Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 Hi Polly -- Since you asked anyone to respond, I thought I'd jump in here. I don't know how old you are, but I'm 51 and going through menopause this year. My great mite infestation occurred when I was 49. I think the drop in my hormone levels made me susceptible to the infestation because as far as I know, I've always been exposed to various mites--I'm no clean freak, and I've always had pets. Also due to menopause/low hormone levels, I believe the nerve endings in my skin are either hypersensitive or damaged. I have read in many places that perimenopausal and menopausal women sometimes experience " formication " , no, not fornication but formication, the sensation that bugs are crawling on your skin. I believe the sensation is in fact caused by bugs crawling on the skin, and that those of us with more sensitive and/or damaged nerve endings will feel anything that crawls on us. There was a lady from Houston named Joan who used to post here on behalf of her husband. He was treated by a dermatologist in Houston who first prescribed about 8 weeks of once-per-week doses of Stromectol (to kill the bugs), followed by a period of time taking Gabapentin to repair his damaged nerve endings. I believe he still felt crawling after taking the Stromectol, but that the crawling sensations ceased after he took Gabapentin. I have also read that Gabapentin is one of the few drugs that can help women who are having severe hot flashes during menopause. Gabapentin is a powerful drug and should be prescribed by a physician. myrtle > > Hi Katyie, > The farm theory is very interesting and unfortunately it sort of makes sense. > > You are so analytical that I have a question for you. I have looked at myself with a 4x magnifier in very bright light while I feel the sharp stab of a bite and see nothing. I have closely examined my body when it is stinging and burning with the 4x and see nothing. My skin feels like I have bumped into fiberglass and no matter how I illuminate the irritated area I see nothing sticking out of it at 4x. I have to wear sweatclothes inside out because it feels like myriads of tiny splinters projecting from my skin are catching on the fuzzy nap of the fabrics and yet I see nothing. > > My Question is, what is the threshold of human sensation. How do I feel so much pain from bites I can’t see happening. I wish I could find a microscopic point pin and examine my ability to feel something that tiny. I wish I had a brush with a microscopic bristle to see if I could feel it brushing across me. How do I feel something crawling on me that is too small to be seen. How big does something have to be to elicit a sensation response? > > If I ever get a few spare dollars I will buy a better microscope preferably one that displays to my laptop. Then with a high power highly movable light source I’ll try side lighting and lots of other angles. > > What really scares me is, are these horrors feeding on my nerve endings? Is that why I feel something that should be too tiny to be felt. UGH! , do you have any ideas about this? Does anyone? > > Polly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 I think there really is something to this menopause issue.I was 52 when I got this.I think my testosterone is low and was low when I got this.Re formication my Mother had these severely...She could feel a hair on Her back and it would drive her a bit batty.She could never wear anything but a very non-binding garment.Could not stand a bra.She always would wear the softest 100 % cotton housedress that was often a very thin cotton.(the older,softer the better) it seemed Her skin was very irritable to the slightest pressure...Many older women in long term care take Neurontin or gabapentin for nerve damage,nerve pain.. --- myrtle_maui@... wrote: From: " myrtle_maui " <myrtle_maui@...> bird mites Subject: skin nerve endings theory Date: Wed, 03 Feb 2010 04:53:01 -0000 Hi Polly -- Since you asked anyone to respond, I thought I'd jump in here. I don't know how old you are, but I'm 51 and going through menopause this year. My great mite infestation occurred when I was 49. I think the drop in my hormone levels made me susceptible to the infestation because as far as I know, I've always been exposed to various mites--I'm no clean freak, and I've always had pets. Also due to menopause/low hormone levels, I believe the nerve endings in my skin are either hypersensitive or damaged. I have read in many places that perimenopausal and menopausal women sometimes experience " formication " , no, not fornication but formication, the sensation that bugs are crawling on your skin. I believe the sensation is in fact caused by bugs crawling on the skin, and that those of us with more sensitive and/or damaged nerve endings will feel anything that crawls on us. There was a lady from Houston named Joan who used to post here on behalf of her husband. He was treated by a dermatologist in Houston who first prescribed about 8 weeks of once-per-week doses of Stromectol (to kill the bugs), followed by a period of time taking Gabapentin to repair his damaged nerve endings. I believe he still felt crawling after taking the Stromectol, but that the crawling sensations ceased after he took Gabapentin. I have also read that Gabapentin is one of the few drugs that can help women who are having severe hot flashes during menopause. Gabapentin is a powerful drug and should be prescribed by a physician. myrtle > > Hi Katyie, > The farm theory is very interesting and unfortunately it sort of makes sense. > > You are so analytical that I have a question for you. I have looked at myself with a 4x magnifier in very bright light while I feel the sharp stab of a bite and see nothing. I have closely examined my body when it is stinging and burning with the 4x and see nothing. My skin feels like I have bumped into fiberglass and no matter how I illuminate the irritated area I see nothing sticking out of it at 4x. I have to wear sweatclothes inside out because it feels like myriads of tiny splinters projecting from my skin are catching on the fuzzy nap of the fabrics and yet I see nothing. > > My Question is, what is the threshold of human sensation. How do I feel so much pain from bites I can’t see happening. I wish I could find a microscopic point pin and examine my ability to feel something that tiny. I wish I had a brush with a microscopic bristle to see if I could feel it brushing across me. How do I feel something crawling on me that is too small to be seen. How big does something have to be to elicit a sensation response? > > If I ever get a few spare dollars I will buy a better microscope preferably one that displays to my laptop. Then with a high power highly movable light source I’ll try side lighting and lots of other angles. > > What