anxiety

[Guest guest]

Perhaps you should talk to her doctor about putting her back on those meds.

Sorry I haven't been more help.

granny

Re: Anxiety

>

>I think she's always had it, but just better able to express it now rather than

just throwing a lay on the floor fit. Before she was diagnosed with diabetes we

had taken her to every therapist, counselor and doctor in this area trying to

get help with her behavior (tantrums and hitting, and so on). We tried charts

and chairs and timers. Nothing worked. We then went to a neurologist who

diagnosed her with ADHD, OCD and tourettes. She was put on meds and was like a

new kid as far as the fits and aggression goes. Well jump six months and she was

diagnosed with diabetes. We took her off of the meds because eating needs to be

consistent when dealing with insulin which those meds did not allow. Just

getting the insulin dramatically improved her behavior so we did not have to put

her back on. Now here we are. Now that I'm writing this, maybe it's the OCD that

is causing her this feeling? I guess all that I want to keep my mind open to is

that I feel like we lost 4 years because we did not want to medicate Myah for

her behavior in the past. Once we did, it was great. What I mean by lost 4 years

is that her behavior was so bad that we could not take her anywhere and she

would beat me up. It was not enjoyable at all. Now, that had subsided for the

most part and I don't want to lose more time trying everything things if the

root cause could just be helped by a small amount of medication. We are going on

our first family vacation in June. I'm worried that she will be absolutely

miserable all of the time. I mean she's 7 and never asks to go anywhere outside

of her regular school routine with me because I think she knows she won't like

it. She has not been to the store with me in about 7-8 months. Maybe there's

just something that can be used when needed? All I really want is for her to be

a part of the family and not constantly left behind.

>

>Thanks for all your input.

> Spilios

> Fw: Anxiety

>

>

> dear

> when did the anxiety behaviour start?

> Is it something that started suddenly (maybe some traumatic event that she

hasn't been able to communicate?)

> Is ist something that might be connected to puberty and hormone levels?

> There are many reasons for anxiety. I would check them out first before

trying medication.

> Medication is a good thing, but it is important to try to find the reason

first. Maybe you can find a good solution without medication.

> All the best

> Gundula

>

>

[Guest guest]

,

I feel your pain..I really do. I live the same life you do. And is

medicated. We are in town, WV where he had a cardiology appt. at 8:00

this morning (his neuro heard a murmur- twice and we needed to r/o cardiac

issues). He plopped down as we walked in the building - at 14 and 142 pounds,

it's getting really embarrassing. Then he started to push chairs and in the

exam room - well lets just say they got the doctor in there quickly and he did

well after that (he always does once all the attention is on him and there are

no distractions).

My uncle died Friday and we traveled to Elkins, WV for the calling hours last

night. Just like at my grandma's funeral last month, laid on the floor

in a room with his GE & HE book and was content being left alone. There were

probably around 300+ people there last night and I worried how he would handle

the crowd (my uncle was one of 13 and both his mother and father's family..my

grandparents...is large). Katey - without even being asked, sat near him last

night and kept an eye on him. She is such a wonderful big sister. I was hoping

to see my cousin with DS (he is my mom's first cousin) who is probably nearing

60 years old now. His brother was there and told me that , after all these

years, cannot handle crowds and will not go to Wal-Mart anymore. Anyway, when

we were here last month, Tim watched one morning so I could run to my

uncles house and spend some time with him (he had cancer) - I had a nice time

with him and thankfully that day he had a good day!

We are going to Disney next month and loved going the last time -

actually the accommodations that they make made all of us have a great time

since his behaviors were minimal! It's the airport waiting and transfer that

will be an issue. When we go the beach, he pretty much does what he wants to do

when he wants to do it. He swims, watches TV, swims, watches TV. He does love

amusement parks - so we hit a few of those last summer.

As for anti-anxiety meds I don't think they help - but I am hearing more

and more parents talk about the anxiety their children have and the related

behaviors. I wish there were more research in this area.

We are at a hotel with a late check out - Katey and are going swimming

before we head home. I'm stopping at our local mental health agency to apply

for services for on our way home

--

cindysue@...

Fw: Anxiety

dear

when did the anxiety behaviour start?

Is it something that started suddenly (maybe some traumatic event that she

hasn't been able to communicate?)

Is ist something that might be connected to puberty and hormone levels?

There are many reasons for anxiety. I would check them out first before trying

medication.

Medication is a good thing, but it is important to try to find the reason

first. Maybe you can find a good solution without medication.

