptoms are clearing things might be better for good.

The point of going to an LLMD is because most of us have Lyme Disease. They are the only ones that understand how to diagnose it.

Or you have fungus or mold issues...or a chronic underlying infection (co-infection) of some sort.

That is why you should research lyme to determine if you have any symptoms and bring the list to the appointment. Try to keep emotion out of it and present the facts.

Tell the llmd about the yeast overgrowth, and bring all recent tests, etc..from other doctors.

The idea is that the LLMD should know how to treat whatever is going on with you internally...then they won't be attracted to you anymore.

In the meantime, try to limit your kids' sugar\processed food intake. These are things that could attract the bugs to them if they leave you.

Just continue to clean and wash and they should be out of the environment.

On Nov 18, 2011 2:27 PM, "Linds J" <lj_mom11@...> wrote:

Thanks, . I am driving over 500 miles to get there. I've decided even though we don't have any money we are taking the kids with us and going to have a little family fun and try to forget about our troubles while away. I wish the LLMD would have the answers but I am sure he won't. If I continue to be bitten though, how is going to the LLMD going to help?

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 1:17 PM

Subject: Re: scared - For Linds - be cautious not scared

Proud of you Lind that you are taking the bull by the horns and seeing a LLMD!

From: "Elissa " <elissarachel@...>bird mites Sent: Friday, Novem...

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Are you working Linds?From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 2011 11:48:20 AMSubject: Re: scared - For Linds - be cautious not scared

My husband says then maybe its just lyme and not bird mites. If it were just lyme my symptoms should be all the time, right? Not worsened when at home.

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 1:39 PMSubject: Re: scared - For Linds - be cautious not scared

They feed on the infection in your skin, not on your furniture. Some of the sensations are neurological- nerves misfiring due to infection. Lyme damages the myelin sheath of the nerves and causes the crawling. Bartonella makes it even worse.

Aa

On Nov 18, 2011, at 1:33 PM, Aandraya <aandraya@...> wrote:

No, I didn't throw away my furniture. Unecessary. Only move if you have mold in your place that can't be remediated. If your kids don't have Lyme they won't be bothered.

Aa

On Nov 18, 2011, at 1:22 PM, Linds J <lj_mom11@...> wrote:

Thanks Elissa. My biggest question is do we stay or do we go? I keep praying for answers but there aren't any. My pastor says God didn't do this to you and it wasn't anything you did but then suggested anxiety meds. He clearly doesn't understand either. Over the summer I couldn't sit on any furniture other than our leather recliner. I am able to now but chose not to. Does that mean our furniture is infested? Should I throw them out before spring? Since my husband has not been affected he doesn't help with anything and does not understand. I've read articles that state when someone isn't enough they will then move to another person. I don't want the other person or persons to be my kids.

From: Elissa <elissarachel@...>bird mites Sent: Friday, November 18, 2011 1:12 PMSubject: Re: scared - For Linds - be cautious not scared

I keep cleaning, doing laundry, washing/ bathing with epsoms, and spread baking soda around the bed.

If your kids don't have symptoms they might not be affected. My son isn't anymore.

Also, I put baking soda under the cushions and in the crevices of my couch.

I think for your dog, you can use Duatimacios (sp) earth on him.

Don't stop the rituals!! Your environment with slowly be rid of them.

Also, research Lyme. Have a plan for when you go to the dr. list everything you think it could be...and discuss with them.

On Nov 18, 2011 2:04 PM, "Linds J" <lj_mom11@...> wrote:

What did you do when you moved? You said you still felt the crawlies and had scalp itching. Weren't they still on you? I've not had anything come out of skin and neither have my kids. I took the advice of others and made myself a very expensive appt. to an LLMD. I just don't know what to do now.

From: Doris Kennedy <kean2465@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 12:18 PM Subject: Re: scared - For Linds - be cautious not scared

I had those same things in my ears, nose etc.(other places)and the crawlies. After I moved, it too...

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No, I don't work. Thank God! I may have to start though being how much money we've spent and are spending. There is no way I would of been able to work as bad as I was over the summer. I can't get anything done at home either as my little one is into everything. She is not here today and look what I am doing instead of cleaning. I haven't begun to Christmas shop and I have the fear of giving presents that are contaminated.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:02 PMSubject: Re: scared - For Linds - be cautious not scared

Are you working Linds?

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 2011 11:48:20 AMSubject: Re: scared - For Linds - be cautious not scared

My husband says then maybe its just lyme and not bird mites. If it were just lyme my symptoms should be all the time, right? Not worsened when at home.

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 1:39 PMSubject: Re: scared - For Linds - be cautious not scared

They feed on the infection in your skin, not on your furniture. Some of the sensations are neurological- nerves misfiring due to infection. Lyme damages the myelin sheath of the nerves and causes the crawling. Bartonella makes it even worse.

Aa

On Nov 18, 2011, at 1:33 PM, Aandraya <aandraya@...> wrote:

No, I didn't throw away my furniture. Unecessary. Only move if you have mold in your place that can't be remediated. If your kids don't have Lyme they won't be bothered.

