Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 Hi Krys!THanks for your mail. How is your mother doing? I heard your daughter visited her. Must have been a great time for your mum:)Unfortunately they did only do skinscrapings on the 8 year old and they did no tests on the 2 year old- just told us what it was...by looking at it. Didn´t seem very good, and that was still on our large hospitals skin clinic. I have given up on doctors- seems like they are the most incompetent group of people at their work I have ever seen....Take care!CeciliaFrom: Krys Brennand <krys109uk@...>bird mites Sent: Friday, October 28, 2011 4:23 AMSubject: Re: Update from Zoe z3: No more mites Cecilia, I am so sorry to hear daughters are still troubled with lesions. How did the doctors make their diagnoses? Was it from skin samples?My best wishes to you all,Krys On 23 October 2011 14:54, Cecilia Borg <ceciliaborg@...> wrote: Hi, Zoe!It is so great that you finally has gotten rid of all the bites and crawlings! I am happy for you and just hope it continues. I can really understand your fear. We got rid of the bites and crawlings when we moved and threw everything away. BUt my daughters have som lesions (first my 8 year old) than it was allmost gone and now my 2 year old has lesions, but they look a bit different. The 8 year old was told to have a staph infection and they say the small one has either folliculitis or eczema. So I hope they are right and that we are past the mite-mare still. Just hard to handle everything that are blisters and lesions- all the thoughts go to the bites and all that....Take care Zoe!Cecilia From: Zoe <zoe_z3@...> bird mites Sent: Friday, October 21, 2011 8:15 PM Subject: Update from Zoe z3: No more mites Hi All, I as positive now that we got an infection from mite bites which caused mites every where to be attracted to us: crawling mites and biting mites too. Is that what MORGELLONS is??? After our 2 1/2 year mite-mare we are now well again and have our lives back. I still am still EXTREMELY traumatized by the experience. I would like to go see a therapist for PTS, but I fear the therapist would just assume I had 'delusions of parasitosis' since not many people know of this disease which is transmitted by certain biting mites which carry the pathogen. In fact, I think that I may be one of the only people to know of this disease... along with a few others on this website who have had a similar experience. Fortunately most people who are infested by bird mites just eradicate the mites from their environment and never get any pathogen from the mites at all and therefore don't become a host for biting mites everywhere. We will never know if it was just the passage of time that allowed us a fight whatever disease was attracting mites everywhere to us or if it was the 3 months of doxycycline 3 times per day , alternated with 3 months of Bactrm DS 2 times per day. We no longer avoid places and things and are using the stuff from our garage again... just cleaning it as well as we can. However, I went to a movie last week at a theatre that used to cause me to itch and squirm in my seat as I tried to focus on the movie. I felt a tiny bit of crawling sensation during the movie, but got NO bites and and the crawling stopped completely when I left the theatre. That is the only place I have had any symptoms at all out of the 100's of places that did cause crawling and bites when I was infected. There are certain places in the hospital that I work that I've not been in for the past 6 months, which used to cause me irritation and bites. So I don't know about how those places would affect me now. And I have not been in a Prius car in about 6 months as we sold it... which was the other place I got bit the most. The other cars are fine, our home is fine, our clothes are fine, my office at work is fine, museums are fine. I am so relieved and I'm trying to get my life back and move on. It is difficult for me to get over the feeling of trauma from living with FEAR for so long. Perhaps on some level I'm still in fear that the symptoms and bites will return again. I know I could not handle it if the biting returned. It is a thought too overwhelming to contemplate, MY ADVICE: Get on antibiotics early on, in large doses and stay on them until you are positive the biting and symptoms will not return when you go off of them. I know that the symptoms stopped for Rita