Another Question

[Guest guest]

Konnie,

To early to tell about dreams but at least if I dream I know I'm sleeping. Last nite was first dose and it was 1 1/2 mg and plan on going up 1/2 a day till reach the 4.5mg. I'm 77yo. therefore I am accustomed to leg cramps. Just mixed the DMSO-Distilled water with some cayenne pepper, alpha lipoic acid and co-Q10 and that tames down the cramps pretty quick.

Maybe the LDN will get more o2 to the legs and stop/slow gown the cramps.

Not expecting a great lot of help on the old lungs as too many years and too many smokes have my lung function down to 20% maybe less but a little improvement will mean a lot.

BTW, I quit the smokes over 10 yrs ago. Thought I'd get that in b4 getting preached too.[g]

Will post my progress as I go along. May be looking for a foot race in a couple months.

My best to you all...

[low dose naltrexone] Re: another question

Hey Cotton,When I first started on LDN, two months ago, for fibromyalgia,psoriasis, idiopathic neuropathies and some other autoimmunedisorders, I increased rapidly, within a week, from 1.5 to 4.5 mg.,though my doc, (PA) who had never prescribed LDN before, had advised aslow increase over a month or so. No problem. I figured that if I didhave some side effects, I might as well get that stage over anddone-with is quickly as possible. I only had some interestingly vividdreams - still do - and brief minor leg cramps, but I've had legcramps before, from the neuropathy, and on LDN they were not so bad.They have pretty much disappeared., along with my fibro-fog!I think, from what I read on this list, that the leg cramps seem to bea problem primarily in folks with MS. And maybe neuropathies.Funny, isn't it, that for a drug with so few, and such relativelyharmless side effects, we are so attentive to them :-) I was a bit apprehensive about starting LDN, as many others seem tobe, but the fears were really unwarranted, in my case at least.Did you have any trouble the first night? Please continue to keep thegroup informed of your progress. I should be interesting to see howLDN works for COPD, and if it has any effect on your b/p.Best of luck to you.Konnie>> I mixed 25 mg Nalt. tablet and took my first liquid dose of 1 1/2last > night. My question is: I have a> pretty strong immune system, judging from the fact I never get sickfrom > colds or flu when people all around me do. I take a lot ofsupplements. Am > I like to get the soreness and stiffness I keep reading about or isthat > mainly for MS and lowered immune systems? I would like to rapidly move> to 4.5 mg if I don't get sore. I only have COPD and HBP. Thank youall > very much...> > cotteni@...>

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.0/1462 - Release Date: 5/23/2008 7:20 AM

[Guest guest]

Interesting you do not get colds or flu. My son, who just turned 14

years old, has severe Crohn's and had never had a cold or flu in his

life. We always thought it was a little strange. Then he started LDN

and got his first cold about a week or so later. His older brother

had a bad cold at the time and we never protected our son with

Crohn's from being around people with colds because he never caught

them. Maybe not getting colds was a part of his immune system

malfunction and with the LDN he no longer has that. Not sure, but we

will trade Crohn's for colds any day if that is the case.

>

> I mixed 25 mg Nalt. tablet and took my first liquid dose of 1

1/2 last

> night. My question is: I have a

> pretty strong immune system, judging from the fact I never get sick

from

> colds or flu when people all around me do. I take a lot of

supplements. Am

> I like to get the soreness and stiffness I keep reading about or is

that

> mainly for MS and lowered immune systems? I would like to rapidly

move

> to 4.5 mg if I don't get sore. I only have COPD and HBP. Thank

you all

> very much...

>

> cotteni@...

>

[Guest guest]

Hi .... I think your theory may be right! And I have always felt that a good old fashion cold is a great natural way for our bodies to detox. How is your son? How long has he been on LDN - has his Crohns symptoms improved? My daughter has been on LDN for almost 6 months now and it has changed her life. Along with LDN she stays away from foods that she is allergic to (soy, gluten, yeast) and she also is on Sulfazine twice a day. But 6 months ago her previous doctor said that she MUST go on Remicade .... but Thank G-D I found LDN in the nick of time :-) . She no longer has pain, loss of weight, diaherrea (sp) etc. But the LDN took a few months and also we changed from capsules to the creme before she experienced real symptom relief. I remember posting asking and worrying that the LDN was not working yet and Dudley and others wrote back telling me to give it more time ... AND THEY WERE RIGHT ! - So this is a shout out to others from me ... Pls. continue to take your LDN even if you do not see results for the first few months or even longer -

I would love to know how your son is doing also. I wish him and everyone her the very best.