Aa

On Nov 18, 2011, at 1:22 PM, Linds J <lj_mom11@...> wrote:

Thanks Elissa. My biggest question is do we stay or do we go? I keep praying for answers but there aren't any. My pastor says God didn't do this to you and it wasn't anything you did but then suggested anxiety meds. He clearly doesn't understand either. Over the summer I couldn't sit on any furniture other than our leather recliner. I am able to now but chose not to. Does that mean our furniture is infested? Should I throw them out before spring? Since my husband has not been affected he doesn't help with anything and does not understand. I've read articles that state when someone isn't enough they will then move to another person. I don't want the other person or persons to be my kids.

From: Elissa <elissarachel@...>bird mites Sent: Friday, November 18, 2011 1:12 PMSubject: Re: scared - For Linds - be cautious not scared

I keep cleaning, doing laundry, washing/ bathing with epsoms, and spread baking soda around the bed.

If your kids don't have symptoms they might not be affected. My son isn't anymore.

Also, I put baking soda under the cushions and in the crevices of my couch.

I think for your dog, you can use Duatimacios (sp) earth on him.

Don't stop the rituals!! Your environment with slowly be rid of them.

Also, research Lyme. Have a plan for when you go to the dr. list everything you think it could be...and discuss with them.

On Nov 18, 2011 2:04 PM, "Linds J" <lj_mom11@...> wrote:

What did you do when you moved? You said you still felt the crawlies and had scalp itching. Weren't they still on you? I've not had anything come out of skin and neither have my kids. I took the advice of others and made myself a very expensive appt. to an LLMD. I just don't know what to do now.

From: Doris Kennedy <kean2465@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 12:18 PM Subject: Re: scared - For Linds - be cautious not scared

I had those same things in my ears, nose etc.(other places)and the crawlies. After I moved, it too...

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Thank you all for your support. You are the only ones who truly understand.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:02 PMSubject: Re: scared - For Linds - be cautious not scared

Are you working Linds?

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 2011 11:48:20 AMSubject: Re: scared - For Linds - be cautious not scared

My husband says then maybe its just lyme and not bird mites. If it were just lyme my symptoms should be all the time, right? Not worsened when at home.

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 1:39 PMSubject: Re: scared - For Linds - be cautious not scared

They feed on the infection in your skin, not on your furniture. Some of the sensations are neurological- nerves misfiring due to infection. Lyme damages the myelin sheath of the nerves and causes the crawling. Bartonella makes it even worse.

Aa

On Nov 18, 2011, at 1:33 PM, Aandraya <aandraya@...> wrote:

No, I didn't throw away my furniture. Unecessary. Only move if you have mold in your place that can't be remediated. If your kids don't have Lyme they won't be bothered.

Aa

On Nov 18, 2011, at 1:22 PM, Linds J <lj_mom11@...> wrote:

Thanks Elissa. My biggest question is do we stay or do we go? I keep praying for answers but there aren't any. My pastor says God didn't do this to you and it wasn't anything you did but then suggested anxiety meds. He clearly doesn't understand either. Over the summer I couldn't sit on any furniture other than our leather recliner. I am able to now but chose not to. Does that mean our furniture is infested? Should I throw them out before spring? Since my husband has not been affected he doesn't help with anything and does not understand. I've read articles that state when someone isn't enough they will then move to another person. I don't want the other person or persons to be my kids.

From: Elissa <elissarachel@...>bird mites Sent: Friday, November 18, 2011 1:12 PMSubject: Re: scared - For Linds - be cautious not scared

I keep cleaning, doing laundry, washing/ bathing with epsoms, and spread baking soda around the bed.

If your kids don't have symptoms they might not be affected. My son isn't anymore.

Also, I put baking soda under the cushions and in the crevices of my couch.

I think for your dog, you can use Duatimacios (sp) earth on him.

Don't stop the rituals!! Your environment with slowly be rid of them.

Also, research Lyme. Have a plan for when you go to the dr. list everything you think it could be...and discuss with them.

On Nov 18, 2011 2:04 PM, "Linds J" <lj_mom11@...> wrote:

What did you do when you moved? You said you still felt the crawlies and had scalp itching. Weren't they still on you? I've not had anything come out of skin and neither have my kids. I took the advice of others and made myself a very expensive appt. to an LLMD. I just don't know what to do now.

From: Doris Kennedy <kean2465@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 12:18 PM Subject: Re: scared - For Linds - be cautious not scared

I had those same things in my ears, nose etc.(other places)and the crawlies. After I moved, it too...

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The worst aspect of this whole thing is worrying about others getting something from me and I don't even know what it is. You can't totally isolate yourself when there are children involved especially around the holidays.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:02 PMSubject: Re: scared - For Linds - be cautious not scared

Are you working Linds?

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 2011 11:48:20 AMSubject: Re: scared - For Linds - be cautious not scared

My husband says then maybe its just lyme and not bird mites. If it were just lyme my symptoms should be all the time, right? Not worsened when at home.