and Tom after ~2 1/2 years so maybe the disease only lasts a certain amount of time as your body fights it. They did not take antibiotics at all. So who knows... In the final stages of our fight against the disease, topical benzyl peroxide cream helped kill any lingering organisms in or on our skin. SO I suggest using it liberally on any irritated shin as needed. We also use white vinegar alternated with hydrogen peroxide to kill off the most difficult organisms from lesions that seemed to be impossible to get rid of any other way. Good luck and BEST WISHES to all! -- I keep six honest serving-men (They taught me all I knew); Their names are What and Why and When And How and Where and Who. Rudyard Kipling Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 Hi Cecelia This bug brings diffrent ailments that mimick some other diseases . Doctors are knowledgable in thousand of diseases, this bug brings things that most all Doctors have never seen. There are Drs that have seen it. Was it Aggi or linda that listed a few on the Doctors that knew somewhat of this problem . That would be the place to go, or at least contact them to posssibly refer you to another Dr. closer to you that might be knowledgable . I pray they do. In the meantime what about sulfur for the kid , 1 teasp per 10-12 tesp of hand creme + 1 teap of coconut oil to mix the sulfur into & shake it up in a small opaqe bottle for 10 seconds , then add hancreme & shake for 30 seconds . Apply top of head to toes for 1 week, then rest & use none for 1 week. If it frie the skin a little do it 3 days on & 3 days off. Some eat 1/16 teaspoon in self filled capsules . Flowers of Sulfur sublimed made by Humco is $ 12.00 sold at www.americarx.com. Sulfur is a base medicice for many prescriptions , garlic is natural sulfur also namy eat high doses of garlic & get results , every little bit helps. In the environment 1 cup epsom salts & 3 cups water left to dry effects a huge cleaning of the sufaces & leaves them sterile. It rinses right of later with hot water. Do they have epsom where you are ? Are you in the US ? . Regular salt is also powerful used in the same proportions or even 1 cup hot water & 1 cup salt . God bless you Cecelia, Bill On Fri Oct 28th, 2011 5:50 AM EDT Cecilia Borg wrote:>Hi Krys!>THanks for your mail. How is your mother doing? I heard your daughter visited her. Must have been a great time for your mum:)>Unfortunately they did only do skinscrapings on the 8 year old and they did no tests on the 2 year old- just told us what it was...by looking at it. Didn´t seem very good, and that was still on our large hospitals skin clinic. I have given up on doctors- seems like they are the most incompetent group of people at their work I have ever seen....>Take care!>Cecilia>>>________________________________>From: Krys Brennand <krys109uk@...>>bird mites >Sent: Friday, October 28, 2011 4:23 AM>Subject: Re: Update from Zoe z3: No more mites>>> >Cecilia, I am so sorry to hear daughters are still troubled with lesions. How did the doctors make their diagnoses? Was it from skin samples?>>My best wishes to you all,>Krys>>On 23 October 2011 14:54, Cecilia Borg <ceciliaborg@...> wrote:>> >>Hi, Zoe!>>It is so great that you finally has gotten rid of all the bites and crawlings!>>I am happy for you and just hope it continues. I can really understand your fear. We got rid of the bites and crawlings when we moved and threw everything away. BUt my daughters have som lesions (first my 8 year old) than it was allmost gone and now my 2 year old has lesions, but they look a bit different. The 8 year old was told to have a staph infection and they say the small one has either folliculitis or eczema. So I hope they are right and that we are past the mite-mare still.>>Just hard to handle everything that are blisters and lesions- all the thoughts go to the bites and all that....>>Take care Zoe!>>Cecilia>>>>>>>>________________________________>>>>From: Zoe <zoe_z3@...>>>bird mites >>Sent: Friday, October 21, 2011 8:15 PM>>>>Subject: Update from Zoe z3: No more mites>>>>>> >>Hi All,>>>>I as positive now that we got an infection from mite bites which caused mites every where to be attracted to us: crawling mites and biting mites too.>>>>Is that what MORGELLONS is???