Re: Need help for hamstring (& butt) pain and burning

[Guest guest]

Is your MD willing to prescribe opioids? Oxycodone is good, but has a small

amount of histamine release, which can cause itching. If you have a history

of itching, I would avoid morphine and codeine. Fentanyl is ideal for those

who experience itching because of the lack of histamine release, but it can

be hard to get a doctor to prescribe.

Itching is usually caused by certain opioids stimulating mast cells, which

release histamine.

Some opioids are notorious for this, such as:

• morphine (MS Contin ,

MSIR , Avinza , Kadian,

Oramorph , Roxanol ,

Kapanol)

• hydromorphone (Dilaudid, Palladone)

• codeine

Some release histamine in moderate amounts, such as:

• hydrocodone (Vicodin)

Some can release histamine in smaller amounts, such as:

• oxymorphone (Opana)

• oxycodone (Roxicodone, OxyContin, OxyIR, etc)

Histamine release is almost nonexistent in:

• fentanyl (Duragesic, Actiq, Fentora, Onsolis, Sublimaze, Instanyl,

Abstral)

• sufentanil (Sufenta)

I don't know about the histamine release for:

• methadone

• tramadol (Rybix ODT, Ryzolt, Ultram, Ultram ER)

• tapentadol (Nucynta, Palexia)

• buprenorphine (MANY brands)

Nucynta does have less histamine release than tramadol, but has stronger

opioid activity. I know this from experience (having been prescribed both of

them).

Nucynta and tramadol are not true opioids and are both very similar. They

are best for people whose doctors are too stubborn to prescribe true

opioids.

Nucynta has moderate opioid activity, moderate norepinephrine activity, and

mild serotonin activity. Nucynta is not generically available.

Ultram, on the other hand, has extremely mild opioid activity, mild to

moderate norepinephrine activity, and moderately strong serotonin activity.

Ultram is generically available.

Have you talked to your doctor about talking 'real' opioids?

Steve M in PA, age 21

Married with 3 year old daughter

Duragesic 300mcg/hr (q48hr)

Actiq-600 (4/day)

OxyIR 30mg (6/day)

Grade II DIPG (Diffuse Intrinsic Pontine Glioma)

Fibromyalgia

Probable RSD

On Aug 26, 2011 11:49 PM, " sb2boys " <sb2boys@...> wrote:

> I have both Fibromyalgia and CFS. I've had both for over 25 years. Since

last fall, I have been having horrible pain and burning in my hamstrings and

butt, not associated with exercise (maybe worse because of lack of

exercise?).

>

> I don't have anything for the pain. I was taking Ultram, but had to stop,

because I started having itching from it. Now, all I have is Tylenol. Does

anyone have any suggestions for anything over-the-counter (pain relievers,

creams,etc.) or any suggestions about any prescription meds. that may help?

I can't take NSAIDs, because I have a history of ulcers from them.

>

> I had read something about Lactic Acid possibly causing this type of pain.

What would help with that?

>

> Thank you!

>

> Sue

[Guest guest]

Sue,

The pain you are having could be due to muscle imbalances. I do stretches for

piriformis syndrome. The butt pain really could point to piriformis syndrome.

You could either google it and see if you can find stretches online or go to

www.losethebackpain.com. The info on this website really helped when I was

having back pain. It talks about muscle imbalances that causes tight and/or

weak muscles.

Doing the wrong exercises or stretches could actually cause issues. I think

with fibro the muscles tend to shorten and this causes pain. I have fibro also.

If I did not do stretches I would be very tight and have more pain than I have.

Deb

>

> I have both Fibromyalgia and CFS. I've had both for over 25 years. Since

last fall, I have been having horrible pain and burning in my hamstrings and

butt, not associated with exercise (maybe worse because of lack of exercise?).

>

> I don't have anything for the pain. I was taking Ultram, but had to stop,

because I started having itching from it. Now, all I have is Tylenol. Does

anyone have any suggestions for anything over-the-counter (pain relievers,

creams,etc.) or any suggestions about any prescription meds. that may help? I

can't take NSAIDs, because I have a history of ulcers from them.

>

> I had read something about Lactic Acid possibly causing this type of pain.

What would help with that?

>

> Thank you!

>

> Sue

>

[Guest guest]

Hi Sue,

Have you considered Low Dose Naltrexone/ It has been a godsend for me for not

only my muscle pain but some other non-related pains as well. I do feel

stronger on it as well but I don't feel any improvement in energy as others have

reported.

I feel that this is a more natural, beneficial method of pain management than

the heavy duty stuff or even the NSAIDS. The way that it works is that it

blocks the endorphin receptors so that your body makes use of your own

endorphins.

