Re: My 2.5 yr old diagnosed with Autism spectrum disorder

[Guest guest]

How are they 4 sure this is Autism? Nothing you listed screams to me autism.

My 2nd child did a lot these things and after an MRI discovered he was born with

PVL - and is not austisic in anyway.... And at age 2.5 why is it not okay to

just be side by side playing? 99% Of my kids from my mothers group does that. I

GUESS...Im just confused by this diagnosis. I can only imagine what you must be

feeling as her momma.

carlena

My 2.5 yr old diagnosed with Autism spectrum disorder

My daughter, NEVER vaccinated, was diagnosed yesterday with ASD. Some of the

signs;

She is a late developer, late getting teeth, walking at 18 months, very careful,

is an easy child. Does not play with other children, Still not talking, making

tons of long sentences that do not make sense, she has about 8 words, that are

some-what clear. She was saying more words up until 1.5 yrs, then she regressed

to no speech only dadadada, speech started again 9 months later, but it's not

all clear. Words are there, they just need to come out, we know she can hear.

she responds to my i-pad apps for toddlers, knows the alphabet, shapes, colors,

objects numbers etc..She does make eye contact and is one of the most loving

children I know. she hugs her little friend only a month older, and hugs people

she knows. But avoids children she does not know. will play parallel to them,

not with them. She spins around about 4 times a week for about a 30 seconds

and giggles, use to do it more often. She does line up her toys, mostly

animals, groups them in size and type. I've seen my friends boy play this way

too at age 3. Her favorite things in lif

[Guest guest]

Marica,

I want to give you a big hug and let you know everything will be OK, for some reason, I don't know why that is the reaction, I will explain, years ago my brother and his wife had there second son and to every ones surprise he was born with down syndrome, with no family history. My initial reaction was to cry and cry and cry and tell them "I'm so sorry".... My brother Say's "Why are you sorry?" "He is a blessing and we love him no matter what" " sure he might be a little different but aren't we all" I was so moved by my brothers reaction. So to you I say, she is a blessing and I bet she is beautiful and precious! try to find more people with like situations to surround your self with.

~Anne

From: Marica <maricagarvey@...>Subject: My 2.5 yr old diagnosed with Autism spectrum disorderVaccinations Date: Wednesday, April 20, 2011, 7:31 PM

My daughter, NEVER vaccinated, was diagnosed yesterday with ASD. Some of the signs; She is a late developer, late getting teeth, walking at 18 months, very careful, is an easy child. Does not play with other children, Still not talking, making tons of long sentences that do not make sense, she has about 8 words, that are some-what clear. She was saying more words up until 1.5 yrs, then she regressed to no speech only dadadada, speech started again 9 months later, but it's not all clear. Words are there, they just need to come out, we know she can hear. she responds to my i-pad apps for toddlers, knows the alphabet, shapes, colors, objects numbers etc..She does make eye contact and is one of the most loving children I know. she hugs her little friend only a month older, and hugs people she knows. But avoids children she does not know. will play parallel to them, not with them. She spins around about 4 times a week for about a 30 seconds and

giggles, use to do it more often. She does line up her toys, mostly animals, groups them in size and type. I've seen my friends boy play this way too at age 3. Her favorite things in life are books, picture books. Se can spend hours with her books. she does drag me around everywhere, some-times gets me involved in her play. She is very loving and hugs about 2 dozen times a day at least. Our dog also gets tons of hugs and love. If there is a mom or dad in this group that has a child with ASD, please reach out to me. I need support. There is no diagnosed autism in her genetics, but there is a brilliant but anti-social physicist, my husbands sister who is a loner and does not like people, she is smart but lazy, likes to be alone and reading. About 4 members of the family are super smart and have excelled greatly in their careers but are not social people. My daughter will be attending speech and behavioral therapy.

Marica.

[Guest guest]

Hi Marica

So sorry for the diagnosis - but that is all it is - a label

Did she have antibiotics in utero, labor and delivery, or post

delivery via breastmilk or directly?

I can't remember if you have worked with a homeopath? Sorry, I can't remember

Sheri

At 04:31 PM 4/20/2011, you wrote:

>My daughter, NEVER vaccinated, was diagnosed yesterday with ASD.

>Some of the signs;

>She is a late developer, late getting teeth, walking at 18 months,

>very careful, is an easy child. Does not play with other children,

>Still not talking, making tons of long sentences that do not make

>sense, she has about 8 words, that are some-what clear. She was

>saying more words up until 1.5 yrs, then she regressed to no speech

>only dadadada, speech started again 9 months later, but it's not all

>clear. Words are there, they just need to come out, we know she can

>hear. she responds to my i-pad apps for toddlers, knows the

>alphabet, shapes, colors, objects numbers etc..She does make eye

>contact and is one of the most loving children I know. she hugs her

>little friend only a month older, and hugs people she knows. But

>avoids children she does not know. will play parallel to them, not

>with them. She spins around about 4 times a week for about a 30

>seconds and giggles, use to do it more often. She does line up her

>toys, mostly animals, groups them in size and type. I've seen my

>friends boy play this way too at age 3. Her favorite things in life

>are books, picture books. Se can spend hours with her books. she

>does drag me around everywhere, some-times gets me involved in her

>play. She is very loving and hugs about 2 dozen times a day at

>least. Our dog also gets tons of hugs and love.

>

>If there is a mom or dad in this group that has a child with ASD,

>please reach out to me. I need support. There is no diagnosed

>autism in her genetics, but there is a brilliant but anti-social

>physicist, my husbands sister who is a loner and does not like

>people, she is smart but lazy, likes to be alone and reading. About

>4 members of the family are super smart and have excelled greatly in

>their careers but are not social people.

>My daughter will be attending speech and behavioral therapy.