All the best

Gundula

[Guest guest]

Ahhhhhhhhhhh...you are giving me hope! sees the pediatric

endocrinologist soon!

--

cindysue@...

anxiety

When started having thyroid problems last year, the first thing we

noticed was her behavior changes. She stopped being interested in doing anything

or going anywhere (even music and Disney). We put her on an

anxiety/antidepressant with no side effects and it helped but we knew the

problem was bigger than that. She ultimately was having seizures and lost a lot

of self-help skills. Once we got her thyroid under control (via meds) her

anxiety decreased and interest in things increased. It was so hard to figure out

because she is nonverbal. Today she is back to her normal spunky self on lexapro

and levoxyl.

Kathy

[Guest guest]

>>All I really want is for her to be a part of the family and not constantly

left behind.<<

Dear

Your daughter seems to have a whole history of problems. There are a whole lot

of worries there.

I have been thinking about your post and your above comment a lot.

Yes, it would be great to be able to do things together.

But I always find medications to be the very very last resort. Medication

surpresses so much important information so that really helping the person

becomes more and more difficult.

Thinking about your comment >>All I really want is for her to be a part of the

family and not constantly left behind.<< I was wondering if a shift in

perspective would help - would it be possible to turn that sentence around, how

about the familiy being a part of her life and the family not being left behind?

Sometimes a shift in perspective is all it needs for problems to start loosening

their grip and for solutions to start happening.

wishing you all the best

Gundula

[Guest guest]

I have seen a change in Amelia in the last few years regarding social

situations. She too is 7 years old. If she knows everyone in the group she is

fine. This is a child who used to be very social. She still is, I guess it's

just that now she is HIGHLY selective. Restaurants are not an issue-except in

the opposite direction (wanting to go to Mcs day and night.) I also have

so called typical family members who don't like social gatherings and that is

just the way they are. Maybe Myah is like that too, and unlike the rest of us

is not willing to suffer in silence when uncomfortable. Hey you gotta respect

that!!!! Amelia also says " too loud. " Amelia is mainstreamed in public school

and fully included at our church-very social group of people with Sunday school,

service, and weekly outings, as well as her before and after school care (apx 1

hour a day.) She often has typical girlfriends spend the weekend too. Now I

will say that Amelia is very happy and

content to be by herself too. As time goes on I do see a lessening of her

willingness to be in vacation settings if alot of different activities are

involved. As far as the medication goes , I am sure that you, above all

others, have her best interests at heart and would not give her anything unless

you felt the positive out weighed the negative. In my opinion, medication gets

a bad rap from the population because the media has such a hey day with any

inflammatory medical stories. The truth is that medication can be very

beneficial to people and it's a decision to be made by you and your physician

and no one else. My doctor has recommended adderall for Amelia. My husband is

resistant to meds so we are still in the discussion phase. I think the doctor

wants it because Amelia has gained so much weight in the last two years. 40 lbs

to be exact. Some of it came from an outside influence but frankly that outside

influence passed away several months ago and the kid

still gained two pounds last month. This, with absolutely NO junk food in the

house and a trampoline which she does play on quite a bit. I am at my wit's end

with this weight gain and am ready to try anything to slow it down. Including

adderall. I considered the weight gain as the reason for the lack of

socializing but don't believe it to be causal. Amelia has a healthy self

esteem, she is told she is beautiful every day of her life, because she is

beautiful. She has high energy. She is well received by her peers and

teachers. I really don't know why her weight gain is so profound-at 5 years old

she weighed 47 lbs. At 7 she weighs 92.

Ann (mother to Amelia 7w/DS and Jake 6)

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

Thought I better post a follow up....

ran out of lexapro and dad, well, dad does the medicine thing

these days and, well, do I need say more. So without lexapro for a

week, things got really uncomfortable for my baby. He is back on it

and it's like night and day. We have another doctor appointment

(same place) on Friday - I'll see how he does this time...lol.

" Me " <cindysue@...> wrote:

>

> ,

>

> I feel your pain..I really do. I live the same life you do. And

is medicated. We are in town, WV where he had a

cardiology appt. at 8:00 this morning (his neuro heard a murmur-

twice and we needed to r/o cardiac issues). He plopped down as we

walked in the building - at 14 and 142 pounds, it's getting really

embarrassing. Then he started to push chairs and in the exam room -

well lets just say they got the doctor in there quickly and he did

well after that (he always does once all the attention is on him and

there are no distractions).

