I'm back!

[Guest guest]

Hi in SD,

WELCOME HOME! I am so happy to hear of your successful vacation. What a

relief for all of you. I thought it only rained in the winter in California?

;o)

School already? We go back on Sept. 1st. I'm not even sure if the school

board is open yet and I need to get things in place for the girls. Please

keep us posted on how well it is going for Kelsey. I'm nervous already

thinking about our kids getting back into the routine of school, which is

usually good, but with the personalities of some of the staff, the situation

can be difficult.

take care, wendy in canada

[Guest guest]

It is wonderful Kelsey is doing so well especially without medication. Thanks

for the welcome. karenh

[Guest guest]

Welcome back Susi! We missed you!!

[Guest guest]

Welcome back :-)

God bless,Bonnie

**********************************************With God, ALL things are possible.**********************************************

[Guest guest]

HI SHANNI,

WELCOME BACK!!HOPE YOU HAD A GREAT TIME!!!

ROSE

I'm Back!

Hello everybody,

I just had to let everybody know that I am back from my vacation. I

have actually been back for a few days but haven't posted. I have

been trying to catch up with all of the posts. This list certainly

has a gift for gabbing!

I was able to do some of my Life Lift's while visiting family. I did

do something pretty cool though. I left my original workout video

for my mom. We didn't have the chance to watch it so she could learn

how to Life Lift. I hope that she takes the time to watch it.

Anyhow, I just had to let everybody know that I am back. Keep

breathing!

Shanni

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[Guest guest]

Welcome back Kay! Glad you had a successful trip! Thank goodness 's

reflux doesn't need surgery - whew! Yummmmmy - part time

nannnnnnyyyyyyy!!!! WTG!

Looking forward to seeing those photos - hurry!!

Carolyn

Mum to on, , Emma (Ds) 4 and Nicki (Ds) 3

www.geocities.com/nz_mom/sykesfamily.html

[Guest guest]

Kay, Glad to hear you're back and you all had a good

time! Glad to hear won't need surgery!! Sounds

like she's doing well.

Judi-Mom to Sam & , 3 1/2, Identical Twins

> Kay - Mom to , , -ds, almost

> 16mos.

>

__________________________________________________

[Guest guest]

Welcome Back, Chris!!

WE have tried to manage without you - but really need your input on a few

homeopathy questions!! For those that dont this is something that

she has looked into for ocd, and the person that one of the longer forwarded

archive posts referred to...

I will never forget Chris's story on Kelsey Exposure Therapy to Lego

oriented things. The class was going to LegoLand, and Kelsey couldnt handle

that trip. After pictures, advertisements, actual Lego - finally Kelsey

said: " Enough already Mom, can't we just go?! "

definatly has ocd symptoms. Try doing some erp with him like changing

his shirt or giving him elastic waist shorts!

Dont over do the sitting, you still need to take care of yourself!!

hugs, wendy in canada

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Hi Chris! This is Nikki in Orlando, I have missed hearing about Kelsey. I

have a Kelsey also she is my middle daughter. You were very helpful to me in

the past about my daughter who is alot like your Kelsey. I too am

wondering about my Kelsey (ocd?) and she too is very different from .

She started Kind 2weeks ago and it has been very hard on her she cries 3-4

morn and has stomach aches every day. She is taking Zantac right now for her

stomach. She had an invite this morning to our neighbors house to play with

her best friend as soon as it was time to walk out the door she fell in my

arms and sobbed. I asked her what was wrong and she said I dont know, but I

dont want to go. I told her to go tell that she didnt want to play there

right now but that she could come over to our house. That made her very

happy. My neighbor told me later that she told them that she had been away

from her mom all week and that she just wanted to be at home. Now this child

has been with me at home for the last 5 3/4 yrs but she did go to moms day

out 1xweek and gymnastics 2xweekly, wed. night church and sund school so its

not like shes never severed the umbilical cord but I think that school is a

much bigger deal for her as she is so much a perfectionist. (unlike Tiff)