It is very economical - I make my own solution using 50mg pills from a pharmacy.

It is about $17 for 3 months @ 4.5 mg per day plus shipping ($25) I order many

other things from them so it is not so bad.

Here is a website:

http://www.low dose naltrexone.org/

plus there are several forums.

I would seriously weigh the risks of any narcotic medications. I have seen my

sister reduced to a nothing life while on these and now she is at a point that

she will never be able to get off and try LDN.

Marti

>

> I have both Fibromyalgia and CFS. I've had both for over 25 years. Since

last fall, I have been having horrible pain and burning in my hamstrings and

butt, not associated with exercise (maybe worse because of lack of exercise?).

>

> I don't have anything for the pain. I was taking Ultram, but had to stop,

because I started having itching from it. Now, all I have is Tylenol. Does

anyone have any suggestions for anything over-the-counter (pain relievers,

creams,etc.) or any suggestions about any prescription meds. that may help? I

can't take NSAIDs, because I have a history of ulcers from them.

>

> I had read something about Lactic Acid possibly causing this type of pain.

What would help with that?

>

> Thank you!

>

> Sue

>

[Guest guest]

Hi Sue

 

Sorry to hear about the problems that you are having.

 

Have you tried working with an understanding massage therapist?

Best wishes

from

Elaine

From: sb2boys <sb2boys@...>

Sent: Friday, August 26, 2011 10:11 PM

Subject: Need help for hamstring ( & butt) pain and burning

 

I have both Fibromyalgia and CFS. I've had both for over 25 years. Since last

fall, I have been having horrible pain and burning in my hamstrings and butt,

not associated with exercise (maybe worse because of lack of exercise?).

I don't have anything for the pain. I was taking Ultram, but had to stop,

because I started having itching from it. Now, all I have is Tylenol. Does

anyone have any suggestions for anything over-the-counter (pain relievers,

creams,etc.) or any suggestions about any prescription meds. that may help? I

can't take NSAIDs, because I have a history of ulcers from them.

I had read something about Lactic Acid possibly causing this type of pain. What

would help with that?

Thank you!

Sue

[Guest guest]

I agree with Deb. The piriformis muscle can cause quite a bit of pain.

The sciatic nerve runs through it. A non-med way to deal with it

besides the stretches Deb mentioned is to find a massage therapist that

has dealt with this before.

Hope it resolves quickly for you,

[Guest guest]

I spray magnesium chloride on my legs before exercising because of the burning

and circulation problems. joyce

> >

> > I have both Fibromyalgia and CFS. I've had both for over 25 years. Since

last fall, I have been having horrible pain and burning in my hamstrings and

butt, not associated with exercise (maybe worse because of lack of exercise?).

> >

> > I don't have anything for the pain. I was taking Ultram, but had to stop,

because I started having itching from it. Now, all I have is Tylenol. Does

anyone have any suggestions for anything over-the-counter (pain relievers,

creams,etc.) or any suggestions about any prescription meds. that may help? I

can't take NSAIDs, because I have a history of ulcers from them.

> >

> > I had read something about Lactic Acid possibly causing this type of pain.

What would help with that?

> >

> > Thank you!

> >

> > Sue

> >

>

[Guest guest]

Well said Marti. I know others have posted about their deep independence on

pain meds, and it sorrows me, knowing so many have been helped by the LDN.

Marti, could you sister go through a rehab sort of situation, to reset her body?

I know it's easy to give suggestions---will pray for all who are so deeply

dependent on pain meds.

God Bless,

Sara

> >

> > I have both Fibromyalgia and CFS. I've had both for over 25 years. Since

last fall, I have been having horrible pain and burning in my hamstrings and

butt, not associated with exercise (maybe worse because of lack of exercise?).

> >

> > I don't have anything for the pain. I was taking Ultram, but had to stop,

because I started having itching from it. Now, all I have is Tylenol. Does

anyone have any suggestions for anything over-the-counter (pain relievers,

creams,etc.) or any suggestions about any prescription meds. that may help? I

can't take NSAIDs, because I have a history of ulcers from them.

> >

> > I had read something about Lactic Acid possibly causing this type of pain.

What would help with that?

> >

> > Thank you!

> >

> > Sue

> >

>

[Guest guest]

This is a great idea.

Sue,

I am wondering if baking soda would be helpful. My integrative doc has me using

1/8 tsp or just a touch less in an 8oz glass of water to combat acidosis.

Maybe using a bit more while you are experiencing pain? Maybe a combination of

all of these ideas would help alleviate some of the pain.

