Re: Cause of chronic fatigue syndrome - gilberts syndrome ?

October 17, 2011

Hi there,

I went to a talk earlier this year by Dr of the Royal Free Hospital in

London. She's testing patients referred to her as suspected CFS for Gilberts

Syndrome and is finding a few.

Kindest regards,

Annette

October 17, 2011

Hello,

I also have elevated bilirubin levels since my illness began. My total

bilirubin is elevated as is my conjugated bilirubin. This is

contradictory with a diagnosis of Gilbert's because in Gilbert's

syndrome, it is the UNCONJUGATED bilirubin that is elevated.

So they can't figure out why my bilirubin is elevated.

My amylase is also elevated. Once again, they can't tell me why amylase

is elevated.

What has your experience been?

Yannick

October 18, 2011

Thanks for the info, not surprising.. now the important thing

is how many % with cfs this is relevant for and what treatment options can be

given.

>

> Hi there,

>

> I went to a talk earlier this year by Dr of the Royal Free Hospital in

London. She's testing patients referred to her as suspected CFS for Gilberts

Syndrome and is finding a few.

>

> Kindest regards,

> Annette

>

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