>

>

[Guest guest]

Have you always been anxious, worried, fearful? I have been this way

my whole life. I was always worrying about something, even as far

back as grade school. I'm told that I was " afraid of my own shadow. "

I had headaches as far back as childhood, which were probably

migraines but my parents were clueless. I started having full blown

migraines in college. I was very driven to succeed, and of course

that brings more stress and anxiety. My two big phobias are public

speaking and freeway driving.

When I have periods of anxiety, they are centered around my health. I

imagine somehting minor being something life threatening. 20 years

ago, I completely fell apart and was diagnosed with general anxiety

disorder and was in therapy. The next major bout of debilitating

anxiety came about 8 years ago when I had another health scare, and

that time, I was put on Prozac (didnt really help).

I;m not on any anxiety or depression meds now. But when I am in a

very stressful situation, my heart pounds out of my chest and I feel

shaky, wobbly, in a panic. If I am able to take my BP, it's high (for

me), in the 170s over 101 or something like that. Remove the stress

and my BP goes back down. Is this the case with you?

I read somewhere, maybe in Dr Grim's article, that one theory of PA

is that long term exposure to anxiety through the normal body

chemistry triggers it?

> >

> > You have anxiety??? There is hardly anything in the literature

> about it but

> > I've found many people on this board complain about it.

> >

> > Val

> >

> >

>

[Guest guest]

the question would be how would anxiety drive the adrenal to become

hyperplastic.. If it is associated with bursts of ACTH it might.

On Apr 17, 2008, at 11:14 AM, em5704 wrote:

> Have you always been anxious, worried, fearful? I have been this way

> my whole life. I was always worrying about something, even as far

> back as grade school. I'm told that I was " afraid of my own shadow. "

> I had headaches as far back as childhood, which were probably

> migraines but my parents were clueless. I started having full blown

> migraines in college. I was very driven to succeed, and of course

> that brings more stress and anxiety. My two big phobias are public

> speaking and freeway driving.

>

> When I have periods of anxiety, they are centered around my health. I

> imagine somehting minor being something life threatening. 20 years

> ago, I completely fell apart and was diagnosed with general anxiety

> disorder and was in therapy. The next major bout of debilitating

> anxiety came about 8 years ago when I had another health scare, and

> that time, I was put on Prozac (didnt really help).

>

> I;m not on any anxiety or depression meds now. But when I am in a

> very stressful situation, my heart pounds out of my chest and I feel

> shaky, wobbly, in a panic. If I am able to take my BP, it's high (for

> me), in the 170s over 101 or something like that. Remove the stress

> and my BP goes back down. Is this the case with you?

>

> I read somewhere, maybe in Dr Grim's article, that one theory of PA

> is that long term exposure to anxiety through the normal body

> chemistry triggers it?

>

>

> > >

> > > You have anxiety??? There is hardly anything in the literature

> > about it but

> > > I've found many people on this board complain about it.

> > >

> > > Val

> > >

> > >

> >

>

>

May your pressure be low!

CE Grim BS, MS, MD

High Blood Pressure Consulting

Specializing in Difficult to Manage High Blood Pressure

Consult the following at for details

bloodpressureline

hyperaldosteronism

[Guest guest]

I went to Whole Paycheck (Whole Foods) today. It was like a circus and I

had to hurry and get out. While there, I bought some of the Pero fake

coffee.

http://www.internaturalfoods.com/Pero/Pero.html

It has no calories, no Na, no K, no nothing and tastes pretty good.

I also bought some stuff called Teeccino Original Caffeine-Free Herbal

Coffee. It has 20 calories,20 mg Na, 65 mg K and tastes awful.

http://www.teeccino.com/

YMMV

Val

[Guest guest]

Try the Teecino organic Maya Caffe (the one that's supposed to taste the most

like coffee). It does taste a lot like coffee, with no caffeine. Check out

their website, http://www.teeccino.com

The company mailed me a free sample (they will for you, too, if you call

them or e-mail them). It tastes good. They have quite a few different ones,

so the one you tried may have been yucky.

Ellen

Valarie wrote:

> I went to Whole Paycheck (Whole Foods) today. It was like a circus and I

> had to hurry and get out. While there, I bought some of the Pero fake

> coffee.

> http://www.internaturalfoods.com/Pero/Pero.html

> It has no calories, no Na, no K, no nothing and tastes pretty good.

>

> I also bought some stuff called Teeccino Original Caffeine-Free Herbal

> Coffee. It has 20 calories,20 mg Na, 65 mg K and tastes awful.