Take Good Care, a

In a message dated 5/25/2008 4:35:55 A.M. Eastern Daylight Time, sherryphipps@... writes:

Interesting you do not get colds or flu. My son, who just turned 14 years old, has severe Crohn's and had never had a cold or flu in his life. We always thought it was a little strange. Then he started LDN and got his first cold about a week or so later. His older brother had a bad cold at the time and we never protected our son with Crohn's from being around people with colds because he never caught them. Maybe not getting colds was a part of his immune system malfunction and with the LDN he no longer has that. Not sure, but we will trade Crohn's for colds any day if that is the case. >> I mixed 25 mg Nalt. tablet and took my first liquid dose of 1 1/2 last > night. My question is: I have a> pretty strong immune system, judging from the fact I never get sick from > colds or flu when people all around me do. I take a lot of supplements. Am > I like to get the soreness and stiffness I keep reading about or is that > mainly for MS and lowered immune systems? I would like to rapidly move> to 4.5 mg if I don't get sore. I only have COPD and HBP. Thank you all > very much...> > cotteni@...> Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

[Guest guest]

I've been the opposite, since being on LDN for 2 yrs and 8 months I haven't gotten a cold at all.

Hugs & Blessings,

Crystal

LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 8 months on LDN with Skip's Pharmacy.....

Crystal's MS,TM & LDN Website

Crystal's LDN Gift Shop

Crystal's LDN Support Group

Skip's Compounding Pharmacy

LDN Website

[low dose naltrexone] Re: another question

Interesting you do not get colds or flu. My son, who just turned 14 years old, has severe Crohn's and had never had a cold or flu in his life. We always thought it was a little strange. Then he started LDN and got his first cold about a week or so later. His older brother had a bad cold at the time and we never protected our son with Crohn's from being around people with colds because he never caught them. Maybe not getting colds was a part of his immune system malfunction and with the LDN he no longer has that. Not sure, but we will trade Crohn's for colds any day if that is the case. >> I mixed 25 mg Nalt. tablet and took my first liquid dose of 1 1/2 last > night. My

question is: I have a> pretty strong immune system, judging from the fact I never get sick from > colds or flu when people all around me do. I take a lot of supplements. Am > I like to get the soreness and stiffness I keep reading about or is that > mainly for MS and lowered immune systems? I would like to rapidly move> to 4.5 mg if I don't get sore. I only have COPD and HBP. Thank you all > very much...> > cotteni@...>

[Guest guest]

I haven't had a cold for a bout years then 2 weeks ago when we were in San Diego, I got the most horrible cold that I have ever had. Even though I lived in San Diego for 10 years, the last 4 years, we have been in Florida. There was such a big temp change(San Diego was having an unusual cold spell and FL was having the usual 90 degree temps), I knew that I was going to get one. Unfortunately, my MS is showing its ugly head right now because of the cold and traveling with an almost 4 year-old. My right hand is weak and painful. I'm pretty sure it is an symptom from an old lesion. I apparently have a lot that have not manifested in any real symptoms. Luckily, my husband is stepping up my

acupuncture treatments and I'm being even more strict with my diet, so I'm expecting it to pass soon.

Anyway, happy holidays everyone.

dx 2005-started Copaxone and acupuncture

LDN 2007-off Copaxone

Juiceplus

[Guest guest]

I have some severe problems with my cervical disc's, spurs, I have two sets of

plates and screws from a double fusion, and no disc at c6 level, and I get that

same sensation when I am more active, like turning my head a lot, kinda feels

like being hit with a baseball bat in the back of the head, (IMO thats what I

think it would feel like). Burning, sharp pain, and after a while just the

slight movement the muscles spasm's really tighten up like a rock.

Another Question

With a herniated cervical disc, is head pain/burning (in back of the

head) caused by the disc pressing on the nerve or could it be from

spasms. Seems like I get this on days I'm more active?

Thanks,

Ang

[Guest guest]

It's more likely from spasms, and yes, it can burn! ---

Another Question

With a herniated cervical disc, is head pain/burning (in back of the

head) caused by the disc pressing on the nerve or could it be from

spasms. Seems like I get this on days I'm more active?

Thanks,

Ang

[Guest guest]

I forget where, but a country where they grow and eat a lot of

coconuts has been reported to have little yeast (makes sense).

(Probably saw that on a coconut oil site).

Vicky

>

> Is there a culture that rarely gets yeast infections or vaginoses? I

> know diet plays a huge role so I thought that if we knew of a culture

> that doesnt have problems with it that we could just mimic their diet.