>

>Marica.

>

>

>

>

>

>------------------------------------

>

>

[Guest guest]

Good job momma for realizing she needed you! I dont know any other child @ 2yrs

old that's ready 4 preschool. It's hard when you are 1st time mom, even as a

4th time mom, I still wonder or question things. But that's why we have this

group.

carlena

Re: My 2.5 yr old diagnosed with Autism spectrum

disorder

Carlena, you are right. I spent a day being angry, a day crying and another day

with my head high and kicking my self for taking these doctors seriously. I'm a

first time parent. The way she ended up seeing a specialist is because she was

not ready to be left at pre-school on her own. She cried for mommy in the

beginning and at the end. I was outside her classroom and went in after she

started crying. Her teacher said she was different and would not play like the

other children, she spent a lot of time with the books instead. Turns out she is

not ready for pre-school at age 2-21/2, and would prefer to be at home with

mommy, so I gave her that and she has been very happy since.

thank you every-one for your great support! it has helped me pick up my head.

we adore her no matter what!!

>

> How are they 4 sure this is Autism? Nothing you listed screams to me autism.

My 2nd child did a lot these things and after an MRI discovered he was born with

PVL - and is not austisic in anyway.... And at age 2.5 why is it not okay to

just be side by side playing? 99% Of my kids from my mothers group does that. I

GUESS...Im just confused by this diagnosis. I can only imagine what you must be

feeling as her momma.

>

>

>

[Guest guest]

It seems to me the only real problem is the speech. I think it makes perfect sense for a child of any age who is not communicating clearly to avoid those who do. Do NOT get hung up on these labels. She sounds perfectly normal otherwise--just needs some work in one area. Don't we all?

I also have a son who was a very late talker (4 1/2), who spoke absolute gibberish until then, when we got him some Sensory Integration Therapy (spinning was part of that, by the way--great for language development. Get her a Sit and Spin. They make even better ones you can get through a catalog). He appeared not to interact with any of us when we were reading books or whatever, but when we stopped he would look up and ask for more. He was just observing on the sidelines in his own way, on the shy side, and even now at almost 19 is very thoughtful about what he chooses to do. He is the smartest of all my kids, very talented and has lots of friends. So will your daughter.

You are doing the right thing to get the speech and behavioral therapy in order to cover all bases, but don't get wigged out at the "diagnosis." Some kids concentrate on developing physically and mentally at separate times. You say her speech regressed at 18 months right when she began walking. Think about it. She sounds like a delightful child.

Winnie

My 2.5 yr old diagnosed with Autism spectrum disorderVaccinations > My daughter, NEVER vaccinated, was diagnosed yesterday with ASD. > Some of the signs; > She is a late developer, late getting teeth, walking at 18 > months, very careful, is an easy child. Does not play with > other children, Still not talking, making tons of long sentences > that do not make sense, she has about 8 words, that are some-> what clear. She was saying more words up until 1.5 yrs, then she > regressed to no speech only dadadada, speech started again 9 > months later, but it's not all clear. Words are there, they > just need to come out, we know she can hear. she responds to my > i-pad apps for toddlers, knows the alphabet, shapes, colors, > objects numbers etc..She does make eye contact and is one of the > most loving children I know. she hugs her little friend only a > month older, and hugs people she knows. But avoids children she > does not know. will play parallel to them, not with them. She > spins around about 4 times a week for about a 30 seconds and > giggles, use to do it more often. She does line up her toys, > mostly animals, groups them in size and type. I've seen my > friends boy play this way too at age 3. Her favorite things in > life are books, picture books. Se can spend hours with her > books. she does drag me around everywhere, some-times gets me > involved in her play. She is very loving and hugs about 2 dozen > times a day at least. Our dog also gets tons of hugs and love. > > If there is a mom or dad in this group that has a child with > ASD, please reach out to me. I need support. There is no > diagnosed autism in her genetics, but there is a brilliant but > anti-social physicist, my husbands sister who is a loner and > does not like people, she is smart but lazy, likes to be alone > and reading. About 4 members of the family are super smart and > have excelled greatly in their careers but are not social > people. > My daughter will be attending speech and behavioral therapy. > > Marica.> > > >

[Guest guest]

Please do not get hung up on labels and set in concrete milestones. As a child, I did not talk until age three. I have a sister who did not walk until she was two years old - she was an excellent student in school and today is a doctor and successful business person. The trick is my mom never took us to a doctor to get labeled. ~ Maureen R. Gradvohl ~ From: "wharrison@..."

<wharrison@...>Vaccinations Sent: Wed, April 20, 2011 4:10:55 PMSubject: Re: My 2.5 yr old diagnosed with Autism spectrum disorder

It seems to me the only real problem is the speech. I think it makes perfect sense for a child of any age who is not communicating clearly to avoid those who do. Do NOT get hung up on these labels. She sounds perfectly normal otherwise--just needs some work in one area. Don't we all?

I also have a son who was a very late talker (4 1/2), who spoke absolute gibberish until then, when we got him some Sensory Integration Therapy (spinning was part of that, by the way--great for language development. Get her a Sit and Spin. They make even better ones you can get through a catalog). He appeared not to interact with any of us when we were reading books or whatever, but when we stopped he would look up and ask for more. He was just observing on the sidelines in his own way, on the shy side, and even now at almost 19 is very thoughtful about what he chooses to do. He is the smartest of all my kids, very talented and has lots of friends. So will your daughter.

You are doing the right thing to get the speech and behavioral therapy in order to cover all bases, but don't get wigged out at the "diagnosis." Some kids concentrate on developing physically and mentally at separate times. You say her speech regressed at 18 months right when she began walking. Think about it. She sounds like a delightful child.