> http://www.teeccino.com/

[Guest guest]

Thanks, Ellen. I did that.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Ellen

Try the Teecino organic Maya Caffe (the one that's supposed to taste the

most

like coffee). It does taste a lot like coffee, with no caffeine. Check out

their website, http://www.teeccino.com

The company mailed me a free sample (they will for you, too, if you call

them or e-mail them). It tastes good. They have quite a few different ones,

so the one you tried may have been yucky.

Ellen

Valarie wrote:

> I also bought some stuff called Teeccino Original Caffeine-Free Herbal

> Coffee. It has 20 calories,20 mg Na, 65 mg K and tastes awful.

> http://www.teeccino.com/

[Guest guest]

" Yucky, " I love it.

As a qualitative researcher (with years of quantitative, running around

in lab coats with a clipboard) who is finally seeing some real data

aggregation (.e.g DSM-V) and respect in the sciences, this term with its

wide latitudes of subjectivity, combinable with quantitative's narrowing

longitudes of objectivity may end up being one of our most important

descriptive markers...

:-)

Ellen wrote:

>

> Try the Teecino organic Maya Caffe (the one that's supposed to taste

> the most

> like coffee). It does taste a lot like coffee, with no caffeine. Check out

> their website, http://www.teeccino.com <http://www.teeccino.com>

> The company mailed me a free sample (they will for you, too, if you call

> them or e-mail them). It tastes good. They have quite a few different

> ones,

> so the one you tried may have been yucky.

> Ellen

>

> Valarie wrote:

>

> > I went to Whole Paycheck (Whole Foods) today. It was like a circus and I

> > had to hurry and get out. While there, I bought some of the Pero fake

> > coffee.

> > http://www.internaturalfoods.com/Pero/Pero.html

> <http://www.internaturalfoods.com/Pero/Pero.html>

> > It has no calories, no Na, no K, no nothing and tastes pretty good.

> >

> > I also bought some stuff called Teeccino Original Caffeine-Free Herbal

> > Coffee. It has 20 calories,20 mg Na, 65 mg K and tastes awful.

> > http://www.teeccino.com/ <http://www.teeccino.com/>

>

> __.

[Guest guest]

Their site on caffeine addiction with a quiz on total daily intake (the

CCI - Cherniske caffeine inventory) is fascinating:

http://www.teeccino.com/Quiz1.aspx

and of course the book that got a giant lobbyist lawsuit started against

Warner Books. Old Ted is hard to beat :

http://www.teeccino.com/ProductGroupDetails.aspx?ProductGroupID=9

I can see it now - caffeine rehab with cortisol tests, 12-step programs

and " C.A. " (caffeineolics anonymous "

Ellen wrote:

>

> Try the Teecino organic Maya Caffe (the one that's supposed to taste

> the most

> like coffee). It does taste a lot like coffee, with no caffeine. Check out

> their website, http://www.teeccino.com <http://www.teeccino.com>

> The company mailed me a free sample (they will for you, too, if you call

> them or e-mail them). It tastes good. They have quite a few different

> ones,

> so the one you tried may have been yucky.

> Ellen

>

[Guest guest]

We think low K increases anxiety Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Mar 1, 2010, at 9:28 PM, "zhenchu@..." <zhenchu@...> wrote:

Can someone explain why Conn's or Cushing's causes anxiety? I understand the hypertension from Aldosterone, but I don't understand the anxiety. How does this fit with Cushing's? I read these symptoms described so often, but with no explanation.

[Guest guest]

Dee,

I have anxiety as well. It is hard sometimes to express how crazy I feel. I

was on medication that helped me greatly and I also use to see a

therapist..also helped me a lot.. don't have insurance any longer so it's

been hard to handle. I'm up at all hours of the day, wheels spinning,

crying.. it's not fun. I understand.. hopefully you can seek out some

treatment to help.

HUGS.

mom to Reiley/almost 4/SCAD/CVIG? labs still pending from NIH on

acutal immunology picture/AZ

On Sun, Apr 4, 2010 at 9:29 PM, kaizach2 <kaizach2@...> wrote:

>

>

> Mys son has CVID. He was on SubQ but it did not work as well as we hoped

> for and recently had a port put in. I live with an awful anxiety. This

> diagnosis has consumed me. I don't sleep as well as I used to because I feel

> the need to check on him at night. I'm always on the computer trying to find

> more information and educate myself as well as my husband and family. I

> think I've educated myself above and beyond. My husband also worries and I

> know he has his own anxieties but is usually trying to keep me calm. I

> sometimes feel bad because I feel like he's constantly keeping me calm but

> who's keeping him calm. I feel guilty. Last week we let him stay at his

> uncles house for the weekend when we went to drop something off they weren't

> there and I automatically started to panic. Then we couldn't reach them on

> cell, now I went into full panic mode complete anxiety attack. Started

> thinking what if he got sick, had to go to hospital,etc.. I felt sick to my

> stomach, I felt like I was going to faint. Then came the phone call, they

> were at the market.. I felt so stupid, embarrassed and rediculous. Not quite

> sure how to deal with disease but not let it consume my every thought.

