Re: A new doctor as of yesterday

October 7, 2011

Marcia,

I had to find a new doc in February, when I realized I could no longer work, and

that I REALLY WAS SICK! I have been working with the Yasko protocol since last

October, with a non-local doctor, and my new doc (Yes, mine has a new practice

also, and she's young)had a very brief " get aquainted " visit. Then she said, get

a mammo, and I'll see you in 6 months. Forget it. I went back about a month

later and asked for a rheumy referral, we talked some more, and she started to

realize that I am sick. Lo and Behold, she has filled out disability paperwork

for me (in September) and pretty much lets me do what I had been doing all

along. She says she is here to coordinate my care. She's what I want in a

primary doc. Someone to oversee and suggest things, not just dictate and

patronize me. I WISH YOU MUCH SUCCESS WITH YOUR NEW PHYSICIAN! I FEEL PRETTY

LUCKY WITH MINE!

>

> Just need to vent slightly to people who would understand.

>

> I had a good family practice doctor for the past 5 years, who didn't know much

about CFS/ME but was willing to look at info that I brought in, and willing to

talk with me about it. Then he had the nerve to move to another state!

>

> So yesterday I had an initial " get acquainted " visit with a new doctor at my

family practice clinic. And I do mean new. Just started practicing a year or two

ago, fairly young. As I was trying to tell her about what I referred to as " my

primary illness " of CFS/ME, several times she said, " Well, you look good! " I got

the impression that she was trying to convey the idea that I was really fine, I

shouldn't worry so much. Maybe I'm reading too much into that. At any rate, I

brought in the paper from the International Consensus Committee on their

criteria, and another article that discussed why the new criteria was important,

and she took those and said she'd read them.

>

> So I've started educating a new doctor. I plan to feed her additional info

from time to time.And if you have any other favorite papers or articles for

educating medical professionals new to the CFS/ME world, let me know what they

are.

>

> Wish me luck!

>

> Marcia on

> in Salem, Massachusetts

>

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