Check out the CFS Treatments Infographic at CureTogether.com

[Guest guest]

Hi, all.

On the CureTogether.com site, they have a graphic that plots both the

effectiveness and the popularity of a whole range of CFS treatments and

lifestyle adjustments:

http://www.curetogether.com/chronic-...-vs-popularity

See how the ratings there compare with your own experience.

I would encourage every PWC to sign in to the site and take the survey, giving

your own ratings of the various treatments. You can also post your symptoms and

what you think the causal factors were in your case. I think that sharing this

information can be helpful to the whole CFS community. I note that this type of

thing was done in the autism community by the DAN! project, starting a few years

ago, and it turned out to be a key to developing a better understanding of

autism and better treatments.

Of course, this type of informal survey has its limitations in terms of

statistical reliability, but I think it can give us valuable clues.

Best regards,

Rich

[Guest guest]

Hi, all.

The CureTogether site was down for quite a while today, but I see that it is

back up now. If you couldn't raise it before, I suggest that you give it

another try.

Best regards,

Rich

>

> Hi, all.

>

> On the CureTogether.com site, they have a graphic that plots both the

effectiveness and the popularity of a whole range of CFS treatments and

lifestyle adjustments:

>

> http://www.curetogether.com/chronic-...-vs-popularity

>

> See how the ratings there compare with your own experience.

>

> I would encourage every PWC to sign in to the site and take the survey, giving

your own ratings of the various treatments. You can also post your symptoms and

what you think the causal factors were in your case. I think that sharing this

information can be helpful to the whole CFS community. I note that this type of

thing was done in the autism community by the DAN! project, starting a few years

ago, and it turned out to be a key to developing a better understanding of

autism and better treatments.

>

> Of course, this type of informal survey has its limitations in terms of

statistical reliability, but I think it can give us valuable clues.

>

> Best regards,

>

> Rich

>

[Guest guest]

Thanks, Rich. I went there. It's a very interesting site, well worth a

visit and adding one's info.

Marcia on

in Salem, Massachusetts

On Jan 2, 2011, at 6:50 PM, rvankonynen wrote:

> Hi, all.

>

> The CureTogether site was down for quite a while today, but I see

> that it is back up now. If you couldn't raise it before, I suggest

> that you give it another try.

>

> Best regards,

>

> Rich

>

>

> >

> > Hi, all.

> >

> > On the CureTogether.com site, they have a graphic that plots both

> the effectiveness and the popularity of a whole range of CFS

> treatments and lifestyle adjustments:

> >

> > http://www.curetogether.com/chronic-...-vs-popularity

> >

> > See how the ratings there compare with your own experience.

> >

> > I would encourage every PWC to sign in to the site and take the

> survey, giving your own ratings of the various treatments. You can

> also post your symptoms and what you think the causal factors were

> in your case. I think that sharing this information can be helpful

> to the whole CFS community. I note that this type of thing was done

> in the autism community by the DAN! project, starting a few years

> ago, and it turned out to be a key to developing a better

> understanding of autism and better treatments.

> >

> > Of course, this type of informal survey has its limitations in

> terms of statistical reliability, but I think it can give us

> valuable clues.

> >

> > Best regards,

> >

> > Rich

> >

>

>

>