>

> Dee

> mom of zach 11,cvid

>

>

>

[Guest guest]

Dear Dee, hugs to you....I too, have anxiety attacks/panic disorder.....Finally,

about 3 years ago, I went to a psychiatrist...something I had put off way too

long....he explained to me that with kids with life-threatening illnesses, many

parents experience such anxiety and panic attacks....we are in constant fear,

for a real reason.....it's so close.....and it can also be a form of

post-traumatic stress disorder....after seeing our kids so ill and worrying

about the future.

 

Don't know if you've seen anyone yet, but I would recommend it....he has helped

me a lot...he did cognitive behavioral therapy, put me on an SSRI med for almost

2 years, now I take only Klonopin, small dose,  when I feel very anxious.....it

is a safe med, my dose has never increased and there are days I don't take

it....but I know if I am having a very scary day with my son in the hospital

ill, or undergoing a bone marrow biopsy, or if I cannot deal with it using the

other techniques, I have the med and it helps me be able to organize my thoughts

and worries.....

 

You are not alone.....it is our parent's instinct to protect our children, and

with a serious illness like our kids have, we feel helpless sometimes.  hugs to

you...call me if you need to talk, I know how you feel........Sue   504

400-1994

 

From: kaizach2 <kaizach2@...>

Subject: Anxiety

Date: Monday, April 5, 2010, 4:29 AM

 

Mys son has CVID. He was on SubQ but it did not work as well as we hoped for and

recently had a port put in. I live with an awful anxiety. This diagnosis has

consumed me. I don't sleep as well as I used to because I feel the need to check

on him at night. I'm always on the computer trying to find more information and

educate myself as well as my husband and family. I think I've educated myself

above and beyond. My husband also worries and I know he has his own anxieties

but is usually trying to keep me calm. I sometimes feel bad because I feel like

he's constantly keeping me calm but who's keeping him calm. I feel guilty. Last

week we let him stay at his uncles house for the weekend when we went to drop

something off they weren't there and I automatically started to panic. Then we

couldn't reach them on cell, now I went into full panic mode complete anxiety

attack. Started thinking what if he got sick, had to go to hospital,etc. . I

felt sick to my

stomach, I felt like I was going to faint. Then came the phone call, they were

at the market.. I felt so stupid, embarrassed and rediculous. Not quite sure how

to deal with disease but not let it consume my every thought.

Dee

mom of zach 11,cvid

[Guest guest]

and Dee, the psychiatrist I've seen is at the big local university's

medical school...so the cost has been minimal.....$20 each session which is an

hour long, and if I can't pay, they just write it off....check with the nearest

medical school.....also, Walmart has $4 generic meds, so my med only costs $4 a

month......hugs....Sue

>

>

> Mys son has CVID. He was on SubQ but it did not work as well as we hoped

> for and recently had a port put in. I live with an awful anxiety. This

> diagnosis has consumed me. I don't sleep as well as I used to because I feel

> the need to check on him at night. I'm always on the computer trying to find

> more information and educate myself as well as my husband and family. I

> think I've educated myself above and beyond. My husband also worries and I

> know he has his own anxieties but is usually trying to keep me calm. I

> sometimes feel bad because I feel like he's constantly keeping me calm but

> who's keeping him calm. I feel guilty. Last week we let him stay at his

> uncles house for the weekend when we went to drop something off they weren't

> there and I automatically started to panic. Then we couldn't reach them on

> cell, now I went into full panic mode complete anxiety attack. Started

> thinking what if he got sick, had to go to hospital,etc.. I felt sick to my

> stomach, I felt like I was going to faint. Then came the phone call, they

> were at the market.. I felt so stupid, embarrassed and rediculous. Not quite

> sure how to deal with disease but not let it consume my every thought.

>

> Dee

> mom of zach 11,cvid

>

>

>

[Guest guest]

Hi Esme

That is awful, i suggest you approach your local MP and see if he/she can help. I take magnesium & B6 for anxiety - most of the time it works, although i do think it has to build up and i sometimes forget then start getting stressed out, then i remember and start to take them again. I take melatonin at night when i can't relax and switch off, always makes me sleep well.

