Re: Divorce between Mikovits and WPI

[Guest guest]

the HGRV's will still be sequenced and drugs found..just have no idea where or

when!

________________________________

From: marti_zavala <marti_zavala@...>

Sent: Wednesday, October 5, 2011 1:18:46 PM

Subject: Divorce between Mikovits and WPI

 

Wondering if anyone has any thoughts on this matter? Seems that the money spent

on the test through VIP might have been wasted.

http://blogs.wsj.com/health/2011/10/03/scientist-who-led-xmrv-research-team-let-\

go/

http://retractionwatch.wordpress.com/2011/10/03/why-didnt-xmrv-chronic-fatigue-s\

yndrome-researcher-mikovits-now-fired-share-data-with-science/

This insider view was the most interesting and I think the most revealing:

http://treatingxmrv.blogspot.com/2011/10/square-one.html

Any thoughts?

Marti

[Guest guest]

marti_zavala wrote:

> Wondering if anyone has any thoughts on this matter? Seems that the money

spent on the test through VIP might have been wasted.

As someone who was once a medical professional and also spent time in

biomedical research, I find all of this deeply disturbing. It

definitely all needs to be investigated and sorted out once and for all.

I am going to state my beliefs and feelings here. People are fully

welcome to disagree with me, and I know there are people who strongly

do. That's fine. It's your right to do so. I do, however, refuse to

argue with anyone, since that is not productive and it's frankly a waste

of time. I'm busy with other things.

I have never thought that XMRV was causal and still do not. I saw no

evidence of that from the research that was done and presented. It was

interesting, but certainly not an answer to anything. (I'm not going to

get into an in-depth discussion as to why I believe this. I did it before.)

As a former medical professional and researcher, I was appalled at the

way the information was presented--as if the cause had been found and

now there would be a treatment and cure. I was also appalled at the

offering of a test for XMRV when it wasn't known if this retrovirus was

responsible for any disease in humans whatsoever. People were given

false hope and therefore " encouraged " to spend large sums of money they

really didn't have to spend on a test that had no meaning at all and to

take drugs that themselves can cause serious health problems.

I stated my opinion, based on my education, training and experience, and

let people do as they wish. It certainly was not my place to tell

anyone what to do with their own bodies. I then just sat back and

watched everything unfold until we have arrived where we are now ... in

chaos.

I think this entire matter has been a huge disgrace in the way all of

this has been handled. I think there is a lot of explaining to be done.

I do feel that vulnerable, desperate people have been taken advantage

of in the worst of ways ... giving enormous hope with no proof of

anything. To me, that is inexcusable, appalling, and disgraceful.

Jeri <teewinot13@...>

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TenthParadigmSociety

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The Tenth Paradigm - Dr. Pall's Website for CFS/MCS/FM/ETC.:

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MCS-Florida

[Guest guest]

I have no science background of any kind, but it always seemed to me that if

XMRV was the cause of CFS and was sexually transmissible, CFS would soon spread

like AIDS. I have been sick for over 30 years, and no partner of mine ever

became ill. Of course, if it were transmissible that way, it would receive a lot

of attention and we would not be in a position of having to fight to be taken

seriously.

Ellen

[Guest guest]

I'd still like to see HGRV's investigated. For me an infectious cause does make

some sense given the number of non-blood relatives in my family coming down with

ME.

 

HGRV's may be causing other health problems or have long incubation times or

need co-triggers. I'd like these questions answered.

 

It's just too soon to tell if HGRV's are causal in anyway and I'd like

retroviral research to continue with all the other research on possible

infections and ME.

 

Warmest regards,

Annette