Winnie

My 2.5 yr old diagnosed with Autism spectrum disorderVaccinations > My daughter, NEVER vaccinated, was diagnosed yesterday with ASD. > Some of the signs; > She is a late developer, late getting teeth, walking at 18 > months, very careful, is an easy child. Does not play with > other children, Still not talking, making tons of long sentences > that do not make sense, she has about 8 words, that are some-> what clear. She was saying more words up until 1.5 yrs, then she > regressed to no speech only dadadada, speech started again 9 > months later, but it's not all clear. Words are there, they > just need to come out, we know she can hear. she responds to my > i-pad apps for toddlers, knows the alphabet, shapes, colors, >

objects numbers etc..She does make eye contact and is one of the > most loving children I know. she hugs her little friend only a > month older, and hugs people she knows. But avoids children she > does not know. will play parallel to them, not with them. She > spins around about 4 times a week for about a 30 seconds and > giggles, use to do it more often. She does line up her toys, > mostly animals, groups them in size and type. I've seen my > friends boy play this way too at age 3. Her favorite things in > life are books, picture books. Se can spend hours with her > books. she does drag me around everywhere, some-times gets me > involved in her play. She is very loving and hugs about 2 dozen > times a day at least. Our dog also gets tons of hugs and love. > > If there is a mom or dad in this group that has a child with > ASD, please reach out to me. I

need support. There is no > diagnosed autism in her genetics, but there is a brilliant but > anti-social physicist, my husbands sister who is a loner and > does not like people, she is smart but lazy, likes to be alone > and reading. About 4 members of the family are super smart and > have excelled greatly in their careers but are not social > people. > My daughter will be attending speech and behavioral therapy. > > Marica.> > > >

[Guest guest]

I, personally, would fight that label only b/c what you are describing is not

autism to my ears but *gifted* with a speech delay. She has wonderful social

skills it sounds like! But, that's me. I strongly recommend that you read this

article and take further steps to research your child's probable gifts that seem

to be misdiagnosed.

http://www.sengifted.org/articles_counseling/Amend_MisdiagnosisOfAspergersDisord\

er.shtml

PLEASE get and read this book before allowing any treatments whatsoever on your

child. You are entitled to make an *informed* decision about the medical

treatment of your child and you have not been given all the facts yet. I would

*delay* any further medical intervention until reading this book. I would also

find a psychologist that is **well known for working with gifted children**. I

would find a gifted school in your area and call up and ask for who they

recommend for testing of your child. That way you know the doctor is used to

seeing gifted children. AFter you see that doctor, then decide if this Austism

label is warranted for your child.

http://www.amazon.com/Misdiagnosis-Diagnoses-Gifted-Children-Adults/dp/091070764\

2

Why does she need " behavorial therapy " ? What is she doing that makes her need

that? I see nothing in your post at all that would warrant what I understand to

be behavioral therapy. You can deny that particular service until later after

speech therapy if you then decide it is warranted. I would get a second opinion

also. I do not know where you live and how much expertise the doctors have in

your area.

I would get speech therapy and that's all for right now. ly, lots of

extremely gifted children are naturally late talkers and I'd wait until 3yo. But

again, that's me. Every child spins around sometimes. Every child avoids

strangers sometimes. Most extremely gifted children read books instead of

playing with other average intelligence children. Many doctors are completely

unaware of this and will put a disorder where there is none. This is classic.

You can read about it in " Misdiagnosis of

http://www.sengifted.org/articles_counseling/Webb_MisdiagnosisAndDualDiagnosisOf\

GiftedChildren.shtml

Please visit TAGMAX, an open public listserv for gifted children and start

asking questions about your child's behaviours. You will get many parents

willing to give you pointers from their btdt experience.

> >My daughter, NEVER vaccinated, was diagnosed yesterday with ASD.

> >Some of the signs;

> >She is a late developer, late getting teeth, walking at 18 months,

> >very careful, is an easy child. Does not play with other children,

> >Still not talking, making tons of long sentences that do not make

> >sense, she has about 8 words, that are some-what clear. She was

> >saying more words up until 1.5 yrs, then she regressed to no speech

> >only dadadada, speech started again 9 months later, but it's not all

> >clear. Words are there, they just need to come out, we know she can

> >hear. she responds to my i-pad apps for toddlers, knows the

> >alphabet, shapes, colors, objects numbers etc..She does make eye

> >contact and is one of the most loving children I know. she hugs her

> >little friend only a month older, and hugs people she knows. But

> >avoids children she does not know. will play parallel to them, not

> >with them. She spins around about 4 times a week for about a 30

> >seconds and giggles, use to do it more often. She does line up her

> >toys, mostly animals, groups them in size and type. I've seen my

> >friends boy play this way too at age 3. Her favorite things in life

> >are books, picture books. Se can spend hours with her books. she

> >does drag me around everywhere, some-times gets me involved in her

> >play. She is very loving and hugs about 2 dozen times a day at

> >least. Our dog also gets tons of hugs and love.

> >

> >If there is a mom or dad in this group that has a child with ASD,

> >please reach out to me. I need support. There is no diagnosed

> >autism in her genetics, but there is a brilliant but anti-social

> >physicist, my husbands sister who is a loner and does not like

> >people, she is smart but lazy, likes to be alone and reading. About

> >4 members of the family are super smart and have excelled greatly in

> >their careers but are not social people.

> >My daughter will be attending speech and behavioral therapy.

> >

> >Marica.

