[Spam] Re: Updates from those on Low-Dose Naltrexone therapy?

[Guest guest]

Hi Marti,

Thanks so much for offering your experience; it's very helpful!

I'm thrilled you've had such a reduction in pain, and I really hope it

continues. I'm interested in pain relief also - in addition to CFS & FM pain, I

also have Degenerative Disc Disease, a non-successfully repaired shoulder, and

bad knees. I would love to not be in need of narcotics (Percocet) & muscle

relaxers (Flexeril), though I've managed to withdraw from them for a few weeks

by using Marijuana. The Marijuana is just a stop gap for me; it helps with the

pain, but it increases my brain fog. Wheat is a trigger for me too, but my

other is sugar, and I suffer a great deal when I cheat.

It's interesting that your T3 dose hasn't changed, and makes me less hesitant to

try LDN. I was worried about suddenly going hyperthyroid and the need to

titrate down, but now I'm thinking that if I do require a dose reduction, it

will probably be gradual.

I thought I remembered you were also on Hydrocortisone for your adrenals ... or

was that just wishful thinking on my part? Not that I want you to have adrenal

issues, LOL, just that it would be nice to hear that someone's corticosteriod

use hadn't canceled out any benefit from LDN or that the LDN didn't block the

corticosteriod.

Did you start off at the 4.5mg dosage, or did you start lower? If lower, how

long did you wait between dose adjustments?

Also, when you say you take it by syringe, do you mean you inject it? I tried

injecting B-12 shots, it wasn't hard or painful, but after a couple of months,

my brain began stopping my hand just prior to the needle entering. It was very

strange. I gave up after a number of hour long attempts, and now use compounded

drops.

Liz

----- Original Message -----

From: marti_zavala

Hi Just Me,

I have been on LDN since April of 2010. Currently on 4.5 mg per day. I like it

because I don't have to take tramadol, robaxin (muscle relaxer) or any other

medication for pain (like Neurontin, Cymbalta or Lyrica). I was never on

stronger meds for pain. The tramadol was enough to take most of the pain away. I

never got relief during change in barometric pressure changes.

I experience 90% pain relief. That level drops if I have cheated and had wheat

(takes alot) or dairy (doesn't take as much). Also, not much help on barometric

pressure change days but better than with tramadol. If I have overdone it

(rarely, anymore), then I will take Tylenol Arthritis which works better for me

than regular Extra Strength Tylenol. Not sure why.

I was on T3 (same dosage as you) and have remained on that level ever since.

No drop for me.

It takes away my fibro pain, my spinal stenosis pain (unless I aggravate it)

and my ME/CFIDS joint pain.

I make sure to always have enough. I purchase mine from India and it runs me

$16 for 3 months. NO prescription. I mix it with water and take it by syringe

before bedtime.

I haven't researched LND in a while but this is the main page I send to

people:

http://www.low dose naltrexone.org/

HTH,

Marti

[Guest guest]

Thanks Dolores,

I appreciate hearing your experience.

I took Adderall for about a year, but ended up going back to my old stand by of

caffiene ... which I really need to reduce. It'd be great to reduce fatigue AND

pain, especially since I think the pain adds to the fatigue.

I looked at the All Day Chemist site, but could only find the 50mg?

Liz

[spam] Re: Updates from those on Low-Dose

Naltrexone therapy?

I have CFS and have been on LDN since 9/2010 I started at 1.5 and now take

3.5.

In general it has helped quite a bit with my fatigue.

I have been taking Adderall for 5 yrs just to be able to get out of bed

everyday, or leave the house and I have been able to cut the dose in half since

LDN.

It has also helped with my allergies. Also have not had to take medicine for

migraines since starting LDN

I get mine from All Day Chemist which cost $75 a year.

>

> Hi,

>

> I'm wondering if anyone who has tried or is currently using LDN would be

willing to offer an update on their experience?

>

> Also, I'd sure appreciate it if you would list your preferred websites for

LDN ... an awful lot have popped up since I last looked at it as a possible

option.

>

> TIA,

>

> Liz

>

>

>

[Guest guest]

Thanks Fiona,

I'm glad it's working for you.

I don't know that I have muscle " solidness " ... though they often feel as hard

and solid as rocks to the touch, but I definately have muscle spasms - would

love to have those gone. But if I had to choose, I'd take functioning first,

followed by pain, and spasms last. Then again, at this point, any improvement

would be welcome!

Liz

[spam] Re: Updates from those on Low-Dose

Naltrexone therapy?

> I'm wondering if anyone who has tried or is currently using LDN would be

willing to offer an update on their experience?

>

I have used LDN since April 2010. I started low and took a while to build up,

but have taken the fulll 4.5mg dose nocte since about August.

