Re: Gut Restoration

[Guest guest]

Hi Kay,

Wow, gutsy lady, pardon the pun!!! Incredible courage to do it all on your

own!!! Fantastic that it worked well for you. My success has been short lived,

2 weeks of fecal infusion last December wasn't enough and about the beginning of

June I noticed I was becoming more emotional and stressed easy when I went about

a normal life. Up to June I had resumed part time work, took a trip to USA and

really taxed myself and never got stessed nor did my energy flag. A lot of my

good health in the last 5 months has also been due to a low oxalate diet and

recommended supplements. I am just having a gut permeability test done, but I

know even without the results my gut lining has healed considerably due to the

diet and I certainly still don't have any dysbiosis.

My suspicion that my gut flora is getting out of kilter was confirmed by a stool

analysis, the old bad bacteria I had trouble with before is well under control

but my good flora is still very low and as a result different bacteria has

become over grown. Also my last Organic Acid Test from GPL also confirmed I have

intestinal microbial overgrowth and poor nutrient absorption. I was told by Prof

Borody that it takes 12 months for the good flora to really flourish and

multiply. So in people like me I need a lot more donor infusions over a longer

period. I think you are on the right path with your idea to do more infusions

since taking the tetracyline. It has taken many years to get in the state of ill

health we are in and therefore getting well isn't going to happen overnight so

to speak. I am disappointed but I am functioning mentally, physically,

emotionally so much better than before I did any biofilm, stool and oxalate work

I will just repeat what I have done before, I know it works, it is just going to

take awhile to establish a good level of good bacteria.

I was going do my own infusion earlier this year but I kind of avoided it. I

don't know very many people where I live and the two people I asked in January

didn't cope very well with the idea so I kind of put it off and kept my fingers

crossed I had done enough through the clinic, but I havent. Prof Borodys'

clinic have supplied me with two test kits (blood and stool) for prospective

donors and I have now found people willing to help. So looks like I will be

setting up my laundry like you soon!!! Yuk!!!

With regard to donors, you chose a baby, Borody's staff have told me that

children under 14 are unsuitable because their gut flora is not mature enough.

What that means I am not sure.

You should be very proud of your efforts to help yourself and I hope you

continue your path to good health. You gotta do what you gotta do. Who am I

trying to convince???? I really don't relish the idea!!!

>

> Hi Everyone,

>

> I am having normal BMs for the first time in over 20 years without taking

anything to make it happen, have improved my gut balance, and want to share with

you what I did to create this change - human probiotic infusions done at home.

>

> First, a little background.  Reading 's posts about her fecal

transplants was an eye opener for me.  Many PWCs have taken antibiotics.  I was

given antibiotics from childhood for winter flus etc. and since my CFS included

chronic sinus and upper respiratory infections, I've taken at least 150 rounds

of antibiotics during my 28 CFS years. Among them were amoxicillin,

clarithromycin, and doxycycline which are 3 of the 4 oxalobacter formenges

killing antibiotics.  The 4th is quinolone.  Oxalobacter formenges is the good

gut bateria that feeds on oxalates.  Oxalates are a natural ingredient in many

healthy fruits, vegetables, nuts, seeds, and whole grains.  Healthy that is,

providing our oxalobacter formenges is still alive to eat the oxalates.  When

that isn't the case, oxalate levels become too high over time, leave the gut due

to leaky gut, travel in the blood throughout the body and head, and cause

symptoms that include brain

> fog, pain, vulvadinia, kidney stones, and oxidative stress which reduces

glutathione.

>

[Guest guest]

Good Morning ,

I was so happy to wake up this morning and see your post as you have done human

probiotics through Dr. Borody and contributed much that is helping me now.  I

feel so close to many of you even though we have not met.  Maybe we really can

figure out how to help each other get well together.

Doner age is an important point .  My posts on this topic were aready so

long, I left out some things.  I began with a male doner friend who is 57. 

Then gave him a break since he works and lives an active life.  And for some

reason, my body wanted Gracie's poo.  Just instinct on my part.  I have time

now to search for a doner 14 or older and will.  I too believe that it takes

time for the good gut bacteria to multiply and I must do human probiotics every

few months for a year or so to achieve consistent results.  And I believe due

to my experience with Dr. Fry's treatment, that I need human probiotics done

intermittently with a program to breakdown biofilm and kill the pathogens that

get released.

For me, beginning with liver/gall bladder and bladder cleanses were essential in

clearing the pathways to remove bilfilm and dead pathogens.  I would have never

guessed I had gall stones but I did.  Then, it's individual choice whether

human probiotics get done next or breaking down biofilm and killing the

pathogens within.  I learned how to do kinesiology on myself and other energy

testing that helps me prioritize and figure out what supplements and products

are currently best for my body.  Wording the questions is very important.  I

ask,  " Is it in my highest and best good for curing my CFS on a level of

8,9,or 10 for me to take this product? "  My body already knows that I'm

referring to 8,9,or,10 on a scale of 1 - 10 with 10 being the highest.  I ask

the question this way to be clear that my goal is to cure not maintain.   In

the past, I've also received help from someone who's good with kinesiology or

gone to a healthfood store

that does biofeedback to see which products balance my body further rather

than take it further out of balance.

