Re: To Rooster Rick: Dr. Chia, New Hepatitis C Drug, Rifampin

[Guest guest]

I did see Dr Chia in August. I dont know the name of the drug yet, but its still

going through the approval process and Dr Chia said it looked more like 2 years

before FDA approval. He said he was in the process of writing out a study to be

able to get a hold of the drug earlier, but he said study's are tricky because

they have to be done fast. He told me about Rifampin earlier but since I am not

able to tolerate Oxymatrine I havent been able to try that out. He said Rifampin

has a molecule that binds to enterovirus and keeps it from copying itself. Ive

been seeing Dr Chia every 3-4 months since May 2008. I can tell you he helps me

deal with my symptoms very well, but my immune system is so out of whack that I

cant tolerate many treatments. If I pop a zit, it will stimulate my immune

system and I become bed bound for 3 - 4 days, thats how stupid this illness is

to me....

>

>

> Rick,

>

> Thanks for responding to my thread re: Dr. Chia back in June:

>

> /message/132918

>

> You said then that you hoped to find out more about Hepatitis C drug under

development that Dr. Chia hopes to use during your August appointment with him.

I was wondering what you were able to find out about it then.

>

> What is the name of this drug and any idea when it'll be FDA approved? Do you

know anything else about it or how it works? Might Dr. Chia be able to use it

prior to approval on a " compassionate use " basis as he did with Pleconaril?

>

> Also, upcoming IACFS/ME conference schedule contains: " Rifampin Augments the

Effects of Oxymatrine/Equilibrant In Patients with Myalgic Encephalomyelitis/CFS

- K. Chia, M.D. " Know anything about the Rifampin, how he uses it, what it

does, what dose he uses, or the results he's getting with it?

>

> My biopsy tested + at Chia's lab and I'm considering seeing him. Any info

would be greatly appreciated.

>

> Thanks!

>

[Guest guest]

Rick,

In what way does Chia " help me deal with my symptoms very well " ?

Tim

I did see Dr Chia in August. I dont know the name of the drug yet, but its still

going through the approval process and Dr Chia said it looked more like 2 years

before FDA approval. He said he was in the process of writing out a study to be

able to get a hold of the drug earlier, but he said study's are tricky because

they have to be done fast. He told me about Rifampin earlier but since I am not

able to tolerate Oxymatrine I havent been able to try that out. He said Rifampin

has a molecule that binds to enterovirus and keeps it from copying itself. Ive

been seeing Dr Chia every 3-4 months since May 2008. I can tell you he helps me

deal with my symptoms very well, but my immune system is so out of whack that I

cant tolerate many treatments. If I pop a zit, it will stimulate my immune

system and I become bed bound for 3 - 4 days, thats how stupid this illness is

to me....

[Guest guest]

Rick,

Yes, I too would be interested in hearing what Dr. Chia has been doing to help

treat you and your symptoms despite your inability to tolerate oxymatrine and

rifampin. What symptoms has he helped you with and how? Is he doing other

things to help your " crazy " immune system?

I know he is a good infectious disease specialist and the go-to doc for treating

enterovirus, but how would you rate his overall knowledge of CFS and ability to

treat the multi-system multi-symptom problems of CFS patients? What do you

think of Dr. Chia?

Pleae let us know.

Thanks,

Purma

[Guest guest]

His overall knowledge of CFS is excellent. His son has CFS and thats what

prompted him to look into the cause. He helps me with my symptoms with

painkillers, midodrine, reglan, etc. We have gone through several medications to

look for something I am able to tolerate and helps me feel better, but I am

still home bound for the most part. I think Dr Chia is excellent and his theory

of enterovirus as the cause of CFS has very strong points. He still does not

believe XMRV and friends is the cause of CFS due to the fact that HIV viral

counts in millions still is not enough to cause symptoms in an HIV+ patient, yet

they are finding XMRV in very small hard to detect quantities. Surely, the viral

count must be very high to be able to make us this sick. I was XMRV negative by

VIPDx. Dr CHia has also published a few Peer reviewed research articles about

Enterovirus and CFS in the Journal of Clinical Pathology if you are interested.

His work is very Non-Controversial and maybe thats why his work is Quiet. I

really dont think its XMRV, we all have retroviruses embedded in our DNA from

past ancestors coming into contact with them. The fact that they MAY be finding

XMRV in small quantities can be attributed to that.

>

>

> Rick,

>

> Yes, I too would be interested in hearing what Dr. Chia has been doing to help

treat you and your symptoms despite your inability to tolerate oxymatrine and

rifampin. What symptoms has he helped you with and how? Is he doing other

things to help your " crazy " immune system?

>

> I know he is a good infectious disease specialist and the go-to doc for

treating enterovirus, but how would you rate his overall knowledge of CFS and

ability to treat the multi-system multi-symptom problems of CFS patients? What

do you think of Dr. Chia?

>

> Pleae let us know.

>

> Thanks,

> Purma

>

[Guest guest]

xmrv is totally differernt ..it causes a lot of inflammation, unlike HIV. it

doesnt kill cells like HIV does and thats why we are still alive. and maybe it

isnt in such small quantities in tissue..they havent done a lot of tissue

biospies yet.

 

i know the disease is caused by some retrovirus because the HIV meds made my NK

cell function go up from 2 to 60. This is the most important test in CFS. did

dr. chia's treatment make your NK cell function go up?

