Congenital Rubella Syndrome (CRS) later effects

[Guest guest]

many of you know that I don't necessarily agree that viruses 'cause'

anything. They may be the 'result' and doing a job, rather than the cause.

So when they are detected, doesn't mean they caused anything.

Lesson 5A, Part 3D - Congenital Rubella Syndrome (CRS) later effects

Several things you have to take into account:

1. We probably don't know with many of these if they indeed had rubella

2. We don't know if the symptoms being reported now are related to that

3. We don't know what other factors are involved. Virologists and virus

hunters have been a big thing since the 50's and always see everything

happening thru a 'viral lens'. Were these people more at risk as fetuses

due to other factors? Vitamin, Mineral Deficicencies? Toxins? We just

don't know. Why did so many who were exposed to rubella during their first

3 months of gestation never have a problem?

4. Did some of these later get vaccinations on top of whatever was going

on with them

Sheri

http://www.deafblind.com/laterubella.html

RECENT CANADIAN DEAFBLIND AND RUBELLA ASSOCIATION RESEARCH ON LATE EMERGING

MANIFESTATIONS OF RUBELLA

Dr Mike Steer

Renwick College

Rubella was once considered the least troublesome of childhood's

communicable diseases. Little attention was paid to it until the widespread

Australian epidemic in 1941 when Dr Norman Gregg, an ophthalmologist,

observed its links to congenital cataract. His research also reported a

high incidence of low birthweight, heart defect, deafness and mortality in

infants whose mothers had rubella. Very little research followed until the

world-wide " pandemic " between 1962 and 1965 which is believed to have

affected some 12.5 million individuals. American statistics reveal that

during this period approximately 30,000 babies were born there with various

congenital problems related to maternal rubella.

The National Office of the Canadian Deafblind and Rubella Association

(CDBRA) has recently completed a survey of late emerging medical conditions

believed to be associated with the congenital rubella syndrome (CRS). The

study was funded through a $30,000 grant from the Federal Government's

Disabled Person's Participation Funding Program with survey results

announced at the 6th Annual Canadian Conference on Deafblindness in early

August this year.

It has now become widely realised that people with disabilities resulting

from congenital maternal rubella as they grow older, experience a

relatively higher incidence of late emerging medical conditions and

problems than is usual in the population. A study conducted at New York's

Helen Keller Centre between 1989 and 1991 produced some alarming statistics

on these late emerging conditions which have effected many individuals in

the deafblind population there, whose disabilities resulted from congenital

rubella. For example, 30% of the Americans surveyed had developed glaucoma

(compared to the US general population rate of 0.5%). Some 52% of those

surveyed experienced cardiac problems (generally observed at birth); 5.7%

had developed diabetes (20 times the general population figure) and 6.8%

had thyroid problems. The research also produced data showing a growing

incidence of such degenerative conditions as progressive Rubella

Parencephalitis, epilepsy and loss of physical control.

The 1997-8 CDBRA study surveyed a sample of 75 individuals with congenital

rubella, 41% of whom were male. Of those surveyed, 69.3% indicated that

their disability was deafblindness. Ten of the respondents' mothers

reported that they had been immunised against rubella, suggesting that the

immunisation processes of the late 1960's and 1970's had not been a

guarantee against infection. A variey of congenital birth defects were

reported. Most commonly hearing loss (94.3%), vision loss (83.7%) and heart

defects (64.9%). The incidence of microcephaly (small head) was 29.6%.

Microphthalmia (small eyes), another manifestation of CRS was reported by

32.0%. This latter condition is also believed to influence rubella-related

glaucoma. Among the respondents, 88.7% reported both a vision and hearing

loss, with 58.1% reporting vision and hearing loss as well as heart defects.

Of the neurological conditions reported, 20.3% acknowledged the presence of

Alzheimer-like conditions, including aggression, sleeping disorders, memory

loss, eating disorders and loss of the sense of hot and cold. Within the

group, 30.7% reported experiencing seizures, with the average age of onset

between 13 and 30 years. Data on mental health and behaviour tended to

support the late emergence proposition, with 51.2% reporting profound

developmental delay, 86.7% receiving mental health-related medication and

54.7% reporting persistent unusual behaviour of varying sorts. While most

respondents reported walking by the age of six, 21.3% reported a

deterioration in mobility or walking, with most reporting onset from their

20's on.

Some 94.7% of respondents reported having been hospitalised with multiple

visits being the norm.

The CDBRA study has highly useful outcomes. It adds further data to

information gradually being accumulated from world-wide sources on the CRS

phenomenon. Its results appear to support the continued need for widespread

immunisation to eradicate this virus, through catalogueing it's appalling

consequences. Further, the survey provides health professionals, whether in

Canada, Britain, the USA or here in Australia, with indicators about the

importance of avoiding future misdiagnosis of the symptoms related to CRS.

There appears an obvious need to establish internationally linked data

bases to collect information on CRS affected people over time, so that our

understanding of its impacts can be improved.

More information on this excellent study is available from:

Dr Mamer, National President CDBRA

Fax 604 668 7810

E-mail: Lmamer@....

or from

Stan Munroe, Project Leader, CDBRA

Fax: 519 372 0312

E-mail: munroes@....

--------------------------------------------------------

Sheri Nakken, R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

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