really scares me is, are these horrors feeding on my nerve endings? Is that why I feel something that should be too tiny to be felt. UGH! , do you have any ideas about this? Does anyone? > > Polly ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Hi Myrtle and all. I am still here and my husband has not had any activity since taking the Gabapentin in Feb. 2009. I pray it will stay that way since he has so many other problems (severe rheumatoid arthritis and a major heart attack in August 2009). He is now doing pretty good with everything and has lost about 40 pounds which is a blessing too. I pray for all of you who are fighting this unknown demon and hopefully someone will come up with a "one size fits all" remedy. Hang in there everyone and trust God to help you with your fight. He can overcome anything. Joan skin nerve endings theory Hi Polly -- Since you asked anyone to respond, I thought I'd jump in here. I don't know how old you are, but I'm 51 and going through menopause this year. My great mite infestation occurred when I was 49. I think the drop in my hormone levels made me susceptible to the infestation because as far as I know, I've always been exposed to various mites--I'm no clean freak, and I've always had pets. Also due to menopause/low hormone levels, I believe the nerve endings in my skin are either hypersensitive or damaged. I have read in many places that perimenopausal and menopausal women sometimes experience "formication", no, not fornication but formication, the sensation that bugs are crawling on your skin. I believe the sensation is in fact caused by bugs crawling on the skin, and that those of us with more sensitive and/or damaged nerve endings will feel anything that crawls on us. There was a lady from Houston named Joan who used to post here on behalf of her husband. He was treated by a dermatologist in Houston who first prescribed about 8 weeks of once-per-week doses of Stromectol (to kill the bugs), followed by a period of time taking Gabapentin to repair his damaged nerve endings. I believe he still felt crawling after taking the Stromectol, but that the crawling sensations ceased after he took Gabapentin. I have also read that Gabapentin is one of the few drugs that can help women who are having severe hot flashes during menopause. Gabapentin is a powerful drug and should be prescribed by a physician.myrtle>> Hi Katyie,> The farm theory is very interesting and unfortunately it sort of makes sense. > > You are so analytical that I have a question for you. I have looked at myself with a 4x magnifier in very bright light while I feel the sharp stab of a bite and see nothing. I have closely examined my body when it is stinging and burning with the 4x and see nothing. My skin feels like I have bumped into fiberglass and no matter how I illuminate the irritated area I see nothing sticking out of it at 4x. I have to wear sweatclothes inside out because it feels like myriads of tiny splinters projecting from my skin are catching on the fuzzy nap of the fabrics and yet I see nothing.> > My Question is, what is the threshold of human sensation. How do I feel so much pain from bites I can’t see happening. I wish I could find a microscopic point pin and examine my ability to feel something that tiny. I wish I had a brush with a microscopic bristle to see if I could feel it brushing across me. How do I feel something crawling on me that is too small to be seen. How big does something have to be to elicit a sensation response?> > If I ever get a few spare dollars I will buy a better microscope preferably one that displays to my laptop. Then with a high power highly movable light source I’ll try side lighting and lots of other angles.> > What really scares me is, are these horrors feeding on my nerve endings? Is that why I feel something that should be too tiny to be felt. UGH! , do you have any ideas about this? Does anyone?> > Polly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Hi , Interesting thoughts about hormones and nerves. I was 31 when I got this (I am now 33). I got this disease soon after I was fired from the most stressful job I had in my life. Also, I am a lean muscular male, but still wonder if my hormone levels are off. My sex drive plummeted, especially after taking extremely strong drugs to treat sickness in Africa (when I was 28). But maybe it is normal to have a much lower sex drive in my 30's? J From: Rose <rosebanks@...>bird mites Sent: Wed, February 3, 2010 12:12:22 AMSubject: Re: skin nerve endings theory I think there really is something to this menopause issue.I was 52 when I got this.I think my testosterone is low and was low when I got this.Re formication my Mother had these severely...She could feel a hair on Her back and it would drive her a bit batty.She could never wear anything but a very non-binding garment.Could not stand a bra.She always would wear the softest 100 % cotton housedress that was often a very thin cotton.(the older,softer the better) it seemed Her skin was very irritable to the slightest pressure...Many older women in long term care take Neurontin or gabapentin for nerve damage,nerve pain.. --- myrtle_maui wrote: From: "myrtle_maui" <myrtle_maui> bird mites Subject: skin nerve endings theory Date: Wed, 03 Feb 2010 04:53:01 -0000 Hi Polly -- Since you asked anyone to respond, I thought I'd jump in here. I don't know how old you are, but I'm 51 and going through menopause this year. My great mite infestation occurred when I was 49. I think the drop in my hormone levels made me susceptible to the infestation because as far as I know, I've always been exposed to various mites--I'm no clean freak, and I've always had pets. Also due to menopause/low hormone levels, I believe the nerve endings in my skin are either hypersensitive or damaged. I have read in many places that perimenopausal and menopausal women sometimes experience "formication" , no, not fornication but formication, the sensation that bugs are crawling on your skin. I believe the sensation is in fact caused by bugs crawling on the skin, and that those of us with more sensitive and/or damaged nerve endings will feel anything that crawls on us. There was a lady from Houston named Joan who used to post here on behalf of her husband. He was treated by a dermatologist in Houston who first prescribed about 8 weeks of once-per-week doses of Stromectol (to kill the bugs), followed by a period of time taking Gabapentin to repair his damaged nerve endings. I believe he still felt crawling after taking the Stromectol, but that the crawling sensations ceased after he took Gabapentin. I have also read that Gabapentin is one of the few drugs that can help women who are having severe hot flashes during menopause. Gabapentin is a powerful drug and should be prescribed by a physician. myrtle > > Hi Katyie, > The