Well I've rambled long enough I really just wanted to welcome you back and

let you know that Ive missed you. By the way Tiff and I went to the

conference in Chicago and it was awesome. Talk to you soon. Nikki in O'town

[Guest guest]

HI Chris:

Welcome back to the list!! You have been missed. I hope your recovery is

well established and progressing fast.

is very lucky to have you as his mom, as you will be able to discern

whether there really is a problem or not. I found Drs. Swedo and Leonard's

book, " Is it Just a Phase " (not sure if this title is 100% correct) was

helpful in delineating between normal phases and actual psychiatric

problems.

Hang in there with your recovery, it is great to have you back, take care,

aloha, Kathy (H)

kathyh@...

At 11:37 PM 08/26/2000 -0000, you wrote:

>Hello all,

>

>I'm returning to the list after a six-week hiatus while I recovered

>from major hip surgery. (Still recovering, and sitting time is more

>limited that I'd like!)

>

>For all the newbies, I've missed...welcome! I'm mom to Kelsey (8) who

>is mostly recovered from OCD. Her severe OCD responded very well to

>CBT

>and so we were available to avoid medication. I've been reflecting

>lately on how fortunate we were that her OCD struck at a

>developmental

>time when she was so wanting to please and so open about it and

>willing

>to let me help her.

>

>A year later now, she completely balks if I hint that something might

>be OCD and refuses to work with me much at all. I can better

>understand

>now how challenging it must be with older children.Since her OCD is

>so

>under control, I don't think she recognizes milder symptoms as OCD.

>(She will say, " I don't hear a voice! " ) It was interesting reading

>today's digest about mosquitos as she is definitely over-uptight

>about

>them too.

>

>I still continue to wonder about my younger son, (5). I keep

>thinking he doesn't have OCD, because he is so different than Kelsey.

>He is such a well-liked, go-with-the-flow, easy kind of kid. He just

>doesn't strike me as a kid with an NBD. But I do see mild signs and

>had

>another light go off when I read Dana's post about Ava's issue when

>younger re: BMs. , at 5, also refuses to wipe himself and I

>haven't

>been able to figure out why (although he is incredibly lazy). I

>wonder

>if he too is worried he's not clean unless an adult wipes. This

>t-shirt

>and shorts kids also made a radical apparel shift at the start of

>kindergarten and now insists on long-sleeved dress shirts and jeans

>every day in the hot weather. New attention to fashion or OCD?

>Hmmm...it's hard to say. He is very borderline so I just continue to

>watch and wait.

>

>As for me, this hip surgery was a very difficult time. The pain, slow

>recovery, and inability to be there much for my family really spiked

>my

>own anxiety...which I hadn't experienced since my daughter was born 8

>years ago! I called on Dr. Hatton, the anxiety expert, who was really

>there for me in a wonderful way. I'd never experienced such severe

>anxiety before and it really gave me new compassion for our OCD

>children. As parents, it can all be so wearing for us. And yet, sky-

>high anxiety is a difficult place to be too.

>

>Those of you who know about my interest in non-traditional therapies,

>homeopathy, vitamins, and belief in CBT as the first line of

>treatment

>for OCD before meds, might find it interesting that I myself ended up

>taking Klonopin for a few weeks to get my anxiety under control. I've

>never doubted the necessity of medications for treating OCD in some

>kids, but I do think I have a more personal experience now with how

>dramatically medications can help.

>

>I'm doing much better now. As Dr. Hat predicted, my anxiety was

>situational and as I've become more functional, it has gone away. I'm

>still hobbling around on my crutches (and likely will be for quite a

>while) but hope to be more active on the list again.

>

>Take care,

>

>in San Diego

[Guest guest]

ÿþ

[Guest guest]

ÿþ

[Guest guest]

WB nne! Glad you had a great time!

