New Spanish Treatment patented for CFIDS-elastase inhibitors

July 5, 2011

I saw a new treatment has been patented for CFIDS/ME

If you just google alpha 1 antitrypsin and CFS you get some info on it.

The inventors are Quintana, Alegra .

It's on the NCF webpage as well.

I don't understand much about it.

I understand that something called RNase L in the bodies of people w/CFS is

abnormal. This alpha 1 trypsin is supposed to make it normal...I think (?)

What I do understand is that this alpha-1 trypsin is prepared from human

plasma. The FDA has approved of 3 alpha-1 trypsin products. They are given by

infusion and treatment costs $100,000 a year.

I was wondering if it were possible to get some cheaper substance that could do

the same job. I read that alpha-1 trypsin is an elastase inhibitor and that

raised elastase activity is what is causing the abnormal RNase L in the body of

PWCFS. So I did my own google search for " natural elastase inhibitors " and got a

lot of results with " indole-3-carbinol " in them. Here's just one:

Indole 3 carbinol is available as a food supplement and supposed to be found

naturally in brocolli and cabbage.

Now I have too many severe digestive problems to buy and try this this

supplement. If things were better I would have a go. This is just a suggestion

but I wonder if it worthwhile for a PWCFS who can tolerate food supplements to

try this and let us know how / if it helps. It does not look harmful - but I am

just thinking aloud, I don't want to be resposible if someone takes it and finds

they can't tolerate it. I was just wondering about it.

What do others here think of this Spanish research?

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