Re: MRI with contrast -- anyone?

[Guest guest]

Hi Peggy,

I have had quite a few and have bad M.E. heart and a moderate-severe to

severe during relapses case. My technicians said they could " slow down " the

rate the gadolinium enters your system and I had a better response when

they did. My healthy sister asked her techs. if they would do that for her

but they didn't know what she was talking about. This was at a different

facility.

What happens to me is I get quite an increased heartrate as soon as gad.

contrast goes in. It is not anxiety because it is released automatically

while inside the machine and that's the only way I know I'm getting it. It

lasts about 5 or 10 minutes and then subsides and I am fine. My heart is

quite affected by ME and I can't walk much at all without chest pain and

symptoms and also get SVT at times having to have heart stopped and

re-started at E.R. My point is I think you will be OK and do well since I

do, even with my heart issues It's never caused a relapse or other

increased symptoms for me and I am extremely sensitive. So hope that is

reassuring to you! The kidney issue is different but they should make sure

your function is ok before going ahead.

Once I refused the contrast and I was told it was actually ok in that case,

it was just harder for radiologist to decipher but they still could get

accurate info. Each case is different though of course.

Hope this helps and wasn't too much info.! Good luck and feel free to ask

me more specifics if you want. I am in major worst relapse from total

hysterectomy 6 weeks ago..getting worse each day but having a glimmer of

hope I'll come out of it eventually so not online much at all. Love and

best wishes to you, Robbi

On Mon, Dec 26, 2011 at 12:34 PM, <Peggomatic@...> wrote:

> **

>

>

>

>

> >I am scheduled to get a brain MRI using toxic contrast, and am

> >nervous about it -- but for various reasons, feel that it's

> >imperative I do it.

> >

> >Has anyone on the list done this (MRI using gadolinium) and, if so,

> >how did you react?

> >

> >If anyone has done this, did you by chance ask for a lower dose of

> gadolinium?

>

> Also, was anything else helpful?

> >

> >This contrast has some pretty bad associated kidney risks, and that

> >is my main concern.

> >

> >Thanks!

> >

> >Peggy M

>

>

[Guest guest]

Hi Peggy

I had galdoinium, and this is what it did to me,

some of the side effects were delayed manifesting

a few months later, lasting for many years.

Life threatening hypglycemic attacks

kidney failure

increase in angina

worsened heart failure,

exacerbated all my symptoms.

Its a poison, and is very toxic, since, I have refused

all contrast dye, post researching about those.

My findings led to the conclusion that avoiding

contrast dyes of any type, regardless of osmolality

is crucial, specially with ME/CFS.

I take no meds, nor do I have any invasive procedures

for about 8 years now.  All meds cause damage to the

mitochondria, more oxidative stress = more toxins

leading to worsening of disease state. 

http://health-quest.proboards.com/index.cgi?board=toxicitiesfaqs & action=display & \

thread=5

Some of us are so toxic, full of ROS, that I can't have local

anesthetics or any dental work.

So much of what we suffer is at cellular level, functional,

and besides, blood tests and diagnostic tests are not

that reliable either.

Two years ago, I blacked out fell, and broke both elbows.

Reluctantly, I agreed to have ionic x-rays for both arms.

The " nurses " took hours to decide how to calibrate the machine,

and even longer to decide how to position the arms.

I lost patience and requested to see a radiographer.

By that time, it was too late.  The machine was wrongly

calibrated.  Both arms were fried.  A year and half later, a lump

is found on the right forearm.  I refused biopsy or excision, because,

if its cancer, avoiding spreading cancerous cells is best at this time.

I also read that X-rays are not that safe either, nor are contrast dye.

Its carcinogenic as well as capable of causing heart failure years later.

A few months ago, a new incentive (article in a cardioogy journal)

discussing the avoidance of angiogram, precisely because of the

contrast dye risks of causing cancer, unless, there is absolute indications

of cardiac clots.

I accept that my findings are controversial, nevertheless,

there is a growing consensus amongst ethical doctors

that the allopathic paradigm of curing disease is skewed.

K

> **

>

>

>

>

> >I am scheduled to get a brain MRI using toxic contrast, and am

> >nervous about it -- but for various reasons, feel that it's

> >imperative I do it.

> >

> >Has anyone on the list done this (MRI using gadolinium) and, if so,

> >how did you react?

> >

> >If anyone has done this, did you by chance ask for a lower dose of

> gadolinium?

>

> Also, was anything else helpful?

> >

> >This contrast has some pretty bad associated kidney risks, and that

> >is my main concern.

> >

> >Thanks!

> >

> >Peggy M

>

>

[Guest guest]

Hi Robbi,

Thank you for that info. -- that was really helpful.

I am curious -- did your heartrate go back down fairly quickly after the MRI, or

did you continue to have tachycardia for hours/days/longer after? (worse than

usual, whatever your " normal " is?).

Do you know if the contrast is thought to be cardiotoxic in some way? Do you

tend to get increased heart rate from other drugs?

Also, do you know what kidney testing you had done before getting the contrast?

If you're too sick to answer, no problem -- rest up! Thank you ~

Peggy

[Guest guest]

i too refused the contrast dye when the hospital found masses on my liver. i got

yelled at by a doctor but found another doctor who did an mri without the dye

and was able to tell that the masses were benign. it was 2 weeks after i moved

from california to new mexico and i was exhausted and afraid to do the dye. the

cat scan without dye was not able to detect anything but the mri did. it was not

an easy decision,

>

>

>

> >I am scheduled to get a brain MRI using toxic contrast, and am

> >nervous about it -- but for various reasons, feel that it's

> >imperative I do it.

> >

> >Has anyone on the list done this (MRI using gadolinium) and, if so,

> >how did you react?