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 1:39 PMSubject: Re: scared - For Linds - be cautious not scared

They feed on the infection in your skin, not on your furniture. Some of the sensations are neurological- nerves misfiring due to infection. Lyme damages the myelin sheath of the nerves and causes the crawling. Bartonella makes it even worse.

Aa

On Nov 18, 2011, at 1:33 PM, Aandraya <aandraya@...> wrote:

No, I didn't throw away my furniture. Unecessary. Only move if you have mold in your place that can't be remediated. If your kids don't have Lyme they won't be bothered.

Aa

On Nov 18, 2011, at 1:22 PM, Linds J <lj_mom11@...> wrote:

Thanks Elissa. My biggest question is do we stay or do we go? I keep praying for answers but there aren't any. My pastor says God didn't do this to you and it wasn't anything you did but then suggested anxiety meds. He clearly doesn't understand either. Over the summer I couldn't sit on any furniture other than our leather recliner. I am able to now but chose not to. Does that mean our furniture is infested? Should I throw them out before spring? Since my husband has not been affected he doesn't help with anything and does not understand. I've read articles that state when someone isn't enough they will then move to another person. I don't want the other person or persons to be my kids.

From: Elissa <elissarachel@...>bird mites Sent: Friday, November 18, 2011 1:12 PMSubject: Re: scared - For Linds - be cautious not scared

I keep cleaning, doing laundry, washing/ bathing with epsoms, and spread baking soda around the bed.

If your kids don't have symptoms they might not be affected. My son isn't anymore.

Also, I put baking soda under the cushions and in the crevices of my couch.

I think for your dog, you can use Duatimacios (sp) earth on him.

Don't stop the rituals!! Your environment with slowly be rid of them.

Also, research Lyme. Have a plan for when you go to the dr. list everything you think it could be...and discuss with them.

On Nov 18, 2011 2:04 PM, "Linds J" <lj_mom11@...> wrote:

What did you do when you moved? You said you still felt the crawlies and had scalp itching. Weren't they still on you? I've not had anything come out of skin and neither have my kids. I took the advice of others and made myself a very expensive appt. to an LLMD. I just don't know what to do now.

From: Doris Kennedy <kean2465@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 12:18 PM Subject: Re: scared - For Linds - be cautious not scared

I had those same things in my ears, nose etc.(other places)and the crawlies. After I moved, it too...

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True!From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 2011 12:57:21 PMSubject: Re: scared - For Linds - be cautious not scared

The worst aspect of this whole thing is worrying about others getting something from me and I don't even know what it is. You can't totally isolate yourself when there are children involved especially around the holidays.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:02 PMSubject: Re: scared - For Linds - be cautious not scared

Are you working Linds?

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 2011 11:48:20 AMSubject: Re: scared - For Linds - be cautious not scared

My husband says then maybe its just lyme and not bird mites. If it were just lyme my symptoms should be all the time, right? Not worsened when at home.

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 1:39 PMSubject: Re: scared - For Linds - be cautious not scared

They feed on the infection in your skin, not on your furniture. Some of the sensations are neurological- nerves misfiring due to infection. Lyme damages the myelin sheath of the nerves and causes the crawling. Bartonella makes it even worse.

Aa

On Nov 18, 2011, at 1:33 PM, Aandraya <aandraya@...> wrote:

No, I didn't throw away my furniture. Unecessary. Only move if you have mold in your place that can't be remediated. If your kids don't have Lyme they won't be bothered.

Aa

On Nov 18, 2011, at 1:22 PM, Linds J <lj_mom11@...> wrote:

Thanks Elissa. My biggest question is do we stay or do we go? I keep praying for answers but there aren't any. My pastor says God didn't do this to you and it wasn't anything you did but then suggested anxiety meds. He clearly doesn't understand either. Over the summer I couldn't sit on any furniture other than our leather recliner. I am able to now but chose not to. Does that mean our furniture is infested? Should I throw them out before spring? Since my husband has not been affected he doesn't help with anything and does not understand. I've read articles that state when someone isn't enough they will then move to another person. I don't want the other person or persons to be my kids.

From: Elissa <elissarachel@...>bird mites Sent: Friday, November 18, 2011 1:12 PMSubject: Re: scared - For Linds - be cautious not scared

I keep cleaning, doing laundry, washing/ bathing with epsoms, and spread baking soda around the bed.

If your kids don't have symptoms they might not be affected. My son isn't anymore.

Also, I put baking soda under the cushions and in the crevices of my couch.

I think for your dog, you can use Duatimacios (sp) earth on him.

Don't stop the rituals!! Your environment with slowly be rid of them.

Also, research Lyme. Have a plan for when you go to the dr. list everything you think it could be...and discuss with them.

On Nov 18, 2011 2:04 PM, "Linds J" <lj_mom11@...> wrote:

What did you do when you moved? You said you still felt the crawlies and had scalp itching. Weren't they still on you? I've not had anything come out of skin and neither have my kids. I took the advice of others and made myself a very expensive appt. to an LLMD. I just don't know what to do now.

