Rash

May 11, 2000

Lani and I are allergic to soap, so we use a chemist wash (QV wash,

lotions, bath oils etc all hyperallergenic) is the sapoderm

hyperallergenic do you know (I'll check it out though)

Do you have this rash also? Is it connected to AI's then? (I was

wondering about that)

Thanks Aisha

:-)

> Well my immunologist calls this rash folliculitis.... my endo calls

it a

> genetically inherited thing as she has it as does her kids.... so

who knows!

> there is a soap called Sapaderm which you get from chemists

which is

> excellent for rashes and the like - I recommend you try this first

.

>

> Love A.

>

> *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

> Believe that there's a light at the end of the tunnel.

> Believe that you may be that light for someone else.

> - Kobi Yamada

> *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

>

> Aisha Elderwyn

> ICQ 55461955

> aisha@e...

> http://www.elderwyn.com/aisha

> mailing list: AishaElderwyn-subscribeegroups

May 11, 2000

LMAO... I LOVE QV.... I promote their soap on all our medical sites! I dont know if Sapoderm is hyperallergenic or not.... and this rash is known to be connected with AI's... SURPRISE....

Love A.

*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*Believe that there's a light at the end of the tunnel.Believe that you may be that light for someone else.- Kobi Yamada*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* Aisha ElderwynICQ 55461955aisha@...http://www.elderwyn.com/aishaMailing list: AishaElderwyn-subscribeegroupsBeing Sick:

June 7, 2002

Hi a; I'm no help. I get a rash under the skin that itches terribly and

attacks areas that are thin skinned first as the back of hands and around nails

and anywhere I may have an injury but this has usually come because of an

allergy to the sun. I'm sorry I can't be more help there. I am glad your

doctor is checking about the body temp problem. Let us know if you find any

answers. I hope you have a nice day, Patty

Rash

Have any of you ever gotten the rash on your palms? At the onset I had the

rash on my hands and knees but now I have these small red bumps on my palms

and just one small bump on my hand and one on my knee. I just came from my

Dr. (not Rheumy, just reg. Dr.) and he has no idea what it could be. They

tend to itch after washing my hands. I also mentioned to him about how I am

always hot. I sweat profusely daily. My co-workers wear their jackets

around the office and complain that it's cold in here. Even the President

of the company complains about how probably the reason we got the place so

cheap is because the office is so cold. Everyone complains about the cold

office, but I am always sweating and have to have my fan on. I even keep

spare blouses at work because sometimes I'll be so hot and sweaty I'll need

to change clothes. No odor, just wet. Anyway, the Dr. collected blood to

run some thyroid test to see if that's the problem. He said it would take

about a week for the test to come back.

a , Administrative Assistant

Faribault Foods, Inc.

3380 Piper Jaffray Tower

222 South 9th Street

Minneapolis, MN 55402

Tele: 612-333-6461

Fax: 612-342-2908

June 30, 2002

hi,about 2 weeks ago i developed a rash...on arms(upper and lower) and

legs(upper and lower)..tiny redish and itched like crazy...other than using

benadryl...doc put me on higher dosage of prednisone..it made a big

difference,,but never really left and started itching again on thursday..had

a doc appt on fri,,she put me on higher dosage of prednisone for 3 days

again...trying to figure out if it was the patch i was wearing for blood

pressure or if it is related to stills..have to go back to doc next

fri...have you started any new med's recently???but do check with a doc..we

should not be scratching out skin..

good luck and hope you feel better soon..

joyce

June 30, 2002

hi,doc believes it is fromthe catapres patch for blood pressure...it took me

10 years to get to 2 1/2/alt 5 mg of prednisone..but going to 30mg of

prednisone worked fast on stopping the itching..i was surprised..lol..doc

explained that (like with poison ivy as an example)..it hang around in the

system and with us with screwed up immune sys...prednisone will force it

out..lol...so hope that will help you..

take care

joyce

June 30, 2002

Hi joyce,

I have had the stills rash and it doesn't ever

itch. it should never itch. The only time i have

ever developed an itchy rash was because I was

allergic to the medication I was on. Prednisone is a

nasty medication and although it has been a life saver

for me some days i try to take as little of it as

possible. I would deffinatly mention to your doc that

it could be an allergic reaction. I have found that

since my onset I have been allergic to many more

things than I have ever been allergic to before. This

is also true with many people I have talked to. Good

Luck Let me know how you make out!