>

[Guest guest]

Tabitha

 

Problem is that their environment may also play a part - not just their diet, or

their stress free lifestyle, or pollution level, or living near dangerous

hazards. Our houses can also make us sick  for instance (sick building

syndrome- eg carpets that harbour mold spores). We cant be sure that its just

diet. I live in a long house with few windows or light sources, and mould easily

forms in the  bathroom.

 

Helen

From: tabitha.wilbur <tabitha.wilbur@...>

Subject: Another question

candidiasis

Received: Wednesday, 12 November, 2008, 2:36 AM

Is there a culture that rarely gets yeast infections or vaginoses? I

know diet plays a huge role so I thought that if we knew of a culture

that doesnt have problems with it that we could just mimic their diet.

Make the switch to the world & #39;s best email. Get 7 Mail!

http://au./y7mail

[Guest guest]

>

> Hi Bee & everyone,

>

> I posted yesterday about my husband , my name is Traci.

>

> I think the diet he is on is correct - he is following your diet

> eating fish, chicken, red meat, eggs and the correct low carb

> veggies. We are still working with an intergrative dr as we are a

> bit scared to go it alone, although says he takes into

> consideration what the Dr says and then makes up his own mind. Dr's

> have got him nowhere in 3 years!! The dr wants him to take

Collodial

> Silver next whats is your opinion of this product Bee?

+++Hi Traci. I do not recommend taking collodial silver under any

circumstances. There are so many other things that do the same thing

they claim collodial silver does - see Collodial Mineral Dangers:

http://www.healingnaturallybybee.com/articles/mn7.php

> He was taking a yoghurt product called Progurt that you make

yourself with a powedered probiotic - its a human strain of

bacteria. He has since gone off it since reading your site. However,

when he was on it he was doing perfect stools - now he is having

diarreah He was a bit better the last few days but today he has

diarreah, dizzy on rising, the white tongue is back and the usual bad

brainfog & fatigue. At the moment he is getting 1 reasonable day to 6

bad days.

+++His symptoms are all part of the healing crisis, which aren't

pleasant, but they should make him feel secure that what he is doing

is working.

> He wants to start the fermented veggies - he has next to no tummy

acid and takes about 7 HCL with each meal. Does the tummy eventually

make its own acid again?

+++Yes, the stomach too will normalize and make enough stomach acid.

Over time he should be able to lower the HCl.

The best to you and your hubby,

Bee

[Guest guest]

I never had a problem with digestion before beginning the diet- but now if I eat

a meal that doesnt follow the food combining rules, I get really bloated/gassy-

I guess because my system is so 'clean'?  I used to have an iron stomach- now I

have to baby my tummy.

 

Not sure about the water.  I also drink a lot of tea, but force down a lot of

pure water in addition.

-Sara

From: alex_tunbridge <alex.tunbridge@...>

Subject: [ ] Another question

Date: Thursday, January 1, 2009, 4:14 PM

Hi All,

Sorry I know I am asking a lot of questions at the moment, but here goes.

When I'm going through a very bad patch as I am at the moment not only

does my fatigue/brainfog become worse, but also my digestion seems to

go backwards as well. For instance I just bad a bowl of chicken soup

and I feel very bloated as a result (normally chicken soup would

digest better then this). Does anybody else find that their digestion

get worse when going through a bad period of die-off?

Also I have a lot of trouble drinking water. If i drink room

temperature water then I get very bloated (i.e the water just sits in

my tummy like a brick). So I normally drink herbal teas as I find that

these don't cause the same bloating in me.

Regards,

[Guest guest]

>

> Hi All,

>

> Sorry I know I am asking a lot of questions at the moment, but here

goes.

>

> When I'm going through a very bad patch as I am at the moment not

only

> does my fatigue/brainfog become worse, but also my digestion seems

to

> go backwards as well. For instance I just bad a bowl of chicken soup

> and I feel very bloated as a result (normally chicken soup would

> digest better then this). Does anybody else find that their

digestion get worse when going through a bad period of die-off?

+++Hi . Bloating doesn't mean the chicken soup isn't being

digested properly. Chicken soup is also antifungal, so your

reactions are die-off symptoms since candida releases carbon dioxide

when it is killed off. Antifungals also kill off candida in the

stomach and intestines.

+++Also during healing your body will " retrace " all previous

symptoms, diseases, illnesses, injuries, medical and dental

treatments, drugs and procedures, etc. - according to Hering's Law of

Cure - go to the SiteMap on my website to find the article.

>

> Also I have a lot of trouble drinking water. If i drink room

> temperature water then I get very bloated (i.e the water just sits

in my tummy like a brick). So I normally drink herbal teas as I find

that these don't cause the same bloating in me.