> >

> >If anyone has done this, did you by chance ask for a lower dose of

gadolinium?

>

> Also, was anything else helpful?

> >

> >This contrast has some pretty bad associated kidney risks, and that

> >is my main concern.

> >

> >Thanks!

> >

> >Peggy M

>

>

>

[Guest guest]

hi k,

i'm sorry to hear all the bad things that the contrast did to you. i hope

that isn't why i am so worsened myself.

i had hidden breast cancer 5 yrs.ago that only showed on mri w/contrast so

it was essential to save my life. it is all so very difficult.

i feel like my body is shutting down after hysterectomy because it has done

something to my stomach and there isn't a dr. that can figure it out, at

least not around here. maybe cheney or chia or peterson but i'd have to win

the lotto to see one of them.

thanks for sharing and best wishes, robbi

On Tue, Dec 27, 2011 at 9:53 AM, furstc0404 <furstc0404@...> wrote:

> **

>

>

>

> Hi Peggy

>

> I had galdoinium, and this is what it did to me,

> some of the side effects were delayed manifesting

> a few months later, lasting for many years.

>

> Life threatening hypglycemic attacks

> kidney failure

> increase in angina

> worsened heart failure,

> exacerbated all my symptoms.

>

> Its a poison, and is very toxic, since, I have refused

> all contrast dye, post researching about those.

>

> My findings led to the conclusion that avoiding

> contrast dyes of any type, regardless of osmolality

> is crucial, specially with ME/CFS.

>

> I take no meds, nor do I have any invasive procedures

> for about 8 years now. All meds cause damage to the

> mitochondria, more oxidative stress = more toxins

> leading to worsening of disease state.

>

http://health-quest.proboards.com/index.cgi?board=toxicitiesfaqs & action=display & \

thread=5

>

> Some of us are so toxic, full of ROS, that I can't have local

> anesthetics or any dental work.

>

> So much of what we suffer is at cellular level, functional,

> and besides, blood tests and diagnostic tests are not

> that reliable either.

>

> Two years ago, I blacked out fell, and broke both elbows.

> Reluctantly, I agreed to have ionic x-rays for both arms.

> The " nurses " took hours to decide how to calibrate the machine,

> and even longer to decide how to position the arms.

>

> I lost patience and requested to see a radiographer.

> By that time, it was too late. The machine was wrongly

> calibrated. Both arms were fried. A year and half later, a lump

> is found on the right forearm. I refused biopsy or excision, because,

> if its cancer, avoiding spreading cancerous cells is best at this time.

>

> I also read that X-rays are not that safe either, nor are contrast dye.

> Its carcinogenic as well as capable of causing heart failure years later.

> A few months ago, a new incentive (article in a cardioogy journal)

> discussing the avoidance of angiogram, precisely because of the

> contrast dye risks of causing cancer, unless, there is absolute indications

> of cardiac clots.

>

> I accept that my findings are controversial, nevertheless,

> there is a growing consensus amongst ethical doctors

> that the allopathic paradigm of curing disease is skewed.

>

> K

>

>

>

> > **

>

>

> >

>

> >

>

> >

>

> >

>

> > >I am scheduled to get a brain MRI using toxic contrast, and am

>

> > >nervous about it -- but for various reasons, feel that it's

>

> > >imperative I do it.

>

> > >

>

> > >Has anyone on the list done this (MRI using gadolinium) and, if so,

>

> > >how did you react?

>

> > >

>

> > >If anyone has done this, did you by chance ask for a lower dose of

>

> > gadolinium?

>

> >

>

> > Also, was anything else helpful?

>

> > >

>

> > >This contrast has some pretty bad associated kidney risks, and that

>

> > >is my main concern.

>

> > >

>

> > >Thanks!

>

> > >

>

> > >Peggy M

>

> >

>

> >

[Guest guest]

i had a whole body cat scan, they were checking if i had cancer anywhere else

that may have spread to the liver. i felt much more relaxed getting an mri

without the radiation to worry about. why do they need to look at your brain?

> > >

> > >

> > >

> > > >I am scheduled to get a brain MRI using toxic contrast, and am

> > > >nervous about it -- but for various reasons, feel that it's

> > > >imperative I do it.

> > > >

> > > >Has anyone on the list done this (MRI using gadolinium) and, if so,

> > > >how did you react?

> > > >

> > > >If anyone has done this, did you by chance ask for a lower dose of

> > gadolinium?

> > >

> > > Also, was anything else helpful?

> > > >

> > > >This contrast has some pretty bad associated kidney risks, and that

> > > >is my main concern.

> > > >

> > > >Thanks!

> > > >

> > > >Peggy M

> > >

> > >

> > >

[Guest guest]

can you have a sonogram?

> >

> > > **

> >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > > >I am scheduled to get a brain MRI using toxic contrast, and am

> >

> > > >nervous about it -- but for various reasons, feel that it's

> >

> > > >imperative I do it.

> >

> > > >

> >

> > > >Has anyone on the list done this (MRI using gadolinium) and, if so,

> >

> > > >how did you react?

> >

> > > >

> >

> > > >If anyone has done this, did you by chance ask for a lower dose of

> >

> > > gadolinium?

> >

> > >

> >

> > > Also, was anything else helpful?

> >

> > > >

> >

> > > >This contrast has some pretty bad associated kidney risks, and that

> >

> > > >is my main concern.

> >

> > > >

> >

> > > >Thanks!

> >

> > > >

> >

> > > >Peggy M

> >

> > >

> >

> > >

[Guest guest]

> hi donna,thank you for this info. i am now wondering if i should ask my

> surgeon if i can have an mri instead of catscan...

>

>

>