Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Dear Matt, Angie, and Ethan, I'm so glad you got into Dr. Kourey so quickly. I had a feeling you would be able to get in sooner than SLC. He is Cole's doctor too and you will love him. Ethan is in good hands! Please keep us posted on his first cast and future progress. He is on the road to recovery. Take care, Matt Weight <weightmatt@...> wrote: Hey folks - we are new to this group and are really glad to meet you all. Our names are Matt and Angie. We are the parents of Ethan (17 months) and we just found out that he has progressive infantile scoliosis. We found ISOP and talked with and feel very blessed to have found this foundation. It's awesome all the information that you guys have been able to share! Here's Ethan's story: We had x-rays taken of Ethan at 8 months old because he had gotten bronchiolitis. The x-rays clearly showed the curvature in his spine but unfortunately we were never told about it or shown the x-rays. A couple months ago (Ethan was 15 months at this point) we noticed that he had a slump to his left side (looked like his right side was more muscular.) We talked to his pediatrician who referred us to an orthopedic surgeon who told us there was a serious problem and that he would have to be put in a brace until his mid to late teens and that bracing wasn't corrective (ie: this problem would NEVER go away.) It was just to slow down the curve until he was finished growing and could receive surgery. This freaked us out!!! We left on vacation for Christmas (as the surgeon had told us there was nothing we could do, yet) and sat on that little jewel of information for about 3 weeks. When we got back, we had the x-rays taken which showed a progression to about 30+ degrees (which we realize now is manageable.) We got in touch with with ISOP the day after the x-rays and called us back the following day with great information! We have since talked to more people and read a lot of posts which comfort us more and more. We are now more stoked than afraid, cause there is a good possibility that we can actually get this corrected before he gets too old, thanks to all of your help! Even tho we live in California and are closer to SLC, we've got an appointment lined up with Dr. Courey in Erie because they can see us sooner (early February) and hopefully we can start the casting as soon as possible at that time. We will keep you all posted with treatment and everything else. We'll post some pics of Ethan, but we don't have too many good pictures of his back yet cause the kid is always on the move Thanks! Matt and Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Welcome to the group Matt and Angie and congrats on getting hold of and all the positive steps you have taken so far. My daughter Bridget and I travel from Aus for treatment and have been very happy with results so far. Your story of your first consult sounded so familiar and I understand and well remember those feelings of horror and helplessness at being told there is something wrong with your child that no one can fix. Great to know that there is something you can do and you have certainly found the right place to go for advice. Best wishes Bert and Bridget Matt Weight <weightmatt@...> wrote: Hey folks - we are new to this group and are really glad to meet you all. Our names are Matt and Angie. We are the parents of Ethan (17 months) and we just found out that he has progressive infantile scoliosis. We found ISOP and talked with and feel very blessed to have found this foundation. It's awesome all the information that you guys have been able to share! Here's Ethan's story: We had x-rays taken of Ethan at 8 months old because he had gotten bronchiolitis. The x-rays clearly showed the curvature in his spine but unfortunately we were never told about it or shown the x-rays. A couple months ago (Ethan was 15 months at this point) we noticed that he had a slump to his left side (looked like his right side was more muscular.) We talked to his pediatrician who referred us to an orthopedic surgeon who told us there was a serious problem and that he would have to be put in a brace until his mid to late teens and that bracing wasn't corrective (ie: this problem would NEVER go away.) It was just to slow down the curve until he was finished growing and could receive surgery. This freaked us out!!! We left on vacation for Christmas (as the surgeon had told us there was nothing we could do, yet) and sat on that little jewel of information for about 3 weeks. When we got back, we had the x-rays taken which showed a progression to about 30+ degrees (which we realize now is manageable.) We got in touch with with ISOP the day after the x-rays and called us back the following day with great information! We have since talked to more people and read a lot of posts which comfort us more and more. We are now more stoked than afraid, cause there is a good possibility that we can actually get this corrected before he gets too old, thanks to all of your help! Even tho we live in California and are closer to SLC, we've got an appointment lined up with Dr. Courey in Erie because they can see us sooner (early February) and hopefully we can start the casting as soon as possible at that time. We will keep you