farm theory is very interesting and unfortunately it sort of makes sense. > > You are so analytical that I have a question for you. I have looked at myself with a 4x magnifier in very bright light while I feel the sharp stab of a bite and see nothing. I have closely examined my body when it is stinging and burning with the 4x and see nothing. My skin feels like I have bumped into fiberglass and no matter how I illuminate the irritated area I see nothing sticking out of it at 4x. I have to wear sweatclothes inside out because it feels like myriads of tiny splinters projecting from my skin are catching on the fuzzy nap of the fabrics and yet I see nothing. > > My Question is, what is the threshold of human sensation. How do I feel so much pain from bites I canât see happening. I wish I could find a microscopic point pin and examine my ability to feel something that tiny. I wish I had a brush with a microscopic bristle to see if I could feel it brushing across me. How do I feel something crawling on me that is too small to be seen. How big does something have to be to elicit a sensation response? > > If I ever get a few spare dollars I will buy a better microscope preferably one that displays to my laptop. Then with a high power highly movable light source Iâll try side lighting and lots of other angles. > > What really scares me is, are these horrors feeding on my nerve endings? Is that why I feel something that should be too tiny to be felt. UGH! , do you have any ideas about this? Does anyone? > > Polly ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Joan! I'm glad you're still out there, and glad to hear that Neal is doing better since his heart attack. Aloha, myrtle > > Hi Myrtle and all. I am still here and my husband has not had any activity since taking the Gabapentin in Feb. 2009. I pray it will stay that way since he has so many other problems (severe rheumatoid arthritis and a major heart attack in August 2009). He is now doing pretty good with everything and has lost about 40 pounds which is a blessing too. I pray for all of you who are fighting this unknown demon and hopefully someone will come up with a " one size fits all " remedy. Hang in there everyone and trust God to help you with your fight. He can overcome anything. > Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 J -- I don't think it's normal for a man of your (young) age to have a much lower sex drive than before. I have a male friend in his 60's who is still very lively. I have read that stress hormones will lower your defenses against infection, and I've also read about adrenal insufficiency or exhaustion that can be caused by stress. I found this Q & A about adrenal exhaustion that is interesting but possibly inaccurate: http://educate-yourself.org/cn/adrenalburnout19apr05.shtml Also, you may have picked up a microbe or two in Africa that served as a co-factor to make you susceptible to the skin-mite infestation. myrtle > > Hi , > > Interesting thoughts about hormones and nerves. > > I was 31 when I got this (I am now 33). I got this disease soon after I was fired from the most stressful job I had in my life. Also, I am a lean muscular male, but still wonder if my hormone levels are off. My sex drive plummeted, especially after taking extremely strong drugs to treat sickness in Africa (when I was 28). But maybe it is normal to have a much lower sex drive in my 30's? > > J > > >  > > > > ________________________________ > From: Rose <rosebanks@...> > bird mites > Sent: Wed, February 3, 2010 12:12:22 AM > Subject: Re: skin nerve endings theory > >  > > I think there really is something to this menopause issue.I was 52 when I got this.I think my testosterone is low and was low when I got this.Re formication my Mother had these severely...She could feel a hair on Her back and it would drive her a bit batty.She could never wear anything but a very non-binding garment.Could not stand a bra.She always would wear the softest 100 % cotton housedress that was often a very thin cotton.(the older,softer the better) it seemed Her skin was very irritable to the slightest pressure...Many older women in long term care take Neurontin or gabapentin for nerve damage,nerve pain.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 J, NO, it's not normal for a guy your age to even be thinking that it is normal for a guy 33 to have a lower sex drive. Your life has come down crashing around your shoulders over the last two years. Your marriage has tanked, your totally entitled to be down and depressed over it. That's probably what is making you feel how you are feeling. I would take a bet from you, that if you have your testosterone tested, that it will be completely normal. I could be your uncle, not great uncle...lol, and I had mine tested recently and it was fine. I've had one of the worst nerve diseases that you can get, guillian barre, and I still have a sex drive, minus a couple of jillion nerves, more or less. You are doing so well, it's time for you to get over being afraid of this, and to jump back in the saddle and go on a few dates. Your not going to melt, or more impotant, melt anyone else now. Your basically over this J...Start living again!! You seem like a really nice guy and it's time for you to get back out there. Sorry for the jealous rant. B > > Hi , > > Interesting thoughts about hormones and nerves. > > I was 31 when I got this (I am now 33). I got this disease soon after I was fired from the most stressful job I had in my life. Also, I am a lean muscular male, but still wonder if my hormone levels are off. My sex drive plummeted, especially after taking extremely strong drugs to treat sickness in Africa (when I was 28). But maybe it is normal to have a much lower sex drive in my 30's? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Hi J S,I know my thought are not original on testosterone.I think this disease effects women more then men(not sure however what the statistics are)Sickness doesn't do much for anyones sex drive.I know mine is much lower prior to getting this and definitely now.I too had the worst exhausting job before getting this and then I was working in the bug hospital.I keep forgetting to order dhea vitamin which is something like the precursor Your body needs to make testosterone.I am not sure it is a wise thing to take but sometimes I try different things in the great search to get relief from these demons.I should probably research it more.Don't know about interactions with this vitamin dhea with other meds,vitamins etc.Did not know You are so young getting this misery.I think more and more of us are going to kick this.Sleep good.RR --- requireshelp@... wrote: From: J S <requireshelp@...