From: Doris Kennedy <kean2465@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 12:18 PM Subject: Re: scared - For Linds - be cautious not scared

I had those same things in my ears, nose etc.(other places)and the crawlies. After I moved, it too...

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I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PMSubject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmite researcher, has handled mites and no problems... I know for certain he has a healthy diet! So again the attraction is an issue. Don't ask me why so many more women get this, but it could be because 1) we are home more and 2) we are cooking for family and 3) hormones may play a part too.

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 2011 11:42:15 AMSubject: Re: scared - For Linds - be cautious not scared

No, but it makes sense being that my husband took a dead bird out of a nest about the time I started itching. After getting no where with drs, about 4 weeks later, I decided to research which is where I came to birdmites.org. I realized then that we needed to get rid of the nest he left but symptoms didn't resolve.

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 1:36 PMSubject: Re: scared - For Linds - be cautious not scared

How do you know it's birdmites on you? Did you capture them and send to a specialist? Or look under a microscope to identify?

Aa

On Nov 18, 2011, at 1:34 PM, Linds J <lj_mom11@...> wrote:

How long once you start treating? I guess my biggest problem is the anticipation of this all coming back in spring. Its eating me up even when the critters are not. Or at least I don't think they are. I really don't know if they are since I can't feel the crawlies non-stop. Even if I treat myself won't the bird mites just go to another member of my family? I would think they would find the next best thing in my house.

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 1:28 PMSubject: Re: scared - For Linds - be cautious not scared

When you start treating the skin sensations will go away. Whatever is in your environment will stop bothering you as well.

Aa

On Nov 18, 2011, at 1:27 PM, Linds J <lj_mom11@...> wrote:

Thanks, . I am driving over 500 miles to get there. I've decided even though we don't have any money we are taking the kids with us and going to have a little family fun and try to forget about our troubles while away. I wish the LLMD would have the answers but I am sure he won't. If I continue to be bitten though, how is going to the LLMD going to help?

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 1:17 PMSubject: Re: scared - For Linds - be cautious not scared

Proud of you Lind that you are taking the bull by the horns and seeing a LLMD!

From: "Elissa " <elissarachel@...>bird mites Sent: Friday, November 18, 2011 11:12:06 AMSubject: Re: scared - For Linds - be cautious not scared

I keep cleaning, doing laundry, washing/ bathing with epsoms, and spread baking soda around the bed.

If your kids don't have symptoms they might not be affected. My son isn't anymore.

Also, I put baking soda under the cushions and in the crevices of my couch.

I think for your dog, you can use Duatimacios (sp) earth on him.

Don't stop the rituals!! Your environment with slowly be rid of them.

Also, research Lyme. Have a plan for when you go to the dr. list everything you think it could be...and discuss with them.

On Nov 18, 2011 2:04 PM, "Linds J" <lj_mom11@...> wrote:

What did you do when you moved? You said you still felt the crawlies and had scalp itching. Weren't they still on you? I've not had anything come out of skin and neither have my kids. I took the advice of others and made myself a very expensive appt. to an LLMD. I just don't know what to do now.

From: Doris Kennedy <kean2465@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 12:18 PM Subject: Re: scared - For Linds - be cautious not scared

I had those same things in my ears, nose etc.(other places)and the crawlies. After I moved, it too...

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Seems like such a conspiracy.  Sad, but I've stopped talking about it except on this site and to people who understand.  I don't try to make people understand, either. It just gets me upset when they act like I'm crazy.  I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much.  This especially works when my symptoms are not that bad.  I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

  My husband, although he never got bitten, felt crawlies.  He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin!  Just about blew his mind!

I hope your LLMD appointment goes well!  It is good your family is going with you.  Maybe this will help your husband understand.  What state is your doctor in...?

On Nov 19, 2011 10:56 AM, " Linds J " <lj_mom11@...> wrote:

 

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and " other places " . I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: " Goldstein@... " <Goldstein@...>

bird mites Sent: Friday, November 18, 2011 2:01 PMSubject: Re: scared - For Linds - be cautious not scared

 

Your husband most likely does not have systemic fungal issues going on.  Even Krys, who is a birdmi...

From: " Linds J " <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own

but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM

Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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Yes, Krys is a researcher. It is not well known among professionals that birdmites infest human beings, but it is becoming more common. I remember that article you are talking about. I think that woman was isolated at the hospital too. On some level the doctors must know the problem. Even when I went to see my doctor the first few times she would not touch me and stood 5 feet away from me, dermatologist too.From: "Linds J" <lj_mom11@...>bird mites Sent: Saturday, November 19, 2011 7:22:38 AMSubject: Re: scared - For Linds - be cautious not scared

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PMSubject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmite researcher, has handled mites and no problems... I know for certain he has a healthy diet! So again the attraction is an issue. Don't ask me why so many more women get this, but it could be because 1) we are home more and 2) we are cooking for family and 3) hormones may play a part too.

