Re: Preliminary report from the CDC

[Guest guest]

Thank you for keeping up with this......................it sure is taking them a long time..............

Preliminary report from the CDC

http://www.cdc.gov/unexplaineddermopathy/updates.htmlPreliminary Report on Progress of External Peer Review ofCDC's Unexplained Dermopathy Projectto the CCID Board of Scientific CounselorsNovember 4, 2009In January 2008, CDC launched an epidemiologic investigation of an unexplained skin condition which some refer to as "Morgellons." The primary goals of the investigation are to help us learn more about who may be affected with this condition and the symptoms they experience and to generate hypotheses about factors that may contribute to it. Data collection has been completed and analysis is ongoing. This investigation was conducted out of the National Center for Zoonotic, Vector-borne, and Enteric Diseases' (NCZVED) Division of Parasitic Diseases (DPD), with input from a cross-agency, multi-disciplinary workgroup. On September 24, 2009, DPD convened an external review panel to examine study activities to date and provide advice on future activities. DPD outlined several questions for the panel to address:1. Have the project's goals and priorities been addressed?2. What are the study's strengths?3. What are the study's limitations?4. Are there gaps of concern or need for additional study?5. What findings can be communicated to the public, medical community, and stakeholder community?6. What is the public health impact of this study?7. What should the priorities be in the future?The panel has not yet released a report of its findings to CDC. When we receive a report from the panel, we will share it with members of the BSC, along with the program's response to the panel's findings and recommendations. DPD and NCZVED leadership will meet with CDC leadership to discuss options for future program activities to address any issues raised by the panel, including considerations for potential organizational home for further research.Bessie

[Guest guest]

Lynn -

A lot of us have been watching and waiting for this study, almost two years in

the making, to conclude. I've been on the CDC email alert regarding this

(anyone can do that - just go to their website and signup).

I just hope that they don't stall for another 6 months. The only part of this

preliminary report that is a little encouraging is this sentence:

" This investigation was conducted out of the National Center for Zoonotic,

Vector-borne, and Enteric Diseases' (NCZVED) Division of Parasitic Diseases

(DPD), with input from a cross-agency, multi-disciplinary workgroup. "

Let's pray for vindication!

Bessie

> >

> > http://www.cdc.gov/unexplaineddermopathy/updates.html

> >

> > Preliminary Report on Progress of External Peer Review of

> > CDC's Unexplained Dermopathy Project

> > to the CCID Board of Scientific Counselors

> >

> > November 4, 2009

> > In January 2008, CDC launched an epidemiologic investigation of an

unexplained skin condition which some refer to as " Morgellons. " The primary

goals of the investigation are to help us learn more about who may be affected

with this condition and the symptoms they experience and to generate hypotheses

about factors that may contribute to it. Data collection has been completed and

analysis is ongoing. This investigation was conducted out of the National Center

for Zoonotic, Vector-borne, and Enteric Diseases' (NCZVED) Division of Parasitic

Diseases (DPD), with input from a cross-agency, multi-disciplinary workgroup. On

September 24, 2009, DPD convened an external review panel to examine study

activities to date and provide advice on future activities. DPD outlined several

questions for the panel to address:

> >

> > 1. Have the project's goals and priorities been addressed?

> > 2. What are the study's strengths?

> > 3. What are the study's limitations?

> > 4. Are there gaps of concern or need for additional study?

> > 5. What findings can be communicated to the public, medical community, and

stakeholder community?

> > 6. What is the public health impact of this study?

> > 7. What should the priorities be in the future?

> >

> > The panel has not yet released a report of its findings to CDC. When we

receive a report from the panel, we will share it with members of the BSC, along

with the program's response to the panel's findings and recommendations. DPD and

NCZVED leadership will meet with CDC leadership to discuss options for future

program activities to address any issues raised by the panel, including

considerations for potential organizational home for further research.

> >

> > Bessie

> >

>