> bird mites Subject: Re: skin nerve endings theory Date: Wed, 3 Feb 2010 16:44:58 -0800 (PST) Hi , Interesting thoughts about hormones and nerves. I was 31 when I got this (I am now 33). I got this disease soon after I was fired from the most stressful job I had in my life. Also, I am a lean muscular male, but still wonder if my hormone levels are off. My sex drive plummeted, especially after taking extremely strong drugs to treat sickness in Africa (when I was 28). But maybe it is normal to have a much lower sex drive in my 30's? J  ________________________________ From: Rose <rosebanks@...> bird mites Sent: Wed, February 3, 2010 12:12:22 AM Subject: Re: skin nerve endings theory  I think there really is something to this menopause issue.I was 52 when I got this.I think my testosterone is low and was low when I got this.Re formication my Mother had these severely...She could feel a hair on Her back and it would drive her a bit batty.She could never wear anything but a very non-binding garment.Could not stand a bra.She always would wear the softest 100 % cotton housedress that was often a very thin cotton.(the older,softer the better) it seemed Her skin was very irritable to the slightest pressure...Many older women in long term care take Neurontin or gabapentin for nerve damage,nerve pain.. --- myrtle_maui wrote: From: " myrtle_maui " <myrtle_maui> bird mites Subject: skin nerve endings theory Date: Wed, 03 Feb 2010 04:53:01 -0000 Hi Polly -- Since you asked anyone to respond, I thought I'd jump in here. I don't know how old you are, but I'm 51 and going through menopause this year. My great mite infestation occurred when I was 49. I think the drop in my hormone levels made me susceptible to the infestation because as far as I know, I've always been exposed to various mites--I'm no clean freak, and I've always had pets. Also due to menopause/low hormone levels, I believe the nerve endings in my skin are either hypersensitive or damaged. I have read in many places that perimenopausal and menopausal women sometimes experience " formication " , no, not fornication but formication, the sensation that bugs are crawling on your skin. I believe the sensation is in fact caused by bugs crawling on the skin, and that those of us with more sensitive and/or damaged nerve endings will feel anything that crawls on us. There was a lady from Houston named Joan who used to post here on behalf of her husband. He was treated by a dermatologist in Houston who first prescribed about 8 weeks of once-per-week doses of Stromectol (to kill the bugs), followed by a period of time taking Gabapentin to repair his damaged nerve endings. I believe he still felt crawling after taking the Stromectol, but that the crawling sensations ceased after he took Gabapentin. I have also read that Gabapentin is one of the few drugs that can help women who are having severe hot flashes during menopause. Gabapentin is a powerful drug and should be prescribed by a physician. myrtle > > Hi Katyie, > The farm theory is very interesting and unfortunately it sort of makes sense. > > You are so analytical that I have a question for you. I have looked at myself with a 4x magnifier in very bright light while I feel the sharp stab of a bite and see nothing. I have closely examined my body when it is stinging and burning with the 4x and see nothing. My skin feels like I have bumped into fiberglass and no matter how I illuminate the irritated area I see nothing sticking out of it at 4x. I have to wear sweatclothes inside out because it feels like myriads of tiny splinters projecting from my skin are catching on the fuzzy nap of the fabrics and yet I see nothing. > > My Question is, what is the threshold of human sensation. How do I feel so much pain from bites I canât see happening. I wish I could find a microscopic point pin and examine my ability to feel something that tiny. I wish I had a brush with a microscopic bristle to see if I could feel it brushing across me. How do I feel something crawling on me that is too small to be seen. How big does something have to be to elicit a sensation response? > > If I ever get a few spare dollars I will buy a better microscope preferably one that displays to my laptop. Then with a high power highly movable light source Iâll try side lighting and lots of other angles. > > What really scares me is, are these horrors feeding on my nerve endings? Is that why I feel something that should be too tiny to be felt. UGH! , do you have any ideas about this? Does anyone? > > Polly ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Perhaps my hormones were very low because every thing else was a bit fungal mess...Sure had a sugar problem back then...all those candies,cookies,cakes etc We always had at the job...Think it's great We are cleaning up our insides...Think it was my intestines,too. Just have a sneaky feeling about testosterone..Anyway my Dear,love ya,Rose --- torpedolynn@... wrote: From: " Lynn " <torpedolynn@...> bird mites Subject: Re: skin nerve endings theory Date: Thu, 04 Feb 2010 07:21:30 -0000 Hi Rose I use to think the hormones had something to do with it. Now I am not so sure. Now that I am getting well and have already gone through menopause not too long ago saw the end of that. I think its just quisidence that the hormones are down when this thing comes along. I think our other health problems make the hormones go down at the same time as other things. Also not everyone has the same things go down. Some may just be emmune system. I think that what ever the molds or toxins get to and attack the most is whare our troubles will be the most. For me it is my intestines. Polluted my body so the molds and fungases I was exposed to could take hold and than when saturated enough the mites found me. Things like that. It will be interesting to find out by the medical sociaty if they ever get serious about this dease or have to wait and ask God. lol. Boy I have alot of questions when I get there. lol. In Light Lynn > > Hi J S,I know my thought are not original on testosterone.I think this disease effects women more then men(not sure however what the statistics are)Sickness doesn't do much for anyones sex drive.I know mine is much lower prior to getting this and definitely now.I too had the worst exhausting job before getting this and then I was working in the bug hospital.I keep forgetting to order dhea vitamin which is something like the precursor Your body needs to make testosterone.I am not sure it is a wise thing to take but sometimes I try different things in the great search to get relief from these demons.I should probably research it more.Don't know about interactions with this vitamin dhea with other meds,vitamins etc.Did not know You are so young getting this misery.I think more and more of us are going to kick this.Sleep good.RR ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Bobby - How and when did you get guillian barre? Vaccination? Bessie > > > > Hi , > > > > Interesting thoughts about hormones and nerves. > > > > I was 31 when I got this (I am now 33). I got this disease soon after I was fired from the most stressful job I had in my life. Also, I am a lean muscular male, but still wonder if my hormone levels are off. My sex drive plummeted, especially after taking extremely strong drugs to treat sickness in Africa (when I was 28). But maybe it is normal to have a much lower sex drive in my 30's? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Hi Lynn, I too used to be very into sweets. Every day I would have half a box of cookies & at least 1 caramel sunday from Mcdonalds along with cinnamon toast crunch cerial in the morning & then potatoes etc...for lunch & dinner. I have completely stopped eating that way for almost 3 weeks now after I heard that the sugar causes bacteria to grow. Once I stopped eating all the sweets the bug bites got lower & lower in activity. This past Saturday was a full moon & I also started my period this week which I usually get increased bug activity with the crawling & biting. But since I stopped eating sugar & I mean completely stopped cold turkey I haven't had any hardcore biting. Although I did get some increased bug activity the day I started menstruating but only for 2 days but then it stopped. I was so happy because I feel like I'm beating this thing now that I know what works (the no sugar diet.) I got so excited that I went on a 3 day carb binge & although I got some tiny bites & minimal crawling I'm still o.k. Tomorrow I will go back on the no sugar no carb diet. From: Lynn <torpedolynn@...>Subject: Re: skin nerve endings theorybird mites Date: Thursday, February 4, 2010, 9:54 PM My fungal feeder was ice cream. Lots of it. Three to four days a week. Large bowel in place of a meal. Usually lunch time. Now I have not bought ice cream for quite some time. Will never go back to eating like that again. lol. In Light Lynn>> Perhaps my hormones were very low because every thing else was a bit fungal mess...Sure had a sugar problem back then...all those candies,cookies, cakes etc We always had at the job...Think it's great We are cleaning up our insides...Think it was my intestines,too. Just have a sneaky feeling about testosterone. .Anyway my Dear,love ya,Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Bessie, I had Guillian Barre in the early 90's. I had a bacterial infection or a virus for several days that sent my temp up to 105. GB then hit me about 8 days later. I can't remember if I had had a flu shot just before I became ill. I can't get any flu vaccine now for the potential of relapse. B > > > > > > Hi , > > > > > > Interesting thoughts about hormones and nerves. > > > > > > I was 31 when I got this (I am now 33). I got this disease soon after I was fired from the most stressful job I had in my life. Also, I am a lean muscular male, but still wonder if my hormone levels are off. My sex drive plummeted, especially after taking extremely strong drugs to treat sickness in Africa (when I was 28). But maybe it is normal to have a much lower sex drive in my 30's? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Wow. That's a pretty serious condition, sometimes fatal. Have you recovered all functions? The nervous system is remarkable, and can generate new pathways. And if the cell body is spared, it can grow new axons. I have had some pretty serious MS exacerbations but have recovered almost 100%. The vision in my right eye is permanently affected, including the eyelid which sags (especially when I'm tired). Other than that, a detailed neuro exam is needed to detect residuals. I'm very lucky! Bessie > > > > > > > > Hi , > > > > > > > > Interesting thoughts about hormones and nerves. > > > > > > > > I was 31 when I got this (I am now 33). I got this disease soon after I was fired from the most stressful job I had in my life. Also, I am a lean muscular male, but still wonder if my hormone levels are off. My sex drive plummeted, especially after taking extremely strong drugs to treat sickness in Africa (when I was 28). But maybe it is normal to have a much lower sex drive in my 30's? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Joan - Does he still take gabapentin? Bessie > > > > Hi Katyie, > > The farm theory is very interesting and unfortunately it sort of makes sense. > > > > You are so analytical that I have a question for you. I have looked at myself with a 4x magnifier in very bright light while I feel the sharp stab of a bite and see nothing. I have closely examined my body when it is stinging and burning with the 4x and see nothing. My skin feels like I have bumped into fiberglass and no matter how I illuminate the irritated area I see nothing sticking out of it at 4x. I have to wear sweatclothes inside out because it feels like myriads of tiny splinters projecting from my skin are catching on the fuzzy nap of the fabrics and yet I see nothing. > > > > My Question is, what is the threshold of human sensation. How do I feel so much pain from bites I canâ?Tt see happening. I wish I could find a microscopic point pin and examine my ability to feel something that tiny. I wish I had a brush with a microscopic bristle to see if I could feel it brushing across me. How do I feel something crawling on me that is too small to be seen. How big does something have to be to elicit a sensation response? > > > > If I ever get a few spare dollars I will buy a better microscope preferably one that displays to my laptop. Then with a high power highly movable light source Iâ?Tll try side lighting and lots of other angles. > > > > What really scares me is, are these horrors feeding on my nerve endings? Is that why I feel something that should be too tiny to be felt. UGH! , do you have any ideas about this? Does anyone? > > > > Polly > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 No, and he only took it when the crawling sensation got too much for him. I guess he took it about 2 weeks max. Still have some on hand but have not needed it. Hopefully it will stay that way. Joan Re: skin nerve endings theory Joan -Does he still take gabapentin?Bessie> >> > Hi Katyie,> > The farm theory is very interesting and unfortunately it sort of makes sense. > > > > You are so analytical that I have a question for you. I have looked at myself with a 4x magnifier in very bright light while I feel the sharp stab of a bite and see nothing. I have closely examined my body when it is stinging and burning with the 4x and see nothing. My skin feels like I have bumped into fiberglass and no matter how I illuminate the irritated area I see nothing sticking out of it at 4x. I have to wear sweatclothes inside out because it feels like myriads of tiny splinters projecting from my skin are catching on the fuzzy nap of the fabrics and yet I see nothing.