HTH

xx

Autism Treatment From: esmewillcocks@...Date: Thu, 24 Jun 2010 19:39:18 +0000Subject: Anxiety

Hi everyone,

Going through a really anxious time at the moment with my 4 yr old NT daughter. Basically she's not been allocated our first choice of primary school (where she has already been for a year in the nursery). Might not seem a big deal on the surface, but the school she's currently at is only an 8 min walk away and the one we have been allocated is a drive across town. Having a major fight with the powers that be about it, our biggest argument being that if I was to break down or get stuck in traffic, I can't be in two places at once as Rose, my eldest with ASD, gets transport to and from school. There are other issues like my parents live right next door to the school that Ruby currently goes to and can easily provide me with childcare when I am on appointments with Rose.

Consequently I'm not sleeping and really struggling to keep it together. Can anyone recommend something that I could take to calm me a little, especially at night when my head is just spinning!!

Would really appreciate any advice...

Esme

Get a free e-mail account with Hotmail. Sign-up now.

[Guest guest]

Hi Esme

 

There are two things I really like... One is quiet life herbal tablets which were brilliant when I had so much nervous anxiety, and the second is rescue remedy. They can both be taken at the same time and neither is habit forming.

 

When we focus on all the things that are making us anxious it makes the anxiety multiply. I find that the starting point is to consider what you actually need

 

To have your child at school close to home

 

Look at all the additional things that the Council will have to provide for you in order for it to be possible for your daughter to go to the other school. List them all and work out the costs.

 

Private taxi to the school and in view of her age clearly it would not be safe unless there were two adults in the car.

Private taxi for your parents in the event of her having to be collected from school early.

Etc

 

The alternative to taking up the place  is to keep her out of school. Clearly with your other daughter and her requirements, you would not be able to home school her, so the only solution would be for the council to provide a one to one tutor at home.

I think it is very important to focus on the specifics of your family dynamics because of the special needs of your other child. The fact that because of the challenges your ASD daughter faces and her numerous visits to therapists etc, it is important for your younger daughter to have some stability and consistency and the ability to meet a peer group with whom she can socialise. With the problems with your ASD child, it is very unlikely that you would be able to let your little child have tea around the peer group so far from home, and this disadvantages her relative to her peer group. The decision the LEA have made discriminates against her because of the position with the special needs of her big Sister.

 

There is always an achilles heel in every situation we face with LEA.. it is simply a matter of looking at what they have not considered.

 

 

Best Wishes

 

 

 

Tracey

On Thu, Jun 24, 2010 at 8:39 PM, Esme Willcocks <esmewillcocks@...> wrote:

 

Hi everyone,

 

Going through a really anxious time at the moment with my 4 yr old NT daughter.  Basically she's not been allocated our first choice of primary school (where she has already been for a year in the nursery).  Might not seem a big deal on the surface, but the school she's currently at is only an 8 min walk away and the one we have been allocated is a drive across town.  Having a major fight with the powers that be about it, our biggest argument being that if I was to break down or get stuck in traffic, I can't be in two places at once as Rose, my eldest with ASD, gets transport to and from school.  There are other issues like my parents live right next door to the school that Ruby currently goes to and can easily provide me with childcare when I am on appointments with Rose.

 

Consequently I'm not sleeping and really struggling to keep it together.  Can anyone recommend something that I could take to calm me a little, especially at night when my head is just spinning!!

 

Would really appreciate any advice...

 

Esme

[Guest guest]

Yes, great advice, Play the disability discrimination card (not that its worth a jot) can frighten folks into the RIGHT decision. Have you put in an appeal?

Mandi x

In a message dated 24/06/2010 22:42:11 GMT Daylight Time, thelifechangers@... writes:

I think it is very important to focus on the specifics of your family dynamics because of the special needs of your other child. The fact that because of the challenges your ASD daughter faces and her numerous visits to therapists etc, it is important for your younger daughter to have some stability and consistency and the ability to meet a peer group with whom she can socialise. With the problems with your ASD child, it is very unlikely that you would be able to let your little child have tea around the peer group so far from home, and this disadvantages her relative to her peer group. The decision the LEA have made discriminates against her because of the position with the special needs of her big Sister.

[Guest guest]

Yes, great advice, Play the disability discrimination card (not that its worth a jot) can frighten folks into the RIGHT decision. Have you put in an appeal?