Shaye

[Guest guest]

Bless you , I'll keep you in my prayers! I was wondering where

you'd been. I joined the group around last Dec/Jan and had always

enjoyed your outlook on things - depression aside, you have a great

sense of humor! Plus, you sometimes made me think of me and my 3

boys! Take care of yourself!!

in N.C.

> Howdy Hoody Hey There! It's me, , pretending not to be

> depressed...Ha! I've missed you all, and realize that there is NO

ONE ELSE

> who understands what I am going through, so I'm going to make

myself get up

> early and come down to the basement before anyone (translation,

Kids)

> steals the computer.

> If I may be so narcissistic, let me tell you about ME and MY

life at

> the moment. I'm sure that there are new folks who don't know me,

so I'll

> intertwine my stats with my news.

> I live near Chicago with my hub and three kids. We have a

gene pool

> that no one would want to clone....My husband's dad is

schizophrenic and

> his sister killed herself. My husband is always somewhat

depressed. I've

> got depression. OCD, alcoholism and eating disorders in my family of

> origin, so I'm not the perfect pick either. I have OCD,

depression

> (possibly bipolar), tics, possibly ADD, and eating disorders in my

own

> little package. I've got three kids, ages almost-16, 11, and 7.

My middle

> one is the most symptomatice with Tourette, OCD, depression, and

ADD. My

> youngest has OCD, and his compulsions are sort of " ticcy " , so we'll

see

> about TS. My oldest has depression (possibly bipolar), social

anxiety, and

> OCD. Oh yes, and my younger two have sensory integration problems.

> Although my life was mostly crapola until about 10 years ago,

no one

> ever called it OCD. I thought I was just depressed, and I never

really

> thought about the tics. We've always known that our middle child

was,

> shall we say, quirky, but everything blew up in our faces about 18

months

> ago when the OCD and tics became more extreme. My son's OCD showed

up

> about three months after we realized that had TS and

OCD. In the

> midst of all that, I was forced to take off my blinders and look at

our

> oldest daughter in a new light....I saw some things that just

weren't

> normal. Of course, my own life passed before me with a new filter,

and I

> had a number of " aha " experiences.

> Anyhow, we started medications a year ago and CBT last

January. We

> tried Paxil and Zoloft and finally landed on Celexa for the kids.

I'm on

> Prozac and Wellbutrin. CBT was very helpful, but now I feel as if

we're

> all drowning again.

> Meanwhile, I'm in the midst of menopause and watching little

skin

> cancer patches pop up all over me due to all of the stupid things I

did in

> the sun 20 years ago, and my back keeps going out. Bummer!! My

husband is

> working two jobs and I just started working part-time as a pharmacy

> technician. (discounts!!) Our medical bills including meds were

running

> towards $1400 a month, so we are trying to earn more and spend

less.

> Now it sounds as if I'm in hell, but I'm not. This has been a

very

> hard week, because all of my kids are more symptomatic, and I don't

know

> how to help them. Also, we're still trying to finish up school

since we had

> alot of " neurology' days this year. We've switched to a

psychiatrist who is

> 10 minutes away instead of 45. I think she will be good, but now

we all

> have to see her to get our meds straightened out. My middle one

needs more

> than just the Celexa because of the ADD and TS, so that's a work in

> progress. My oldest is up, down, up, down, up all night, asleep in

the

> day, tired, scrupulous, VERY low in self esteem, and weirdly shy.

She's

> going for blood tests in case anything else is complicating

things. My

> youngest is back to being OCD man, but now he denies it and doesn't

want to

> talk about it. I feel too weepy and worn out to do much with him,

and of

> course, THAT makes me feel as if I'm an awful mom.

> I don't know if it's the waxing of the kids' symptoms, the

menopause,

> the not seeing my husband, or the fact that our house is falling

apart and

> we have neither time nor money nor energy to fix it, but somehow my

Prozac

> doesn't seem to be pulling its weight. Anyway, I still have my

sense of

> humor and my plane tickets to Denver!!! Boy oh boy, do I want to

get in on

> the survival strategies discussions!