> > > > My Question is, what is the threshold of human sensation. How do I feel so much pain from bites I canâ?Tt see happening. I wish I could find a microscopic point pin and examine my ability to feel something that tiny. I wish I had a brush with a microscopic bristle to see if I could feel it brushing across me. How do I feel something crawling on me that is too small to be seen. How big does something have to be to elicit a sensation response?> > > > If I ever get a few spare dollars I will buy a better microscope preferably one that displays to my laptop. Then with a high power highly movable light source Iâ?Tll try side lighting and lots of other angles.> > > > What really scares me is, are these horrors feeding on my nerve endings? Is that why I feel something that should be too tiny to be felt. UGH! , do you have any ideas about this? Does anyone?> > > > Polly> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 RR -- Marc Neumann did a survey a couple of years ago and posted the results on his website: http://www.morgellons-research.org/morgellons/ Click on " Blog and Inquiry " , then click on " Inquiry Results " . He tallied the responses from about 7,500 respondents and found that about 2/3 of those afflicted were women. His graph shows the disease distribution by age. myrtle > > Hi J S,I know my thought are not original on testosterone.I think this disease effects women more then men(not sure however what the statistics are)Sickness doesn't do much for anyones sex drive.I know mine is much lower prior to getting this and definitely now.I too had the worst exhausting job before getting this and then I was working in the bug hospital.I keep forgetting to order dhea vitamin which is something like the precursor Your body needs to make testosterone.I am not sure it is a wise thing to take but sometimes I try different things in the great search to get relief from these demons.I should probably research it more.Don't know about interactions with this vitamin dhea with other meds,vitamins etc.Did not know You are so young getting this misery.I think more and more of us are going to kick this.Sleep good.RR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Joan - Glad to hear that! I have a friend (with M) who took it for about 15 months and is having some serious issues getting off it. I guess it works by disrupting nerve transmission and can cause permanent CNS dysfunction, including cognitive and psychological/emotional problems, physical pain, and problems with motor skills. I'm guessing taking it the way your husband did (i.e., wisely) it would not cause any problems. Glad he is improving overall. He's been through a lot - good thing he has such a great wife! Bessie > > > > > > Hi Katyie, > > > The farm theory is very interesting and unfortunately it sort of makes sense. > > > > > > You are so analytical that I have a question for you. I have looked at myself with a 4x magnifier in very bright light while I feel the sharp stab of a bite and see nothing. I have closely examined my body when it is stinging and burning with the 4x and see nothing. My skin feels like I have bumped into fiberglass and no matter how I illuminate the irritated area I see nothing sticking out of it at 4x. I have to wear sweatclothes inside out because it feels like myriads of tiny splinters projecting from my skin are catching on the fuzzy nap of the fabrics and yet I see nothing. > > > > > > My Question is, what is the threshold of human sensation. How do I feel so much pain from bites I canâ?Tt see happening. I wish I could find a microscopic point pin and examine my ability to feel something that tiny. I wish I had a brush with a microscopic bristle to see if I could feel it brushing across me. How do I feel something crawling on me that is too small to be seen. How big does something have to be to elicit a sensation response? > > > > > > If I ever get a few spare dollars I will buy a better microscope preferably one that displays to my laptop. Then with a high power highly movable light source Iâ?Tll try side lighting and lots of other angles. > > > > > > What really scares me is, are these horrors feeding on my nerve endings? Is that why I feel something that should be too tiny to be felt. UGH! , do you have any ideas about this? Does anyone? > > > > > > Polly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Thanks for your input Myrtle. It was helpful. I may be going through adrenal exhaustion for the last few years. J From: myrtle_maui <myrtle_maui@...>bird mites Sent: Thu, February 4, 2010 12:08:14 AMSubject: Re: skin nerve endings theory J -- I don't think it's normal for a man of your (young) age to have a much lower sex drive than before. I have a male friend in his 60's who is still very lively. I have read that stress hormones will lower your defenses against infection, and I've also read about adrenal insufficiency or exhaustion that can be caused by stress. I found this Q & A about adrenal exhaustion that is interesting but possibly inaccurate:http://educate- yourself. org/cn/adrenalbu rnout19apr05. shtmlAlso, you may have picked up a microbe or two in Africa that served as a co-factor to make you susceptible to the skin-mite infestation.myrtle>> Hi ,> > Interesting thoughts about hormones and nerves.> > I was 31 when I got this (I am now 33). I got this disease soon after I was fired from the most stressful job I had in my life. Also, I am a lean muscular male, but still wonder if my hormone levels are off. My sex drive plummeted, especially after taking extremely strong drugs to treat sickness in Africa (when I was 28). But maybe it is normal to have a much lower sex drive in my 30's?> > J> > >  > > > > ____________ _________ _________ __> From: Rose <rosebanks@. ..>> bird mites> Sent: Wed, February 3, 2010 12:12:22 AM> Subject: Re: skin nerve endings theory> >  > > I think there really is something to this menopause issue.I was 52 when I got this.I think my testosterone is low and was low when I got this.Re formication my Mother had these severely...She could feel a hair on Her back and it would drive her a bit batty.She could never wear anything but a very non-binding garment.Could not stand a bra.She always would wear the softest 100 % cotton housedress that was often a very thin cotton.(the older,softer the better) it seemed Her skin was very irritable to the slightest pressure...Many older women in long term care take Neurontin or gabapentin for nerve damage,nerve pain.. Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Bobby thanks for your insight and encouragement. Getting responses like these reminds me that people here like you really care. I did meet some new people last night. It was a nice time. J From: bobbyboyd99 <bobbyboyd99@...