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[NVIC] Talking Vaccine Science with Government: Why Do It?

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Talking Vaccine Science with Government: Why Do It?

by Barbara Loe Fisher

After the historic election in November that saw Barack Obama elected

President, I wondered what he and his Administration would do about

addressing the question that is on the minds of many parents: Why are

so many vaccinated children today chronically ill, suffering with

learning disabilities, ADD/ADHD, autism, asthma, diabetes and other

brain and immune system problems? Would the Obama Administration

acknowledge the importance of looking at whether national vaccine

policies are having an unintended negative effect on a growing number

of children and adopt a robust vaccine safety research agenda to

answer outstanding questions?

Part of the answer came one day after the President took office, on

January 21, when he sent a memo to the heads of all federal agencies

and told them " My Administration is committed to creating an

unprecedented level of openness in Government. We will work together

to ensure the public trust and establish a system of transparency,

public participation and collaboration. "

The door is opening and there is a lot of work to be done. Concerned

citizens getting involved will keep the participatory democracy

process and work products truly transparent, collaborative and meaningful.

This Monday, March 16, there will be an open meeting in Washington,

D.C. sponsored by the CDC to get input from the public about the

kinds of scientific studies that should be included in the national

vaccine safety research agenda.

At stake is a proposal by a vaccine stakeholder Writing Group that

met in Salt Lake City last month to look at whether a study comparing

the health of vaccinated and unvaccinated children should be included

that evaluates whether there are pathological differences in brain

and immune system development and function and whether there are

biological high risk factors that place some children at higher risk

than others for suffering vaccine reactions.

If you want to weigh in, this is an opportunity to make your voice

heard either by showing up at the meeting, participating online or by

conference call.

Who: National Vaccine Advisory Committee

Where: Department of Health and Human Services; Hubert H. Humphrey

Building, Room 800; 200 Independence Avenue, S.W., Washington, D.C. 20201

Why: To talk about the draft vaccine research agenda of CDC's

Immunization Safety Office (ISO). Draft documents prepared by the

vaccine stakeholder Writing Group that identify potential gaps in the

ISO draft research agenda and proposes prioritization criteria for

the agenda will be reviewed. These documents are available at:

<http://rs6.net/tn.jsp?et=1102502725734 & e=001UOxAga-2taqhTJuurtsrsgtGmT7-QbkMBr4\

NjeNJD-hb-hRlBrZtnaS9uhatmut6aZ57ifSS1X3zhu5Meuee07WI0Yx1kNdMeTrtH78sns5VZBhE0ID\

-uB4cJgPMOY4QwWMuVu-AP0C4eAr7b0KU7t_3_zp_OXfu>http://www.hhs.gov/nvpo/nvac/Publi\

cEngageme

nt.html and include Writing Group Draft Statements on (1) Outcomes;

(2) Gaps in the Research Agenda; and (3) Criteria for Assessing ISO

Research Topic Priorities. Participants at the March 16 meeting will

be asked to comment on potential gaps in the draft agenda and options

for developing research priorities.

How to Attend: The meeting will be webcast and audio conferencing is

available. Contact Kirsten Vannice (kirsten.vannice@... if you

want to come to the meeting or be hooked up by computer or phone.

Draft agenda, call-in numbers, a link to the webcast and additional

materials will be provided to registered participants and posted on

the NVPO website in advance of the meeting.

Importance of Meeting: The government's scientific research agenda to

investigate vaccine associated brain and immune system dysfunction

among children is of great interest to a growing number of Americans

living in every state who have children with learning disabilities,

ADD/ADHD, autism, asthma, diabetes and other kinds of chronic illness.

The CDC held public engagement meetings in Birmingham, Ashland and

Indianapolis in the past few months to ask citizens about their

vaccine safety concerns. A vaccine stakeholder meeting in Salt Lake

City Feb. 20-21 was also held, coordinated and facilitated by

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tLvawWe9TXD6vpKjpjZTDmLmexLrXzFV4Xur0Zbgbxf41i3B6l94vo1WGKqQ9MtSWshXRWcc5z2DfoQ1\

Jdw==>The

Keystone Center, to create a suggested framework for setting national

vaccine safety research priorities.

There are individuals, special interest groups and corporations

opposed to a robust scientific research agenda addressing vaccine

safety concerns that involve input from and participation by the

public. Those who support both the participatory democracy approach

to government policymaking, which is defined by government

transparency and collaboration with the people, should consider

attending in person, online or on the telephone to voice their concerns.

One way Americans can change government and government policies is by

becoming activist citizens advocating for constructive change.

President Obama's call for transparency, accountability and public

engagement is an opportunity to stand up and make a difference by

helping to reform government policy, such as vaccine policy, which

affects the health of our children and grandchildren.

The power does belong to the people if the people will stand up and

exercise it wisely.

[]

email: <mailto:newsnvic@...>newsnvic@...

phone: 703-938-dpt3

web:

<http://rs6.net/tn.jsp?et=1102502725734 & e=001UOxAga-2taoacSBL2WWmbvOXKFrprrdmSMR\

vik0OU_Y7GDfuUoDUw8BEhEyuq2dJQEetSAoOWaSvph9a6TazqCcd8fE73dA760ks5fdWUtc=>http:/\

/www.nvic.org

[]

[]

National Vaccine Information Center | 407 Church Street | Suite H |

Vienna | VA | 22180

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