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Randi,

GREAT to hear from you!

This is like a class reunion... LOL Hearing from the OLDER members!

As for an added survey.... We can create a poll or another " short " survey

specific for the 3 different treatment options.... and similar symptoms. The

symptom part is where it may become more difficult because many kids have

totally different symptoms with LITTLE commonality.... What I mean is you

will see some of our parents thinking a symptom may be related... but

usually has nothing to do with ..... etc...

Feel free to " create " a template for the survey and send it to me to my

email.... fbulone@... and together we can fine tune it and send it to

the group. Do not be surprised... MANY members do not respond. The response

should be directly to you if you take this on and NOT to the group.... Then

you may compile the data.... (need to give a deadline so you can compile)

and publish the results to the group!!

I think it would be very interesting!

Let me know what you think.

God Bless,

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

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  • 8 months later...
  • 5 months later...

Larry:

Last I knew, ASHN was out of San Diego.

Lyndon McGill, D.C.

Salem, Oregon

Larry Oliver, DC wrote:

Has

anyone else just

received a survey from the University of Minnesota regarding ASHN? Is ASH headquartered in Minnesota? Any

thoughts on how confidential my

answers might really be?

Cheers,

Larry

Oliver

The

information contained in this electronic message may contain protected

health

information which is confidential under applicable law and is intended

only for

the use of the individual or entity named above. If

the recipient of the message is not the intended

recipient, you are hereby notified that any dissemination, copying or

disclosure of this communication is strictly prohibited.

If you have received the communication

in error, please notify Heresco Chiropractic & Associates, 408 NW

7th St,

Corvallis, OR 97330, 541-757-9933

and purge the communication immediately without making any copy or

distribution

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I don't know about ASHN but ACN is based in that area. Maybe the survey is actually for ACN to gather dirt on the "enemey". Ann Goldeen

Survey

Has anyone else just received a survey from the University of Minnesota regarding ASHN? Is ASH headquartered in Minnesota? Any thoughts on how confidential my answers might really be?

Cheers,

Larry Oliver

The information contained in this electronic message may contain protected health information which is confidential under applicable law and is intended only for the use of the individual or entity named above. If the recipient of the message is not the intended recipient, you are hereby notified that any dissemination, copying or disclosure of this communication is strictly prohibited. If you have received the communication in error, please notify Heresco Chiropractic & Associates, 408 NW 7th St, Corvallis, OR 97330, 541-757-9933 and purge the communication immediately without making any copy or distribution

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  • 1 year later...
  • 4 weeks later...

For what purpose?

survey

HI all,all the members who are interested to particiapte in a survey abt the stereotypic behavior in children with autism kindly let me know..

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.15.17/583 - Release Date: 12/12/2006 4:45 PM

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I would love to participate in the survey.

survey

HI all,all the members who are interested to particiapte in a survey abt the stereotypic behavior in children with autism kindly let me know..

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I am new to the list but would be willing to take part in the survey.

From: "garima_s_sharma" <garima_s_sharma@...>Reply-Autism and Aspergers Treatment To: Autism and Aspergers Treatment Subject: surveyDate: Tue, 12 Dec 2006 05:40:52 -0000

HI all,all the members who are interested to particiapte in a survey abt the stereotypic behavior in children with autism kindly let me know..

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  • 4 months later...
Guest guest

No I don't have a problem with this....hmmmm.

On 4/25/07, bannh1102 <bannh1102@...> wrote:

>

> Is it just me or is everyone having that little green box pop up about

> a survey? If I say yes they say they already have enough responders.

> It just keeps on, everytime I read a message or back up. Sometimes my

> browers says it can't find the web site an I hit refresh an it lots. I

> may have a hi-jacker but it only happens on this site? Help!!!

>

> Barbara

>

--

Live and Love Well,

Sandy

http://www.dragondiscounts.com

http://www.cafepress.com/alternativelove

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http://www.cafepress.com/twinkymind

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Guest guest

I get messages by email instead of on the web, so I'm not having this problem

either.

Bruce

******

“If you are irritated by every rub, how will you be polished?”

Jalal ad-Din Rumi

survey

Is it just me or is everyone having that little

green box pop up about

a survey? If I say yes they say they already have enough responders.

It just keeps on, everytime I read a message or back up. Sometimes my

browers says it can't find the web site an I hit refresh an it lots. I

may have a hi-jacker but it only happens on this site? Help!!!

Barbara

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Guest guest

none of that on my computer Barbara.

K

> Is it just me or is everyone having that little green box pop up about

> a survey? If I say yes they say they already have enough responders.

> It just keeps on, everytime I read a message or back up. Sometimes my

> browers says it can't find the web site an I hit refresh an it lots. I

> may have a hi-jacker but it only happens on this site? Help!!!

>

> Barbara

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Guest guest

Hi Barbara,

I read the posts to the list online and I don't get those survey

questions etc. do you have popups blocked in your browser? If not,

doing that might help..

Peace, Love and Harmony,

Bev

>

> I get messages by email instead of on the web, so I'm not having

this problem either.