>>>>After our 2 1/2 year mite-mare we are now well again and have our lives back. I still am still EXTREMELY traumatized by the experience. I would like to go see a therapist for PTS, but I fear the therapist would just assume I had 'delusions of parasitosis' since not many people know of this disease which is transmitted by certain biting mites which carry the pathogen. >>>>In fact, I think that I may be one of the only people to know of this disease... along with a few others on this website who have had a similar experience. Fortunately most people who are infested by bird mites just eradicate the mites from their environment and never get any pathogen from the mites at all and therefore don't become a host for biting mites everywhere.>>>>We will never know if it was just the passage of time that allowed us a fight whatever disease was attracting mites everywhere to us or if it was the 3 months of doxycycline 3 times per day , alternated with 3 months of Bactrm DS 2 times per day.>>>>We no longer avoid places and things and are using the stuff from our garage again... just cleaning it as well as we can.>>>>However, I went to a movie last week at a theatre that used to cause me to itch and squirm in my seat as I tried to focus on the movie. I felt a tiny bit of crawling sensation during the movie, but got NO bites and and the crawling stopped completely when I left the theatre. That is the only place I have had any symptoms at all out of the 100's of places that did cause crawling and bites when I was infected.>>>>There are certain places in the hospital that I work that I've not been in for the past 6 months, which used to cause me irritation and bites. So I don't know about how those places would affect me now. And I have not been in a Prius car in about 6 months as we sold it... which was the other place I got bit the most. >>>>The other cars are fine, our home is fine, our clothes are fine, my office at work is fine, museums are fine. I am so relieved and I'm trying to get my life back and move on.>>>>It is difficult for me to get over the feeling of trauma from living with FEAR for so long. Perhaps on some level I'm still in fear that the symptoms and bites will return again.>>>>I know I could not handle it if the biting returned. It is a thought too overwhelming to contemplate,>>>>MY ADVICE: Get on antibiotics early on, in large doses and stay on them until you are positive the biting and symptoms will not return when you go off of them. >>>>I know that the symptoms stopped for Rita and Tom after ~2 1/2 years so maybe the disease only lasts a certain amount of time as your body fights it. They did not take antibiotics at all. So who knows...>>>>In the final stages of our fight against the disease, topical benzyl peroxide cream helped kill any lingering organisms in or on our skin. SO I suggest using it liberally on any irritated shin as needed.>>>>We also use white vinegar alternated with hydrogen peroxide to kill off the most difficult organisms from lesions that seemed to be impossible to get rid of any other way.>>>>Good luck and BEST WISHES to all!>>>>>>>>>>>-- >>I keep six honest serving-men> (They taught me all I knew);>Their names are What and Why and When> And How and Where and Who.>>Rudyard Kipling>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 Hi Cecelia This bug brings diffrent ailments that mimick some other diseases . Doctors are knowledgable in thousand of diseases, this bug brings things that most all Doctors have never seen. There are Drs that have seen it. Was it Aggi or linda that listed a few on the Doctors that knew somewhat of this problem . That would be the place to go, or at least contact them to posssibly refer you to another Dr. closer to you that might be knowledgable . I pray they do. In the meantime what about sulfur for the kid , 1 teasp per 10-12 tesp of hand creme + 1 teap of coconut oil to mix the sulfur into & shake it up in a small opaqe bottle for 10 seconds , then add hancreme & shake for 30 seconds . Apply top of head to toes for 1 week, then rest & use none for 1 week. If it frie the skin a little do it 3 days on & 3 days off. Some eat 1/16 teaspoon in self filled capsules . Flowers of Sulfur sublimed made by Humco is $ 12.00 sold at www.americarx.com. Sulfur is a base medicice for many prescriptions , garlic is natural sulfur also namy eat high doses of garlic & get results , every little bit helps. In the environment 1 cup epsom salts & 3 cups water left to dry effects a huge cleaning of the sufaces & leaves them sterile. It rinses right of later with hot water. Do they have epsom where you are ? Are you in the US ? . Regular salt is also powerful used in the same proportions or even 1 cup hot water & 1 cup salt . God bless you Cecelia, Bill On Fri Oct 28th, 2011 5:50 AM EDT Cecilia Borg wrote:>Hi Krys!