Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 I am so afraid to say this. I have tried over and over all the treatments on here. I saw new Dr the other day he was very good. He did blood tests some were even for syphlis. Only thing low was white count. I see black specks all over the house and husband has put all kinds of dust out in the yard, I have fogged over and over. My hair has these small fine wads commint out and these have something that is very prickly in them. I just had some deep lesions on my face that were almost like little water blisters under them. If my skin heals then later I will have a place open up sometimes again. Yesterday I got some pure food grade orange oil very strong. I have bought this before but had to be careful it can really burn. I diluted it and put in my hair after washing and this is when some things will roll down on the ends and I have to be careful because I feel like these are what causes the other bad places. So I put this in my hair and would run my fingers through the strands a few strands at a time, I had been doing the same when I rinse it with vinegar. This is when the hair comes out. It is like downey. I can't tell if anything is in it because it is wadded up. I had cut it so short a year ago it was almost shaved. now the back is not even 3 inches. There is usually more of these prickly things at the base of my neck I think because when I stand up they go that way. I have had new places on my arms and stomach. I used to not have anything visable and that was why the Drs said I was delusional. THis new Dr gave me a sulpur antibiotic. He did parasite tests plus my own MD had done some different ones. Can anyone send me the name of a good Dr I will travel. I like this one but unless this is some other type of skin diorder I don't think he can help. I have nothing left to live for I am house bound and afraid to go out plus I would not want anyone to see me. I feel this is the end for me. Sorry to be so negative but after two years and so many things I don't have much encouragment. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 It's not the end. You have some chronic infections, these infections are internal and treating just the skin will not be enough. I have had all the symptoms you mentioned below and many more. I was near suicidal and wished I would not wake up. It appears that most with these symptoms are being diagnosed with Chronic Lyme Disease which includes multiple infections carried by the tick, spider, or other insect... Lyme is a clinical diagnosis, lab tests are highly unreliable and many are going undiagnosed and misdiagnosed and suffering. I am in recovery, it will be 2 yrs in Oct. I am about 60% better, it has been a long road. Good Lyme literate doctors are familiar with these symptoms and know that many of them are due to Bartonella. Let me know if there's anything I can do or info I can give you to help.AandrayaOn Jul 21, 2011, at 3:42 PM, sandy e wrote: I am so afraid to say this. I have tried over and over all the treatments on here. I saw new Dr the other day he was very good. He did blood tests some were even for syphlis. Only thing low was white count. I see black specks all over the house and husband has put all kinds of dust out in the yard, I have fogged over and over. My hair has these small fine wads commint out and these have something that is very prickly in them. I just had some deep lesions on my face that were almost like little water blisters under them. If my skin heals then later I will have a place open up sometimes again. Yesterday I got some pure food grade orange oil very strong. I have bought this before but had to be careful it can really burn. I diluted it and put in my hair after washing and this is when some things will roll down on the ends and I have to be careful because I feel like these are what causes the other bad places. So I put this in my hair and would run my fingers through the strands a few strands at a time, I had been doing the same when I rinse it with vinegar. This is when the hair comes out. It is like downey. I can't tell if anything is in it because it is wadded up. I had cut it so short a year ago it was almost shaved. now the back is not even 3 inches. There is usually more of these prickly things at the base of my neck I think because when I stand up they go that way. I have had new places on my arms and stomach. I used to not have anything visable and that was why the Drs said I was delusional. THis new Dr gave me a sulpur antibiotic. He did parasite tests plus my own MD had done some different ones. Can anyone send me the name of a good Dr I will travel. I like this one but unless this is some other type of skin diorder I don't think he can help. I have nothing left to live for I am house bound and afraid to go out plus I would not want anyone to see me. I feel this is the end for me. Sorry to be so negative but after two years and so many things I don't have much encouragment. