Guest guest Posted September 8, 2011 Report Share Posted September 8, 2011 didn't work for me, had a terrible reaction to it...the fda doesn't like it anymmore - i think it has alll kinds of warnings, good luck, deb ________________________________ Â Had anyone here heard of using Actos for CFS? Anyone tried it? I have no idea how it would work, but I read about it on a message board and I was wondering if it is worth looking into further or possibly trying. Steve M in PA, age 21 Married with 3 year old daughter Duragesic 300mcg/hr (q48hr) Actiq-600 (4/day) OxyIR 30mg (6/day) Grade II DIPG (Diffuse Intrinsic Pontine Glioma) Fibromyalgia Probable RSD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2011 Report Share Posted September 8, 2011 Dear It's part of the Shoemaker detox program. Email me direct and I'll send you the relevant bits. I decided to try it because I've had a catastrophic relapse following a tick bite and Shoemaker seems to think that tick toxins may well be relevant Regards R rwindsor@... Actos for CFS??? > Had anyone here heard of using Actos for CFS? Anyone tried it? > > I have no idea how it would work, but I read about it on a message board > and > I was wondering if it is worth looking into further or possibly trying. > > Steve M in PA, age 21 > Married with 3 year old daughter > Duragesic 300mcg/hr (q48hr) > Actiq-600 (4/day) > OxyIR 30mg (6/day) > Grade II DIPG (Diffuse Intrinsic Pontine Glioma) > Fibromyalgia > Probable RSD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Likewise...had high hopes for this one.. Horrible reaction. add it to the list of meds i can't tolerate..like cholestyramine I'm using LDN to turn the inflammation down a little.... I did read afterwards where Mo on PR was saying this thing...a lot of PWCs can't tolerate this drug. Another wasted copay! > > didn't work for me, had a terrible reaction to it...the fda doesn't like it > anymmore - i think it has alll kinds of warnings, > > good luck, > deb > > > > > ________________________________ > > > Â > Had anyone here heard of using Actos for CFS? Anyone tried it? > > I have no idea how it would work, but I read about it on a message board and > I was wondering if it is worth looking into further or possibly trying. > > Steve M in PA, age 21 > Married with 3 year old daughter > Duragesic 300mcg/hr (q48hr) > Actiq-600 (4/day) > OxyIR 30mg (6/day) > Grade II DIPG (Diffuse Intrinsic Pontine Glioma) > Fibromyalgia > Probable RSD > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.