Mandi x

In a message dated 24/06/2010 22:42:11 GMT Daylight Time, thelifechangers@... writes:

I think it is very important to focus on the specifics of your family dynamics because of the special needs of your other child. The fact that because of the challenges your ASD daughter faces and her numerous visits to therapists etc, it is important for your younger daughter to have some stability and consistency and the ability to meet a peer group with whom she can socialise. With the problems with your ASD child, it is very unlikely that you would be able to let your little child have tea around the peer group so far from home, and this disadvantages her relative to her peer group. The decision the LEA have made discriminates against her because of the position with the special needs of her big Sister.

[Guest guest]

Also if you are game for spooky stuff I can send the DIY easy sheet for some EFT - Emotional Freedom Technique, got me through hard times during divorce without me even really doing it properly or ever believing it would work - it did - how, who knows?

Mandi x

In a message dated 24/06/2010 22:42:11 GMT Daylight Time, thelifechangers@... writes:

Hi Esme

There are two things I really like... One is quiet life herbal tablets which were brilliant when I had so much nervous anxiety, and the second is rescue remedy. They can both be taken at the same time and neither is habit forming.

When we focus on all the things that are making us anxious it makes the anxiety multiply. I find that the starting point is to consider what you actually need

To have your child at school close to home

Look at all the additional things that the Council will have to provide for you in order for it to be possible for your daughter to go to the other school. List them all and work out the costs.

Private taxi to the school and in view of her age clearly it would not be safe unless there were two adults in the car.

Private taxi for your parents in the event of her having to be collected from school early.

Etc

The alternative to taking up the place is to keep her out of school. Clearly with your other daughter and her requirements, you would not be able to home school her, so the only solution would be for the council to provide a one to one tutor at home.

I think it is very important to focus on the specifics of your family dynamics because of the special needs of your other child. The fact that because of the challenges your ASD daughter faces and her numerous visits to therapists etc, it is important for your younger daughter to have some stability and consistency and the ability to meet a peer group with whom she can socialise. With the problems with your ASD child, it is very unlikely that you would be able to let your little child have tea around the peer group so far from home, and this disadvantages her relative to her peer group. The decision the LEA have made discriminates against her because of the position with the special needs of her big Sister.

There is always an achilles heel in every situation we face with LEA.. it is simply a matter of looking at what they have not considered.

Best Wishes

Tracey

On Thu, Jun 24, 2010 at 8:39 PM, Esme Willcocks <esmewillcocks > wrote:

Hi everyone,

Going through a really anxious time at the moment with my 4 yr old NT daughter. Basically she's not been allocated our first choice of primary school (where she has already been for a year in the nursery). Might not seem a big deal on the surface, but the school she's currently at is only an 8 min walk away and the one we have been allocated is a drive across town. Having a major fight with the powers that be about it, our biggest argument being that if I was to break down or get stuck in traffic, I can't be in two places at once as Rose, my eldest with ASD, gets transport to and from school. There are other issues like my parents live right next door to the school that Ruby currently goes to and can easily provide me with childcare when I am on appointments with Rose.

Consequently I'm not sleeping and really struggling to keep it together. Can anyone recommend something that I could take to calm me a little, especially at night when my head is just spinning!!

Would really appreciate any advice...

Esme

[Guest guest]

Yes, have been in contact with MP and they are looking into it, fingers crossed. Will get myself some Mag, B6 & Melatonin, thanks for the tip.

Esme x

From: michelle lacey <michelle0471@...> Sent: Thu, 24 June, 2010 21:38:37Subject: RE: Anxiety

Hi Esme That is awful, i suggest you approach your local MP and see if he/she can help. I take magnesium & B6 for anxiety - most of the time it works, although i do think it has to build up and i sometimes forget then start getting stressed out, then i remember and start to take them again. I take melatonin at night when i can't relax and switch off, always makes me sleep well. HTH xx

Autism-Biomedical- Europe@grou ps.comFrom: esmewillcocksDate: Thu, 24 Jun 2010 19:39:18 +0000Subject: Anxiety

Hi everyone, Going through a really anxious time at the moment with my 4 yr old NT daughter. Basically she's not been allocated our first choice of primary school (where she has already been for a year in the nursery). Might not seem a big deal on the surface, but the school she's currently at is only an 8 min walk away and the one we have been allocated is a drive across town. Having a major fight with the powers that be about it, our biggest argument being that if I was to break down or get stuck in traffic, I can't be in two places at once as Rose, my eldest with ASD, gets transport to and from school. There are other issues like my parents live right next door to the school that Ruby currently goes to and can easily provide me with childcare when I am on appointments with Rose. Consequently I'm not sleeping and really struggling to keep it together. Can anyone recommend something that I could

take to calm me a little, especially at night when my head is just spinning!! Would really appreciate any advice... Esme

Get a free e-mail account with Hotmail. Sign-up now.