> >

> >

> >

> >

> >

> >------------------------------------

> >

> >

[Guest guest]

Hi Marica,My son was diagnosed on the autism spectrum when he was around 18 months old and he was never vaccinated as well. We went the biomedical route couples with speech and occupational therapy and now he is very close to recovered. The key is healing the gut. Once that starts to happen they start to lose their autistic behaviors. My son used to flap his arms and bounce on the stairs for hours. He used to bang his head on his crib, carseat and highchair. He could only say mama and it was to anything, not even directed to me. He cried whenever there were loud sounds, i.e. if they laughed too loud, if the doorbell rang, if the vaccuum cleaner went on. If we brought him around other children who were playing age appropriate he got freaked out and

overwhelmed sensorily and would freeze or cling to us scared for his life. He did not respond to his name. He had either diarrhea or constipation and his bowel movements stunk to high heaven. The thing that always gave me hope was that he had great eye contact and was very loving with us. We were always able to find a connection with him emotionally. I would suggest that you read the book "Healing the New Childhood Epidemics: Autism, ADHD, Asthma and Allergies". by Dr. Bock. He lays out what is physically wrong with the child to cause these four "A's" and details the various treatments that are used biomedically to heal these children. Once we started to heal my sons gut he responded to his name, he stopped banging his head on everything, he stopped stimming and flapping on the stairs, he started to play appropriately with his peers, he had formed and regular bowel movements that didn't

stink horribly from the clostridia infections he used to have. We have a child who is no longer in constant pain. He is at grade level academically. We are constantly trying to keep his gut into check. We know when he is having problems because his speech starts to deteriorate. We have to treat with Flagyl(anti-clostridia) and Nizoral(anti-yeast) for a month and follow up with heavy duty probiotics and his speech improves dramatically. This is a daily battle for us but he is living proof that this can and does work. Now different kids respond differently to the various treatments so it is important to work with a reputable DAN! (Defeat Autism Now) physician who can help you come up with a plan for your child. They will run various tests (urine and blood) to see where you child stands and what they need to supplement with. The reason why you will ultimately need to work with a Dr. is because

often kids needs various prescriptions. I should probably stop here so that I don't overwhelm you. Where do you live? I might know a reputable DAN! Dr. in your are who can help. You can always email me offline with any questions. I am here because other mothers took the time to reach out to me and I am more than willing to pay it forward.Best, CameronFrom: Marica <maricagarvey@...>Vaccinations Sent: Wed, April 20, 2011 6:31:04

PMSubject: My 2.5 yr old diagnosed with Autism spectrum disorder

My daughter, NEVER vaccinated, was diagnosed yesterday with ASD. Some of the signs;

She is a late developer, late getting teeth, walking at 18 months, very careful, is an easy child. Does not play with other children, Still not talking, making tons of long sentences that do not make sense, she has about 8 words, that are some-what clear. She was saying more words up until 1.5 yrs, then she regressed to no speech only dadadada, speech started again 9 months later, but it's not all clear. Words are there, they just need to come out, we know she can hear. she responds to my i-pad apps for toddlers, knows the alphabet, shapes, colors, objects numbers etc..She does make eye contact and is one of the most loving children I know. she hugs her little friend only a month older, and hugs people she knows. But avoids children she does not know. will play parallel to them, not with them. She spins around about 4 times a week for about a 30 seconds and giggles, use to do it more often. She does line up her toys, mostly animals, groups them

in size and type. I've seen my friends boy play this way too at age 3. Her favorite things in life are books, picture books. Se can spend hours with her books. she does drag me around everywhere, some-times gets me involved in her play. She is very loving and hugs about 2 dozen times a day at least. Our dog also gets tons of hugs and love.

If there is a mom or dad in this group that has a child with ASD, please reach out to me. I need support. There is no diagnosed autism in her genetics, but there is a brilliant but anti-social physicist, my husbands sister who is a loner and does not like people, she is smart but lazy, likes to be alone and reading. About 4 members of the family are super smart and have excelled greatly in their careers but are not social people.

My daughter will be attending speech and behavioral therapy.

Marica.

[Guest guest]

Sheri, i am working with a classical homeopath right now, ston, she

specializes in children. No antibiotic, was induced with pitocin, delivered

real fast after that, about 2 hours. Breast milk for 6 months, then she got

dis-interested on her own after tasting food.

I know it's just a dx, and that's what these psychologists do, they give Dx and

then send you to a program. I know she just needs speech therapy and some

social therapy, I think with speech her social will improve. My husband said

they give a ASD to et her into program that is government paid. How awful is

that?

I feel so much better after a cry, and reading all the great support on this

site. I've done everything from pre birth to now to ensure she was/is not

exposed to any chemicals.

I'm pretty sure she is just a late bloomer, it's in her genetics, my husband

did not ride a bike until he was 10, could not cut with scissors until age 7,

was real shy, his first girlfriend was at age 17 because he was so shy! and it

goes on...He is very smart and very social now.

> >My daughter, NEVER vaccinated, was diagnosed yesterday with ASD.

> >Some of the signs;

> >She is a late developer, late getting teeth, walking at 18 months,

> >very careful, is an easy child. Does not play with other children,

> >Still not talking, making tons of long sentences that do not make

> >sense, she has about 8 words, that are some-what clear. She was

> >saying more words up until 1.5 yrs, then she regressed to no speech

> >only dadadada, speech started again 9 months later, but it's not all

> >clear. Words are there, they just need to come out, we know she can

> >hear. she responds to my i-pad apps for toddlers, knows the

> >alphabet, shapes, colors, objects numbers etc..She does make eye

> >contact and is one of the most loving children I know. she hugs her

> >little friend only a month older, and hugs people she knows. But

> >avoids children she does not know. will play parallel to them, not

> >with them. She spins around about 4 times a week for about a 30

> >seconds and giggles, use to do it more often. She does line up her

> >toys, mostly animals, groups them in size and type. I've seen my

> >friends boy play this way too at age 3. Her favorite things in life

> >are books, picture books. Se can spend hours with her books. she

> >does drag me around everywhere, some-times gets me involved in her

> >play. She is very loving and hugs about 2 dozen times a day at

> >least. Our dog also gets tons of hugs and love.

