Guest guest Posted August 10, 2011 Report Share Posted August 10, 2011 What else are you doing? If your adrenals are exhausted or unsupported, ribose will be of little help. Ellen What have been the experiences of people in this group with D-Ribose? Has it helped? What symptoms did it help? Were there side effects? I have severe cognitive problems and exhaustion. Would D-Ribose help? Are there other supplements you would recommend? Thank you! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2011 Report Share Posted August 10, 2011 sb2boys wrote: > What have been the experiences of people in this group with D-Ribose? Has it helped? What symptoms did it help? Were there side effects? > > I have severe cognitive problems and exhaustion. Would D-Ribose help? Are there other supplements you would recommend? I tried D-ribose a few years ago and immediately stopped using it when I learned it was a potent glycating agent. It didn't do anything for me except lighten my wallet. The things, in particular, that worked for me to banish my cognitive problems and exhaustion are Ginkgo biloba, bilberry, genuine (properly sourced) Cat's Claw, and CoQ-10. The difference was astounding. Jeri <teewinot13@...> @>--->---->-------------------<----<---<@ Dr. Pall's NO/ONOO- Theory/Treatment Discussion Group: TenthParadigmSociety @>----------<---------->-----------------------<----------<----------<@ The Tenth Paradigm - Dr. Pall's Website for CFS/MCS/FM/ETC.: http://www.thetenthparadigm.org @>----------<---------->-----------------------<----------<----------<@ MCS-Florida - For All Chemically Sensitive Floridians MCS-Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2011 Report Share Posted August 11, 2011 I tried twice - different brands. Teitlebaum recommends Corvalen. Neither helped me at all. I'm taking NK support supplements recommended by my doc (CoQ10, Vit C, Omega 3's, Vit D) plus HRT, T3/T4, magnesium, LDN, acyclovir & probably some that my foggy brain can't remember. We're all slightly different, so your individual needs are important. I agree about the adrenals, although HC for years didn't help that much either. best wishes! Joy > > What have been the experiences of people in this group with D-Ribose? Has it helped? What symptoms did it help? Were there side effects? > > I have severe cognitive problems and exhaustion. Would D-Ribose help? Are there other supplements you would recommend? > > Thank you! > > Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2011 Report Share Posted August 11, 2011 Unfortunately, D-ribose did nothing for me. Marcia on in Salem, Massachusetts On Aug 10, 2011, at 5:45 PM, sb2boys wrote: > What have been the experiences of people in this group with D- > Ribose? Has it helped? What symptoms did it help? Were there side > effects? > > I have severe cognitive problems and exhaustion. Would D-Ribose > help? Are there other supplements you would recommend? > > Thank you! > > Sue > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2011 Report Share Posted August 13, 2011 D-Ribose did nothing for me either. I used it for almost a year. There were no side effects, but no forward effects either.  I have found nothing for cognitive function yet ________________________________ From: sb2boys & lt;sb2boys@... & gt; Sent: Wednesday, August 10, 2011 5:45:14 PM Subject: Experiences with D-Ribose  What have been the experiences of people in this group with D-Ribose? Has it helped? What symptoms did it help? Were there side effects? I have severe cognitive problems and exhaustion. Would D-Ribose help? Are there other supplements you would recommend? Thank you! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2011 Report Share Posted December 4, 2011 D-Ribose, combined with caffeine, is the absolute only way I get any use out of my muscles these days (like for taking a bath). So I like it. I take 1/2 scoop at a time, 6x/day, rather than full scoop 3x/day as usually recommended. > > What have been the experiences of people in this group with D-Ribose? Has it helped? What symptoms did it help? Were there side effects? > > I have severe cognitive problems and exhaustion. Would D-Ribose help? Are there other supplements you would recommend? > > Thank you! > > Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2011 Report Share Posted December 4, 2011 D Ribose makes me sleepy Does this happen to anyone else? On Dec 4, 2011, at 4:25 PM, sy.sherlock@... wrote: > D-Ribose, combined with caffeine, is the absolute only way I get any use out of my muscles these days (like for taking a bath). So I like it. I take 1/2 scoop at a time, 6x/day, rather than full scoop 3x/day as usually recommended. > > > > > > What have been the experiences of people in this group with D-Ribose? Has it helped? What symptoms did it help? Were there side effects? > > > > I have severe cognitive problems and exhaustion. Would D-Ribose help? Are there other supplements you would recommend? > > > > Thank you! > > > > Sue > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2011 Report Share Posted December 5, 2011 i don't recall it doing anything for me, was disappointed > > > > > > What have been the experiences of people in this group with D-Ribose? Has it helped? What symptoms did it help? Were there side effects? > > > > > > I have severe cognitive problems and exhaustion. Would D-Ribose help? Are there other supplements you would recommend? > > > > > > Thank you! > > > > > > Sue > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2011 Report Share Posted December 5, 2011 Stangah wrote: > D Ribose makes me sleepy > > Does this happen to anyone else? D-ribose did nothing for me - positive or negative. I stopped taking it because it's a potent glycating agent. The last thing I want is any more problems! Jeri <teewinot13@...> @>--->---->-------------------<----<---<@ Dr. Pall's NO/ONOO- Theory/Treatment Discussion Group: TenthParadigmSociety @>----------<---------->-----------------------<----------<----------<@ The Tenth Paradigm - Dr. Pall's Website for CFS/MCS/FM/ETC.: http://www.thetenthparadigm.org @>----------<---------->-----------------------<----------<----------<@ MCS-Florida - For All Chemically Sensitive Floridians MCS-Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2011 Report Share Posted December 5, 2011 Yes, D Ribose actually zaps me of energy and makes me feel worse!! ________________________________ From: Stangah <stangah@...