Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Hi Cee Cee I am so sorry to hear the Dr's let you down. They don't know what this bug is. I haven't talked to one about it in 5 years . Thay made me so mad, and frustrated I never went back. Cee Cee there was a poster who used 500 mg of tetrcycline in the am & 500 in the pm , she claimed it took away her symptoms . When her prescription ran out , she went to the fish pet store & bought it in liquid form for cheap an did the math of converting mg to ml . She claims she is still symptom free after 5 years . Trisha at ESP BOTANICALS knows her. I pray you are healed Cee Cee , God is good. He is the Lord the heals you . God bless you Cee Cee, Love , Bill ps please let let me know how you are & keep posting . pss spy ware dosent affect cell phone browsers , that is how I post always , I can keep a cell phone bug free easier too with a mist of windex & wiping , then when dry a puff of baking soda , theis bug hates tha high alkalinity of baking soda & Arm & Hammer Powdered Laundry Detergent 1 cup per gallon of water .. Many are the afflictions of the rightoues but the Lord delivers them of them all . On Sat Sep 10th, 2011 4:58 AM EDT Cee Cee wrote: >I don't get online very often due to spyware issues, but I wanted to let anyone who is considering treatment with Dr. Uppall, to really think long and hard about it. I just returned from a month in Florida, spendt thousands of dollarson transportation, hotels, food, etc. It was not a good trip. I am actually considering filing a malpractice suit against her, at theadvice of a nurse in the Florida ER. I can give you my phone number or private email address if you would like to talk about my experience. I sold everything of any value and borrowed money to see her. I live in Idaho and the doctors here have told me i'm now terminal. I have hospice and they are wonderful. I have had morgellons and many co-infections for 8 years. I am going to lose this battle, i'm sad to say. Nothing ever worked for me and I tried everything. I moved 3 times and realized after the third home became infested, these bugs are deeply embedded into me, not just my belongings. They exit my body in large numbers. I have lost my immune system and have non responsive systematic fungal infections, including fungal pnemonia. I have begun o accept that I will die from this. Dr. Uppall did tell me that she has had patients die from this. But, I would never be treated by her again, even if she did offer hope, which she doesn't have for morgellons. Her protocol is nothing new or miraculous and she is not very pleasant, organized, sanitary, etc. It isa long story. But if anyone is interested in my reason for feeling this way, I will be happy to reply. I don't want to sound negative, I just never want to hear of anyone else go thru what I did while I was suppossedly, under her care, because it was very bad and I was left in a paniced, hopeless state, alone in FL. and she did not care one single bit. My opinion is that she should not be on the internet asking patients to call or come see her, because she is incompetent. This is not due to a personality conflict. It is only about the medical treatment that I received from her. Just don't want anyone else to have to ever feel like I did under hefr care, which was sporadic and minimal and very slow. I was paying $70 a night for hotels, but she was in no hurry to begin treatment and I had to ask for every medication that I got put into my picc line or she would forget about meds and use only 1, when you were told you would be on several meds. It was pretty sad and yes, Ileft Florida angry. I wasted thousands of dollars. It was my last hope to get well and she acted like she could care less. I talked to one of her patients who was feeling the same way I was. Thanks for letting me vent. I won't elaborate further, unless someone is thinking of traveling to be treated by her and wants to talk about my experience. Goodnight all!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Cee Cee - I am so sorry to read your story. My heart hurts for you. I am raking my brain to try to come up with something for you. I know you have tried everything under the sun but if you haven't done the F-5 yet please give it a go. PM me and I will send you some - I've got a few bottles of it and would be happy to share. I don't want to give false hope or say it's any kind of cure for Morgellons but it is worth a shot. It is enzyme based. Thus far it has really cleared up my skin. Again, I still have problems and take abx, etc. But, the F-5 has greatly improved my skin and I no longer get big lesions (maybe an occasional one on my face but that's about it). I am just so sorry. Nobody should have to go through this. Sending you hugs and healing thoughts! > > >I don't get online very often due to spyware issues, but I wanted to let anyone who is considering treatment with Dr. Uppall, to really think long and hard about it. I just returned from a month in Florida, spendt thousands of dollarson transportation, hotels, food, etc. It was not a good trip. I am actually considering filing a malpractice suit against her, at theadvice of a nurse in the Florida ER. I can give you my phone number or private email address if you would like