> >

> >If there is a mom or dad in this group that has a child with ASD,

> >please reach out to me. I need support. There is no diagnosed

> >autism in her genetics, but there is a brilliant but anti-social

> >physicist, my husbands sister who is a loner and does not like

> >people, she is smart but lazy, likes to be alone and reading. About

> >4 members of the family are super smart and have excelled greatly in

> >their careers but are not social people.

> >My daughter will be attending speech and behavioral therapy.

> >

> >Marica.

> >

> >

> >

> >

> >

> >------------------------------------

> >

> >

[Guest guest]

> > >My daughter, NEVER vaccinated, was diagnosed yesterday with ASD.

> > >Some of the signs;

> > >She is a late developer, late getting teeth, walking at 18 months,

> > >very careful, is an easy child. Does not play with other children,

> > >Still not talking, making tons of long sentences that do not make

> > >sense, she has about 8 words, that are some-what clear. She was

> > >saying more words up until 1.5 yrs, then she regressed to no speech

> > >only dadadada, speech started again 9 months later, but it's not all

> > >clear. Words are there, they just need to come out, we know she can

> > >hear. she responds to my i-pad apps for toddlers, knows the

> > >alphabet, shapes, colors, objects numbers etc..She does make eye

> > >contact and is one of the most loving children I know. she hugs her

> > >little friend only a month older, and hugs people she knows. But

> > >avoids children she does not know. will play parallel to them, not

> > >with them. She spins around about 4 times a week for about a 30

> > >seconds and giggles, use to do it more often. She does line up her

> > >toys, mostly animals, groups them in size and type. I've seen my

> > >friends boy play this way too at age 3. Her favorite things in life

> > >are books, picture books. Se can spend hours with her books. she

> > >does drag me around everywhere, some-times gets me involved in her

> > >play. She is very loving and hugs about 2 dozen times a day at

> > >least. Our dog also gets tons of hugs and love.

> > >

> > >If there is a mom or dad in this group that has a child with ASD,

> > >please reach out to me. I need support. There is no diagnosed

> > >autism in her genetics, but there is a brilliant but anti-social

> > >physicist, my husbands sister who is a loner and does not like

> > >people, she is smart but lazy, likes to be alone and reading. About

> > >4 members of the family are super smart and have excelled greatly in

> > >their careers but are not social people.

> > >My daughter will be attending speech and behavioral therapy.

> > >

> > >Marica.

> > >

> > >

> > >

> > >

> > >

> > >------------------------------------

> > >

> > >

[Guest guest]

THANK YOU WINNIE, YOUR SON SOUNDS JUST LIKE MY DAUGHTER, WE READ TO ER BUT SHE

PREFERS TO LOOK AT HER OWN BOOKS, BUT SHE IS PAYING ATTENTION. IM GOING TO LOO

INTO THE SIT AND SPIN THING, AMAZON? PERHAPS.

MARICA

>

> It seems to me the only real problem is the speech. I think it makes perfect

sense for a child of any age who is not communicating clearly to avoid those who

do. Do NOT get hung up on these labels. She sounds perfectly normal

otherwise--just needs some work in one area. Don't we all?

>

> I also have a son who was a very late talker (4 1/2), who spoke absolute

gibberish until then, when we got him some Sensory Integration Therapy (spinning

was part of that, by the way--great for language development. Get her a Sit and

Spin. They make even better ones you can get through a catalog). He appeared not

to interact with any of us when we were reading books or whatever, but when we

stopped he would look up and ask for more. He was just observing on the

sidelines in his own way, on the shy side, and even now at almost 19 is very

thoughtful about what he chooses to do. He is the smartest of all my kids, very

talented and has lots of friends. So will your daughter.

>

> You are doing the right thing to get the speech and behavioral therapy in

order to cover all bases, but don't get wigged out at the " diagnosis. " Some kids

concentrate on developing physically and mentally at separate times. You say her

speech regressed at 18 months right when she began walking. Think about it. She

sounds like a delightful child.

>

> Winnie

>

> My 2.5 yr old diagnosed with Autism spectrum disorder

> Vaccinations

>

> > My daughter, NEVER vaccinated, was diagnosed yesterday with ASD.

> > Some of the signs;

> > She is a late developer, late getting teeth, walking at 18

> > months, very careful, is an easy child. Does not play with

> > other children, Still not talking, making tons of long sentences

> > that do not make sense, she has about 8 words, that are some-

> > what clear. She was saying more words up until 1.5 yrs, then she

> > regressed to no speech only dadadada, speech started again 9

> > months later, but it's not all clear. Words are there, they

> > just need to come out, we know she can hear. she responds to my

> > i-pad apps for toddlers, knows the alphabet, shapes, colors,

> > objects numbers etc..She does make eye contact and is one of the

> > most loving children I know. she hugs her little friend only a

> > month older, and hugs people she knows. But avoids children she

> > does not know. will play parallel to them, not with them. She

> > spins around about 4 times a week for about a 30 seconds and

> > giggles, use to do it more often. She does line up her toys,

> > mostly animals, groups them in size and type. I've seen my

> > friends boy play this way too at age 3. Her favorite things in

> > life are books, picture books. Se can spend hours with her

> > books. she does drag me around everywhere, some-times gets me

> > involved in her play. She is very loving and hugs about 2 dozen

> > times a day at least. Our dog also gets tons of hugs and love.

> >

> > If there is a mom or dad in this group that has a child with

> > ASD, please reach out to me. I need support. There is no

> > diagnosed autism in her genetics, but there is a brilliant but

> > anti-social physicist, my husbands sister who is a loner and

> > does not like people, she is smart but lazy, likes to be alone

> > and reading. About 4 members of the family are super smart and

> > have excelled greatly in their careers but are not social

> > people.