take care

--- AIRVIN406@... wrote:

> hi,about 2 weeks ago i developed a rash...on

> arms(upper and lower) and

> legs(upper and lower)..tiny redish and itched like

> crazy...other than using

> benadryl...doc put me on higher dosage of

> prednisone..it made a big

> difference,,but never really left and started

> itching again on thursday..had

> a doc appt on fri,,she put me on higher dosage of

> prednisone for 3 days

> again...trying to figure out if it was the patch i

> was wearing for blood

> pressure or if it is related to stills..have to go

> back to doc next

> fri...have you started any new med's recently???but

> do check with a doc..we

> should not be scratching out skin..

>

> good luck and hope you feel better soon..

> joyce

>

> [Non-text portions of this message have been

> removed]

>

July 2, 2002

Hi .

Welcome to the group. I'm sorry for your diagnosis of Stills but, you have found

a group of the nicest, kindest and most sincere people you will ever meet. And

the knowledge that everyone has about Stills, medications, doctors,and even

other subjects (hee-hee), you're going to think you've joined a graduate school

study group. :-)

I wanted to comment on your statement about Prednisone being a nasty drug yet a

life saver. One of the hardest things to deal with is the love/hate relationship

we have with Prednisone. It allows us to live semi-normal lives however, it

makes such dramatic changes to our body, physically & emotionally. And to wein

off of it has been a big challenge to so many of us. Please know that we are all

here for you. Including your newest best friend/biggest enemy, Prednisone.

Take good care of yourself and REST when it is required.

K XO

Pucillo <npucillo00@...> wrote: Hi joyce,

I have had the stills rash and it doesn't ever

itch. it should never itch. The only time i have

ever developed an itchy rash was because I was

allergic to the medication I was on. Prednisone is a

nasty medication and although it has been a life saver

for me some days i try to take as little of it as

possible. I would deffinatly mention to your doc that

it could be an allergic reaction. I have found that

since my onset I have been allergic to many more

things than I have ever been allergic to before. This

is also true with many people I have talked to. Good

Luck Let me know how you make out!

take care

--- AIRVIN406@... wrote:

> hi,about 2 weeks ago i developed a rash...on

> arms(upper and lower) and

> legs(upper and lower)..tiny redish and itched like

> crazy...other than using

> benadryl...doc put me on higher dosage of

> prednisone..it made a big

> difference,,but never really left and started

> itching again on thursday..had

> a doc appt on fri,,she put me on higher dosage of

> prednisone for 3 days

> again...trying to figure out if it was the patch i

> was wearing for blood

> pressure or if it is related to stills..have to go

> back to doc next

> fri...have you started any new med's recently???but

> do check with a doc..we

> should not be scratching out skin..

>

> good luck and hope you feel better soon..

> joyce

>

> [Non-text portions of this message have been

> removed]

>

July 8, 2002

Kaitlyn also had chicken pox vac. She just got over one the worst cases of

chicken pox Ive seen. Hundreds of spots, everywhere. I kept telling myself it

cannot be chicken pox, but I was wrong. Good luck.

Darcy

Rash

Hi all,

My who is almost 3 has devoloped a rash . It began like prickly heat

with small pin point bumps ( Saturday night) and is now blistering. It is on

his legs and feet which are swollen. Today it is on his arms ans diaper area.

Starting on his trunk.

Any ideas?

He has had a Chicken Pox Vac.

Kay and

July 9, 2002

My nephew (now 26) did not have chicken pox vaccination but he did get

chicken pox TWICE!!! The first time it was so mild they were never quite

sure but the second time it was most definitely chicken pox! I have heard of

kids who had the vaccination also getting chicken pox afterwards.

Cheryl in VA

July 9, 2002

The vaccine doesn't keep them from getting chicken pox, but it supposed to make

it less severe if they do get it so it may actually be " the pox " . Or fifths

disease. Try Mylanta on the rash and see if it helps -- sounds weird, I know,

but it does help.