>

>

>

> Bruce

>

> ******

>

> " If you are irritated by every rub, how will you be polished? "

>

> Jalal ad-Din Rumi

>

>

>

> survey

>

>

>

> Is it just me or is everyone having

that little green box pop up about

>

> a survey? If I say yes they say they already have enough responders.

>

> It just keeps on, everytime I read a message or back up. Sometimes my

>

> browers says it can't find the web site an I hit refresh an it

lots. I

>

> may have a hi-jacker but it only happens on this site? Help!!!

>

>

>

> Barbara

>

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Guest guest

Hi Barbara,

I read the posts to the list online and I don't get those survey

questions etc. do you have popups blocked in your browser? If not,

doing that might help..

Peace, Love and Harmony,

Bev

>

> I get messages by email instead of on the web, so I'm not having

this problem either.

>

>

>

> Bruce

>

> ******

>

> " If you are irritated by every rub, how will you be polished? "

>

> Jalal ad-Din Rumi

>

>

>

> survey

>

>

>

> Is it just me or is everyone having

that little green box pop up about

>

> a survey? If I say yes they say they already have enough responders.

>

> It just keeps on, everytime I read a message or back up. Sometimes my

>

> browers says it can't find the web site an I hit refresh an it

lots. I

>

> may have a hi-jacker but it only happens on this site? Help!!!

>

>

>

> Barbara

>

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Guest guest

Hi Barbara,

I read the posts to the list online and I don't get those survey

questions etc. do you have popups blocked in your browser? If not,

doing that might help..

Peace, Love and Harmony,

Bev

>

> I get messages by email instead of on the web, so I'm not having

this problem either.

>

>

>

> Bruce

>

> ******

>

> " If you are irritated by every rub, how will you be polished? "

>

> Jalal ad-Din Rumi

>

>

>

> survey

>

>

>

> Is it just me or is everyone having

that little green box pop up about

>

> a survey? If I say yes they say they already have enough responders.

>

> It just keeps on, everytime I read a message or back up. Sometimes my

>

> browers says it can't find the web site an I hit refresh an it

lots. I

>

> may have a hi-jacker but it only happens on this site? Help!!!

>

>

>

> Barbara

>

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Guest guest

> >

> > I get messages by email instead of on the web, so I'm not having

> this problem either.

> >

> >

> >

> > Bruce

> >

> > ******

> >

> > " If you are irritated by every rub, how will you be polished? "

> >

> > Jalal ad-Din Rumi

> >

> >

> >

> > survey

> >

> >

> >

> > Is it just me or is everyone having

> that little green box pop up about

> >

> > a survey? If I say yes they say they already have enough

responders.

> >

> > It just keeps on, everytime I read a message or back up.

Sometimes my

> >

> > browers says it can't find the web site an I hit refresh an it

> lots. I

> >

> > may have a hi-jacker but it only happens on this site? Help!!!

> >

> >

> >

> > Barbara

> >

>

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Guest guest

I don't get it but then I have spy blocker software.

survey

Is it just me or is everyone having that little green box pop up about

a survey? If I say yes they say they already have enough responders.

It just keeps on, everytime I read a message or back up. Sometimes my

browers says it can't find the web site an I hit refresh an it lots. I

may have a hi-jacker but it only happens on this site? Help!!!

Barbara

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  • 1 year later...
Guest guest

1. What is your occupation? Homemaker

2. What color are your socks right now? White

3. What are you listening to right now? Ginny's Afraid of the Dark

4. What was the last thing that you ate? Pretzel Stick

5. Can you drive a stick shift? No

6. What color would you be, if you were a color? Blue

7. Last person you spoke to on the phone? GrandDaughter

8. Do you like the person who sent this to you? I would like to think I would if I knew her :o)

9. How old are you today? 57 young!

10. Favorite drink? Pepsi (not suppose to have)

11. What is your favorite sport(s) to watch? Nascar

12. Have you ever dyed your hair? No!

13. Pets? Cockatoo, parakeets, loveable dog

14. Favorite food? anything fried! (not suppose to have)

15. Last movie you watched? Pacifier

16. Favorite Day of the year? Their all getting very stressful, but will say Christmas

17. What do you do to vent anger? Stop, Calm down

18. What was your favorite toy as a child? My dolly which I still have and she is now 51/52 years old!!! My Mother used to make dolly clothes out of feed sacks for me (my clothes to)

19. What is your favorite, fall or spring? Both

20. Cherry or Blueberries? Love Both, but if have to choose will say blueberries

21. Do you want your friends to email you back? Doesn't Matter

22. Who is most likely to respond?

23. Who is least likely to respond?

24. Living arrangements? Our Home for 40 plus years!

25. When was the last time you cried? Hmmm, yesterday or day before I think

26. Who is the friend you had the longest that you are sending this to? ( 45 years)

27. Who is the friend you have had the shortest that you are sending this to?

28. Favorite smell? Lilacs!!!

29. Plain, cheese or spicy hamburgers? Plain

30. Favorite car? 67 Pontiac

31. Favorite cat breed? any kitty

32. Number of keys on your key ring? abt 10

33. How many years at your current job? My whole married life ( 41 years)

34. Favorite day of the week?

35. How many states have you lived in? 1 (actually 1 county)

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

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  • 10 months later...
Guest guest

Thanks shawna and it opened up directly in Excel. Working on it.