> Good things include my vegetable garden, having a discount at

Osco,

> Starburst jellybeans, a new book about the spectrum disorders

called, " It's

> Nobody's Fault, " and, again, having my tickets for Denver.

> I can't wait to get up tomorrow and recieive my " daily digest "

again.

> Love Ya,

[Guest guest]

:

I just started with this group about 2 months ago or so. It is comforting to know (in a weird way) that others are out there coping with the hell the rest of us are but hate to see and hear it can be SOOOO bad. When you think you have it bad there is always someone else that needs more help than you do. I sincerely hope things begin to lighten up at your house. You have a lot to handle there and I give you credit for taking care of yourself and the rest of your family. It's a tough job and it sounds like you're doing a great job even though it may not feel like it. Your in-tune with your kids and your hubby and it looks like you're doing your best at helping them with all of their disorders as well as your own. Give yourself a break and a pat yourself on the back for all your efforts. I too, feel SO overwhelmed to the point I feel numb and indifferent to the whole scenario. I'd never wish OCD etc. on my worst enemy, but it does have an up side for those who suffer from OCD with kids with OCD. The more parents I "talk" to who are in this situation seem to have a much better handle on what's going on with their OCDers and what to do -- a much better insight. Neither my husband nor I have OCD but my husbands family has a history of depression and anxiety disorders plus bi-polar. Sometimes I wonder if I'm helping my son or not, am I pushing him too much or too little, do I say the right things to help him and let him know I'm on his side and want him to beat this so he can enjoy his life again. I read everything I can get my hands on to try and do my best. And I am definitely looking forward to Denver -- it'll be my vacation and I will definitely attend the survival seminar, so far by the looks of this summer I'll need it more then than I do today -- impossible as it may seem.

Good luck and keep that sense of humor - find some for me, I have trouble in this area since my son's diagnosis 3 years ago.

Tamra (ocdmom2001)

I'm Back!

Howdy Hoody Hey There! It's me, , pretending not to bedepressed...Ha! I've missed you all, and realize that there is NO ONE ELSEwho understands what I am going through, so I'm going to make myself get upearly and come down to the basement before anyone (translation, Kids)steals the computer. If I may be so narcissistic, let me tell you about ME and MY life atthe moment. I'm sure that there are new folks who don't know me, so I'llintertwine my stats with my news. I live near Chicago with my hub and three kids. We have a gene poolthat no one would want to clone....My husband's dad is schizophrenic andhis sister killed herself. My husband is always somewhat depressed. I'vegot depression. OCD, alcoholism and eating disorders in my family oforigin, so I'm not the perfect pick either. I have OCD, depression(possibly bipolar), tics, possibly ADD, and eating disorders in my ownlittle package. I've got three kids, ages almost-16, 11, and 7. My middleone is the most symptomatice with Tourette, OCD, depression, and ADD. Myyoungest has OCD, and his compulsions are sort of "ticcy", so we'll seeabout TS. My oldest has depression (possibly bipolar), social anxiety, andOCD. Oh yes, and my younger two have sensory integration problems. Although my life was mostly crapola until about 10 years ago, no oneever called it OCD. I thought I was just depressed, and I never reallythought about the tics. We've always known that our middle child was,shall we say, quirky, but everything blew up in our faces about 18 monthsago when the OCD and tics became more extreme. My son's OCD showed upabout three months after we realized that had TS and OCD. In themidst of all that, I was forced to take off my blinders and look at ouroldest daughter in a new light....I saw some things that just weren'tnormal. Of course, my own life passed before me with a new filter, and Ihad a number of "aha" experiences. Anyhow, we started medications a year ago and CBT last January. Wetried Paxil and Zoloft and finally landed on Celexa for the kids. I'm onProzac and Wellbutrin. CBT was very helpful, but now I feel as if we'reall drowning again. Meanwhile, I'm in the midst of menopause and watching little skincancer patches pop up all over me due to all of the stupid things I did inthe sun 20 years ago, and my back keeps going out. Bummer!! My husband isworking two jobs and I just started working part-time as a pharmacytechnician. (discounts!!) Our medical bills including meds were runningtowards $1400 a month, so we are trying to earn more and spend less. Now it sounds as if I'm in hell, but I'm not. This has been a veryhard week, because all of my kids are more symptomatic, and I don't knowhow to help them. Also, we're still trying to finish up school since we hadalot of "neurology' days this year. We've switched to a psychiatrist who is10 minutes away instead of 45. I think she will be good, but now we allhave to see her to get our meds straightened out. My middle one needs morethan just the Celexa because of the ADD and TS, so that's a work inprogress. My oldest is up, down, up, down, up all night, asleep in theday, tired, scrupulous, VERY low in self esteem, and weirdly shy. She'sgoing for blood tests in case anything else is complicating things. Myyoungest is back to being OCD man, but now he denies it and doesn't want totalk about it. I feel too weepy and worn out to do much with him, and ofcourse, THAT makes me feel as if I'm an awful mom. I don't know if it's the waxing of the kids' symptoms, the menopause,the not seeing my husband, or the fact that our house is falling apart andwe have neither time nor money nor energy to fix it, but somehow my Prozacdoesn't seem to be pulling its weight. Anyway, I still have my sense ofhumor and my plane tickets to Denver!!! Boy oh boy, do I want to get in onthe survival strategies discussions! Good things include my vegetable garden, having a discount at Osco,Starburst jellybeans, a new book about the spectrum disorders called, "It'sNobody's Fault," and, again, having my tickets for Denver. I can't wait to get up tomorrow and recieive my "daily digest" again. Love Ya, You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... .