to talk about my experience. I sold everything of any value and borrowed money to see her. I live in Idaho and the doctors here have told me i'm now terminal. I have hospice and they are wonderful. I have had morgellons and many co-infections for 8 years. I am going to lose this battle, i'm sad to say. Nothing ever worked for me and I tried everything. I moved 3 times and realized after the third home became infested, these bugs are deeply embedded into me, not just my > belongings. They exit my body in large numbers. I have lost my immune system and have non responsive systematic fungal infections, including fungal pnemonia. I have begun o accept that I will die from this. Dr. Uppall did tell me that she has had patients die from this. But, I would never be treated by her again, even if she did offer hope, which she doesn't have for morgellons. Her protocol is nothing new or miraculous and she is not very pleasant, organized, sanitary, etc. It isa long story. But if anyone is interested in my reason for feeling this way, I will be happy to reply. I don't want to sound negative, I just never want to hear of anyone else go thru what I did while I was suppossedly, under her care, because it was very bad and I was left in a paniced, hopeless state, alone in FL. and she did not care one single bit. My opinion is that she should not be on the internet asking patients to call or come see her, because she is > incompetent. This is not due to a personality conflict. It is only about the medical treatment that I received from her. Just don't want anyone else to have to ever feel like I did under hefr care, which was sporadic and minimal and very slow. I was paying $70 a night for hotels, but she was in no hurry to begin treatment and I had to ask for every medication that I got put into my picc line or she would forget about meds and use only 1, when you were told you would be on several meds. It was pretty sad and yes, Ileft Florida angry. I wasted thousands of dollars. It was my last hope to get well and she acted like she could care less. I talked to one of her patients who was feeling the same way I was. Thanks for letting me vent. I won't elaborate further, unless someone is thinking of traveling to be treated by her and wants to talk about my experience. Goodnight all!!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Hi dear Cee Cee,I think Dr. Uppall was the one who spoke at last year's Morgellons conference. She had a very flat affect... I am so sorry she did not help you and see how desperately ill you are and really step up and move quickly. I had been thinking about you Cee Cee and wondering how you were doing with the cancer. What type of cancer do you have? I've had cancer too--uterine 13 years ago. I was lucky and after hysterectomy and radiation I've been okay, but the radiation really weakened my entire system. They don't talk about what chemo and radiation do to you much before you have it as they don't want to scare people off and we are usually in a desperate irrational state when we choose to go that route. My oldest sister and youngest brother both died of cancer this year, different types. Lung cancer and non-Hodgkin's Lymphoma. I was with my younger brother at Stanford Cancer Center (I do not recommend that place) when the doctor told him he would be cured and not to worry, that it was curable. IF I get cancer again (my odds go up since I've had it already), I will do Dr. Kelley's protocol - I believe in it and did it before. He had stage IV cancer and cured himself and many, many other people. If you want to look into it he wrote two books about his protocol. I have both books. The first book is about understanding your nutritional / metabolic type. The second book is about what to do to get better. If you Google Dr. Kelley you will see the names of the books. I also took a lot of essiac tea for months which may have helped and did juicing. God bless you Cee Cee. I wish I could wave a magic wand and make you well... So many people I know passed this last year... but I do believe there are natural cures for cancer; I found not everyone is willing to try them because they believe it is all snake oil, which it is not. Yes, some touted cancer cures are worthless. My sister and brother included would not, even if desperate, try these things, but they would submit themselves to months and years of poisoning chemo and radiation. God bless you Cee Cee - From: "Cee Cee" <ceeceesmith50@...>bird mites Sent: Saturday, September 10, 2011 1:58:16 AMSubject: Dr. Neelam Uppall I don't get online very often due to spyware issues, but I wanted to let anyone who is considering treatment with Dr. Uppall, to really think long and hard about it. I just returned from a month in Florida, spendt thousands of dollarson transportation, hotels, food, etc. It was not a good trip. I am actually considering filing a malpractice suit against her, at theadvice of a nurse in the Florida ER. I can give you my phone number or private email address if you would like to talk about my experience. I sold everything of any value and borrowed money to see her. I live in Idaho and the doctors here have told me i'm now terminal. I have hospice and they are wonderful. I have had morgellons and many co-infections for 8 