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 2011 11:42:15 AMSubject: Re: scared - For Linds - be cautious not scared

No, but it makes sense being that my husband took a dead bird out of a nest about the time I started itching. After getting no where with drs, about 4 weeks later, I decided to research which is where I came to birdmites.org. I realized then that we needed to get rid of the nest he left but symptoms didn't resolve.

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 1:36 PMSubject: Re: scared - For Linds - be cautious not scared

How do you know it's birdmites on you? Did you capture them and send to a specialist? Or look under a microscope to identify?

Aa

On Nov 18, 2011, at 1:34 PM, Linds J <lj_mom11@...> wrote:

How long once you start treating? I guess my biggest problem is the anticipation of this all coming back in spring. Its eating me up even when the critters are not. Or at least I don't think they are. I really don't know if they are since I can't feel the crawlies non-stop. Even if I treat myself won't the bird mites just go to another member of my family? I would think they would find the next best thing in my house.

From: Aandraya <aandraya@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 1:28 PMSubject: Re: scared - For Linds - be cautious not scared

When you start treating the skin sensations will go away. Whatever is in your environment will stop bothering you as well.

Aa

On Nov 18, 2011, at 1:27 PM, Linds J <lj_mom11@...> wrote:

Thanks, . I am driving over 500 miles to get there. I've decided even though we don't have any money we are taking the kids with us and going to have a little family fun and try to forget about our troubles while away. I wish the LLMD would have the answers but I am sure he won't. If I continue to be bitten though, how is going to the LLMD going to help?

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 1:17 PMSubject: Re: scared - For Linds - be cautious not scared

Proud of you Lind that you are taking the bull by the horns and seeing a LLMD!

From: "Elissa " <elissarachel@...>bird mites Sent: Friday, November 18, 2011 11:12:06 AMSubject: Re: scared - For Linds - be cautious not scared

I keep cleaning, doing laundry, washing/ bathing with epsoms, and spread baking soda around the bed.

If your kids don't have symptoms they might not be affected. My son isn't anymore.

Also, I put baking soda under the cushions and in the crevices of my couch.

I think for your dog, you can use Duatimacios (sp) earth on him.

Don't stop the rituals!! Your environment with slowly be rid of them.

Also, research Lyme. Have a plan for when you go to the dr. list everything you think it could be...and discuss with them.

On Nov 18, 2011 2:04 PM, "Linds J" <lj_mom11@...> wrote:

What did you do when you moved? You said you still felt the crawlies and had scalp itching. Weren't they still on you? I've not had anything come out of skin and neither have my kids. I took the advice of others and made myself a very expensive appt. to an LLMD. I just don't know what to do now.

From: Doris Kennedy <kean2465@...>"bird mites " <bird mites > Sent: Friday, November 18, 2011 12:18 PM Subject: Re: scared - For Linds - be cautious not scared

I had those same things in my ears, nose etc.(other places)and the crawlies. After I moved, it too...

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I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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Now that I'm past that nightmare I do tell everyone! I want people and doctors to know about this stuff, I always tell Lyme doctors too so they know when their patients have these infestations. I was lucky both my Lyme doctors were familiar with the horrible crawling sensations and the skin debris, bugs, etc. I still continue to educate them when I hear what is happening to people in this group. I haven't returned YET to inform the ER doctor who admitted me to the psych ward but I will!!AandrayaOn Nov 19, 2011, at 8:07 PM, Aggi Assmann <aggi_assmann@...> wrote:

I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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Aggi-Did you ever get the lint ball cocoon things on clothing, sheets, furniture, ect. I showed those to my mom and she saw what was going on!Aandraya On Nov 19, 2011, at 8:07 PM, Aggi Assmann <aggi_assmann@...> wrote:

I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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That is simply a great thing to do !!

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:13 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Now that I'm past that nightmare I do tell everyone! I want people and doctors to know about this stuff, I always tell Lyme doctors too so they know when their patients have these infestations. I was lucky both my Lyme doctors were familiar with the horrible crawling sensations and the skin debris, bugs, etc. I still continue to educate them when I hear what is happening to people in this group. I haven't returned YET to inform the ER doctor who admitted me to the psych ward but I will!!

Aandraya

On Nov 19, 2011, at 8:07 PM, Aggi Assmann <aggi_assmann@...> wrote:

I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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Negative Aandrraya, I never had the lint balls, just got eaten up by the bugs.

Seriously, your mom did know... how could she ? You mean she connected the lint balls to collembola straight away??

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:15 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Did you ever get the lint ball cocoon things on clothing, sheets, furniture, ect. I showed those to my mom and she saw what was going on!