+++That's good tea helps you. You also shouldn't be " trying to "

drink lots of water either - too much water causes its own set of

problems. You should have Bee's Electrolyte Drink, 6 ounces 6 times

a day however (3 with meals which aids digestion) since it provides

proper minerals so water can be utilized by the body's cells.

The best, Bee

[Guest guest]

Diane ---

DON'T DO IT !!!! Do not take the chance -- yes it is very serious that you are

immunocompromised and no you are not over reacting. be an advocate for your own

health, i would stay away too in that situation.......jen p

From: diane crawford <nuttynurse25@...>

Subject: [ ] another question

Date: Wednesday, March 18, 2009, 7:23 PM

I am a nurse and know the answer..I just wanted to make sure I am not over

racting...My sister called me today..She has a sinus and ear infection..ITS

MRSA!!!!!!!! ! So, I told her I needed to stay away form her for awhile...She

said YOu just have to have good hand washing techniques.. .She was more worried

about her grandson than me being immunocompromised! !!!!!!!!

any thoughts.... ...

diane in ohio

[Guest guest]

Me, too. No use flirting with danger.

Sue

On Mar 18, 2009, at 8:04 PM, jennifer paquet wrote:

> Diane ---

> DON'T DO IT !!!! Do not take the chance -- yes it is very serious

> that you are immunocompromised and no you are not over reacting. be

> an advocate for your own health, i would stay away too in that

> situation.......jen p

>

[Guest guest]

Diane,

My son was diagnosed 4 years ago when he was in high school with MRSA in the

throat. I try to be as clean as possible, i.e. washing hands and I did stop

cleaning his bathroom, he had to start doing that himself but that's the only

change I made. Nothing happened. I think if we all knew what we really are

exposed to, we'd never leave our homes.

Good Luck, in PA

[ ] another question

I am a nurse and know the answer..I just wanted to make sure I am not over

racting...My sister called me today..She has a sinus and ear infection..ITS

MRSA!!!!!!!!! So, I told her I needed to stay away form her for awhile...She

said YOu just have to have good hand washing techniques...She was more worried

about her grandson than me being immunocompromised!!!!!!!!!

any thoughts.......

diane in ohio

[Guest guest]

Hi,

My boyfriend has MRSA and I sleep with him in the same bed every night. In fact

we have been together for the last 3 years. When he has an outbreak, I am very

cautious, Where gloves when helping him clean them out, make sure I keep my

hands extra clean, use antibacterial cleaner and he keeps the outbreaks covered

with an antibotic bandaid or we put antibotic cream on them with gauze depending

on the size of them. I have not become comprimised by him having this at all.

I just become extra cautious when he does have issues with it.

[ ] another question

I am a nurse and know the answer..I just wanted to make sure I am not over

racting...My sister called me today..She has a sinus and ear infection..ITS

MRSA!!!!!!!!! So, I told her I needed to stay away form her for awhile...She

said YOu just have to have good hand washing techniques...She was more worried

about her grandson than me being immunocompromised!!!!!!!!!

any thoughts.......

diane in ohio

[Guest guest]

 

 

I know you can get a infection anywhere but if you know you have something than

YOU should be respecful

of that...Any ways I just fear the risperatory infections he most..I do use

neosporin in my

nostrils..that what they do anyways if you have mrsa in the nostrils...thanks

 

diane in ohio

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[Guest guest]

Hi, my doctor wants me to have a chest x-ray although I am not yet

taking any anti-RA drugs (my dx right now is " symmetrical inflammatory

arthropathy " , with possible " emerging RA " ). I also had a TB blood test.

Can you direct me to the most helpful websites discussing the lung-RA

connection? thank you.

>

> >

>

> > Has this ever happened to anyone? Last week my chest xray showed I

>

> had upper

>

> > right lobe pneumonia. I went to my primary doc, and he said he

>

> didn't think

>

> > it was pneumonia because I was showing no signs of pneumonia. I have

had

>

> > pneumonia before and I know I wasn't feeling like I did when I was

>

> sick with

>

> > pneumonia. Well he ordered a CT scan just to be sure, and he just

>

> called me

>

> > with the results, and the scan showed that whatever was in my right

>

> upper

>

> > lobe had cleared up, but now it was showing up in my left lower

>

> lobe. This

>

> > is so weird. The past few days I have been feeling sickly like I am

>

> coming

>

> > down with something. Severe fatigue. Sometimes it just wears my out

>

> walking

>

> > from the couch to the doorway. Low grade fever, etc. Also according

>

> to the

>

> > radiologist this has to do with Rheumatoids. Thats the word he used

>

> > Rheumatoids " . My primary doesn't want to order antibiotics just

>

> yet. I go

>

> > see my Rheumy on Monday, and I think he wants him to deal with it

>

> since it

>

> > has something to do with rheumatoids.