[Guest guest]

Yes, have been in contact with MP and they are looking into it, fingers crossed. Will get myself some Mag, B6 & Melatonin, thanks for the tip.

Esme x

From: michelle lacey <michelle0471@...> Sent: Thu, 24 June, 2010 21:38:37Subject: RE: Anxiety

Hi Esme That is awful, i suggest you approach your local MP and see if he/she can help. I take magnesium & B6 for anxiety - most of the time it works, although i do think it has to build up and i sometimes forget then start getting stressed out, then i remember and start to take them again. I take melatonin at night when i can't relax and switch off, always makes me sleep well. HTH xx

Autism-Biomedical- Europe@grou ps.comFrom: esmewillcocksDate: Thu, 24 Jun 2010 19:39:18 +0000Subject: Anxiety

Hi everyone, Going through a really anxious time at the moment with my 4 yr old NT daughter. Basically she's not been allocated our first choice of primary school (where she has already been for a year in the nursery). Might not seem a big deal on the surface, but the school she's currently at is only an 8 min walk away and the one we have been allocated is a drive across town. Having a major fight with the powers that be about it, our biggest argument being that if I was to break down or get stuck in traffic, I can't be in two places at once as Rose, my eldest with ASD, gets transport to and from school. There are other issues like my parents live right next door to the school that Ruby currently goes to and can easily provide me with childcare when I am on appointments with Rose. Consequently I'm not sleeping and really struggling to keep it together. Can anyone recommend something that I could

take to calm me a little, especially at night when my head is just spinning!! Would really appreciate any advice... Esme

Get a free e-mail account with Hotmail. Sign-up now.

[Guest guest]

Thank you Tracey, you have really given me some food for thought. I have played the trauma card, i.e. living with a disabled sibling is traumatic enough, really don't want to have to uproot her from a school she is very settled in and cause more trauma and anxiety in her little life.

Your idea about listing the added costs to the council is a good one. Will get on to that today.

Thanks once again

Esme x

From: Tracey Clewer <thelifechangers@...>Autism Treatment Sent: Thu, 24 June, 2010 22:41:57Subject: Re: Anxiety

Hi Esme

There are two things I really like... One is quiet life herbal tablets which were brilliant when I had so much nervous anxiety, and the second is rescue remedy. They can both be taken at the same time and neither is habit forming.

When we focus on all the things that are making us anxious it makes the anxiety multiply. I find that the starting point is to consider what you actually need

To have your child at school close to home

Look at all the additional things that the Council will have to provide for you in order for it to be possible for your daughter to go to the other school. List them all and work out the costs.

Private taxi to the school and in view of her age clearly it would not be safe unless there were two adults in the car.

Private taxi for your parents in the event of her having to be collected from school early.

Etc

The alternative to taking up the place is to keep her out of school. Clearly with your other daughter and her requirements, you would not be able to home school her, so the only solution would be for the council to provide a one to one tutor at home.

I think it is very important to focus on the specifics of your family dynamics because of the special needs of your other child. The fact that because of the challenges your ASD daughter faces and her numerous visits to therapists etc, it is important for your younger daughter to have some stability and consistency and the ability to meet a peer group with whom she can socialise. With the problems with your ASD child, it is very unlikely that you would be able to let your little child have tea around the peer group so far from home, and this disadvantages her relative to her peer group. The decision the LEA have made discriminates against her because of the position with the special needs of her big Sister.

There is always an achilles heel in every situation we face with LEA.. it is simply a matter of looking at what they have not considered.

Best Wishes

Tracey

On Thu, Jun 24, 2010 at 8:39 PM, Esme Willcocks <esmewillcocks> wrote:

Hi everyone,

Going through a really anxious time at the moment with my 4 yr old NT daughter. Basically she's not been allocated our first choice of primary school (where she has already been for a year in the nursery). Might not seem a big deal on the surface, but the school she's currently at is only an 8 min walk away and the one we have been allocated is a drive across town. Having a major fight with the powers that be about it, our biggest argument being that if I was to break down or get stuck in traffic, I can't be in two places at once as Rose, my eldest with ASD, gets transport to and from school. There are other issues like my parents live right next door to the school that Ruby currently goes to and can easily provide me with childcare when I am on appointments with Rose.

Consequently I'm not sleeping and really struggling to keep it together. Can anyone recommend something that I could take to calm me a little, especially at night when my head is just spinning!!

Would really appreciate any advice...

Esme