Aandraya

On Nov 19, 2011, at 8:07 PM, Aggi Assmann <aggi_assmann@...> wrote:

I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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Aggi-Well, they appeared mysteriously overnight when I slept with light blue sheets and a white cotton blanket over them, white lint balls were covering the blue sheets in the morning. And it took multiple washes to get them off the sheets. They stick like glue. I have samples of all the stuff I found on and around me in little baggies inside a metal box. I found the birdmite group after the fact and I've read some of the stories to my parents so they see it wasn't just me. Aandraya On Nov 19, 2011, at 8:22 PM, Aggi Assmann <aggi_assmann@...> wrote:

Negative Aandrraya, I never had the lint balls, just got eaten up by the bugs.

Seriously, your mom did know... how could she ? You mean she connected the lint balls to collembola straight away??

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:15 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Did you ever get the lint ball cocoon things on clothing, sheets, furniture, ect. I showed those to my mom and she saw what was going on!

Aandraya

On Nov 19, 2011, at 8:07 PM, Aggi Assmann <aggi_assmann@...> wrote:

I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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That is so spooky... is it really springtails cocooning in the fibers? I am almost certain that and did have them as well.

At least you got support of your parents/ That is one good thing. How did/does your partner cope with the whole subject. At one point I thought I had lost my relationship my job and my home. It turned out I did not :-)

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:45 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Well, they appeared mysteriously overnight when I slept with light blue sheets and a white cotton blanket over them, white lint balls were covering the blue sheets in the morning. And it took multiple washes to get them off the sheets. They stick like glue. I have samples of all the stuff I found on and around me in little baggies inside a metal box. I found the birdmite group after the fact and I've read some of the stories to my parents so they see it wasn't just me.

Aandraya

On Nov 19, 2011, at 8:22 PM, Aggi Assmann <aggi_assmann@...> wrote:

Negative Aandrraya, I never had the lint balls, just got eaten up by the bugs.

Seriously, your mom did know... how could she ? You mean she connected the lint balls to collembola straight away??

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:15 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Did you ever get the lint ball cocoon things on clothing, sheets, furniture, ect. I showed those to my mom and she saw what was going on!

Aandraya

On Nov 19, 2011, at 8:07 PM, Aggi Assmann <aggi_assmann@...> wrote:

I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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I too have read some of these experiences to my husband.  it did make him understand better...

I did feel very alone until this group!

On Nov 19, 2011 10:00 PM, " Aggi Assmann " <aggi_assmann@...> wrote:

 

That is so spooky... is it really springtails cocooning in the fibers? I am almost certain that and did have them as well.

At least you got support of your parents/ That is one good thing. How did/does your partner cope with the whole subject. At one point I thought I had lost my relationship my job and my home. It turned out I did not :-)

Von: Aandraya <aandraya@...>An: " bird mites " <bird mites >

Gesendet: 3:45 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

 Aggi-Well, they appeared mysteriously overnight when I slept with light blue sheets and a white ...

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Me too, Elissa ! I lost 8 precious months of time in the beginning of the infestation, not knowing what i was dealing with.

So good that your husband understands, it is so important !

Von: Elissa <elissarachel@...>An: bird mites Gesendet: 4:06 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

I too have read some of these experiences to my husband. it did make him understand better...

I did feel very alone until this group!

On Nov 19, 2011 10:00 PM, "Aggi Assmann" <aggi_assmann@...> wrote:

That is so spooky... is it really springtails cocooning in the fibers? I am almost certain that and did have them as well.

At least you got support of your parents/ That is one good thing. How did/does your partner cope with the whole subject. At one point I thought I had lost my relationship my job and my home. It turned out I did not :-)

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:45 Sonntag, 20.November 2011

Betreff: Re: scared - For Linds - be cautious not scared

Aggi-Well, they appeared mysteriously overnight when I slept with light blue sheets and a white ...

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Posted

Aggi-To this day I do not know what was making those lintballs! Do mites make them? My boyfriend of two years is a truckdriver and was not around for a lot of the nightmare- which was a very good thing. He was very patient about all my neurosis though. Maybe because he had a life changing traumatic event- he was a police officer and shot in the knee which left him with permanent damage, disabled and chronic pain syndrome- people don't believe he has pain... I don't think anyone else would have stuck around through that hell. Aandraya On Nov 19, 2011, at 9:00 PM, Aggi Assmann <aggi_assmann@...> wrote:

That is so spooky... is it really springtails cocooning in the fibers? I am almost certain that and did have them as well.

At least you got support of your parents/ That is one good thing. How did/does your partner cope with the whole subject. At one point I thought I had lost my relationship my job and my home. It turned out I did not :-)

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:45 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Well, they appeared mysteriously overnight when I slept with light blue sheets and a white cotton blanket over them, white lint balls were covering the blue sheets in the morning. And it took multiple washes to get them off the sheets. They stick like glue. I have samples of all the stuff I found on and around me in little baggies inside a metal box. I found the birdmite group after the fact and I've read some of the stories to my parents so they see it wasn't just me.

Aandraya

On Nov 19, 2011, at 8:22 PM, Aggi Assmann <aggi_assmann@...> wrote:

Negative Aandrraya, I never had the lint balls, just got eaten up by the bugs.

Seriously, your mom did know... how could she ? You mean she connected the lint balls to collembola straight away??