Can you send me the questions in a similar format? or in a electronic

format.

I think we will have enough data for an abstract to submit to the

International Society of Hypertension in Blacks due April 20 or that

week.

More later.

Great data I think.

Will send all a draft of the abstract before we send it in.

The jist of the abstract will be:

Delayed Diagnois of Primary Aldosteronism on the Web-a support

Group with over 500 members. Initial data from 25 patients with

documented disease.

Primary aldosteronism is the most common Endocrine cause of high

blood pressure. The possiblity of cure or specific drug treatment of

severe, drug-resistant high blood pressure and disabling hypokalemia

makes it rewarding to test for this common cause of high blood

pressre. The ease of diagnosis has revolutionized the ability of the

general practitioner to identify, treat and improve the lives of

these patients. This avoids long delays in Dx and minimizes patient

suffering and target organ damage from the long term consequences of

the classic model of aldosterone/salt hypertension in humans.

A onlline support group was organized in 200X by a patient with the

myriad problems associated with PA and soon grew into an active

support group with patients from around the world. Having served as

the medical consultant to this group for the last X years the

travails of these patients in getting the medical system to pay

attention to their common symptom complex has prompted us to

summarize this experience.

A total of 26 patients have been given a confirmed DX of Conn's

syndrome by their health care team and the average BP has decrease

from a high of XXX/XXX before DX to XXX/XXX after Dx and treatment (x

surgery and x medical). The average duration of HTN was XX years

and hypokalemia xx years before Dx was made.

Other symptoms included nocturia in XX %, muslce cramps in XX%,

multiple ER visits for a complex of symptoms of headaches, chest

pains, muscle cramps, anxiety. In many cases XX% low blood K was

identified XX years before the Conn's was diagnose and appropriate Rx

returned BP and K and most symptoms to the pre Conn's sydrome state.

We invite all who take care of patients with difficult HTN to visit

this site to read the Conn's Stories Files as we are certain they

will see some of their own patients and be spurred on to seaking the

proper Dx and Rx in their own clinics.

On Apr 18, 2009, at 4:04 PM, a Hall wrote:

> <survey_results_20090418.csv>

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  • 11 months later...
Guest guest

crap, here`s the link - http://digs.by/cCfxJK

survey

i`m doing BA research about PWD and travels. Please fill this out if you are

disabled or have disabled family member or know someone - please forward

---

avast! antywirus: Wychodzace wiadomosc czysta.

Baza sygnatur wirusow (VPS): 100413-0, 2010-04-13

Przetestowano na: 2010-04-13 20:29:48

avast! - copyright © 1988-2010 ALWIL Software.

http://www.avast.com

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  • 4 months later...

You haven't provided enough information. What kind of ferment are we talking

about here? Water kefir?

On Aug 26, 2010, at 9:31 AM, econurbs@... wrote:

> Just 2 give us an idea of the amounts, please give us the amt of grains, amt

of liquid, amount of any other addition, and room temp that works 4U. Thanks,

> eco

> Sent on the Sprint® Now Network from my BlackBerry®

>

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  • 6 months later...
Guest guest

I came across this in a blog and thought I would pass on

Get paid $25 to participate in an online discussion about childhood vaccinations! We just learned that Surveyspot sent some folks invitations to participate in an online discussion about childhood vaccinations (thanks Dana on Coupons & Freebies Mom Facebook page). This is a hot button topic, & I’m hoping I get the invitation for this one! I would LOVE to share my opinions on this topic AND get paid for it! Sign up for Surveyspot here (it’s FREE)!

Get paid $25 to participate in an online discussion about childhood vaccinations! is a post from Coupons and Freebies Mom - Freebies, coupons, & deals

http://www.couponsandfreebiesmom.com/2011/03/get-paid-25-to-participate-in-an-online-discussion-about-childhood-vaccinations.html

~

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Guest guest

I did sign up, but was not directed to the survey on vaccinations, so not sure if anyone else would want to do this or not. Sorry if I misdirected anyone. I don't know if the vaccination survey will come up by chance or if it will be sent to me.

vaccinations From: nbriski@...Date: Fri, 25 Mar 2011 19:12:13 -0600Subject: survey

I came across this in a blog and thought I would pass on Get paid $25 to participate in an online discussion about childhood vaccinations! We just learned that Surveyspot sent some folks invitations to participate in an online discussion about childhood vaccinations (thanks Dana on Coupons & Freebies Mom Facebook page). This is a hot button topic, & I’m hoping I get the invitation for this one! I would LOVE to share my opinions on this topic AND get paid for it! Sign up for Surveyspot here (it’s FREE)!Get paid $25 to participate in an online discussion about childhood vaccinations! is a post from Coupons and Freebies Mom - Freebies, coupons, & deals http://www.couponsandfreebiesmom.com/2011/03/get-paid-25-to-participate-in-an-online-discussion-about-childhood-vaccinations.html ~

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