Let's say a PWC decides to do the human probiotics first to lessen the need for

magnesium, then address biofilm and the pathogens it is hiding.  And they need

to detox heavy metals.  That protocol could look like this:

Upon Rising, 1 - 400 mg. tablet Sam-E for glutathione/depression

1/2 hour before breakfast, 1 enzyme tablet, Buluoke Lumbrokinase or Nattokinase

to breakdown biofilm

With breakfast, 2 - Sutherlandia OPC, super botanical anti-viral and

anti-retroviral from www.sutherlandia.com or your anti-viral of choice

To detox heavy metals, 1 - Wonder Laboratories 625 mg. tablet EDTA (1 week on

and 1 week off)

1/2 hour before lunch, 1 enzyme tablet, preferably Buluoke Lumbrokinase

With lunch, 1 - Sutherlandia OPC and a very strong anti-parasitic as the malaria

protozoa being found in CFS patients is a hard to kill parasite.  Or if your

doctor will prescribe it, an anti-malarial

Your doctor might also add an antibiotic like tatracycline since it is an

anti-parasitic

You might add an anti-fugal since fungus gets caught in the biofilm too.

Drink lots of water

And do small (3 cup) warm water enemas as needed to help your body release

biofilm pieces.

Since fat is the food for many biofilm forming superbugs, a diet with 10 grams

of fat or less daily is recommended. No dairy or eggs. I use egg beaters, no

meat, or avocados, oil, or butter.

Since calcium and magnesium make up biolfilm structure, no magnesium or

calcium. 

Dr. Fry's treatment take anywhere from 1 - 8 months depending on the patient. 

My first month of this treatment added some symptoms but was bearable.  Within

another 2 weeks I herxed bad.  I broke out in a rash even on my eyelids, cried

for days,had an emotional melt-down, felt flu-like, had intense pain and

pressure in my head, and had neck and shoulder muscles tied in unbelievable

spasms.  I live by myself and didn't realize for days that I was herxing. 

Called Dr. Fry who said stop everything for a week then re-start.  My second

" round " on the protocal was worse.  The treatment was in full swing.  because

biofilm is so sticky, it's breakdown included sensations that felt like I was

being torn and pulled inside wherever the enzymes were working.  No fun at

all!  Dr. Fry had told me that the first month would have some symptoms, the

next 2-3 months would be tough, then I would level out, then I would start to

get and feel better, and

that's what's happening.  I'm in the leveling out phase now and am just very

tired to exhausted.  

It is very important with this protocol to listen to our bodies and take it

slow.  Back off even stop periodically then restart as many times as needed. 

I have been crying at the drop of a hat the last 2 days and noticed my heart

pounding late yesterday and that I was quivering inside (and it wasn't from

anything fun  ).  So I haven't taken anything today, will give my bod a few

days break, then will begin again.

For me, I'm thinking the human probiotics interspersed with the biofilm/bug

killing protocol has a good chance of maybe giving me my life back. Dr. Fry

says that the single most important aspect of killing the malaria protozoa is to

starve it with the low fat diet.   And I'm continueing the low oxalate

diet.  We'll see.  How long it takes and how intense the

symptoms/herxes depends on how long one has had CFS.  And what I've described

above may only be useful for some of us.  It is simply what I am doing now with

hope.  CFS symptoms and the treatment symptoms are enough different that I can

tell the difference.  I am improving.

If you have a doctor who will do it, I recommend the ink stain test for malaria

protozoa from Fry Laboratories to know if you need to address biofilm and/or any

of the mutant malaria protozoa.  And the urine test to see if your oxalates are

high.

Keep the faith everyone,

Kay      

 

 

 

  

>From: crusaderD <dennybrand@...>

>Subject: Re: Gut Restoration

>

>Date: Saturday, July 9, 2011, 10:27 PM

>

>

> 

>

>Hi Kay,Wow, gutsy lady, pardon the pun!!! Incredible courage to do it all on

your own!!! Fantastic that it worked well for you. My success has been short

lived, 2 weeks of fecal infusion last December wasn't enough and about the

beginning of June I noticed I was becoming more emotional and stressed easy when

I went about a normal life. Up to June I had resumed part time work, took a trip

to USA and really taxed myself and never got stessed nor did my energy flag. A

lot of my good health in the last 5 months has also been due to a low oxalate

diet and recommended supplements. I am just having a gut permeability test done,

but I know even without the results my gut lining has healed considerably due to

the diet and I certainly still don't have any dysbiosis. My suspicion that my

gut flora is getting out of kilter was confirmed by a stool analysis, the old

bad bacteria I had trouble with before is well under control but my good flora

is still very low and

as a result different bacteria has become over grown. Also my last Organic Acid

Test from GPL also confirmed I have intestinal microbial overgrowth and poor

nutrient absorption. I was told by Prof Borody that it takes 12 months for the

good flora to really flourish and multiply. So in people like me I need a lot

more donor infusions over a longer period. I think you are on the right path

with your idea to do more infusions since taking the tetracyline. It has taken

many years to get in the state of ill health we are in and therefore getting

well isn't going to happen overnight so to speak. I am disappointed but I am

functioning mentally, physically, emotionally so much better than before I did

any biofilm, stool and oxalate work I will just repeat what I have done before,

I know it works, it is just going to take awhile to establish a good level of

good bacteria.I was going do my own infusion earlier this year but I kind of

avoided it. I don't know very

many people where I live and the two people I asked in January didn't cope very

well with the idea so I kind of put it off and kept my fingers crossed I had

done enough through the clinic, but I havent. Prof Borodys' clinic have supplied

me with two test kits (blood and stool) for prospective donors and I have now

found people willing to help. So looks like I will be setting up my laundry like

you soon!!! Yuk!!!With regard to donors, you chose a baby, Borody's staff have

told me that children under 14 are unsuitable because their gut flora is not

mature enough. What that means I am not sure. You should be very proud of your

efforts to help yourself and I hope you continue your path to good health. You

gotta do what you gotta do. Who am I trying to convince???? I really don't

relish the idea!!!

>