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 Sandy, Dr. N Reifsnyder is my doctor. He is an infectious disease specialist in Lakeland, Florida and knows his stuff. 863-701-2222. He does not take insurance and charges $500.00 for the intial visit and $130. for every visit there after. I file my own insurance. He is treating me for the herpetic dermatitis and Histoplasmosis fungus. The hustoplasmosis grows in and on you, on the walls, floors, counters, toilet/showers, etc. and in the car. The feather winged beetle takes the fungus and uses it to wrap a cocoon and place and egg in. It attaches this to the base of hair. My blood test confirm the fungus. I, too, have a high white blood count indication the infection. Itraconazole it killing the fungus. This is my 3rd day on the med. and I can't believe how great I am looking and feeling. You fuzz balls are made up of the mycelium and hypae. I can't tell you how well I'm getting. My sores are all gone, the plastic things aren't coming out anymore, the bugs leave me alone, my eyes and feet are clearing, swollen areas are draining, wrinkles are almost all gone. The only thing I had to do myself was clean the floors, counters, and toilets with a brillo pad to get the risoids from the fungus out. Clean the walls with Lysol and water then paint with latex, treat the laundry and dryer for spores, soak the blinds in lysol water, and clean the carpets with MMS. Life is beautiful again!!!!!!!!!!!! From: sandy e <ellis.sandy1@...>Subject: I think I should be looking for a Morgellons Docbird mites Date: Thursday, July 21, 2011, 8:42 PM I am so afraid to say this.I have tried over and over all the treatments on here.I saw new Dr the other day he was very good. He did blood tests some were even for syphlis. Only thing low was white count.I see black specks all over the house and husband has put all kinds of dust out in the yard, I have fogged over and over.My hair has these small fine wads commint out and these have something that is very prickly in them.I just had some deep lesions on my face that were almost like little water blisters under them. If my skin heals then later I will have a place open up sometimes again.Yesterday I got some pure food grade orange oil very strong.I have bought this before but had to be careful it can really burn.I diluted it and put in my hair after washing and this is when some things will roll down on the ends and I have to be careful because I feel like these are what causes the other bad places.So I put this in my hair and would run my fingers through the strands a few strands at a time, I had been doing the same when I rinse it with vinegar. This is when the hair comes out. It is like downey.I can't tell if anything is in it because it is wadded up.I had cut it so short a year ago it was almost shaved.now the back is not even 3 inches.There is usually more of these prickly things at the base of my neck I think because when I stand up they go that way.I have had new places on my arms and stomach.I used to not have anything visable and that was why the Drs said I was delusional.THis new Dr gave me a sulpur antibiotic.He did parasite tests plus my own MD had done some different ones.Can anyone send me the name of a good Dr I will travel.I like this one but unless this is some other type of skin diorder I don't think he can help.I have nothing left to live for I am house bound and afraid to go out plus I would not want anyone to see me.I feel this is the end for me.Sorry to be so negative but after two years and so many things I don't have much encouragment.Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2011 Report Share Posted July 22, 2011 Hi, Sandy! Because I live in anouther country I have no suggestions of dr:s but I really hope you will find one thruogh others here and that you get better soon.CeciliaFrom: sandy e <ellis.sandy1@...>bird mites Sent: Thu, July 21, 2011 10:42:31 PMSubject: I think I should be looking for a Morgellons Doc I am so afraid to say this. I have tried over and over all the treatments on here. I saw new Dr the other day he was very good. He did blood tests some were even for syphlis. Only thing low was white count. I see black specks all over the house and husband has put all kinds of dust out in the yard, I have fogged over and over. My hair has these small fine wads commint out and these have something that is very prickly in them. I just had some deep lesions on my face that were almost like little water blisters under them. If my skin heals then later I will have a place open up sometimes again. Yesterday I got some pure food grade orange oil very strong. I have bought this before but had to be careful it can really burn. I diluted it and put in my hair after washing and this is when some things will roll down on the ends and I have to be careful because I feel like these are what causes the other bad places. So I put this in my hair and would run my fingers through the strands a few strands at a time, I had been doing the same when I rinse it with vinegar. This is when