all posted with treatment and everything else. We'll post some pics of Ethan, but we don't have too many good pictures of his back yet cause the kid is always on the move Thanks! Matt and Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 We are definitely glad we are on this group. I've been hearing more and more that people have had the same response from their first doctors as well - pretty scary for sure. When you say you travel from Aus.. do you mean Australia? Or Austin, TX, or Aus..tintervillefieldport? It's definitely a boon to the spirit to hear everyone sharing the same experience. Makes us feel a LOT more comfortable that we're doing the right thing! Matt and Angie Re: Greetings! Welcome to the group Matt and Angie and congrats on getting hold of and all the positive steps you have taken so far. My daughter Bridget and I travel from Aus for treatment and have been very happy with results so far. Your story of your first consult sounded so familiar and I understand and well remember those feelings of horror and helplessness at being told there is something wrong with your child that no one can fix. Great to know that there is something you can do and you have certainly found the right place to go for advice. Best wishes Bert and Bridget Matt Weight <weightmatt (DOT) com> wrote: Hey folks - we are new to this group and are really glad to meet you all. Our names are Matt and Angie. We are the parents of Ethan (17 months) and we just found out that he has progressive infantile scoliosis. We found ISOP and talked with and feel very blessed to have found this foundation. It's awesome all the information that you guys have been able to share! Here's Ethan's story: We had x-rays taken of Ethan at 8 months old because he had gotten bronchiolitis. The x-rays clearly showed the curvature in his spine but unfortunately we were never told about it or shown the x-rays. A couple months ago (Ethan was 15 months at this point) we noticed that he had a slump to his left side (looked like his right side was more muscular.) We talked to his pediatrician who referred us to an orthopedic surgeon who told us there was a serious problem and that he would have to be put in a brace until his mid to late teens and that bracing wasn't corrective (ie: this problem would NEVER go away.) It was just to slow down the curve until he was finished growing and could receive surgery. This freaked us out!!! We left on vacation for Christmas (as the surgeon had told us there was nothing we could do, yet) and sat on that little jewel of information for about 3 weeks. When we got back, we had the x-rays taken which showed a progression to about 30+ degrees (which we realize now is manageable.) We got in touch with with ISOP the day after the x-rays and called us back the following day with great information! We have since talked to more people and read a lot of posts which comfort us more and more. We are now more stoked than afraid, cause there is a good possibility that we can actually get this corrected before he gets too old, thanks to all of your help! Even tho we live in California and are closer to SLC, we've got an appointment lined up with Dr. Courey in Erie because they can see us sooner (early February) and hopefully we can start the casting as soon as possible at that time. We will keep you all posted with treatment and everything else. We'll post some pics of Ethan, but we don't have too many good pictures of his back yet cause the kid is always on the move Thanks! Matt and Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 We come from Brisbane Australia and travel to SLC. Wow where is that last one? Aus tintervillefieldport. My geography of the U.S is getting better but still not that great. It is good to have friends all over the place now. we are very lucky Matt Weight <weightmatt@...> wrote: We are definitely glad we are on this group. I've been hearing more and more that people have had the same response from their first doctors as well - pretty scary for sure. When you say you travel from Aus.. do you mean Australia? Or Austin, TX, or Aus..tintervillefieldport? It's definitely a boon to the spirit to hear everyone sharing the same experience. Makes us feel a LOT more comfortable that we're doing the right thing! Matt and Angie Re: Greetings! Welcome to the group Matt and Angie and congrats on getting hold of and all the positive steps you have taken so far. My daughter Bridget and I travel from Aus for treatment and have been very happy with results so far. Your story of your first consult sounded so familiar and I understand and well remember those feelings of horror and helplessness at being told there is something wrong with your child that no one can fix. Great to know that there is something you can do and you have certainly found the right place to go for advice. Best wishes Bert and Bridget Matt Weight <weightmatt (DOT) com> wrote: Hey folks - we are new to this group and are really glad to meet you all. Our names are Matt and Angie. We are the parents of Ethan (17 months) and we just found out that he has progressive infantile scoliosis. We found ISOP and talked with and feel very blessed to have found this foundation. It's awesome all the information that you guys have been able to share! Here's