>bird mites Sent: Thu, February 4, 2010 1:24:03 AMSubject: Re: skin nerve endings theory J, NO, it's not normal for a guy your age to even be thinking that it is normal for a guy 33 to have a lower sex drive. Your life has come down crashing around your shoulders over the last two years. Your marriage has tanked, your totally entitled to be down and depressed over it. That's probably what is making you feel how you are feeling.I would take a bet from you, that if you have your testosterone tested, that it will be completely normal. I could be your uncle, not great uncle...lol, and I had mine tested recently and it was fine. I've had one of the worst nerve diseases that you can get, guillian barre, and I still have a sex drive, minus a couple of jillion nerves, more or less.You are doing so well, it's time for you to get over being afraid of this, and to jump back in the saddle and go on a few dates. Your not going to melt, or more impotant, melt anyone else now. Your basically over this J...Start living again!! You seem like a really nice guy and it's time for you to get back out there. Sorry for the jealous rant. B>> Hi ,> > Interesting thoughts about hormones and nerves.> > I was 31 when I got this (I am now 33). I got this disease soon after I was fired from the most stressful job I had in my life. Also, I am a lean muscular male, but still wonder if my hormone levels are off. My sex drive plummeted, especially after taking extremely strong drugs to treat sickness in Africa (when I was 28). But maybe it is normal to have a much lower sex drive in my 30's? Looking for the perfect gift? Give the gift of Flickr! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Thanks . Maybe the DHEA will help you. I haven't heard much about it. You sleep good too! J From: Rose <rosebanks@...>bird mites Sent: Thu, February 4, 2010 1:47:41 AMSubject: Re: skin nerve endings theory Hi J S,I know my thought are not original on testosterone. I think this disease effects women more then men(not sure however what the statistics are)Sickness doesn't do much for anyones sex drive.I know mine is much lower prior to getting this and definitely now.I too had the worst exhausting job before getting this and then I was working in the bug hospital.I keep forgetting to order dhea vitamin which is something like the precursor Your body needs to make testosterone. I am not sure it is a wise thing to take but sometimes I try different things in the great search to get relief from these demons.I should probably research it more.Don't know about interactions with this vitamin dhea with other meds,vitamins etc.Did not know You are so young getting this misery.I think more and more of us are going to kick this.Sleep good.RR --- requireshelp wrote: From: J S <requireshelp> bird mites Subject: Re: skin nerve endings theory Date: Wed, 3 Feb 2010 16:44:58 -0800 (PST) Hi , Interesting thoughts about hormones and nerves. I was 31 when I got this (I am now 33). I got this disease soon after I was fired from the most stressful job I had in my life. Also, I am a lean muscular male, but still wonder if my hormone levels are off. My sex drive plummeted, especially after taking extremely strong drugs to treat sickness in Africa (when I was 28). But maybe it is normal to have a much lower sex drive in my 30's? J ____________ _________ _________ __ From: Rose <rosebanks@hot- email.net> bird mites Sent: Wed, February 3, 2010 12:12:22 AM Subject: Re: skin nerve endings theory I think there really is something to this menopause issue.I was 52 when I got this.I think my testosterone is low and was low when I got this.Re formication my Mother had these severely...She could feel a hair on Her back and it would drive her a bit batty.She could never wear anything but a very non-binding garment.Could not stand a bra.She always would wear the softest 100 % cotton housedress that was often a very thin cotton.(the older,softer the better) it seemed Her skin was very irritable to the slightest pressure...Many older women in long term care take Neurontin or gabapentin for nerve damage,nerve pain.. --- myrtle_maui wrote: From: "myrtle_maui" <myrtle_maui> bird mites Subject: skin nerve endings theory Date: Wed, 03 Feb 2010 04:53:01 -0000 Hi Polly -- Since you asked anyone to respond, I thought I'd jump in here. I don't know how old you are, but I'm 51 and going through menopause this year. My great mite infestation occurred when I was 49. I think the drop in my hormone levels made me susceptible to the infestation because as far as I know, I've always been exposed to various mites--I'm no clean freak, and I've always had pets. Also due to menopause/low hormone levels, I believe the nerve endings in my skin are either hypersensitive or damaged. I have read in many places that perimenopausal and menopausal women sometimes experience "formication" , no, not fornication but formication, the sensation that bugs are crawling on your skin. I believe the sensation is in fact caused by bugs crawling on the skin, and that those of us with more sensitive and/or damaged nerve endings will feel anything that crawls on us. There was a lady from Houston named Joan who used to post here on behalf of her husband. He was treated by a dermatologist in Houston who first prescribed about 8 weeks of once-per-week doses of Stromectol (to kill the bugs), followed by a period of time taking Gabapentin to repair his damaged nerve endings. I believe he still felt crawling after taking the Stromectol, but that the crawling sensations ceased after he took Gabapentin. I have also read that Gabapentin is one of the few drugs that can help women who are having severe hot flashes during menopause. Gabapentin is a powerful drug and should be prescribed by a physician. myrtle > > Hi Katyie, > The farm theory is very interesting and unfortunately it sort of makes sense. > > You are so analytical that I have a question for you. I have looked at myself with a 4x magnifier in very bright light while I feel the sharp stab of a bite and see nothing. I have closely examined my body when it is stinging and burning with the 4x and see nothing. My skin feels like I have bumped into fiberglass and no matter how I illuminate the irritated area I see nothing sticking out of it at 4x. I have to wear sweatclothes inside out because it feels like myriads of tiny splinters projecting from my skin are catching on the fuzzy nap of the fabrics and yet I see nothing. > > My Question is, what is the threshold of human sensation. How do I feel so much pain from bites I canât see happening. I wish I could find a microscopic point pin and examine my ability to feel something that tiny. I wish I had a brush with a microscopic bristle to see if I could feel it brushing across me. How do I feel something crawling on me that is too small to be seen. How big does something have to be to elicit a sensation response? > > If I ever get a few