> > My daughter will be attending speech and behavioral therapy.

> >

> > Marica.

> >

> >

> >

> >

>

[Guest guest]

Carlena, you are right. I spent a day being angry, a day crying and another day

with my head high and kicking my self for taking these doctors seriously. I'm a

first time parent. The way she ended up seeing a specialist is because she was

not ready to be left at pre-school on her own. She cried for mommy in the

beginning and at the end. I was outside her classroom and went in after she

started crying. Her teacher said she was different and would not play like the

other children, she spent a lot of time with the books instead. Turns out she is

not ready for pre-school at age 2-21/2, and would prefer to be at home with

mommy, so I gave her that and she has been very happy since.

thank you every-one for your great support! it has helped me pick up my head.

we adore her no matter what!!

>

> How are they 4 sure this is Autism? Nothing you listed screams to me autism.

My 2nd child did a lot these things and after an MRI discovered he was born with

PVL - and is not austisic in anyway.... And at age 2.5 why is it not okay to

just be side by side playing? 99% Of my kids from my mothers group does that. I

GUESS...Im just confused by this diagnosis. I can only imagine what you must be

feeling as her momma.

>

>

> carlena

> My 2.5 yr old diagnosed with Autism spectrum disorder

>

> My daughter, NEVER vaccinated, was diagnosed yesterday with ASD. Some of the

signs;

> She is a late developer, late getting teeth, walking at 18 months, very

careful, is an easy child. Does not play with other children, Still not

talking, making tons of long sentences that do not make sense, she has about 8

words, that are some-what clear. She was saying more words up until 1.5 yrs,

then she regressed to no speech only dadadada, speech started again 9 months

later, but it's not all clear. Words are there, they just need to come out, we

know she can hear. she responds to my i-pad apps for toddlers, knows the

alphabet, shapes, colors, objects numbers etc..She does make eye contact and is

one of the most loving children I know. she hugs her little friend only a month

older, and hugs people she knows. But avoids children she does not know. will

play parallel to them, not with them. She spins around about 4 times a week

for about a 30 seconds and giggles, use to do it more often. She does line up

her toys, mostly animals, groups them in size and type. I've seen my friends

boy play this way too at age 3. Her favorite things in lif

>

[Guest guest]

,Your child is two so you can make a lot of headway now. I have been on the autism lists for over 10 years. One of the most resounding interventions favoured by the avant-garde parents is removal of gluten and casein from the diet. The major problem in autism is increased intestinal permeability. This means that proteins cross the gut wall and interfere with the host's immune system. This concept is no longer just an alternative one. I recently spoke to two leading gastros here in the UK, both talked about increased permeability and the interference of the 'translocation' of these proteins into the area outside the guts and how they interfere with the immune system.....I would really urge you to try this route. I myself have gone off cow's milk and gluten and feel considerably better for it. It's the craving that is the hugest problem

but that goes after a while. Gluten and casein actually break down to gliadomorphine and casiomorphine and can be found in the urine. From: Marica <maricagarvey@...>Subject: Re: My 2.5 yr old diagnosed with Autism spectrum disorderVaccinations Date: Thursday, 21 April, 2011, 5:21

Carlena, you are right. I spent a day being angry, a day crying and another day with my head high and kicking my self for taking these doctors seriously. I'm a first time parent. The way she ended up seeing a specialist is because she was not ready to be left at pre-school on her own. She cried for mommy in the beginning and at the end. I was outside her classroom and went in after she started crying. Her teacher said she was different and would not play like the other children, she spent a lot of time with the books instead. Turns out she is not ready for pre-school at age 2-21/2, and would prefer to be at home with mommy, so I gave her that and she has been very happy since.

thank you every-one for your great support! it has helped me pick up my head. we adore her no matter what!!

>

> How are they 4 sure this is Autism? Nothing you listed screams to me autism. My 2nd child did a lot these things and after an MRI discovered he was born with PVL - and is not austisic in anyway.... And at age 2.5 why is it not okay to just be side by side playing? 99% Of my kids from my mothers group does that. I GUESS...Im just confused by this diagnosis. I can only imagine what you must be feeling as her momma.

>

>

> carlena

> My 2.5 yr old diagnosed with Autism spectrum disorder

>

> My daughter, NEVER vaccinated, was diagnosed yesterday with ASD. Some of the signs;

> She is a late developer, late getting teeth, walking at 18 months, very careful, is an easy child. Does not play with other children, Still not talking, making tons of long sentences that do not make sense, she has about 8 words, that are some-what clear. She was saying more words up until 1.5 yrs, then she regressed to no speech only dadadada, speech started again 9 months later, but it's not all clear. Words are there, they just need to come out, we know she can hear. she responds to my i-pad apps for toddlers, knows the alphabet, shapes, colors, objects numbers etc..She does make eye contact and is one of the most loving children I know. she hugs her little friend only a month older, and hugs people she knows. But avoids children she does not know. will play parallel to them, not with them. She spins around about 4 times a week for about a 30 seconds and giggles, use to do it more often. She does line up her toys, mostly animals, groups

them in size and type. I've seen my friends boy play this way too at age 3. Her favorite things in lif

>

[Guest guest]

Your daughter Sounds like a late bloomer not ASD.

> > >My daughter, NEVER vaccinated, was diagnosed yesterday with ASD.