> Sent: Monday, December 5, 2011 12:17 AM Subject: Re: Re: Experiences with D-Ribose  D Ribose makes me sleepy Does this happen to anyone else? On Dec 4, 2011, at 4:25 PM, sy.sherlock@... wrote: > D-Ribose, combined with caffeine, is the absolute only way I get any use out of my muscles these days (like for taking a bath). So I like it. I take 1/2 scoop at a time, 6x/day, rather than full scoop 3x/day as usually recommended. > > > > > > What have been the experiences of people in this group with D-Ribose? Has it helped? What symptoms did it help? Were there side effects? > > > > I have severe cognitive problems and exhaustion. Would D-Ribose help? Are there other supplements you would recommend? > > > > Thank you! > > > > Sue > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2011 Report Share Posted December 7, 2011 D Ribose has really helped me! I take 5g in the morning with my coffe and it gives me a boost. I was taking it at lunch and dinner, which worked for a while, but if I didn't eat right away it really seemed to mess with my blood sugar. So I've dropped down to taking it in the morning and sometimes in the afternoon. It's not a miracle fix or anything but helps with the fatigue and weakness. ~ Cheryl > > > > > > What have been the experiences of people in this group with D-Ribose? Has it helped? What symptoms did it help? Were there side effects? > > > > > > I have severe cognitive problems and exhaustion. Would D-Ribose help? Are there other supplements you would recommend? > > > > > > Thank you! > > > > > > Sue > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2011 Report Share Posted December 7, 2011 That is so strange Why does it zap some and energize others ? Steve On Dec 7, 2011, at 5:32 AM, Cheryl wrote: > D Ribose has really helped me! I take 5g in the morning with my coffe and it gives me a boost. I was taking it at lunch and dinner, which worked for a while, but if I didn't eat right away it really seemed to mess with my blood sugar. So I've dropped down to taking it in the morning and sometimes in the afternoon. It's not a miracle fix or anything but helps with the fatigue and weakness. > ~ Cheryl > > > > > > > > > > What have been the experiences of people in this group with D-Ribose? Has it helped? What symptoms did it help? Were there side effects? > > > > > > > > I have severe cognitive problems and exhaustion. Would D-Ribose help? Are there other supplements you would recommend? > > > > > > > > Thank you! > > > > > > > > Sue > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 > Why does it zap some and energize others ? > > Steve Glucose levels and glycosylation. Age, weight, and glucose status are factors here. Possibly also one's APOE genetics. Also daily ongoing use vs. occasional use can make a difference in how D-ribose acts. Carol W. willis_protocols Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 I'm wondering if it has to do with the combo with caffeine. Does everyone with good results always take it with caffeine. Does everyone with no or bad results always take it WITHOUT caffeine? The D-ribose/caffeine combo idea came from: http://drmyhill.co.uk/wiki/CFS_-_The_Central_Cause:_Mitochondrial_Failure " If the CFS sufferer asks for energy faster than he can supply it, (and actually most CFS sufferers are doing this most of the time!) ATP is converted to ADP faster than it can be recycled. This means there is a build up of ADP. Some ADP is inevitably shunted into adenosine monophosphate (AMP -1 phosphate). But this creates a real problem, indeed a metabolic disaster, because AMP, largely speaking, cannot be recycled and is lost in urine. Indeed this is the biological basis of poor stamina. One can only go at the rate at which mitochondria can produce ATP. If mitochondria go slow, stamina is poor. If ATP levels drop as a result of leakage of AMP, the body then has to make brand new ATP. ATP can be made very quickly from a sugar D-ribose, but D-ribose is only slowly made from glucose (via the pentose phosphate shunt for those clever biochemists out there!). This takes anything from one to four days. So this is the biological basis for delayed fatigue. However there is another problem. If the body is very short of ATP, it can make a very small amount of ATP directly from glucose by converting it into lactic acid. This is exactly what many CFS sufferers do and indeed we know that CFS sufferers readily switch into anaerobic metabolism. However this results in two serious problems - lactic acid quickly builds up especially in muscles to cause pain, heaviness, aching and soreness ( " lactic acid burn " ), secondly no glucose is available in order to make D-ribose! So new ATP cannot be easily made when you are really run down. Recovery takes days! When mitochondria function well, as the person rests following exertion, lactic acid is quickly converted back to glucose (via-pyruvate) and the lactic burn disappears. But this is an energy requiring process! Glucose to lactic acid produces two molecules of ATP for the body to use, but the reverse process requires six molecules of ATP. If there is no ATP available, and this is of course what happens as mitochondria fail, then the lactic acid may persist for many minutes, or indeed hours causing great pain. (for the biochemists, this reverse process takes place in the liver and is called the Cori cycle). " .... " AMP can be recycled, but slowly. Interestingly, the enzyme which does this (cyclic AMP) is activated by caffeine! So the perfect pick-me-up for CFS sufferers could be a real black organic coffee with a teaspoon of D-ribose! " > > > > > > > > > > What have been the experiences of people in this group with D-Ribose? Has it helped? What symptoms did it help? Were there side effects? > > > > > > > > > > I have severe cognitive problems and exhaustion. Would D-Ribose help? Are there other supplements you would recommend? > > > > > > > > > > Thank you! > > > > > > > > > > Sue > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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