Re: Ace - How I am enjoying life a lot better now.

[Guest guest]

I have too done a large number of protocols for 18 years. I am a lot better

overall.

One unexpected item that eventually helped tremendously with brain fog, moods

and feeling down was nothing less that the thing I discounted for years time and

time again: Meditation. See link below.

With it, my mood, brain power, outlook, feelings, etc improved significantly.

With that my health improved so it became an upward spiral. Meditation reduces

stress at several levels and reduces the burden on our bodies. This enables our

bodies and minds to work a lot better.

Do not do what I did. Discount it. I am an skeptic by birth! It sounded nor

very " scientific " . But after doing it for 3 years it is my most powerful tool.

Do not believe that because of many years of illness your chances of getting

better are less. Meditation worked for me at year 15 of CFS!

I work full time. I support my family. My mother. My aunt.

Yes it is not a physical job. It is an enginnering job. I have most of my mind

back. I lay down at work for 15 min. 4 times a day. And I get the job done!

I pace myself, and meditation helps with the stress.

I walk slow, and pace myself physically. I do not do physically strenous work.

But I am enjoying life! After all this time. I am OK with the illnes. I know

how to manage it most of the time and I am truly happy a lot of the time (go

figure that!). So my illnes is now something I manage, and life is beautiful.

Note that Rick is on to something here because I work also due to Imuplus Whey

protein. That is number one.

But I took that for 10 years and got to a plateau. I could work with it, but I

was miserable most of the time. Moody, irritable, not with a clear mind, etc.

Until meditation. Meditation complements Imuplus very well. Now I am more

effective, at peace most the time, sometimes calmer than my co-workers!

I credit mediation as the greatest contributor to living a happier and more

complete life. It dissipates the stress out in 20 minutes, then I am light. I

am less burdened, and start helping others that need reassurance, calm, and

peace. I could not do that before because I could not deal with others burdens

because mine were too high.

I believe mediation does something similar to Dr. Palls protocol (which I

tried). It reduces the oxidation burden, the emotional burden, etc. But with

Pall's protocol I had to take a ton of stuff, some made me worse, I was up and

down lot. Meditation is gentle. No ups and downs and it is free! Fully

portable.

There are several places that teach meditation. Here is one that can help you

meditate online. These are very effective. The 20 minute ones are better. Try

it! What do you have to lose? You have time right?

http://srisriravishankar.org/

Go the middle bottom of the page there are several meditations there.

Start enjoying life again as I do!

It is advisable to do it 2 to 3 times a day on an empty stomach. Preferably at

waking up (after visiting the restroom) and before supper. If you want, before

going to sleep too. That makes 3. You need to do it at least 2 times/day to

start making a significant difference.

Mr. Raba

>

> Walter, I too often wondered why there isn't a sharing of information between

the CFS specialists, but they seem hell bent on being the " first " to say they

have " cured' or " improved " so many people.

>

> I am in my 50's and have been told that I may never recover from CFS due to my

age, and not knowing how long I have had the illness.

>

> I was diagnosed officially 6 years ago but have been ill for many years.

>

> If I was under 30, apparently my chances of tremendous improvement or a " cure "

would be very high.

>

> My feeling is that everyone is scrambling around to find an answer to what is

causing it, however I think it might be a long path ahead, as it has taken them

years to acknowledge there is such an illness as CFIDS or CFS/ME and years to

notice that a lot of us have different symptoms with the same illness.

>

> I have partaken in many protocols, had heaps of blood and other tests, and

spent lots of money in the hope of not even a cure, but an improvement, as my

health was getting worse over the years.

>

> So far I don't seem to have improved, but then maybe the up side is that I

didn't get any worse.

>

> But I have learnt to deal with my body, what it can and can't do, pace myself,

and look after myself.

>

> At the end of the day, it's really up to me to figure out what diet and

medication is working, how much I can do, and work within my boundaries.

>

> Even though I hate all the restrictions.

>

> If you troll the internet for information on CFIDS or CFS/ME, it is

overwhelming.

>

> There are so many programs or protocols, so many people self medicating and so

many suggestions.

>

> Like Randy, I do wonder if everyone has been " properly diagnosed " using the

Canadian Consensus Criteria - on further reading via the internet, other people

think the Canadian Criteria is a load of rubbish!!

>

> I feel that you have to try something to see if it works for you, and make

sure you are comfortable with whatever " program " or " protocol " is being offered

to you, and keep monitoring your reactions to any medications or treatments.

>

> But really, at the end of the day, we do have to be " guinea pigs " in the hope

of some or all of us getting better.

>

> I haven't met anyone who has been " cured " - only ones who feel better and can

lead a more normal life.

>

> I do feel for everyone who has this condition/illness as you do wonder if

you'll ever feel better.

>

> Good luck.

>

> Lee

>

>

>

[Guest guest]

You may want to try the last meditation listed in the link. If you do not like

any of these try somewhere else. I like the ones with less mantra like the last

one. These are just examples.

> >

> > Walter, I too often wondered why there isn't a sharing of information

between the CFS specialists, but they seem hell bent on being the " first " to say

they have " cured' or " improved " so many people.

> >

> > I am in my 50's and have been told that I may never recover from CFS due to

my age, and not knowing how long I have had the illness.

> >

> > I was diagnosed officially 6 years ago but have been ill for many years.

> >

> > If I was under 30, apparently my chances of tremendous improvement or a

" cure " would be very high.

> >

> > My feeling is that everyone is scrambling around to find an answer to what

is causing it, however I think it might be a long path ahead, as it has taken

them years to acknowledge there is such an illness as CFIDS or CFS/ME and years

to notice that a lot of us have different symptoms with the same illness.

> >

> > I have partaken in many protocols, had heaps of blood and other tests, and

spent lots of money in the hope of not even a cure, but an improvement, as my

health was getting worse over the years.

> >

> > So far I don't seem to have improved, but then maybe the up side is that I

didn't get any worse.

> >

> > But I have learnt to deal with my body, what it can and can't do, pace

myself, and look after myself.

> >

> > At the end of the day, it's really up to me to figure out what diet and

medication is working, how much I can do, and work within my boundaries.

> >

> > Even though I hate all the restrictions.

> >

> > If you troll the internet for information on CFIDS or CFS/ME, it is

overwhelming.

> >

> > There are so many programs or protocols, so many people self medicating and

so many suggestions.

> >

> > Like Randy, I do wonder if everyone has been " properly diagnosed " using the

Canadian Consensus Criteria - on further reading via the internet, other people

think the Canadian Criteria is a load of rubbish!!

> >

> > I feel that you have to try something to see if it works for you, and make

sure you are comfortable with whatever " program " or " protocol " is being offered

to you, and keep monitoring your reactions to any medications or treatments.

> >

> > But really, at the end of the day, we do have to be " guinea pigs " in the

hope of some or all of us getting better.

> >

> > I haven't met anyone who has been " cured " - only ones who feel better and

can lead a more normal life.

> >

> > I do feel for everyone who has this condition/illness as you do wonder if

you'll ever feel better.

> >

> > Good luck.

> >

> > Lee

> >

> >

> >