Ethan's story: We had x-rays taken of Ethan at 8 months old because he had gotten bronchiolitis. The x-rays clearly showed the curvature in his spine but unfortunately we were never told about it or shown the x-rays. A couple months ago (Ethan was 15 months at this point) we noticed that he had a slump to his left side (looked like his right side was more muscular.) We talked to his pediatrician who referred us to an orthopedic surgeon who told us there was a serious problem and that he would have to be put in a brace until his mid to late teens and that bracing wasn't corrective (ie: this problem would NEVER go away.) It was just to slow down the curve until he was finished growing and could receive surgery. This freaked us out!!! We left on vacation for Christmas (as the surgeon had told us there was nothing we could do, yet) and sat on that little jewel of information for about 3 weeks. When we got back, we had the x-rays taken which showed a progression to about 30+ degrees (which we realize now is manageable.) We got in touch with with ISOP the day after the x-rays and called us back the following day with great information! We have since talked to more people and read a lot of posts which comfort us more and more. We are now more stoked than afraid, cause there is a good possibility that we can actually get this corrected before he gets too old, thanks to all of your help! Even tho we live in California and are closer to SLC, we've got an appointment lined up with Dr. Courey in Erie because they can see us sooner (early February) and hopefully we can start the casting as soon as possible at that time. We will keep you all posted with treatment and everything else. We'll post some pics of Ethan, but we don't have too many good pictures of his back yet cause the kid is always on the move Thanks! Matt and Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Welcome Matt and Angie! Besides tips from all these great parents, there is diapering information at www.infantilescoliosis.org. in the information section. Shellie Matt Weight <weightmatt@...> wrote: We are definitely glad we are on this group. I've been hearing more and more that people have had the same response from their first doctors as well - pretty scary for sure. When you say you travel from Aus.. do you mean Australia? Or Austin, TX, or Aus..tintervillefieldport? It's definitely a boon to the spirit to hear everyone sharing the same experience. Makes us feel a LOT more comfortable that we're doing the right thing! Matt and Angie Re: Greetings! Welcome to the group Matt and Angie and congrats on getting hold of and all the positive steps you have taken so far. My daughter Bridget and I travel from Aus for treatment and have been very happy with results so far. Your story of your first consult sounded so familiar and I understand and well remember those feelings of horror and helplessness at being told there is something wrong with your child that no one can fix. Great to know that there is something you can do and you have certainly found the right place to go for advice. Best wishes Bert and Bridget Matt Weight <weightmatt (DOT) com> wrote: Hey folks - we are new to this group and are really glad to meet you all. Our names are Matt and Angie. We are the parents of Ethan (17 months) and we just found out that he has progressive infantile scoliosis. We found ISOP and talked with and feel very blessed to have found this foundation. It's awesome all the information that you guys have been able to share! Here's Ethan's story: We had x-rays taken of Ethan at 8 months old because he had gotten bronchiolitis. The x-rays clearly showed the curvature in his spine but unfortunately we were never told about it or shown the x-rays. A couple months ago (Ethan was 15 months at this point) we noticed that he had a slump to his left side (looked like his right side was more muscular.) We talked to his pediatrician who referred us to an orthopedic surgeon who told us there was a serious problem and that he would have to be put in a brace until his mid to late teens and that bracing wasn't corrective (ie: this problem would NEVER go away.) It was just to slow down the curve until he was finished growing and could receive surgery. This freaked us out!!! We left on vacation for Christmas (as the surgeon had told us there was nothing we could do, yet) and sat on that little jewel of information for about 3 weeks. When we got back, we had the x-rays taken which showed a progression to about 30+ degrees (which we realize now is manageable.) We got in touch with with ISOP the day after the x-rays and called us back the following day with great information! We have since talked to more people and read a lot of posts which comfort us more and more. We are now more stoked than afraid, cause there is a good possibility that we can actually get this corrected before he gets too old, thanks to all of your help! Even tho we live in California and are closer to SLC, we've got an appointment lined up with Dr. Courey in Erie because they can see us sooner (early February) and hopefully we can start the casting as soon as possible at that time. We will keep you all posted with treatment and everything else. We'll post some pics of Ethan, but we don't have too