> > >Some of the signs;

> > >She is a late developer, late getting teeth, walking at 18 months,

> > >very careful, is an easy child. Does not play with other children,

> > >Still not talking, making tons of long sentences that do not make

> > >sense, she has about 8 words, that are some-what clear. She was

> > >saying more words up until 1.5 yrs, then she regressed to no speech

> > >only dadadada, speech started again 9 months later, but it's not all

> > >clear. Words are there, they just need to come out, we know she can

> > >hear. she responds to my i-pad apps for toddlers, knows the

> > >alphabet, shapes, colors, objects numbers etc..She does make eye

> > >contact and is one of the most loving children I know. she hugs her

> > >little friend only a month older, and hugs people she knows. But

> > >avoids children she does not know. will play parallel to them, not

> > >with them. She spins around about 4 times a week for about a 30

> > >seconds and giggles, use to do it more often. She does line up her

> > >toys, mostly animals, groups them in size and type. I've seen my

> > >friends boy play this way too at age 3. Her favorite things in life

> > >are books, picture books. Se can spend hours with her books. she

> > >does drag me around everywhere, some-times gets me involved in her

> > >play. She is very loving and hugs about 2 dozen times a day at

> > >least. Our dog also gets tons of hugs and love.

> > >

> > >If there is a mom or dad in this group that has a child with ASD,

> > >please reach out to me. I need support. There is no diagnosed

> > >autism in her genetics, but there is a brilliant but anti-social

> > >physicist, my husbands sister who is a loner and does not like

> > >people, she is smart but lazy, likes to be alone and reading. About

> > >4 members of the family are super smart and have excelled greatly in

> > >their careers but are not social people.

> > >My daughter will be attending speech and behavioral therapy.

> > >

> > >Marica.

> > >

> > >

> > >

> > >

> > >

> > >------------------------------------

> > >

> > >

[Guest guest]

I have known and worked with many children from severe to mild and if your daughter is, she sounds relatively mild. I wouldn't worry about things like milestones though, most of what you describe is not abnormal for growing children. My oldest is 4, and she didn't make any sense until after she was 2, and still at 4 not many understand her. Lots of children get teeth late and walk late. She makes eye contact, and is loving to some children. All these things together don't really add up. She sounds more shy, and maybe reactive to food....Have you had her tested for celiacs? Many children with food sensitivities can have behavior that mimics a spectrum disorder. Dairy and gluten being huge ones. Before getting too upset, I would seek out a holistic nutritionist that has worked with children with autism, and also look up the feingold diet, and maybe get her evaluated again. I am sure you Dr is competent, but what your describing about your child doesn't scream autism. If at all, very mildly. If she is mildly autistic, many children do great with a very clean diet and therapy.Good luck : )My daughter, NEVER vaccinated, was diagnosed yesterday with ASD. Some of the signs; She is a late developer, late getting teeth, walking at 18 months, very careful, is an easy child. Does not play with other children, Still not talking, making tons of long sentences that do not make sense, she has about 8 words, that are some-what clear. She was saying more words up until 1.5 yrs, then she regressed to no speech only dadadada, speech started again 9 months later, but it's not all clear. Words are there, they just need to come out, we know she can hear. she responds to my i-pad apps for toddlers, knows the alphabet, shapes, colors, objects numbers etc..She does make eye contact and is one of the most loving children I know. she hugs her little friend only a month older, and hugs people she knows. But avoids children she does not know. will play parallel to them, not with them. She spins around about 4 times a week for about a 30 seconds and giggles, use to do it more often. She does line up her toys, mostly animals, groups them in size and type. I've seen my friends boy play this way too at age 3. Her favorite things in lif

[Guest guest]

I'm also confused as to how they could make that a diagnosis. That still sounds very much like my 4 year old. She only started speaking sentances about a year ago, was a late walker, late talker, always sat on the sidelines to observe. She's just now becoming more interactive with other kids, and with strangers. She still prefers to play with her stuffed animals, and lines them up/groups them. She would rather talk to herself in play, than play with her siblings.

We had quite a few visits with docs when she was young, I know it's hard, but please try to ignore the label.

[Guest guest]

I think you can get a Sit and Spin at any regular toystore. We had one but it was really only good for little ones and we got a sturdier brand for the older boys. Some catalog had it--can't remember all these years later who made it but it was a big hit with all my boys and their friends. It's possible it's still buried in our garage somewhere!

Anyway, relax--don't let the "experts" make you crazy. I wouldn't worry too much about a child who is affectionate, loves animals and reads!

Winnie

My 2.5 yr old diagnosed with Autism > spectrum disorder> > Vaccinations > > > > > My daughter, NEVER vaccinated, was diagnosed yesterday with > ASD. > > > Some of the signs; > > > She is a late developer, late getting teeth, walking at 18 > > > months, very careful, is an easy child. Does not play with > > > other children, Still not talking, making tons of long > sentences > > > that do not make sense, she has about 8 words, that are some-> > > what clear. She was saying more words up until 1.5 yrs, then > she > > > regressed to no speech only dadadada, speech started again 9 > > > months later, but it's not all clear. Words are there, they > > > just need to come out, we know she can hear. she responds to > my > > > i-pad apps for toddlers, knows the alphabet, shapes, colors, > > > objects numbers etc..She does make eye contact and is one of > the > > > most loving children I know. she hugs her little friend only > a > > > month older, and hugs people she knows. But avoids children > she > > > does not know. will play parallel to them, not with them. > She > > > spins around about 4 times a week for about a 30 seconds and > > > giggles, use to do it more often. She does line up her toys, > > > mostly animals, groups them in size and type. I've seen my > > > friends boy play this way too at age 3. Her favorite things > in > > > life are books, picture books. Se can spend hours with her > > > books. she does drag me around everywhere, some-times gets > me > > > involved in her play. She is very loving and hugs about 2 > dozen > > > times a day at least. Our dog also gets tons of hugs and > love. > > > > > > If there is a mom or dad in this group that has a child with > > > ASD, please reach out to me. I need support. There is no > > > diagnosed autism in her genetics, but there is a brilliant > but > > > anti-social physicist, my husbands sister who is a loner and > > > does not like people, she is smart but lazy, likes to be > alone > > > and reading. About 4 members of the family are super smart > and > > > have excelled greatly in their careers but are not social > > > people. > > > My daughter will be attending speech and behavioral therapy. > > > > > > Marica.> > > > > > > > > > > >> >> > >

[Guest guest]

Hi Marica,

Consider these books:

1. The Einstein Syndrome: Bright Children Who Talk Late

2. Play To Talk: A Practical Guide to Help Your Late-Talking Child Join the

Conversation

Your DD sounds bright and her behavior, I think, is very typical for her age.

