- WHY THE AUTISM SPEAKS BLACKOUT ON JENNY AND DAN!?

[Guest guest]

I don't have a URL - this came to another list

Sheri

WHY THE AUTISM SPEAKS BLACKOUT ON JENNY AND DAN!? By 4/4/08

Like tens of thousands of parents I watched

history being made on " Larry King " Thursday

night. McCarthy held up the AAP's 1983

infant and toddler immunization schedule and the

2008 schedule and said what all of us have known

for years, " too much, too soon. " We can no longer

play Russian roulette with our babies' developing

central nervous systems. As Kirby so eloquently

said, " the debate is over, after the Polings

concession, it is a fact that vaccines can trigger autism. "

Newsflash- AAP- mitochondrial disorders among ASD

kids are neither rare or in most cases,

pre-existing. My child has a mito disorder too.

They are triggered by too many vaccines at too

young an age, overloading a developing immune system.

I almost felt sorry for Dr. Tayloe, the routing

he endured was painful to watch, yet well deserved.

His cohort, Dr. Karp, spoke about or families'

concerns about over vaccination in his usual

disrespectful manner. We are not anti- vaccine;

we are pro safe vaccine and vaccine schedule.

This fact should not be so difficult for Karp to

grasp; yet it is. Karp and Tayloe are apparently

fine with the fact that ether, aluminum, ammonia

and other toxic substances remain in vaccines as

preservatives. It is a sad day for the AAP to

declare itself to be against basic vaccine

safety. Their claims of financial self- sacrifice

in their blind adherence to the world's most

aggressive infant vaccination schedule are

grossly disingenuous. If they really cared about

vaccinating children against diseases they would

make the vaccines safe. If they want to learn

about financial sacrifice they can talk to the parents of an autistic child.

I was so proud of my parents, Bob and Suzanne

, for doing the impossible and having the

United Nations declare World Autism Day. The

epidemic deserves this recognition and sense of

urgency. While most of the geneticists invited to

speak about autism made ridiculous claims about

how autism is " 90% genetic " all the questions

from the audience were dismissive and angry about

both this claim and the endless amount of money

poured into gene research while more promising

avenues of investigation are ignored. I was

thrilled when my Dad said yes, that Autism Speaks

was sponsoring a vaccinated vs. unvaccinated

population study, in response to a mother's question.

Meanwhile Autism Speaks has sadly been ignoring

all the exciting news that the vast majority of

parents deem important. There was no mention of

and having their history making

debate with the AAP and there is no mention of

this weekend's DAN! Conference on the website. I

cringe when I hear AS leader's telling parents to

look to the website for help and information.

Despite my pleas, AS science and awareness

leadership will not report on any biomedical news

that is not gene related. The genome receives

endless coverage, on World Autism Day, the only

AS science news story was about how TV watching

causing autism, Offitt's op-ed pieces, NIH

study about why the GF/ CF diet is dangerous,

everything single gene study from Cold Springs

Harbor but no coverage of the Dr. Polings'

articles, Kirby's or Deidre Imus' front

page Huffington Post pieces about the CDC, no

coverage of Dr. Wakefield's response to his

critics (although the critics articles are always

included in AS news) and NO mention of the DAN! Conference.

If Autism Speaks only mission were awareness this

would all be fine. However, the walks collect

tremendous amounts of money for research and

services. When I was a kid I was told over and

over again, if you are going to do something, do

it right. If you say you are a big tent and that

you welcome and respect the concerns of the

parental community get your scientific leadership

to show up at a DAN! Conference. This has yet to

happen in four years. I am not talking about

setting up a AGRE table, I mean scientists

attending the workshops and listening to parents.

Somehow they find the time to attend and sponsor

dozens of international eye- gazing and brain

imaging workshops, but cannot find the time for DAN! I wonder why…

I have been unsuccessful in convincing this group

why biomedical research and the biomedical

community are important. Maybe parents reading

this can let AS scientific leadership know how

you feel about this. I would interpret a

non-response as disinterest in our community.

Mroithmayr@... Mark is the AS president

Goldstein@... Dr. Goldstein is a scientific director

Ashih@... Andy is a scientific director

Asinger@... Alison Singer is in charge of website content

has two young boys. Her oldest son,

Christian, is severely affected by autism. He

developed normally; smiling, talking, walking;

only to lose every skill and every word by the

age of 2 and a half. Upon the advice of medical

professionals and her husband were advised

to pursue only high quality behavioral therapy,

speech and OT for Christian. It had no meaningful

impact on Christian until his parents sought help

from DAN! doctors who treated the underlying

causes of Christian's descent into autism.

Christian has improved but still has far to go.

He has Inflammatory Bowel Disease, the measles

virus in his gut and an immune system akin to a

late stage AIDS patient. Christian does not have

a psychiatric disorder. Before autism,

was the Clinical Director of Sexual

Assault Crisis Center in Stamford Connecticut.

is proud to serve on the Boards of NAA and SafeMinds.

--------------------------------------------------------

Sheri Nakken, former R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

Vaccines -

http://www.wellwithin1.com/vaccine.htm Vaccine

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