years. I am going to lose this battle, i'm sad to say. Nothing ever worked for me and I tried everything. I moved 3 times and realized after the third home became infested, these bugs are deeply embedded into me, not just my belongings. They exit my body in large numbers. I have lost my immune system and have non responsive systematic fungal infections, including fungal pnemonia. I have begun o accept that I will die from this. Dr. Uppall did tell me that she has had patients die from this. But, I would never be treated by her again, even if she did offer hope, which she doesn't have for morgellons. Her protocol is nothing new or miraculous and she is not very pleasant, organized, sanitary, etc. It isa long story. But if anyone is interested in my reason for feeling this way, I will be happy to reply. I don't want to sound negative, I just never want to hear of anyone else go thru what I did while I was suppossedly, under her care, because it was very bad and I was left in a paniced, hopeless state, alone in FL. and she did not care one single bit. My opinion is that she should not be on the internet asking patients to call or come see her, because she is incompetent. This is not due to a personality conflict. It is only about the medical treatment that I received from her. Just don't want anyone else to have to ever feel like I did under hefr care, which was sporadic and minimal and very slow. I was paying $70 a night for hotels, but she was in no hurry to begin treatment and I had to ask for every medication that I got put into my picc line or she would forget about meds and use only 1, when you were told you would be on several meds. It was pretty sad and yes, Ileft Florida angry. I wasted thousands of dollars. It was my last hope to get well and she acted like she could care less. I talked to one of her patients who was feeling the same way I was. Thanks for letting me vent. I won't elaborate further, unless someone is thinking of traveling to be treated by her and wants to talk about my experience. Goodnight all!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Sorry to hear about that bad experience. I hope you find relief some other way. Maby Aandraya can give you suggestions on good docotrs, she seems to have that knowledge all over the States. KR Cecilia From: Cee Cee <ceeceesmith50@...>bird mites Sent: Saturday, September 10, 2011 10:58 AMSubject: Dr. Neelam Uppall I don't get online very often due to spyware issues, but I wanted to let anyone who is considering treatment with Dr. Uppall, to really think long and hard about it. I just returned from a month in Florida, spendt thousands of dollarson transportation, hotels, food, etc. It was not a good trip. I am actually considering filing a malpractice suit against her, at theadvice of a nurse in the Florida ER. I can give you my phone number or private email address if you would like to talk about my experience. I sold everything of any value and borrowed money to see her. I live in Idaho and the doctors here have told me i'm now terminal. I have hospice and they are wonderful. I have had morgellons and many co-infections for 8 years. I am going to lose this battle, i'm sad to say. Nothing ever worked for me and I tried everything. I moved 3 times and realized after the third home became infested, these bugs are deeply embedded into me, not just my belongings. They exit my body in large numbers. I have lost my immune system and have non responsive systematic fungal infections, including fungal pnemonia. I have begun o accept that I will die from this. Dr. Uppall did tell me that she has had patients die from this. But, I would never be treated by her again, even if she did offer hope, which she doesn't have for morgellons. Her protocol is nothing new or miraculous and she is not very pleasant, organized, sanitary, etc. It isa long story. But if anyone is interested in my reason for feeling this way, I will be happy to reply. I don't want to sound negative, I just never want to hear of anyone else go thru what I did while I was suppossedly, under her care, because it was very bad and I was left in a paniced, hopeless state, alone in FL. and she did not care one single bit. My opinion is that she should not be on the internet asking patients to call or come see her, because she is incompetent. This is not due to a personality conflict. It is only about the medical treatment that I received from her. Just don't want anyone else to have to ever feel like I did under hefr care, which was sporadic and minimal and very slow. I was paying $70 a night for hotels, but she was in no hurry to begin treatment and I had to ask for every medication that I got put into my picc line or she would forget about meds and use only 1, when you were told you would be on several meds. It was pretty sad and yes, Ileft Florida angry. I wasted thousands of dollars. It was my last hope to get well and she acted like she could care less. I talked to one of her patients who was feeling the same way I was. Thanks for letting me vent. I won't elaborate further, unless someone is thinking of traveling to be treated by her and wants to talk about my experience. Goodnight all!