RSYOSH@... wrote: In a message dated 7/8/02 8:54:45 AM Pacific Daylight

Time,

fishmiss@... writes:

>

> Hi all,

> My who is almost 3 has devoloped a rash . It began like prickly

> heat with small pin point bumps ( Saturday night) and is now blistering.

> It is on his legs and feet which are swollen. Today it is on his arms ans

> diaper area. Starting on his trunk.

> Any ideas?

> He has had a Chicken Pox Vac.

> Kay and

>

My 3 kids had chicken pox years ago (prior to the vaccine)... the blisters

usually start under the diaper (it infects mucus membranes) or in my oldest's

case (6 at time) on the torso.

One of my kid's had a teacher whose daughter kept getting chicken pox over

and over after the vaccine (incomplete innoculation).

In ANY case... whatever it is (could be a disease... could be an allergic

reaction)... sounds like a trip to the MD is in immediate order.

- Becky

July 9, 2002

In a message dated 7/9/02 4:21:58 AM Pacific Daylight Time, ctezell@...

writes:

> The vaccine doesn't keep them from getting chicken pox, but it supposed to

> make it less severe if they do get it so it may actually be " the pox " . Or

> fifths disease. Try Mylanta on the rash and see if it helps -- sounds

> weird, I know, but it does help.

>

When my daughter's teacher's daughter (got that???) got her vaccine it turned

out to cause incomplete immunity. Her daughter kept getting a light case of

chicken pox, over and over and over.

If you get chicken pox and only get a light case, you don't develop the

immunity and can catch it again.

My 3 kids took turns (one after the other!) back when my middle child brought

it home from pre-school 7 years ago. All 3 had pretty intense cases. 2 kids

have a couple of pox scars. The one who doesn't is my daughter with DS - who

had an ear/sinus infection at the same time and was on antibiotics for that.

BTW - chicken pox and " shingles " are caused by the same disease (actually a

herpes). After a person has chicken pox, the herpes virus lies dormant and

can pop back up as shingles many years later (like 40!). No evidence yet

whether the vaccine will prevent shingles.

All in all - I'm just as glad my kids actually had chicken pox. It was a

miserable couple of weeks... but no danger they will get it again, or need to

re-innoculate.

- Becky

July 10, 2002

How long ago did he get the chicken pox vaccination??

chicken pox start a while before you see them pop out

- if he had it in him already, the vaccination may not

have " took " .

--- FlowerMommi@... wrote:

>

> Oh no! Are they itching or anything? I have no

> clue.

>

> Christie

> *Momi* of Sara 9, Sabaa 6, Alia 5, Hana 3 mos

> (DS/Complete AV Canal

> Defect scheduled to be repaired July 31st) and Lily

> the cat!!!

>

> On Mon, 8 Jul 2002 10:53:35 -0500 " Kay Tabor "

> <fishmiss@...>

> writes:

> > Hi all,

> > My who is almost 3 has devoloped a rash .

> It began like

> > prickly heat with small pin point bumps ( Saturday

> night) and is

> > now blistering. It is on his legs and feet which

> are swollen.

> > Today it is on his arms ans diaper area. Starting

> on his trunk.

> > Any ideas?

> > He has had a Chicken Pox Vac.

> > Kay and

>

________________________________________________________________

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March 17, 2003

Hi a,

I have a son who has eczema & scratches allot....I use cocoa butter cream on

him and it helps him. You might also want to try Aveeno cream. It has an

oatmeal base and may help.

Hope this helps!

Chris

NY

greywolf70@...

> My rash is back on my hands and elbows. I've tried hydrocortisone cream

and

> benadryl cream and it doesn't help. At times it itches so bad I've felt

> like clawing my skin off. Any suggestions?

>

> a , Administrative Assistant

> Faribault Foods, Inc.

> 3380 Mithun Tower

> 222 South 9th Street

> Minneapolis, MN 55402

>

> Tele: 612-333-6461

> Fax: 612-342-2908

>

March 17, 2003

a, they used to have a clear jell out that had benzocaine in it. It

would numb the area. I used it for my daughter for years. See if you can

find something like that and I also have had relief from the Aveeno. Good

luck, Melt

> > My rash is back on my hands and elbows. I've tried hydrocortisone cream

> and

> > benadryl cream and it doesn't help. At times it itches so bad I've felt

> > like clawing my skin off. Any suggestions?

