Re: Elavil or amytriptaline

[Guest guest]

Hello all,

This is Deepak here and I am in India. Since this year I have been having

symptoms of fibro and cfs ( I dont know how to tell the difference). All

tests come normal and doctors look at me like I am a crazy hypochondriac .

Came across an interesting article on Elavil which I am posting the link

to below.

http://www.ncbi.nlm.nih.gov/pubmed/22142408

God bless us all.

Deepak

[Guest guest]

i cannot sleep without it, i've been on a hefty dose for years. it is supposed

to help pain as well. it has some side effects but i have to sleep.

>

> Hi,

>

> I am wondering if amytriptaline (sp) at 5 mg. has been helpful for anyone

> during severe relapse or is it just tricking the body/brain into only

> thinking it is feeling better and essentially robbing peter to pay paul. I

> am desperate with pain, nausea and malaise after hysterectomy but been in

> severe relapse- getting worse for 3 months leading up to this major surgery.

>

> Thank you so much, might have trouble responding back as bed laptop not

> scrolling my gmail acct. since they made changes and can't really be up.

> Robbi

>

>

>

[Guest guest]

Hi Robbie,

I'm so sorry that you've had to endure this major surgery while ill already with

CFS/ME. I was fortunate in that when I had a major hysterectomy I was healthier;

didn't even KNOW I had this illness and was still working back then although

there had been occasional 'hints.' I'd shrugged these things off as no doctor

connected the dots. What I do remember was that the surgery was a major shock to

my body. As it had come about from a cancer diagnosis which was something of a

surprise I did not HAVE any weeks leading up to even think of what was going to

happen. Had a week to 'get my affairs in order.' (Meaning boarding the cats,

dog, etc). things turned out well, BUT .. the recovery period was pretty awful.

For a time I used to think I MIGHT have contracted some viral stuff then, but I

think I have always had this; it was only in stages where it would become worse

with STRESS. I cannot recall which antidepressant they had me on. The pain meds

varied; began with something quite strong, and then went down from there...

while I agree with the robbing to pay ideology, I also think that

something which MIGHT trick the brain/ psyche into Everything Isn't So Bad could

sort of help -- meaning anti depressant. I just know very little about pain meds

though. I wanted to post as I wished to help; I DID come out of how dreadful I

felt. It helped me that friends visited and helped out. I DO hope that this can

be done for you; support means everything even when just by phone, but in

person? Even better. My cats helped even... One seemed to be my little body

guard since the dog wasn't there! This was kind of funny as they never did like

the dog.

Best and slow but steady recovery!

Jane, the one with the hound,

NYC

>

> Hi,

> I am wondering if amytriptaline (sp) at 5 mg. has been helpful for >anyone>

during severe relapse or is it just tricking the body/brain >into only> thinking

it is feeling better and essentially robbing peter to pay paul. I> am desperate

with pain, nausea and malaise >after hysterectomy but been in> severe relapse-

getting worse for 3 >months leading up to this major surgery.

> Thank you so much, might have trouble responding back as bed >laptop not>

scrolling my gmail acct. since they made changes and can't really >be up.

> Robbi

>

>

>

[Guest guest]

Hi,

I have been taking amitriptyline (25 mg) for several years, for chronic pain. It

does help, especially with the pain that opiates and Neurontin don't touch.

I have not seen any effect with energy one way or another. I suspect that the

benefit that some have reported during crashes is due to alleviating the pain,

not to direct effects on energy.

By blocking some pain, you will have bit more energy to use - hurting takes

energy. This energy is an increase over whatever you would have had, and is not

coming out of reserves, so won't lead to a more serious crash.

>

> Hi,

>

> I am wondering if amytriptaline (sp) at 5 mg. has been helpful for anyone

> during severe relapse or is it just tricking the body/brain into only

> thinking it is feeling better and essentially robbing peter to pay paul. I

> am desperate with pain, nausea and malaise after hysterectomy but been in

> severe relapse- getting worse for 3 months leading up to this major surgery.

>

> Thank you so much, might have trouble responding back as bed laptop not

> scrolling my gmail acct. since they made changes and can't really be up.

> Robbi

>

>

>

[Guest guest]

Hi Robbi,

It helps with pain, sleeping, blood flow (according to the post that was posted)

and helps cfs. I've been on it since the getgo, 24 years now, so sick I thought

I'd die. Too much to go into really. Occasionally I would try and come off it,

but within a few days I'd relapse and quickly went back on it. Eventually got

much better due to a multiple of things. During the 'well' phase of this

illness, I decided to come off the amytriptaline and was able to stay off it for

a few years. I was more energetic and only then realised it drugs you.

However, when unrelentless and unexpected stress came my way, I again started

relapsing and haven't really ever gotten back the health I had those few years.

I am again back on the drug and will stay on it unless a miracle happens. It

does help, but I still struggle with replases that are severe. It's no cure,

but I wouldn't want to be without it. And I've also noticed it helps with

stamina, especially in the afternoon when I usually start to fade. Anything

that helps, even a little, is worth using, imo.

btw, my husband is on it for his neuropathy; he's a diabetic. My neighbor, who

had shingles, was also on it.

Gail

>

> Hi,

>

> I am wondering if amytriptaline (sp) at 5 mg. has been helpful for anyone

> during severe relapse or is it just tricking the body/brain into only

> thinking it is feeling better and essentially robbing peter to pay paul. I

> am desperate with pain, nausea and malaise after hysterectomy but been in

> severe relapse- getting worse for 3 months leading up to this major surgery.

>

> Thank you so much, might have trouble responding back as bed laptop not

> scrolling my gmail acct. since they made changes and can't really be up.

> Robbi

>

>

>