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Hi Cee Cee, I guess if you've tried everything already, you have gone on a strict antifungal diet. That was the turning point for me. I've read where many believe cancer is the product of fungus and molds. The public should be more informed on the reality of getting an infection and feeding it before it's water under the bridge. Spyware and death cannot compete. Stay on the site and let us support you. The F5 may be a good suggestion. Please keep fighting. Love and light, From: Cee Cee <ceeceesmith50@...>Subject: Dr. Neelam Uppallbird mites Date: Saturday, September 10, 2011, 8:58 AM I don't get online very often due to spyware issues, but I wanted to let anyone who is considering treatment with Dr. Uppall, to really think long and hard about it. I just returned from a month in Florida, spendt thousands of dollarson transportation, hotels, food, etc. It was not a good trip. I am actually considering filing a malpractice suit against her, at theadvice of a nurse in the Florida ER. I can give you my phone number or private email address if you would like to talk about my experience. I sold everything of any value and borrowed money to see her. I live in Idaho and the doctors here have told me i'm now terminal. I have hospice and they are wonderful. I have had morgellons and many co-infections for 8 years. I am going to lose this battle, i'm sad to say. Nothing ever worked for me and I tried everything. I moved 3 times and realized after the third home became infested, these bugs are deeply embedded into me, not just my belongings. They exit my body in large numbers. I have lost my immune system and have non responsive systematic fungal infections, including fungal pnemonia. I have begun o accept that I will die from this. Dr. Uppall did tell me that she has had patients die from this. But, I would never be treated by her again, even if she did offer hope, which she doesn't have for morgellons. Her protocol is nothing new or miraculous and she is not very pleasant, organized, sanitary, etc. It isa long story. But if anyone is interested in my reason for feeling this way, I will be happy to reply. I don't want to sound negative, I just never want to hear of anyone else go thru what I did while I was suppossedly, under her care, because it was very bad and I was left in a paniced, hopeless state, alone in FL. and she did not care one single bit. My opinion is that she should not be on the internet asking patients to call or come see her, because she is incompetent. This is not due to a personality conflict. It is only about the medical treatment that I received from her. Just don't want anyone else to have to ever feel like I did under hefr care, which was sporadic and minimal and very slow. I was paying $70 a night for hotels, but she was in no hurry to begin treatment and I had to ask for every medication that I got put into my picc line or she would forget about meds and use only 1, when you were told you would be on several meds. It was pretty sad and yes, Ileft Florida angry. I wasted thousands of dollars. It was my last hope to get well and she acted like she could care less. I talked to one of her patients who was feeling the same way I was. Thanks for letting me vent. I won't elaborate further, unless someone is thinking of traveling to be treated by her and wants to talk about my experience. Goodnight all!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Cee Cee,13 years ago when I was doing radiation I was shocked to see that the hospital had provided cancer patients with lots of cookies and cakes. Those foods are most likely the worst foods for someone with cancer and may even feed cancer. I just remember looking on in dismay. Sweets have been my downfall for years! Those 6 weeks of radiation I did not eat any of the sweets. I've had pretty severe fungal overgrowth, so that's what I was dealing with then and now + sugar and carbo addiction.From: " Benton" <sarahbenton48@...>bird mites Sent: Saturday, September 10, 2011 9:17:14 AMSubject: Re: Dr. Neelam Uppall Hi Cee Cee, I guess if you've tried everything already, you have gone on a strict antifungal diet. That was the turning point for me. I've read where many believe cancer is the product of fungus and molds. The public should be more informed on the reality of getting an infection and feeding it before it's water under the bridge. Spyware and death cannot compete. Stay on the site and let us support you. The F5 may be a good suggestion. Please keep fighting. Love and light, From: Cee Cee <ceeceesmith50@...