>

> >

>

> > Well.......if anyone knows anything bout dis hea.....please let me

know.

>

> > Starting to feel like a circus freak. LOL!

>

> >

>

> > Hugs to all

>

> >

>

> >

>

> >

>

> >

>

> >

[Guest guest]

Diane

You are right. Even with good handwashing when you have a compromised immune

system, it makes it so easy to catch anything. Think about the hospital, I

know when I made assignments, anyone with auto-immune problems did not rtake

care of MRSA patinest and there was a sing on the door telling those with

compromised immune systems to stay out.I wuld think her grandson might want

to keep his distance I mean little kids want to get up in your face, kiss

you drink after you. Her call but I think you are right

Heidibug

On Wed, Mar 18, 2009 at 7:23 PM, diane crawford <nuttynurse25@...>wrote:

> I am a nurse and know the answer..I just wanted to make sure I am not

> over racting...My sister called me today..She has a sinus and ear

> infection..ITS MRSA!!!!!!!!! So, I told her I needed to stay away form her

> for awhile...She said YOu just have to have good hand washing

> techniques...She was more worried about her grandson than me being

> immunocompromised!!!!!!!!!

>

> any thoughts.......

>

> diane in ohio

>

>

>

[Guest guest]

Beth,

Your rheumatologist is being smart and cautious.

Since both RA and some of the DMARDs can cause lung problems, he wants

to know your status before you begin treatment. If there is no

baseline, it's hard to know what's going on if lung problems should

arise.

Not an MD

On Thu, Mar 19, 2009 at 1:05 PM, marybethvogt <mbvogt1@...> wrote:

> Hi, my doctor wants me to have a chest x-ray although I am not yet

> taking any anti-RA drugs (my dx right now is " symmetrical inflammatory

> arthropathy " , with possible " emerging RA " ). I also had a TB blood test.

> Can you direct me to the most helpful websites discussing the lung-RA

> connection? thank you.

[Guest guest]

beth,

My hubby was diagnosed with RA and rheumatoid lung last September. The RA is

attacking his lungs. His lung doctor said that a large percentage of people

with RA have lung involvement and don't know it.

I think it's great that your doctor wants you to have a chest xray.

Lynn in Louisiana, hubby with PF caused by RA

>

> Hi, my doctor wants me to have a chest x-ray although I am not yet

> taking any anti-RA drugs (my dx right now is " symmetrical inflammatory

> arthropathy " , with possible " emerging RA " ). I also had a TB blood test.

> Can you direct me to the most helpful websites discussing the lung-RA

> connection? thank you.

[Guest guest]

i do not see a problem with

Lomotil but maybe ldn cream is better for you.

>

> Another question to my previous one.

>

> Because of the IBS and other digestive issues, I have taken Lomotil and I

assume I am not able to take it with the LDN. Any other suggestions to slow

down the bowel.

>

> Thanks.

>

> Marty

>

[Guest guest]

Hi rebecca,

I've been asking myself the same question. I've never been so much scare in my

whole life that I can't sleep in peace.

>

> lets be hypothetical here and say that the authorities have put me in jail

> for refusing to have my kids vaccinated, what will happen to my kids? Will

> they be taken by Social Services and given the vaccines anyway while I'm

> stuck in jail? I for one do not believe that it will ever get that far, and

> am sure that we will be able to self quarantine, but maybe thats just the

> sheep in me trying to come back out, he he.

>

[Guest guest]

Hi rebecca,

I've been asking myself the same question. I've never been so much scare in my

whole life that I can't sleep in peace.

>

> lets be hypothetical here and say that the authorities have put me in jail

> for refusing to have my kids vaccinated, what will happen to my kids? Will

> they be taken by Social Services and given the vaccines anyway while I'm

> stuck in jail? I for one do not believe that it will ever get that far, and

> am sure that we will be able to self quarantine, but maybe thats just the

> sheep in me trying to come back out, he he.

>

[Guest guest]

I have asked the same question as well.

> >

> > lets be hypothetical here and say that the authorities have put me in jail

> > for refusing to have my kids vaccinated, what will happen to my kids? Will

> > they be taken by Social Services and given the vaccines anyway while I'm

> > stuck in jail? I for one do not believe that it will ever get that far, and

> > am sure that we will be able to self quarantine, but maybe thats just the

> > sheep in me trying to come back out, he he.

> >

>