the hair comes out. It is like downey. I can't tell if anything is in it because it is wadded up. I had cut it so short a year ago it was almost shaved. now the back is not even 3 inches. There is usually more of these prickly things at the base of my neck I think because when I stand up they go that way. I have had new places on my arms and stomach. I used to not have anything visable and that was why the Drs said I was delusional. THis new Dr gave me a sulpur antibiotic. He did parasite tests plus my own MD had done some different ones. Can anyone send me the name of a good Dr I will travel. I like this one but unless this is some other type of skin diorder I don't think he can help. I have nothing left to live for I am house bound and afraid to go out plus I would not want anyone to see me. I feel this is the end for me. Sorry to be so negative but after two years and so many things I don't have much encouragment. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2011 Report Share Posted July 23, 2011 !Your progress is just great! I enjoy readin your positive results:)You have had so many weird things going on and it seems like a miracle that you have been able to find out what it all is!Take care!CeciliaFrom: Benton <sarahbenton48@...>bird mites Sent: Fri, July 22, 2011 2:50:27 AMSubject: Re: I think I should be looking for a Morgellons Doc Sandy, Dr. N Reifsnyder is my doctor. He is an infectious disease specialist in Lakeland, Florida and knows his stuff. 863-701-2222. He does not take insurance and charges $500.00 for the intial visit and $130. for every visit there after. I file my own insurance. He is treating me for the herpetic dermatitis and Histoplasmosis fungus. The hustoplasmosis grows in and on you, on the walls, floors, counters, toilet/showers, etc. and in the car. The feather winged beetle takes the fungus and uses it to wrap a cocoon and place and egg in. It attaches this to the base of hair. My blood test confirm the fungus. I, too, have a high white blood count indication the infection. Itraconazole it killing the fungus. This is my 3rd day on the med. and I can't believe how great I am looking and feeling. You fuzz balls are made up of the mycelium and hypae. I can't tell you how well I'm getting. My sores are all gone, the plastic things aren't coming out anymore, the bugs leave me alone, my eyes and feet are clearing, swollen areas are draining, wrinkles are almost all gone. The only thing I had to do myself was clean the floors, counters, and toilets with a brillo pad to get the risoids from the fungus out. Clean the walls with Lysol and water then paint with latex, treat the laundry and dryer for spores, soak the blinds in lysol water, and clean the carpets with MMS. Life is beautiful again!!!!!!!!!!!! From: sandy e <ellis.sandy1@...>Subject: I think I should be looking for a Morgellons Docbird mites Date: Thursday, July 21, 2011, 8:42 PM I am so afraid to say this.I have tried over and over all the treatments on here.I saw new Dr the other day he was very good. He did blood tests some were even for syphlis. Only thing low was white count.I see black specks all over the house and husband has put all kinds of dust out in the yard, I have fogged over and over.My hair has these small fine wads commint out and these have something that is very prickly in them.I just had some deep lesions on my face that were almost like little water blisters under them. If my skin heals then later I will have a place open up sometimes again.Yesterday I got some pure food grade orange oil very strong.I have bought this before but had to be careful it can really burn.I diluted it and put in my hair after washing and this is when some things will roll down on the ends and I have to be careful because I feel like these are what causes the other bad places.So I put this in my hair and would run my fingers through the strands a few strands at a time, I had been doing the same when I rinse it with vinegar. This is when the hair comes out. It is like downey.I can't tell if anything is in it because it is wadded up.I had cut it so short a year ago it was almost shaved.now the back is not even 3 inches.There is usually more of these prickly things at the base of my neck I think because when I stand up they go that way.I have had new places on my arms and stomach.I used to not have anything visable and that was why the Drs said I was delusional.THis new Dr gave me a sulpur antibiotic.He did parasite tests plus my own MD had done some different ones.Can anyone send me the name of a good Dr I will travel.I like this one but unless this is some other type of skin diorder I don't think he can help.I have nothing left to live for I am house bound and afraid to go out plus I would not want anyone to see me.I feel this is the end for me.Sorry to be so negative but after two years and so many things I don't have much encouragment.Sandy Quote Link to comment Share on other sites More sharing options...
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