>Subject: Dr. Neelam Uppallbird mites Date: Saturday, September 10, 2011, 8:58 AM I don't get online very often due to spyware issues, but I wanted to let anyone who is considering treatment with Dr. Uppall, to really think long and hard about it. I just returned from a month in Florida, spendt thousands of dollarson transportation, hotels, food, etc. It was not a good trip. I am actually considering filing a malpractice suit against her, at theadvice of a nurse in the Florida ER. I can give you my phone number or private email address if you would like to talk about my experience. I sold everything of any value and borrowed money to see her. I live in Idaho and the doctors here have told me i'm now terminal. I have hospice and they are wonderful. I have had morgellons and many co-infections for 8 years. I am going to lose this battle, i'm sad to say. Nothing ever worked for me and I tried everything. I moved 3 times and realized after the third home became infested, these bugs are deeply embedded into me, not just my belongings. They exit my body in large numbers. I have lost my immune system and have non responsive systematic fungal infections, including fungal pnemonia. I have begun o accept that I will die from this. Dr. Uppall did tell me that she has had patients die from this. But, I would never be treated by her again, even if she did offer hope, which she doesn't have for morgellons. Her protocol is nothing new or miraculous and she is not very pleasant, organized, sanitary, etc. It isa long story. But if anyone is interested in my reason for feeling this way, I will be happy to reply. I don't want to sound negative, I just never want to hear of anyone else go thru what I did while I was suppossedly, under her care, because it was very bad and I was left in a paniced, hopeless state, alone in FL. and she did not care one single bit. My opinion is that she should not be on the internet asking patients to call or come see her, because she is incompetent. This is not due to a personality conflict. It is only about the medical treatment that I received from her. Just don't want anyone else to have to ever feel like I did under hefr care, which was sporadic and minimal and very slow. I was paying $70 a night for hotels, but she was in no hurry to begin treatment and I had to ask for every medication that I got put into my picc line or she would forget about meds and use only 1, when you were told you would be on several meds. It was pretty sad and yes, Ileft Florida angry. I wasted thousands of dollars. It was my last hope to get well and she acted like she could care less. I talked to one of her patients who was feeling the same way I was. Thanks for letting me vent. I won't elaborate further, unless someone is thinking of traveling to be treated by her and wants to talk about my experience. Goodnight all!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2011 Report Share Posted September 12, 2011 From: Cee Cee <ceeceesmith50@...>Subject: Dr. Neelam Uppallbird mites Date: Saturday, September 10, 2011, 8:58 AM I don't get online very often due to spyware issues, but I wanted to let anyone who is considering treatment with Dr. Uppall, to really think long and hard about it. I just returned from a month in Florida, spendt thousands of dollarson transportation, hotels, food, etc. It was not a good trip. I am actually considering filing a malpractice suit against her, at theadvice of a nurse in the Florida ER. I can give you my phone number or private email address if you would like to talk about my experience. I sold everything of any value and borrowed money to see her. I live in Idaho and the doctors here have told me i'm now terminal. I have hospice and they are wonderful. I have had morgellons and many co-infections for 8 years. I am going to lose this battle, i'm sad to say. Nothing ever worked for me and I tried everything. I moved 3 times and realized after the third home became infested, these bugs are deeply embedded into me, not just my belongings. They exit my body in large numbers. I have lost my immune system and have non responsive systematic fungal infections, including fungal pnemonia. I have begun o accept that I will die from this. Dr. Uppall did tell me that she has had patients die from this. But, I would never be treated by her again, even if she did offer hope, which she doesn't have for morgellons. Her protocol is nothing new or miraculous and she is not very pleasant, organized, sanitary, etc. It isa long story. But if anyone is interested in my reason for feeling this way, I will be happy to reply. I don't want to sound negative, I just never want to hear of anyone else go thru what I did while I was suppossedly, under her care, because it was very bad and I was left in a paniced, hopeless state, alone in FL. and she did not care one single bit. My opinion is that she should not be on the internet asking patients to call or come see her, because she is incompetent. This is not due to a personality conflict. It is only about the medical treatment that I received from her. Just don't want anyone else to have to ever feel like I did under hefr care, which was sporadic and minimal and very slow. I was paying $70 a night for hotels, but she was in no hurry to begin treatment and I had to ask for every medication that I got put into my picc line or she would forget about meds and use only 1, when you were told you would be on several meds. It was pretty sad and yes, Ileft Florida angry. I wasted thousands of dollars. It was my last hope to get well and she acted like she could care less. I talked to one of her patients who was feeling the same way I was. Thanks for letting me vent. I won't elaborate further, unless someone is thinking of traveling to be treated by her and wants to talk about my experience. Goodnight all!!! Hi. I was wondering if you could tell me more about the F5 and where I can get it at. Also, I don't have cancer, i'm not sure what I said that made you think I did, probably because I was told I am terminal now. But it