I've always heard that interactive play doesn't begin until 3 or shortly

thereafter. Are you a stay home mom? I am and found that my kids were much

clingier to me b/c of it (not a bad thing, but I learned this was normal)

(Daycare kids are used to be around lots of kids and adults). My kids didn't

start co-playing with other kids until 3 1/2 and it takes time to develop this

skill - I've seen this with other kids in our moms playgroup, too.

DS4 was self-taught reading and writing by 2.5, but was obsessed with this and

played with no one else or any other toys. I put him in preschool at 2.5yo and

he didn't cry too much, but I can tell it was taking his spirit away b/c he was

bored out of his mind. I pulled him out after 6 wks and it was the best

decision.

But, he was always tiptoeing and he had receptive and expressive speech delays.

He often just copied what I said said (echolalia) and at 3 yo, didn't even

understand the difference between " I " and " you " . He had eye contact, but mostly

with just his family. He was very affectionate towards us.

He was uninterested in others b/c of his focus on reading (not w/comprehension,

but w/trying to figure how sounds and words fit together - he's analytical). He

knew how to read a lot of words, but since he didn't speak sentences, I didn't

know if he knew what those words meant. And he was fiercely independent not

allowing me to ask him simple questions from a book.

At 3, I wasn't worried about his expressive language delay b/c kids talk when

they're ready, but I was worried about his receptive language delay - he should

have been understanding a lot more than he was at 3.

We went to an established speech provider who labeled his language at being the

equiv. of a 9 month old and recommended ABA therapy. I knew he was delayed, but

that was just ridiculous & it didn't help that she forcibly picked him up

against his will at the beginning of therapy - he refused to participate after

that.

During the 2 months we waited for the eval from above speech provider, I pursued

what developmental ped I should be going to and what local services were

available. People told me not to worry about getting an ASD label, that I would

WANT the label so that I could get free services with the township (which are

considered top-notch), and that developmental peds were more loosely giving this

diagnosis to ensure access to treatment. So, this might be similar to your

experience.

I was also told to be careful in selecting your therapists. There's a lot of

money to be made now by centers who are preying on parental fears. Some are

great, and some are not.

We never got any therapy for my son. While we waited the 2 months for the eval

and I was researching resources, my son started changing. He started playing

with other toys and engaging with other kids at playgroups. I spent more time

engaging him with particular types of play to help his speech (Play to Talk).

We saw how quickly he progressed and felt that sending him to therapy would not

be in his best interest b/c he was independent and didn't like being forced to

do something and still shy and clingy to his stay home mom.

He is now 4yrs and 2 months and is quick to say bye to me when i leave him

behind to play at relatives' houses. He's taking karate and swim lessons and

attends Montessori preschool 3 mornings a week and is always asking to play with

other boys. His speech seems caught up with his peers.

Certainly, kids can change so quickly in 6 months and even in 2 months as with

my son. I cried when he was 3 worried about the uncertainties and the journey

for healing, but he spoke when he was ready. I've read about language delayed

kids who said nothing and within 3 months were speaking complex 20 word

sentences.

Your daughter sounds very bright. They do say that early speech therapy is very

important, and if this label gets you access to those services, then take

advantage of it, but make sure they're treating her for her specific needs and

not for the label. However, I have read that for some kids (like these Einstein

late talkers), therapy can be detrimental, so proceed with caution.

Here's a group for parents of analytical late talking children you might

want to join to post questions:

latetalkkids/

Your daughter sounds absolutely delightful and she's blessed to have a loving,

informed mother with great mama instincts. Just learn to trust those instincts.

- Phuong

[Guest guest]

At 09:21 PM 4/20/2011, you wrote:

>Carlena, you are right. I spent a day being angry, a day crying and

>another day with my head high and kicking my self for taking these

>doctors seriously. I'm a first time parent. The way she ended up

>seeing a specialist is because she was not ready to be left at

>pre-school on her own. She cried for mommy in the beginning and at

>the end. I was outside her classroom and went in after she started

>crying. Her teacher said she was different and would not play like

>the other children, she spent a lot of time with the books instead.

>Turns out she is not ready for pre-school at age 2-21/2, and would

>prefer to be at home with mommy, so I gave her that and she has been

>very happy since.

certainly -unbelievable they would have those expectations of a 2.5 year old

>thank you every-one for your great support! it has helped me pick

>up my head. we adore her no matter what!!

>

just don't let them put her in a category

Sheri

[Guest guest]

That is how we deal w/ labels too. k having aspergers does not excuse her from doing her best nor does it provide an out, it gives me info on how to help her---same as all the other kids. It drives me nuts when parents start handing out labels and excuses and the kids are demons from hell and won’t be reigned in “because little billy has Z” Nita, mom to: 18, Jon 16, 14, 12, 9, Christian (7/16/03 to 8/22/04), 5, Isaac 3 and , born 3/1/11http://momof6.dotphoto.com for possibly current pictures and http://nitasspot.blogspot.comLearn from the mistakes of others. Trust me... you can't live long enough to make them all yourself. Avoiding a label is just like embracing a label. It gives it too much power. Use it as a tool for her, not an identity.