many good pictures of his back yet cause the kid is always on the move Thanks! Matt and Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hey Matt and Angie and especially little ETHAN! Welcome to CASTS! My name is Garica. I am from Australia and my little boy is . He is four. You are such lucky people to have found and this website/support group! Little Ethan will most certainly benefit from his parents researching so congratulations to you both! was " treated " with only a brace until 6 months ago, and we too were told there was no cure etc and a fusion was the only option. Thankfully, the early treatment process is on it's way to Australia this year, which is very exciting for the Aussie kids! Good luck with your appointment in Feb. I'll look forward to hearing of Ethans progress! Love and > > Hey folks - we are new to this group and are really glad to meet you all. Our names are Matt and Angie. We are the parents of Ethan (17 months) and we just found out that he has progressive infantile scoliosis. We found ISOP and talked with and feel very blessed to have found this foundation. It's awesome all the information that you guys have been able to share! > > Here's Ethan's story: > > We had x-rays taken of Ethan at 8 months old because he had gotten bronchiolitis. The x-rays clearly showed the curvature in his spine but unfortunately we were never told about it or shown the x-rays. A couple months ago (Ethan was 15 months at this point) we noticed that he had a slump to his left side (looked like his right side was more muscular.) We talked to his pediatrician who referred us to an orthopedic surgeon who told us there was a serious problem and that he would have to be put in a brace until his mid to late teens and that bracing wasn't corrective (ie: this problem would NEVER go away.) It was just to slow down the curve until he was finished growing and could receive surgery. This freaked us out!!! > > We left on vacation for Christmas (as the surgeon had told us there was nothing we could do, yet) and sat on that little jewel of information for about 3 weeks. When we got back, we had the x-rays taken which showed a progression to about 30+ degrees (which we realize now is manageable.) We got in touch with with ISOP the day after the x-rays and called us back the following day with great information! We have since talked to more people and read a lot of posts which comfort us more and more. We are now more stoked than afraid, cause there is a good possibility that we can actually get this corrected before he gets too old, thanks to all of your help! > > Even tho we live in California and are closer to SLC, we've got an appointment lined up with Dr. Courey in Erie because they can see us sooner (early February) and hopefully we can start the casting as soon as possible at that time. We will keep you all posted with treatment and everything else. > > We'll post some pics of Ethan, but we don't have too many good pictures of his back yet cause the kid is always on the move > > Thanks! > > Matt and Angie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Welcome to the healthy mission! May it serve you well. Barbara markhorina <mhorina@...> wrote: Hello Group, I am a total newby to sprouting. For years I had heard of people sprouting various seeds and couldn't understand why " if the sprouts are good for you...... eat the seeds..... its simpler " . Recently I stumbled on a site that described the " miracle " that takes place when you add water to seeds. Now I am facinated. I was glad to find this group and am looking forward to learning. Mark --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2011 Report Share Posted September 19, 2011 Greetings!Thought it was about time for me to stop by an let everyone know that I am still around!The past couple of months have been hectic. We did some traveling the end of July/first part of August. (Highlight of our travels was a visit to the Creation Museum near Cincinnati.) The last two weeks of August found both of our boys home at the same time. brought his fiancee with him too. Our boarder was here and her fiance came to visit too. Had a few others that came and went at times. Got to where I was glad I knew where my bed was at! Loved having them home and was glad to have my quiet home back when everyone left!This summer I reached my all-time high weight -- 292. With my doc's knowledge and permission, I started doing MediFast this past week. Have been on it one week and have lost 9 pounds. Biggest thing for me is that I have decreased my insulin intake by half since the beginning of the week.So far, I am liking the MediFast program. It is a pre-packed, liquid diet but I do get one lean & green meal a day -- lean protein and green vegetable. I have done a liquid diet before; but if didn't have the one meal a day component to it and I didn't learn how to change my eating habits. Will be learning that this time.My goal is to be at my goal weight in time for our son's wedding on August 3, 2013. Dacia<>< ". . . some people brought a deaf man to Jesus." Mark 7:32Lutheran Deaf Mission Societywww.LDMSPah.typepad.comSee Jesus . . . Serve Jesus Quote Link to comment Share on other sites More sharing options...
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