is due to no immune system, 2 systematic fungals infections, with fungal pneumonia and my lack of response to several IV meds. The morgellons is really what is causing all of this though. It has been in my body 8 years now. I don't know why my morgellons won't get even slighly better, no matter what I try, but it has been that way since the start. I found out what I had within a month of noticing the symptoms. mostly bugs always flying from me and joined finding 1 cure, right away. It seems tooken up now. Birdmites has been helpful, I need support so much right now. IMy best friend of 28 years, refuses to be near me, now that she has seen how sick I am, so she believes me now and thinks i'm contagious to her. My family live in another state, my fault. I ran away when I got this. I was so afraid of giving it to my loved ones, I moved. I have isolated so much. I am so lonely and wish I had a friend to talk with, at least. I am alone in this battle, but the group has made me feel less alone. My daughter is expecting her first child, next month. I am so sad. I so wanted to hold and get to know my new grandaughter, but fear won't let me do so. I'm sorry tro say, i'm feeling so bad and negative. I can drive 45 minutes, and will be in a state that allows people to die, if they are ill and tired and done. I'm afraid that may be my next action. I can't stand the lonliness, pain or even the disgusting way I now look. The bugs are driving me insane! They land everywhere with a tink sound, so I know I have just given birth to another one. It happens anywhere I go, every few seconds. I fall asleep with headphones and loud music on, because that noise disgusts me. I am bald and I didn't shave it off, this time. My skin looks wormy, even the ER in FL. called it worms. Sorry, i'm sitting on the pity pot a lot these days. Just needed to vent. But i'm open to anything new. I would love to kill and torture this damn bug. Take care all and thanks for being here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2011 Report Share Posted September 13, 2011 How are you feeling Cee Cee? I was thinking about you. God bless you.From: "Cee Cee" <ceeceesmith50@...>bird mites Sent: Saturday, September 10, 2011 1:58:16 AMSubject: Dr. Neelam Uppall I don't get online very often due to spyware issues, but I wanted to let anyone who is considering treatment with Dr. Uppall, to really think long and hard about it. I just returned from a month in Florida, spendt thousands of dollarson transportation, hotels, food, etc. It was not a good trip. I am actually considering filing a malpractice suit against her, at theadvice of a nurse in the Florida ER. I can give you my phone number or private email address if you would like to talk about my experience. I sold everything of any value and borrowed money to see her. I live in Idaho and the doctors here have told me i'm now terminal. I have hospice and they are wonderful. I have had morgellons and many co-infections for 8 years. I am going to lose this battle, i'm sad to say. Nothing ever worked for me and I tried everything. I moved 3 times and realized after the third home became infested, these bugs are deeply embedded into me, not just my belongings. They exit my body in large numbers. I have lost my immune system and have non responsive systematic fungal infections, including fungal pnemonia. I have begun o accept that I will die from this. Dr. Uppall did tell me that she has had patients die from this. But, I would never be treated by her again, even if she did offer hope, which she doesn't have for morgellons. Her protocol is nothing new or miraculous and she is not very pleasant, organized, sanitary, etc. It isa long story. But if anyone is interested in my reason for feeling this way, I will be happy to reply. I don't want to sound negative, I just never want to hear of anyone else go thru what I did while I was suppossedly, under her care, because it was very bad and I was left in a paniced, hopeless state, alone in FL. and she did not care one single bit. My opinion is that she should not be on the internet asking patients to call or come see her, because she is incompetent. This is not due to a personality conflict. It is only about the medical treatment that I received from her. Just don't want anyone else to have to ever feel like I did under hefr care, which was sporadic and minimal and very slow. I was paying $70 a night for hotels, but she was in no hurry to begin treatment and I had to ask for every medication that I got put into my picc line or she would forget about meds and use only 1, when you were told you would be on several meds. It was pretty sad and yes, Ileft Florida angry. I wasted thousands of dollars. It was my last hope to get well and she acted like she could care less. I talked to one of her patients who was feeling the same way I was. Thanks for letting me vent. I won't elaborate further, unless someone is thinking of traveling to be treated by her and wants to talk about my experience. Goodnight all!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2011 Report Share Posted September 14, 2011 Hello Cee Cee, I feel terribly sorry after reading your story. Have you ever contacted Marc Neumann and his Morgs organization ? http://www.morgellons-research.org/morgellons/imp.shtml Just an idea. > > > From: Cee Cee <ceeceesmith50@...