Marti

> > >

> > > I have both Fibromyalgia and CFS. I've had both for over 25 years. Since

last fall, I have been having horrible pain and burning in my hamstrings and

butt, not associated with exercise (maybe worse because of lack of exercise?).

> > >

> > > I don't have anything for the pain. I was taking Ultram, but had to stop,

because I started having itching from it. Now, all I have is Tylenol. Does

anyone have any suggestions for anything over-the-counter (pain relievers,

creams,etc.) or any suggestions about any prescription meds. that may help? I

can't take NSAIDs, because I have a history of ulcers from them.

> > >

> > > I had read something about Lactic Acid possibly causing this type of pain.

What would help with that?

> > >

> > > Thank you!

> > >

> > > Sue

> > >

> >

>

[Guest guest]

Hi Sara,

I don't believe she would be able to withstand the time required to be off.

She has been on these heavy narcotics (pills/patches/injections) for over 10

years, maybe closer to 15.

I believe (needs to be researched) that the longer you are on these OR with

unresolved pain, your brain continues to produce receptors, basically trying to

capture those endorphins.

And LDN would take a little while to lock those receptors. Not sure that she

could wait it out.

It doesn't matter, though, as she is not like us. She doesn't try to get better.

(nothing to do with pain management). She has other health issues and takes a

fatalistic approach to all of them. And she gets sympathy from family.

Different dynamic to those here on this list who want to live a full, healthy,

happy life and will do what it takes to get achieve that.

I do know that pain meds for some enable them to work and raise their families

but I wish doctors were using this more effective method first.

I slept my life away on the pain meds I was on and they were not even the heavy

ones. Now, I take no narcotics, no muscle relaxers, no patches. If I have pain

(usually from overdoing it), I will take one Aleve, some d-Phenylalanine, a hot

bath, Aspercreme, a heating pad, etc.

We all have our own path to follow.

Marti

> > >

> > > I have both Fibromyalgia and CFS. I've had both for over 25 years. Since

last fall, I have been having horrible pain and burning in my hamstrings and

butt, not associated with exercise (maybe worse because of lack of exercise?).

> > >

> > > I don't have anything for the pain. I was taking Ultram, but had to stop,

because I started having itching from it. Now, all I have is Tylenol. Does

anyone have any suggestions for anything over-the-counter (pain relievers,

creams,etc.) or any suggestions about any prescription meds. that may help? I

can't take NSAIDs, because I have a history of ulcers from them.

> > >

> > > I had read something about Lactic Acid possibly causing this type of pain.

What would help with that?

> > >

> > > Thank you!

> > >

> > > Sue

> > >

> >

>

[Guest guest]

Another suggestion would be curcumin. I've attended a couple webinars about its

efficacy in dealing with pain.It has been strongly recommended by Teitlebaum,

who I really admire. Personally, LDN has saved my life, as my pain went from

totally intolerable to very minimal. I just ordered curcumin to try, but mainly

it is for my husband who has colorectal cancer.

Joy

>

> I have both Fibromyalgia and CFS. I've had both for over 25 years. Since

last fall, I have been having horrible pain and burning in my hamstrings and

butt, not associated with exercise (maybe worse because of lack of exercise?).

>

> I don't have anything for the pain. I was taking Ultram, but had to stop,

because I started having itching from it. Now, all I have is Tylenol. Does

anyone have any suggestions for anything over-the-counter (pain relievers,

creams,etc.) or any suggestions about any prescription meds. that may help? I

can't take NSAIDs, because I have a history of ulcers from them.

>

> I had read something about Lactic Acid possibly causing this type of pain.

What would help with that?

>

> Thank you!

>

> Sue

>

[Guest guest]

Joy, I hope your husband is on LDN also------many storys of LDN helping cancer.

So happy your pain is helped----have heard many of the same storys-----------YET

mainstream medicine not paying attention!!!

God Bless,

Sara

> >

> > I have both Fibromyalgia and CFS. I've had both for over 25 years. Since

last fall, I have been having horrible pain and burning in my hamstrings and

butt, not associated with exercise (maybe worse because of lack of exercise?).

> >

> > I don't have anything for the pain. I was taking Ultram, but had to stop,

because I started having itching from it. Now, all I have is Tylenol. Does

anyone have any suggestions for anything over-the-counter (pain relievers,

creams,etc.) or any suggestions about any prescription meds. that may help? I

can't take NSAIDs, because I have a history of ulcers from them.

> >

> > I had read something about Lactic Acid possibly causing this type of pain.

What would help with that?

> >

> > Thank you!

> >

> > Sue

> >

>