Update from Zoe z3: No more mites

[Guest guest]

Hi All,

I as positive now that we got an infection from mite bites which caused mites

every where to be attracted to us: crawling mites and biting mites too.

Is that what MORGELLONS is???

After our 2 1/2 year mite-mare we are now well again and have our lives back.

I still am still EXTREMELY traumatized by the experience. I would like to go

see a therapist for PTS, but I fear the therapist would just assume I had

'delusions of parasitosis' since not many people know of this disease which is

transmitted by certain biting mites which carry the pathogen.

In fact, I think that I may be one of the only people to know of this

disease... along with a few others on this website who have had a similar

experience. Fortunately most people who are infested by bird mites just

eradicate the mites from their environment and never get any pathogen from the

mites at all and therefore don't become a host for biting mites everywhere.

We will never know if it was just the passage of time that allowed us a fight

whatever disease was attracting mites everywhere to us or if it was the 3 months

of doxycycline 3 times per day , alternated with 3 months of Bactrm DS 2 times

per day.

We no longer avoid places and things and are using the stuff from our garage

again... just cleaning it as well as we can.

However, I went to a movie last week at a theatre that used to cause me to itch

and squirm in my seat as I tried to focus on the movie. I felt a tiny bit of

crawling sensation during the movie, but got NO bites and and the crawling

stopped completely when I left the theatre. That is the only place I have had

any symptoms at all out of the 100's of places that did cause crawling and bites

when I was infected.

There are certain places in the hospital that I work that I've not been in for

the past 6 months, which used to cause me irritation and bites. So I don't know

about how those places would affect me now. And I have not been in a Prius car

in about 6 months as we sold it... which was the other place I got bit the most.

The other cars are fine, our home is fine, our clothes are fine, my office at

work is fine, museums are fine. I am so relieved and I'm trying to get my life

back and move on.

It is difficult for me to get over the feeling of trauma from living with FEAR

for so long. Perhaps on some level I'm still in fear that the symptoms and

bites will return again.

I know I could not handle it if the biting returned. It is a thought too

overwhelming to contemplate,

MY ADVICE: Get on antibiotics early on, in large doses and stay on them until

you are positive the biting and symptoms will not return when you go off of

them.

I know that the symptoms stopped for Rita and Tom after ~2 1/2 years so maybe

the disease only lasts a certain amount of time as your body fights it. They

did not take antibiotics at all. So who knows...

In the final stages of our fight against the disease, topical benzyl peroxide

cream helped kill any lingering organisms in or on our skin. SO I suggest using

it liberally on any irritated shin as needed.

We also use white vinegar alternated with hydrogen peroxide to kill off the most

difficult organisms from lesions that seemed to be impossible to get rid of any

other way.

Good luck and BEST WISHES to all!