> > Subject: Dr. Neelam Uppall > bird mites > Date: Saturday, September 10, 2011, 8:58 AM > > >  > > I don't get online very often due to spyware issues, but I wanted to let anyone who is considering treatment with Dr. Uppall, to really think long and hard about it. I just returned from a month in Florida, spendt thousands of dollarson transportation, hotels, food, etc. It was not a good trip. I am actually considering filing a malpractice suit against her, at theadvice of a nurse in the Florida ER. I can give you my phone number or private email address if you would like to talk about my experience. I sold everything of any value and borrowed money to see her. I live in Idaho and the doctors here have told me i'm now terminal. I have hospice and they are wonderful. I have had morgellons and many co-infections for 8 years. I am going to lose this battle, i'm sad to say. Nothing ever worked for me and I tried everything. I moved 3 times and realized after the third home became infested, these bugs are deeply embedded into me, not just my belongings. They > exit my body in large numbers. I have lost my immune system and have non responsive systematic fungal infections, including fungal pnemonia. I have begun o accept that I will die from this. Dr. Uppall did tell me that she has had patients die from this. But, I would never be treated by her again, even if she did offer hope, which she doesn't have for morgellons. Her protocol is nothing new or miraculous and she is not very pleasant, organized, sanitary, etc. It isa long story. But if anyone is interested in my reason for feeling this way, I will be happy to reply. I don't want to sound negative, I just never want to hear of anyone else go thru what I did while I was suppossedly, under her care, because it was very bad and I was left in a paniced, hopeless state, alone in FL. and she did not care one single bit. My opinion is that she should not be on the internet asking patients to call or come see her, because she is incompetent. This is not due to a > personality conflict. It is only about the medical treatment that I received from her. Just don't want anyone else to have to ever feel like I did under hefr care, which was sporadic and minimal and very slow. I was paying $70 a night for hotels, but she was in no hurry to begin treatment and I had to ask for every medication that I got put into my picc line or she would forget about meds and use only 1, when you were told you would be on several meds. It was pretty sad and yes, Ileft Florida angry. I wasted thousands of dollars. It was my last hope to get well and she acted like she could care less. I talked to one of her patients who was feeling the same way I was. Thanks for letting me vent. I won't elaborate further, unless someone is thinking of traveling to be treated by her and wants to talk about my experience. Goodnight all!!! >  Hi. I was wondering if you could tell me more about the F5 and where I can get it at. Also, I don't have cancer, i'm not sure what I said that made you think I did, probably because I was told I am terminal now. But it is due to no immune system, 2 systematic fungals infections, with fungal pneumonia and my lack of response to several IV meds. The morgellons is really what is causing all of this though. It has been in my body 8 years now. I don't know why my morgellons won't get even slighly better, no matter what I try, but it has been that way since the start. I found out what I had within a month of noticing the symptoms. mostly bugs always flying from me and joined finding 1 cure, right away. It seems tooken up now. Birdmites has been helpful, I need support so much right now. IMy best friend of 28 years, refuses to be near me, now that she has seen how sick I am, so she believes me now and thinks i'm contagious to her. My > family live in another state, my fault. I ran away when I got this. I was so afraid of giving it to my loved ones, I moved. I have isolated so much. I am so lonely and wish I had a friend to talk with, at least. I am alone in this battle, but the group has made me feel less alone. My daughter is expecting her first child, next month. I am so sad. I so wanted to hold and get to know my new grandaughter, but fear won't let me do so. I'm sorry tro say, i'm feeling so bad and negative. I can drive 45 minutes, and will be in a state that allows people to die, if they are ill and tired and done. I'm afraid that may be my next action. I can't stand the lonliness, pain or even the disgusting way I now look. The bugs are driving me insane! They land everywhere with a tink sound, so I know I have just given birth to another one. It happens anywhere I go, every few seconds. I fall asleep with headphones and loud music on, because > that noise disgusts me. I am bald and I didn't shave it off, this time. My skin looks wormy, even the ER in FL. called it worms. Sorry, i'm sitting on the pity pot a lot these days. Just needed to vent. But i'm open to anything new. I would love to kill and torture this damn bug. Take care all and thanks for being here. > Quote Link to comment Share on other sites More sharing options...
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