> >

> > a , Administrative Assistant

> > Faribault Foods, Inc.

> > 3380 Mithun Tower

> > 222 South 9th Street

> > Minneapolis, MN 55402

> >

> > Tele: 612-333-6461

> > Fax: 612-342-2908

> >

March 17, 2003

As for the rash and when it is itchy, I have used a cream called Stop Itch.

It is made by Solorcaine.It seemed to work really well for me. Hope this

helps!

Patti~Ontario

>From: a <pjohnson@...>

>Reply-Stillsdisease

> " 'Stillsdisease ' " <Stillsdisease >

>Subject: Rash

>Date: Mon, 17 Mar 2003 09:56:07 -0600

>

>My rash is back on my hands and elbows. I've tried hydrocortisone cream

>and

>benadryl cream and it doesn't help. At times it itches so bad I've felt

>like clawing my skin off. Any suggestions?

>

>a , Administrative Assistant

>Faribault Foods, Inc.

>3380 Mithun Tower

>222 South 9th Street

>Minneapolis, MN 55402

>

>Tele: 612-333-6461

>Fax: 612-342-2908

>

March 20, 2003

Hi Patti,

Yes, I had a biopsy done on my rash, I'd say about ten years ago by my

Dermatologist. He said it was " Transient " something or another. He said

truck drivers get it on their upper legs and buttocks from sitting so much

and sweating there. It made sense at the time regarding them but the biopsy

was done on my arm so that part did not make sense to me. I think that he,

along with all my other doctors, grabbed at straws. It was hard getting a

biopsy as my rash would only come out around five or so and he was never in

his office that late. I offered to come to his house to show him but he gave

me one of those " I'll just play along " looks and didn't invite me, so I never

did. The biopsy he did must have been a lingering rash from the previous

night. I wish he was still practicing here or even living here now as I

would tell him a thing or two and ask him what lab gave him that info.

That's an interesting question about having the rash biopsied. I wonder if

anyone here has? I know my husband video taped my rash and I took it to show

to some doctor, who I can't remember, and he was not impressed as far as a

diagnosis from it. It's one of those things that if I could remember the

doctor, I'd go there and tell him that if he ever sees a rash like that

again, consider Stills.!!! )

My rashes never itched. Do yours? I don't remember what you said about

being diagnosed. Was it quick and easy? Thank goodness for Mayo Clinic!

I'll be interested to know if any other of us Stilligans' have been biopsied.

Take care.

Ca. Carmen

March 20, 2003

Patti i had like 2 done on me total of 4 samples they took and all came back

non-specific.They did give me sum med called Ketoconazole in cream and pill

form.Its supossedly used for yeast and fungus infections.But it didnt work so i

just stopped using it,plus i found out these pills were hard on the liver and my

dermy didnt know my i had liver problems.I was also using cortisone creams for

awhile they did not work either.Acually looked at my rash today on my back and

it was really red tonite,doesnt itch tho.Hope u have better luck than me finding

sumthin that work,and if u do let me know i would be interested.

d.Canada

rash

I do have a quick question here. UMmmm....has anyone ever had a biopsy done

on their rash? And if so what was the result? Has anyone out there been put

on more meds to deal with their rash?

Patti~Canada

Please take the time to check out my homepage at

http://www.angelfire.com/hi2/peppermintp

and leave me a message there or just email me back.

Love you all

PattiPike<IMG height=12 src= " http://g

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March 20, 2003

" ..... as my rash would only come out around five or so and he was never in

his office that late. I offered to come to his house to show him but he

gave

me one of those " I'll just play along " looks and didn't invite me, so I

never

did. " " ....

HAH! I said the same thing to my doc. Until I took prednisone, my rash came

and went like clockwork: It was pretty much gone in AM, and got worse as the

day wore on. My doctor appointments were always in early afternoon, when the

rash was usually just mild, instead of severe and systemic, like it got by

bedtime.

I never did show up at his door. But they put me in the hospital so they

could observe the rash cycle, among other more serious things.

-Brent

Re: rash