[Guest guest]

hi everybody,

Let me introduce myself again for new members, I am , mother of three. I have not been osting for a while. my son, Dan is almost 15 and has AS, OCD, TS(??). he was dxed last August. and added dx of AS, TS ++

While skimming through mail, I envy who were able to go to Denver. I will do my best to go next year convention. I have been busy as usual. I thought i will have more time off school. well, Duh, I was wrong.

Lila, Robbi,Susiept, i am still alive. Congratulation Lila !! I went back to school,three years ago. starting 3 credit for prereq for MSW program. i go to school as part time basis. I finished exactly, half of MSW program.

Good luck !! I enjoy going to school, it is not easy though. This year will be hardest year for me. Because I have to go 19 hours a week, field practicum plus courses.

Dan is getting worse. His compulsive behaviors getting ridiculous. I am very frustrated and dissapointed.

Hope, everybody have a nice summer.

[Guest guest]

Hi Karma,

We've been missing you!!!!! I'm glad you're back!!!!!

Love, Liz

----

Hi Everyone,

I just wanted to pop in and say I'm back! I have been out of town for a

while and been going through withdrawal about what is going on with

everyone. I logged in and still have over 300 messages to read through

to catch up! Hope I didn't miss anything too important.

I got so busy this year that I didn't send out any Christmas Cards. :-(

But, thank you to those of you who were more organized than me this year

for yours!

Liz, you and your family are beautiful! You look so slim and trim. One

of these days I'll get a family picture taken and send one your

direction. Laurie, your family is beautiful too. Rashelle, I'm going

to have to send you something really special!!!! Words can't even

describe how beautiful you are!

I just had to take a break from cleaning for a while and check in.

Hopefully later I'll have more time to catch up with everyone.

Take care,

~Karma

[Guest guest]

Welcome Back, Joyce--it's so good to hear from you again. We've missed you.