>THanks for your mail. How is your mother doing? I heard your daughter visited her. Must have been a great time for your mum:)>Unfortunately they did only do skinscrapings on the 8 year old and they did no tests on the 2 year old- just told us what it was...by looking at it. Didn´t seem very good, and that was still on our large hospitals skin clinic. I have given up on doctors- seems like they are the most incompetent group of people at their work I have ever seen....>Take care!>Cecilia>>>________________________________>From: Krys Brennand <krys109uk@...>>bird mites >Sent: Friday, October 28, 2011 4:23 AM>Subject: Re: Update from Zoe z3: No more mites>>> >Cecilia, I am so sorry to hear daughters are still troubled with lesions. How did the doctors make their diagnoses? Was it from skin samples?>>My best wishes to you all,>Krys>>On 23 October 2011 14:54, Cecilia Borg <ceciliaborg@...> wrote:>> >>Hi, Zoe!>>It is so great that you finally has gotten rid of all the bites and crawlings!>>I am happy for you and just hope it continues. I can really understand your fear. We got rid of the bites and crawlings when we moved and threw everything away. BUt my daughters have som lesions (first my 8 year old) than it was allmost gone and now my 2 year old has lesions, but they look a bit different. The 8 year old was told to have a staph infection and they say the small one has either folliculitis or eczema. So I hope they are right and that we are past the mite-mare still.>>Just hard to handle everything that are blisters and lesions- all the thoughts go to the bites and all that....>>Take care Zoe!>>Cecilia>>>>>>>>________________________________>>>>From: Zoe <zoe_z3@...>>>bird mites >>Sent: Friday, October 21, 2011 8:15 PM>>>>Subject: Update from Zoe z3: No more mites>>>>>> >>Hi All,>>>>I as positive now that we got an infection from mite bites which caused mites every where to be attracted to us: crawling mites and biting mites too.>>>>Is that what MORGELLONS is???>>>>After our 2 1/2 year mite-mare we are now well again and have our lives back. I still am still EXTREMELY traumatized by the experience. I would like to go see a therapist for PTS, but I fear the therapist would just assume I had 'delusions of parasitosis' since not many people know of this disease which is transmitted by certain biting mites which carry the pathogen. >>>>In fact, I think that I may be one of the only people to know of this disease... along with a few others on this website who have had a similar experience. Fortunately most people who are infested by bird mites just eradicate the mites from their environment and never get any pathogen from the mites at all and therefore don't become a host for biting mites everywhere.>>>>We will never know if it was just the passage of time that allowed us a fight whatever disease was attracting mites everywhere to us or if it was the 3 months of doxycycline 3 times per day , alternated with 3 months of Bactrm DS 2 times per day.>>>>We no longer avoid places and things and are using the stuff from our garage again... just cleaning it as well as we can.>>>>However, I went to a movie last week at a theatre that used to cause me to itch and squirm in my seat as I tried to focus on the movie. I felt a tiny bit of crawling sensation during the movie, but got NO bites and and the crawling stopped completely when I left the theatre. That is the only place I have had any symptoms at all out of the 100's of places that did cause crawling and bites when I was infected.>>>>There are certain places in the hospital that I work that I've not been in for the past 6 months, which used to cause me irritation and bites. So I don't know about how those places would affect me now. And I have not been in a Prius car in about 6 months as we sold it... which was the other place I got bit the most. >>>>The other cars are fine, our home is fine, our clothes are fine, my office at work is fine, museums are fine. I am so relieved and I'm trying to get my life back and move on.>>>>It is difficult for me to get over the feeling of trauma from living with FEAR for so long. Perhaps on some level I'm still in fear that the symptoms and bites will return again.