It has really helped my mobility and muscle spasmsn and muscle solidness

problems. I used to suffer muscle solidness in my legs after walking short

distances. I have been to a shopping precinct today with no muscle solidness!

Without it by now my muscles in my legs would be really uncomfortable and solid

feeling for 24 hours.

Possibly incrememtal improvements in functioning, but really the main benefits

for me has been for mucles.

Fiona.

[Guest guest]

Hi There,

My responses below at the ****.

Marti

>

> Hi Marti,

>

> Thanks so much for offering your experience; it's very helpful!

>

> I'm thrilled you've had such a reduction in pain, and I really hope it

continues. I'm interested in pain relief also - in addition to CFS & FM pain, I

also have Degenerative Disc Disease, a non-successfully repaired shoulder, and

bad knees. I would love to not be in need of narcotics (Percocet) & muscle

relaxers (Flexeril), though I've managed to withdraw from them for a few weeks

by using Marijuana. The Marijuana is just a stop gap for me; it helps with the

pain, but it increases my brain fog. Wheat is a trigger for me too, but my

other is sugar, and I suffer a great deal when I cheat.

***I am discovering that sugar is a trigger for my POTS.

> It's interesting that your T3 dose hasn't changed, and makes me less hesitant

to try LDN. I was worried about suddenly going hyperthyroid and the need to

titrate down, but now I'm thinking that if I do require a dose reduction, it

will probably be gradual.

**** We are all different but I have actually increased my dose since starting

the LDN. But I wasn't on the right amount to begin with. Maybe those who have

already found their target dose have a period of hyper thyroidism.

>

> I thought I remembered you were also on Hydrocortisone for your adrenals ...

or was that just wishful thinking on my part? Not that I want you to have

adrenal issues, LOL, just that it would be nice to hear that someone's

corticosteriod use hadn't canceled out any benefit from LDN or that the LDN

didn't block the corticosteriod.

***Yes, you remember correctly! I was on 20mg of HC cream for 9 months. I did

feel worse getting off but was testing some other things. I am considering

getting back on and perhaps dropping florinef (for my POTS)

>

> Did you start off at the 4.5mg dosage, or did you start lower? If lower, how

long did you wait between dose adjustments?

***I started at 0.5mg (diluting the 50mg pill in 50 ml of water (I use a small

Claritin OTC bottle - perfect size). I ramped up to 4.5 in about 30 days.

Rather rapid ramp up but I didn't experience any side effects except perhaps a

little alertness. I took Klonipin and my doc switched that out for Elavil which

is supposed to help my POTS. That helps me fall asleep.

>

> Also, when you say you take it by syringe, do you mean you inject it? I tried

injecting B-12 shots, it wasn't hard or painful, but after a couple of months,

my brain began stopping my hand just prior to the needle entering. It was very

strange. I gave up after a number of hour long attempts, and now use compounded

drops.

***I saw your message and All day chemist is where I order my LDN and many other

things as well. I order Valtrex and other meds that I want to try but don't

want to hassle with a docs prescription. I have been able to purchase small

amounts (10 tablets) of various drugs and I do a solid test by getting of most

meds and doing a quick trial.

I used to inject glutathione and after 2.5 years, I started to resent the

injections and my brain did the same thing! That's when they started to really

hurt because I was tensing my muscle. Before then, they did not hurt, I could

leave the needle in and take my time. Very disconcerting!

Let me know if you have additional questions. Don't forget to search the

archives for more info. Marti

> Liz

>

>

> ----- Original Message -----

> From: marti_zavala

>

> Hi Just Me,

>

> I have been on LDN since April of 2010. Currently on 4.5 mg per day. I like

it because I don't have to take tramadol, robaxin (muscle relaxer) or any other

medication for pain (like Neurontin, Cymbalta or Lyrica). I was never on

stronger meds for pain. The tramadol was enough to take most of the pain away. I

never got relief during change in barometric pressure changes.

>

> I experience 90% pain relief. That level drops if I have cheated and had

wheat (takes alot) or dairy (doesn't take as much). Also, not much help on

barometric pressure change days but better than with tramadol. If I have

overdone it (rarely, anymore), then I will take Tylenol Arthritis which works

better for me than regular Extra Strength Tylenol. Not sure why.

>

> I was on T3 (same dosage as you) and have remained on that level ever since.

No drop for me.

>

> It takes away my fibro pain, my spinal stenosis pain (unless I aggravate it)

and my ME/CFIDS joint pain.

>

> I make sure to always have enough. I purchase mine from India and it runs me

$16 for 3 months. NO prescription. I mix it with water and take it by syringe

before bedtime.

>

> I haven't researched LND in a while but this is the main page I send to

people:

>

> http://www.low dose naltrexone.org/

>

> HTH,

> Marti

>

>

>

>