Marcia

Mom to Sara (DS) and 7 and Lucas 11

[Guest guest]

Hello everyone, I used to be on this site and my email changed and somehow, with my busy schedule, I never got back on. (until now) Anyhow, for those who don't know me, I'm Joyce and my husband is Mike and we are parents of seven kids. Three of our children are Down Syndrome, and there is NEVER a dull moment around here. Yes, I am the biological mother of all three. Ben is 18 years old, is 8 years old, and is 4 years old. Three of my kids are married and they are great about coming around and helping with their brother's and sister. (if they're in the state) I live in California and in a great quiet area for raising these kids. has been the most work, as he also has asthma, juvenile rheumatoid arthritis, and hearing problems. (he wears hearing aids.) He is not speaking yet, so when he finally says "ma-ma, or dada" I plan to have a party. I am questioning the possibility of him also having autism. He has not been tested for it. I look forward to getting to know you all! Sincerely, Joyce Fledderjohann-mother of seven-three are Down Syndrome.Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Welcome back Joyce!

We've missed you!

Cheers!

Sara

--On Friday, January 04, 2002, 10:00 AM -0800 Joyce Fledderjohann

<momjlf47@...> wrote:

>

> Hello everyone,

> I used to be on this site and my email changed and somehow, with my busy

> schedule, I never got back on. (until now) Anyhow, for those who don't

> know me, I'm Joyce and my husband is Mike and we are parents of seven

> kids. Three of our children are Down Syndrome, and there is NEVER a dull

> moment around here. Yes, I am the biological mother of all three. Ben

> is 18 years old, is 8 years old, and is 4 years old.

> Three of my kids are married and they are great about coming around and

> helping with their brother's and sister. (if they're in the state) I

> live in California and in a great quiet area for raising these kids.

> has been the most work, as he also has asthma, juvenile

> rheumatoid arthritis, and hearing problems. (he wears hearing aids.) He

> is not speaking yet, so when he finally says " ma-ma, or dada " I plan to

> have a party. I am questioning the possibility of him also having

> autism. He has not been tested for it. I look forward to getting to

> know you all! Sincerely,

> Joyce Fledderjohann-mother of seven-three are Down Syndrome.

>

>

>

[Guest guest]

Welcome back Joyce!

Looking forward to reading your words of wisdom!

Gail.......Bobby, Jillian, and Tara{Ds} 2 yrs. 9months

[Guest guest]

Hi Joyce, We are thinking about a job transfer to Northern CA. What kind of services are available in CA? We are still at our early intervention clinic. We currently see our service coordinator once a week. We have speech and OT once a month. Welcome back to the group. Looking forward to hearing about your family. mom to Amy 14, Kelsey 11, Davey (DS) 22 months, and Will 22 months RE: I'm back! Hello everyone, I used to be on this site and my email changed and somehow, with my busy schedule, I never got back on. (until now) Anyhow, for those who don't know me, I'm Joyce and my husband is Mike and we are parents of seven kids. Three of our children are Down Syndrome, and there is NEVER a dull moment around here. Yes, I am the biological mother of all three. Ben is 18 years old, is 8 years old, and is 4 years old. Three of my kids are married and they are great about coming around and helping with their brother's and sister. (if they're in the state) I live in California and in a great quiet area for raising these kids. has been the most work, as he also has asthma, juvenile rheumatoid arthritis, and hearing problems. (he wears hearing aids.) He is not speaking yet, so when he finally says "ma-ma, or dada" I plan to have a party. I am questioning the possibility of him also having autism. He has not been tested for it. I look forward to getting to know you all! Sincerely, Joyce Fledderjohann-mother of seven-three are Down Syndrome.http://DSyndrome.com/Multiples

[Guest guest]

Becky - have the sugar levels been a problem even before the steroids were

needed? Steroids can make the sugar go up so

don't forget to mention to the Endocrinologist that she has done a burst or

course of steroids recently. Just a

thought. Glad to hear you had a good time and arrived home safe and sound.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

[Guest guest]

Hi Rhetta~

I remember you; how have you been? Do you stick with the program

while you were gone and if so how did you do?

Do you have updated pics?..I remember you posted your before pics

when you were here before.

Welcome back~

Joann

[Guest guest]

I remember you! Welcome back.

Alys