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:15 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Did you ever get the lint ball cocoon things on clothing, sheets, furniture, ect. I showed those to my mom and she saw what was going on!

Aandraya

On Nov 19, 2011, at 8:07 PM, Aggi Assmann <aggi_assmann@...> wrote:

I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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I feel lucky that he is supportive but we had our arguments for sure!!! 

Our relationship was seriously stressed for a while. 

This group really helped me not vent to him all of the time and ultimately, he saw what a serious problem this is all around the U.S. and world. 

I definitely feel that finding this group saved me and my marriage...this is an internal issue...clean the envirinment but dealing with the infections etc...is so important.

Aggi, was your bf shocked at first when he realized so many others are affected?

On Nov 19, 2011 10:12 PM, " Aggi Assmann " <aggi_assmann@...> wrote:

 

Me too, Elissa ! I lost 8 precious months of time in the beginning of the infestation, not knowing what i was dealing with.

So good that your husband understands, it is so important !

Von: Elissa <elissarachel@...>

An: bird mites Gesendet: 4:06 Sonntag, 20.November 2011

Betreff: Re: scared - For Linds - be cautious not scared I too have read some of these experiences to my husband.  it did make him understand better...

I ...

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Gosh Aandraya, you two have been through a lot and that probably really helps the relationship. I was also lucky in the fact that my boyfriend was working away during the week. It was strange, because on one hand I was sort of glad when he left on a Monday morning, on the other hand I was terryfied being left alone with the mites.

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 4:16 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

To this day I do not know what was making those lintballs! Do mites make them? My boyfriend of two years is a truckdriver and was not around for a lot of the nightmare- which was a very good thing. He was very patient about all my neurosis though. Maybe because he had a life changing traumatic event- he was a police officer and shot in the knee which left him with permanent damage, disabled and chronic pain syndrome- people don't believe he has pain... I don't think anyone else would have stuck around through that hell.

Aandraya

On Nov 19, 2011, at 9:00 PM, Aggi Assmann <aggi_assmann@...> wrote:

That is so spooky... is it really springtails cocooning in the fibers? I am almost certain that and did have them as well.

At least you got support of your parents/ That is one good thing. How did/does your partner cope with the whole subject. At one point I thought I had lost my relationship my job and my home. It turned out I did not :-)

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:45 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Well, they appeared mysteriously overnight when I slept with light blue sheets and a white cotton blanket over them, white lint balls were covering the blue sheets in the morning. And it took multiple washes to get them off the sheets. They stick like glue. I have samples of all the stuff I found on and around me in little baggies inside a metal box. I found the birdmite group after the fact and I've read some of the stories to my parents so they see it wasn't just me.

Aandraya

On Nov 19, 2011, at 8:22 PM, Aggi Assmann <aggi_assmann@...> wrote:

Negative Aandrraya, I never had the lint balls, just got eaten up by the bugs.

Seriously, your mom did know... how could she ? You mean she connected the lint balls to collembola straight away??

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:15 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Did you ever get the lint ball cocoon things on clothing, sheets, furniture, ect. I showed those to my mom and she saw what was going on!

Aandraya

On Nov 19, 2011, at 8:07 PM, Aggi Assmann <aggi_assmann@...> wrote:

I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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He wasn't really interested in my condition. I think the first time he was shocked was when the mites did have a Go at him. That was coming home after our 10 days trip to the UK. He did not say much, but I could tell from the expression on his face that he was really concerned. Well, it's been a one time incident only and he seemed to believe me more afterwards.

Von: Elissa <elissarachel@...>An: bird mites Gesendet: 4:21 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

I feel lucky that he is supportive but we had our arguments for sure!!!

Our relationship was seriously stressed for a while.

This group really helped me not vent to him all of the time and ultimately, he saw what a serious problem this is all around the U.S. and world.

I definitely feel that finding this group saved me and my marriage...this is an internal issue...clean the envirinment but dealing with the infections etc...is so important.

Aggi, was your bf shocked at first when he realized so many others are affected?

On Nov 19, 2011 10:12 PM, "Aggi Assmann" <aggi_assmann@...> wrote:

Me too, Elissa ! I lost 8 precious months of time in the beginning of the infestation, not knowing what i was dealing with.

So good that your husband understands, it is so important !

Von: Elissa <elissarachel@...>An: bird mites Gesendet: 4:06 Sonntag, 20.November 2011

Betreff: Re: scared - For Linds - be cautious not scared

I too have read some of these experiences to my husband. it did make him understand better...I ...

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About the lint balls, I really haven't got a clue. I know I had birdmites, but no lint balls. A friend of mine she had rhodent mites and no lint balls either.

Von: Aggi Assmann <aggi_assmann@...>An: "bird mites " <bird mites > Gesendet: 4:30 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Gosh Aandraya, you two have been through a lot and that probably really helps the relationship. I was also lucky in the fact that my boyfriend was working away during the week. It was strange, because on one hand I was sort of glad when he left on a Monday morning, on the other hand I was terryfied being left alone with the mites.

