Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Hi ,  First, CONGRATULATIONS! I'm so happy for you.  I have had CFS for 28 years and am the group member who got the placenta stem cell treatments. Although the stem cells did physical repairs that I needed, they don't kill pathogens, restore the gut, or handle oxalates so I still have CFS and not much in the way of a real life. Wish I had known about stool infusions, oxalates, biofilms, etc before but the important thing is that because of many of your contributions, I know about them now.  , could you please explain how taking antibiotics help the gut flora. I thought it was the opposite. Since antibiotics kill bacteria and not viruses, why did you take antibiotics, which did you take, and how did they help the gut if you don't mind my asking. Also, what did you do and how to break down the bilfilm?   Sure wish we had stool infusion treatment in this country. I'm researching now to find the most comprehensive probiotic. Does anyone have any suggestions? Would also like suggestions on what to do for leaky gut.  My urine test showed I needed the low oxalate diet so I started it almost 2 weeks ago.  , your improvement is so encouraging. Thank-you. Kay    Hi Louella and Marti I have had success also, even returned to work part time 4 hrs 4 days a week, its 7 years since I had to leave work due to cfs. Had two pay cheques already, (spent them on clothes - I'm having a ball). No relapses, walking 40 minutes everyday at 6.30am. Significant changes, have my life back, the last part in my recovery after the biofilm treatment, antibiotics for gut flora and stool implant was discovering I had high oxalates in my urine from a Great Plains Lab organic acid test. Joined the trying low oxalate group, then went on a low oxalate diet, put in mag and cal citrate with meals to bind oxalates in food and supplemented B5 (coenzyme A, krebs cycle). Haven't looked back, not cured, but the body is healing and everything is humming along brilliantly. Job now is to heal the leaky gut. Still on methylation sups and lots of other sups. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Hi Kay, thank you, like you there a few things in hindsight I would have done in a different order. Firstly is getting to grips with the oxalate issue - that I believe is perpetuation the oxidative stress/depleting glutathione, which I don't think can be corrected until you go on a low oxalate diet and supplement mag & cal citrate to bind oxalates with meals. The oxalate issue is not like an intolerance to a substance, it is actually a poison that is entering the body because of a leaky gut. The body does not have a mechanism to deal with this toxin and so stores the crystals in the brain, organs anywhere, a bit like what happens with mercury. Actually they are are suspecting mercury is implicated with oxalates as well. Join Trying Low Oxalates, very supportive and informative, run by Owens a researcher whose daughter has oxalate issues and has been researching oxalates for 16 years. Given you have a urine test showing oxalates I would highly encourage you to address this issue. Yes antibiotics are the worst thing to take, you are right, kills the good bacteria and allows undesirables to flourish. I first started with Kenny DeMeirlier (Canadian CFS/ME doctor) who is attempting to the correct the gut flora imbalances by cycling antibiotics with probiotics. I have been on sooooo many antibiotics over the years for such extended periods of time, (5 years whilst we were trying to kill chlamidia pn. is one example) I attribute the progression of my cfs to the use of antibiotics. But they are a necessary evil. However, the good bacteria must be replaced otherwise the bad bacteria just flourish once you come off antibiotics. I kept relapsing on Kenny DeMeirlier's protocol like I did any other time I took antibiotics and that is why I had the stool implants. I still take oral probiotics VSL#3 as these are also known to be useful for oxalate degradation. Dr Usman's (a DAN doctor - Defeat Autism Now) biofilm protocol (using fibrolynitic enzymes) I also incorporated with Kenny's protocol and for me I improved very quickly doing this. But biofilms can release enormous amounts of toxins once you start destroying them and some people have horrendous herximers reactions, so bad they can't tolerate them. (caution must be taken with this protocol, here is more info http://onibasu.com/archives/am/213277.html) I managed to cope with my herximers reactions but I was a zombie for many months but at the same time my energy and stamina increased so I hung in there. You really need to be very careful with the biofilm protocol, as biofilms are also part of your good bacteria and they also get destroyed. Therefore I really think having a stool implant is the way to go especially after the biofilm protocol. Prof Borody of the Center for Digestive Disease is the gastro behind this radical treatment in Syd Aust he is making an impact in US and if you can get your hands on Jan 22 issue of NewScientist there is an article there on him and his work. I have been my own guinea pig, everything is coming along extremely well, however my body still has a lot of damage to heal and I think I walk a very thin line in the management of my cfs, one wrong move ie. eat food I shouldn't and down I go. I therefore feel it is imperative to heal the leaky gut. This I am still learning about and only time will tell how I go with that one. One other thing I think has helped me is addressing my methylation blocks and supplementing with methylation supplements recommended by Dr Amy Yasko - and adapted for cfs/me by Van Kronynenburg who runs the CFS_Yasko group. This illness is extremely complex and takes a lot of self education, which is near impossible when your brain doesn't function together with self awareness and massive amounts of supplements to get the brain and metabolism working. I better go its getting late, I better go to bed - I'm a working girl now, hee hee - it feels soooo good to be part of the real world again. Hang in there, keep fighting, I know it takes soo much effort and energy to pull yourself back up when you crash, it is just part of the yoyo manner of the illness - just keep getting back up!!! One day you will get there, believe in yourself. > > Hi , >  > First, CONGRATULATIONS! I'm so happy for you. >  > I have had CFS for 28 years and am the group member who got the placenta stem cell treatments. Although the stem cells did physical repairs that I needed, they don't kill pathogens, restore the gut, or handle oxalates so I still have CFS and not much in the way of a real life. Wish I had known about stool infusions, oxalates, biofilms, etc before but the important thing is that because of many of your contributions, I know about them now. >  > , could you please explain how taking antibiotics help the gut flora. I thought it was the opposite. Since antibiotics kill bacteria and not viruses, why did you take antibiotics, which did you take, and how did they help the gut if you don't mind my asking. Also, what did you do and how to break down the bilfilm?  >  > Sure wish we had stool infusion treatment in this country. I'm researching now to find the most comprehensive probiotic. Does anyone have any suggestions? Would also like suggestions on what to do for leaky gut.  My urine test showed I needed the low oxalate diet so I started it almost 2 weeks ago. >  > , your improvement is so encouraging. Thank-you. Kay >  >  > > > >  > > > > Hi Louella and Marti > > I have had success also, even returned to work part time 4 hrs 4 days a week, its 7 years since I had to leave work due to cfs. Had two pay cheques already, (spent them on clothes - I'm having a ball). No relapses, walking 40 minutes everyday at 6.30am. Significant changes, have my life back, the last part in my recovery after the biofilm treatment, antibiotics for gut flora and stool implant was discovering I had high oxalates in my urine from a Great Plains Lab organic acid test. Joined the trying low oxalate group, then went on a low oxalate diet, put in mag and cal citrate with meals to bind oxalates in food and supplemented B5 (coenzyme A, krebs cycle). Haven't looked back, not cured, but the body is healing and everything is humming along brilliantly. Job now is to heal the leaky gut. Still on methylation sups and lots of other sups. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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