>>>>I know I could not handle it if the biting returned. It is a thought too overwhelming to contemplate,>>>>MY ADVICE: Get on antibiotics early on, in large doses and stay on them until you are positive the biting and symptoms will not return when you go off of them. >>>>I know that the symptoms stopped for Rita and Tom after ~2 1/2 years so maybe the disease only lasts a certain amount of time as your body fights it. They did not take antibiotics at all. So who knows...>>>>In the final stages of our fight against the disease, topical benzyl peroxide cream helped kill any lingering organisms in or on our skin. SO I suggest using it liberally on any irritated shin as needed.>>>>We also use white vinegar alternated with hydrogen peroxide to kill off the most difficult organisms from lesions that seemed to be impossible to get rid of any other way.>>>>Good luck and BEST WISHES to all!>>>>>>>>>>>-- >>I keep six honest serving-men> (They taught me all I knew);>Their names are What and Why and When> And How and Where and Who.>>Rudyard Kipling>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2011 Report Share Posted October 30, 2011 HI, Bill!Thanks for your concern!I am in Sweden, so I can´t use american doctors, unfortunately.We do use suulphur, but it was a good idea with the epsom salt. Used to have that before, but haven´t for a long time. We only have a shower since we moved (to get rid of the birdmites) but I guess it will be fine showering with it as well. I contacted the eurolyme group and got a hold of some swedes there, but they say there are no Lyme Lldoctors in Sweden and that you have to go to germany to find one. Dot have the money for that right now...How are you doing? No bite or lesions any longer?You´ve done a good fight.Take care!CeciliaFrom: Doe <doe1769@...>bird mites Sent: Saturday, October 29, 2011 4:10 AMSubject: Re: Krys Hi Cecelia This bug brings diffrent ailments that mimick some other diseases . Doctors are knowledgable in thousand of diseases, this bug brings things that most all Doctors have never seen. There are Drs that have seen it. Was it Aggi or linda that listed a few on the Doctors that knew somewhat of this problem . That would be the place to go, or at least contact them to posssibly refer you to another Dr. closer to you that might be knowledgable . I pray they do. In the meantime what about sulfur for the kid , 1 teasp per 10-12 tesp of hand creme + 1 teap of coconut oil to mix the sulfur into & shake it up in a small opaqe bottle for 10 seconds , then add hancreme & shake for 30 seconds . Apply top of head to toes for 1 week, then rest & use none for 1 week. If it frie the skin a little do it 3 days on & 3 days off. Some eat 1/16 teaspoon in self filled capsules . Flowers of Sulfur sublimed made by Humco is $ 12.00 sold at www.americarx.com. Sulfur is a base medicice for many prescriptions , garlic is natural sulfur also namy eat high doses of garlic & get results , every little bit helps. In the environment 1 cup epsom salts & 3 cups water left to dry effects a huge cleaning of the sufaces & leaves them sterile. It rinses right of later with hot water. Do they have epsom where you are ? Are you in the US ? . Regular salt is also powerful used in the same proportions or even 1 cup hot water & 1 cup salt . God bless you Cecelia, Bill On Fri Oct 28th, 2011 5:50 AM EDT Cecilia Borg wrote:>Hi Krys!>THanks for your mail. How is your mother doing? I heard your daughter visited her. Must have been a great time for your mum:)>Unfortunately they did only do skinscrapings on the 8 year old and they did no tests on the 2 year old- just told us what it was...by looking at it. Didn´t seem very good, and that was still on our large hospitals skin clinic. I have given up on doctors- seems like they are the most incompetent group of people at their work I have ever seen....>Take care!>Cecilia>>>________________________________>From: Krys Brennand <krys109uk@...>>bird mites >Sent: Friday, October 28, 2011 4:23 AM>Subject: Re: Update from Zoe z3: No more mites>>> >Cecilia, I am so sorry to hear daughters are still troubled with lesions. How did the doctors make their diagnoses? Was it from skin samples?>>My best wishes to you all,>Krys>>On 23 October 2011 14:54, Cecilia Borg <ceciliaborg@...> wrote:>> >>Hi, Zoe!>>It is so great that you finally has gotten rid of all the bites and crawlings!