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 4:16 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

To this day I do not know what was making those lintballs! Do mites make them? My boyfriend of two years is a truckdriver and was not around for a lot of the nightmare- which was a very good thing. He was very patient about all my neurosis though. Maybe because he had a life changing traumatic event- he was a police officer and shot in the knee which left him with permanent damage, disabled and chronic pain syndrome- people don't believe he has pain... I don't think anyone else would have stuck around through that hell.

Aandraya

On Nov 19, 2011, at 9:00 PM, Aggi Assmann <aggi_assmann@...> wrote:

That is so spooky... is it really springtails cocooning in the fibers? I am almost certain that and did have them as well.

At least you got support of your parents/ That is one good thing. How did/does your partner cope with the whole subject. At one point I thought I had lost my relationship my job and my home. It turned out I did not :-)

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:45 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Well, they appeared mysteriously overnight when I slept with light blue sheets and a white cotton blanket over them, white lint balls were covering the blue sheets in the morning. And it took multiple washes to get them off the sheets. They stick like glue. I have samples of all the stuff I found on and around me in little baggies inside a metal box. I found the birdmite group after the fact and I've read some of the stories to my parents so they see it wasn't just me.

Aandraya

On Nov 19, 2011, at 8:22 PM, Aggi Assmann <aggi_assmann@...> wrote:

Negative Aandrraya, I never had the lint balls, just got eaten up by the bugs.

Seriously, your mom did know... how could she ? You mean she connected the lint balls to collembola straight away??

Von: Aandraya <aandraya@...>An: "bird mites " <bird mites > Gesendet: 3:15 Sonntag, 20.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Aggi-

Did you ever get the lint ball cocoon things on clothing, sheets, furniture, ect. I showed those to my mom and she saw what was going on!

Aandraya

On Nov 19, 2011, at 8:07 PM, Aggi Assmann <aggi_assmann@...> wrote:

I did not get any support of my partner either. We had countless arguments over the subject. He just could not understand what I was going through...how can anyone who is not afflicted with this... in the end I stopped talking about it and just spoke to the guys on the forum. Infact, they were my life saviours :-)

Von: Linds J <lj_m

om11@...>An: "bird mites " <bird mites > Gesendet: 17:41 Samstag, 19.November 2011Betreff: Re: scared - For Linds - be cautious not scared

Elissa- I think it really helps that you have the support of your husband. As you know, I do not. I feel lost and alone. Although, it does help with the support from all of you whom I don't even know. I can't help but think about it. My nieces and nephews want to come to my house and want me to take them places as I have always done and I have to tell them no. My son wants to have sleep overs and I have to tell him no. It just breaks my heart that my kids can't have a normal life and its all left up to me to try to fix it. Most of the success stories on here are of just one individual who succeeded. I'm not sure of a whole family winning the battle. I believe you have your LLMD appt. around the same time as me. Mine is on Dec. 1st. I will be at the appt. on my own but at least he agreed to travel with me. He can't sit in with me with kids. It wouldn't work. Good luck with your appt. and I'll be interested as to what

you come up with.

From: Elissa <elissarachel@...>bird mites Sent: Saturday, November 19, 2011 10:12 AMSubject: Re: scared - For Linds - be cautious not scared

Seems like such a conspiracy. Sad, but I've stopped talking about it except on this site and to people who understand. I don't try to make people understand, either. It just gets me upset when they act like I'm crazy. I know I'm not... They either get it or don't...who's to blame them...this is the stuff they make nightmares out of...

Personally, I try not to think about things too much. This especially works when my symptoms are not that bad. I just keep up my rituals and know I'm doing the best I can...and that my appointment is right around the corner.

My husband, although he never got bitten, felt crawlies. He's a scientist so I didn't think he'd be as supportive, but it helps that I match with the great majority of lyme symptoms (which helps give him a rationale for this infestation on me) & also he witnessed the black stick-like things crawl out of and back in my skin! Just about blew his mind!

I hope your LLMD appointment goes well! It is good your family is going with you. Maybe this will help your husband understand. What state is your doctor in...?

On Nov 19, 2011 10:56 AM, "Linds J" <lj_mom11@...> wrote:

I didn't know Krys was a birdmite researcher. Does he study how they affect humans? I found an article on a woman quarantined in New York because she was covered in birdmites. An entomologist at the State of Washington was mentioned in the article. He said humans can play hosts to birdmites. The woman stated she had them going in her eyes, nose, mouth and "other places". I picked up the phone and called that entomolgist and he acted like he didn't know what I was talking about. I scanned the article and emailed it to him. He said it was rare and not likely as if he never said any of it.

From: "Goldstein@..." <Goldstein@...>bird mites Sent: Friday, November 18, 2011 2:01 PM Subject: Re: scared - For Linds - be cautious not scared

Your husband most likely does not have systemic fungal issues going on. Even Krys, who is a birdmi...

From: "Linds J" <lj_mom11@...>bird mites Sent: Friday, November 18, 20...

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