spare dollars I will buy a better microscope preferably one that displays to my laptop. Then with a high power highly movable light source Iâll try side lighting and lots of other angles. > > What really scares me is, are these horrors feeding on my nerve endings? Is that why I feel something that should be too tiny to be felt. UGH! , do you have any ideas about this? Does anyone? > > Polly ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Hi Lynn. Neal only had the bird mites and we DID see them. caught a few with scotch tape, which I sent to Dr. Ben Oldag at CedarCide who confirmed they were bird mites. Neal never had any other problems once we got rid of the critters, but that was a long hard battle that took over a year. We hope never to go through that again. Glad you are doing so much better. Joan Re: skin nerve endings theory Hi JoanSorry to dig in here but my curiousity is up. Did just your husband have mites only. Did he have anything else with it such as Morgellons or just the bugs?? He got complete cure from that medicine from the bugs?? I think that is so cool.In Light Lynn>> No, and he only took it when the crawling sensation got too much for him. I guess he took it about 2 weeks max. Still have some on hand but have not needed it. Hopefully it will stay that way.> Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Joan, What was the method, by which you caught the bird mites, using scotch tape? D. > > > > No, and he only took it when the crawling sensation got too much for him. I guess he took it about 2 weeks max. Still have some on hand but have not needed it. Hopefully it will stay that way. > > Joan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 J, That's exactly what you need to do. Get out and make new friends. Your life will start to become normal again. You have all your controls for small little incidents of hits here and there, from family, stores or whereever, so it will never get out of control for you again. Your a nice guy, tell us soon that you are dating again. DHEA might be a good suggestion to kickstart your sex drive again if you think you need it. Not for long term use though. Check it out. After what we go though/have gone through,also look into adrenal stress or fatigue. We are ripe candidates for it. Here's a link from Dr Mercola to check out. http://articles.mercola.com/sites/articles/archive/2009/09/05/Most-Common-Cause-\ of-Fatigue-that-is-Missed-or-Misdiagnosed-by-Doctors--.aspx I found this article on adrenal fatigue also interesting for the supplements it suggests for it. It seems like magnesium, liquid minerals and the all the B's are becoming more important in Morgellons treatment also. I've started the http://www.herbalhealer.com/3pointplan.html three point plan for health, which has helped Lynn and Sue H. very much. There are common elements with the three point plan and treatment for adrenal fatigue. I think this plan is going to become very important in this room in helping us to heal. http://www.power-surge.com/educate/adrenalfatigue.htm I would take a bet that it would help your sex drive and just help make you feel better. And no, no stock in the herbalhealer...lollol B > > Bobby thanks for your insight and encouragement. Getting responses like these reminds me that people here like you really care. > I did meet some new people last night. It was a nice time. > J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2010 Report Share Posted February 7, 2010 Thanks Bessie, but I'm not sure he would agree with you when we have a difference of opinion! Joan Re: skin nerve endings theory Joan -Glad to hear that! I have a friend (with M) who took it for about 15 months and is having some serious issues getting off it. I guess it works by disrupting nerve transmission and can cause permanent CNS dysfunction, including cognitive and psychological/emotional problems, physical pain, and problems with motor skills. I'm guessing taking it the way your husband did (i.e., wisely) it would not cause any problems.Glad he is improving overall. He's been through a lot - good thing he has such a great wife!Bessie> > >> > > Hi Katyie,> > > The farm theory is very interesting and unfortunately it sort of makes sense. > > > > > > You are so analytical that I have a question for you. I have looked at myself with a 4x magnifier in very bright light while I feel the sharp stab of a bite and see nothing. I have closely examined my body when it is stinging and burning with the 4x and see nothing. My skin feels like I have bumped into fiberglass and no matter how I illuminate the irritated area I see nothing sticking out of it at 4x. I have to wear sweatclothes inside out because it feels like myriads of tiny splinters projecting from my skin are catching on the fuzzy nap of the fabrics and yet I see nothing.> > > > > > My Question is, what is the threshold of human sensation. How do I feel so much pain from bites I canâ?Tt see happening. I wish I could find a microscopic point pin and examine my ability to feel something that tiny. I wish I had a brush with a microscopic bristle to see if I could feel it brushing across me. How do I feel something crawling on me that is too small to be seen. How big does something have to be to elicit a sensation response?> > > > > > If I ever get a few spare dollars I will buy a better microscope preferably one that displays to my laptop. Then with a high power highly movable light source Iâ?Tll try side lighting and lots of other angles.> > > > > > What really scares me is, are these horrors feeding on my nerve endings? Is that why I feel something that should be too tiny to be felt. UGH! , do you have any ideas about this? Does anyone?> > > > > > Polly> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2010 Report Share Posted February 7, 2010 The first one we caught Neal felt it crawling on his neck and he grabbed his lint roller and snagged it. The rest I caught with scotch tape after Neal had gotten out of bed (first thing) before they had a chance to go back into hiding. Ours were very small - about the size of the period at end of sentence, and I used a magnifying glass to help me see them. After we started washing our clothing with Roach Prufe we would find dead ones on the washer and dryer for a few days. We still wash some things with Roach Prufe in the water but not everything that we were doing right at first. Joan Re: skin nerve endings theory Joan,What was the method, by which you caught the bird mites, using scotch tape?D.> >> > No, and he only took it when the crawling sensation got too much for him. I guess he took it about 2 weeks max. Still have some on hand but have not needed it. Hopefully it will stay that way.> > Joan> Quote Link to comment Share on other sites More sharing options...
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