>>I am happy for you and just hope it continues. I can really understand your fear. We got rid of the bites and crawlings when we moved and threw everything away. BUt my daughters have som lesions (first my 8 year old) than it was allmost gone and now my 2 year old has lesions, but they look a bit different. The 8 year old was told to have a staph infection and they say the small one has either folliculitis or eczema. So I hope they are right and that we are past the mite-mare still.>>Just hard to handle everything that are blisters and lesions- all the thoughts go to the bites and all that....>>Take care Zoe!>>Cecilia>>>>>>>>________________________________>>>>From: Zoe <zoe_z3@...>>>bird mites >>Sent: Friday, October 21, 2011 8:15 PM>>>>Subject: Update from Zoe z3: No more mites>>>>>> >>Hi All,>>>>I as positive now that we got an infection from mite bites which caused mites every where to be attracted to us: crawling mites and biting mites too.>>>>Is that what MORGELLONS is???>>>>After our 2 1/2 year mite-mare we are now well again and have our lives back. I still am still EXTREMELY traumatized by the experience. I would like to go see a therapist for PTS, but I fear the therapist would just assume I had 'delusions of parasitosis' since not many people know of this disease which is transmitted by certain biting mites which carry the pathogen. >>>>In fact, I think that I may be one of the only people to know of this disease... along with a few others on this website who have had a similar experience. Fortunately most people who are infested by bird mites just eradicate the mites from their environment and never get any pathogen from the mites at all and therefore don't become a host for biting mites everywhere.>>>>We will never know if it was just the passage of time that allowed us a fight whatever disease was attracting mites everywhere to us or if it was the 3 months of doxycycline 3 times per day , alternated with 3 months of Bactrm DS 2 times per day.>>>>We no longer avoid places and things and are using the stuff from our garage again... just cleaning it as well as we can.>>>>However, I went to a movie last week at a theatre that used to cause me to itch and squirm in my seat as I tried to focus on the movie. I felt a tiny bit of crawling sensation during the movie, but got NO bites and and the crawling stopped completely when I left the theatre. That is the only place I have had any symptoms at all out of the 100's of places that did cause crawling and bites when I was infected.>>>>There are certain places in the hospital that I work that I've not been in for the past 6 months, which used to cause me irritation and bites. So I don't know about how those places would affect me now. And I have not been in a Prius car in about 6 months as we sold it... which was the other place I got bit the most. >>>>The other cars are fine, our home is fine, our clothes are fine, my office at work is fine, museums are fine. I am so relieved and I'm trying to get my life back and move on.>>>>It is difficult for me to get over the feeling of trauma from living with FEAR for so long. Perhaps on some level I'm still in fear that the symptoms and bites will return again.>>>>I know I could not handle it if the biting returned. It is a thought too overwhelming to contemplate,>>>>MY ADVICE: Get on antibiotics early on, in large doses and stay on them until you are positive the biting and symptoms will not return when you go off of them. >>>>I know that the symptoms stopped for Rita and Tom after ~2 1/2 years so maybe the disease only lasts a certain amount of time as your body fights it. They did not take antibiotics at all. So who knows...>>>>In the final stages of our fight against the disease, topical benzyl peroxide cream helped kill any lingering organisms in or on our skin. SO I suggest using it liberally on any irritated shin as needed.>>>>We also use white vinegar alternated with hydrogen peroxide to kill off the most difficult organisms from lesions that seemed to be impossible to get rid of any other way.>>>>Good luck and BEST WISHES to all!>>>>>>>>>>>-- >>I keep six honest serving-men> (They taught me all I knew);>Their names are What and Why and When> And How and Where and Who.>>Rudyard Kipling>> Quote Link to comment Share on other sites More sharing options...
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