From: RoosterRick <rickstr420@...>

Sent: Monday, September 19, 2011 1:13:29 PM

Subject: Re: To Rooster Rick: Dr. Chia, New Hepatitis C

Drug, Rifampin

 

His overall knowledge of CFS is excellent. His son has CFS and thats what

prompted him to look into the cause. He helps me with my symptoms with

painkillers, midodrine, reglan, etc. We have gone through several medications to

look for something I am able to tolerate and helps me feel better, but I am

still home bound for the most part. I think Dr Chia is excellent and his theory

of enterovirus as the cause of CFS has very strong points. He still does not

believe XMRV and friends is the cause of CFS due to the fact that HIV viral

counts in millions still is not enough to cause symptoms in an HIV+ patient, yet

they are finding XMRV in very small hard to detect quantities. Surely, the viral

count must be very high to be able to make us this sick. I was XMRV negative by

VIPDx. Dr CHia has also published a few Peer reviewed research articles about

Enterovirus and CFS in the Journal of Clinical Pathology if you are interested.

His work is very

Non-Controversial and maybe thats why his work is Quiet. I really dont think

its XMRV, we all have retroviruses embedded in our DNA from past ancestors

coming into contact with them. The fact that they MAY be finding XMRV in small

quantities can be attributed to that.

>

>

> Rick,

>

> Yes, I too would be interested in hearing what Dr. Chia has been doing to help

treat you and your symptoms despite your inability to tolerate oxymatrine and

rifampin. What symptoms has he helped you with and how? Is he doing other

things to help your " crazy " immune system?

>

> I know he is a good infectious disease specialist and the go-to doc for

treating enterovirus, but how would you rate his overall knowledge of CFS and

ability to treat the multi-system multi-symptom problems of CFS patients? What

do you think of Dr. Chia?

>

> Pleae let us know.

>

> Thanks,

> Purma

>

[Guest guest]

Dr Chia at the NIH...........

part 1

part 2

review

> >

> >

> > Rick,

> >

> > Yes, I too would be interested in hearing what Dr. Chia has been doing to

help treat you and your symptoms despite your inability to tolerate oxymatrine

and rifampin. What symptoms has he helped you with and how? Is he doing other

things to help your " crazy " immune system?

> >

> > I know he is a good infectious disease specialist and the go-to doc for

treating enterovirus, but how would you rate his overall knowledge of CFS and

ability to treat the multi-system multi-symptom problems of CFS patients? What

do you think of Dr. Chia?

> >

> > Pleae let us know.

> >

> > Thanks,

> > Purma

> >

>

[Guest guest]

A lot of inflammation? Yet C-Reactive protein blood test is normal? How can that

be? If its causing a lot of inflammation it should be found in easy to detect

amounts. Dont believe all the internet hype which is mostly written by sick, non

biology majors. Here is A Brand new, up to date, Peer reviewed article for you

using multiple testing methods.........

No detectable XMRV in subjects with chronic fatigue syndrome from Quebec.

http://www.ncbi.nlm.nih.gov/pubmed/21925693

> >

> >

> > Rick,

> >

> > Yes, I too would be interested in hearing what Dr. Chia has been doing to

help treat you and your symptoms despite your inability to tolerate oxymatrine

and rifampin. What symptoms has he helped you with and how? Is he doing other

things to help your " crazy " immune system?

> >

> > I know he is a good infectious disease specialist and the go-to doc for

treating enterovirus, but how would you rate his overall knowledge of CFS and

ability to treat the multi-system multi-symptom problems of CFS patients? What

do you think of Dr. Chia?

> >

> > Pleae let us know.

> >

> > Thanks,

> > Purma

> >

>

>

>

>

>

[Guest guest]

i know a lot of CFS people who have abnormal c-reactive protein. i have tested

other inflammatory markers and they are through the roof. maybe its not xmrv but

its definitely a retrovirus. i would bet my life on it.

From: RoosterRick <rickstr420@...>

Sent: Tuesday, September 20, 2011 6:40:46 PM

Subject: Re: To Rooster Rick: Dr. Chia, New Hepatitis C

Drug, Rifampin

 

A lot of inflammation? Yet C-Reactive protein blood test is normal? How can that

be? If its causing a lot of inflammation it should be found in easy to detect

amounts. Dont believe all the internet hype which is mostly written by sick, non

biology majors. Here is A Brand new, up to date, Peer reviewed article for you

using multiple testing methods.........

No detectable XMRV in subjects with chronic fatigue syndrome from Quebec.

http://www.ncbi.nlm.nih.gov/pubmed/21925693

> >

> >

> > Rick,

> >

> > Yes, I too would be interested in hearing what Dr. Chia has been doing to

help treat you and your symptoms despite your inability to tolerate oxymatrine

and rifampin. What symptoms has he helped you with and how? Is he doing other

things to help your " crazy " immune system?

> >

> > I know he is a good infectious disease specialist and the go-to doc for

treating enterovirus, but how would you rate his overall knowledge of CFS and

ability to treat the multi-system multi-symptom problems of CFS patients? What

do you think of Dr. Chia?

> >

> > Pleae let us know.

> >

> > Thanks,

> > Purma

> >

>

>

>

>

>