Re: PLAIN water for POTS, Orthostatic Intolerance or dysautonomia

[Guest guest]

marti_zavala wrote:

> I was doing a little research today preparing for a doctor's appt and I ran

across this article which discusses PLAIN water increasing blood pressure vs

Saline. Interesting as increased water and increased salt are treatments for

hypovolemia.

>

> http://www.mc.vanderbilt.edu/reporter/index.html?ID=9047

Plain water does not work for me. I pee it out as fast as I take it in.

The salt allows me to retain the water. The salt does not raise my

blood pressure. I'm not salt sensitive. The two combined do the job

for me. If I slack off on either one or get a virus (which my

cardiologist says is a common trigger), my blood pressure will drop. Of

course, heat drops it, too, but that's mechanical ... before dehydration

sets in.

Jeri <teewinot13@...>

@>--->---->-------------------<----<---<@

Dr. Pall's NO/ONOO- Theory/Treatment Discussion Group:

TenthParadigmSociety

@>----------<---------->-----------------------<----------<----------<@

The Tenth Paradigm - Dr. Pall's Website for CFS/MCS/FM/ETC.:

http://www.thetenthparadigm.org

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MCS-Florida - For All Chemically Sensitive Floridians

MCS-Florida

[Guest guest]

Hi Jeri and group,

You are so right, I should have been more specific.

Currently, I am on Dr. Levine's POTS protocol (google Dr. Levine,

Dallas, Texas POTS), which is 3 liters of water and 10,000mg of salt (approx.

three 1/2 tsps) which I take under the tongue with 8 oz of water.

But what I found interesting in the article that I posted is that PLAIN water is

better at TEMPORARILY raising blood pressure than saline.

So, the way that I think I will use this info is to continue with Dr. Levine's

protocol but before getting up to go to the kitchen to fix lunch or dinner,

drinking PLAIN water a few minutes before getting up might help my blood

pressure from tanking then taking my salt dose when I lay down again.

I have been doing the opposite -taking Mestinon, salt, Florinef with water (a

goodly amount), waiting 20 minutes then getting up to do something: feed dogs,

make lunch or dinner, etc.

I will try it and see if it makes a difference and report to the group.

Like you, heat is one of my triggers as well as slacking off on either water or

salt. I feel it the next day.

Marti

>

> > I was doing a little research today preparing for a doctor's appt and I ran

across this article which discusses PLAIN water increasing blood pressure vs

Saline. Interesting as increased water and increased salt are treatments for

hypovolemia.

> >

> > http://www.mc.vanderbilt.edu/reporter/index.html?ID=9047

>

> Plain water does not work for me. I pee it out as fast as I take it in.

> The salt allows me to retain the water. The salt does not raise my

> blood pressure. I'm not salt sensitive. The two combined do the job

> for me. If I slack off on either one or get a virus (which my

> cardiologist says is a common trigger), my blood pressure will drop. Of

> course, heat drops it, too, but that's mechanical ... before dehydration

> sets in.

>

> Jeri <teewinot13@...>

> @>--->---->-------------------<----<---<@

> Dr. Pall's NO/ONOO- Theory/Treatment Discussion Group:

> TenthParadigmSociety

> @>----------<---------->-----------------------<----------<----------<@

> The Tenth Paradigm - Dr. Pall's Website for CFS/MCS/FM/ETC.:

> http://www.thetenthparadigm.org

> @>----------<---------->-----------------------<----------<----------<@

> MCS-Florida - For All Chemically Sensitive Floridians

> MCS-Florida

>

[Guest guest]

Hi Marti,

 

That is interesting. I use plain water in the morning as soon as I can sit up

and drink. It needs to be small sips as I tend to shake and throw up in the

mornings. Can't tolerate salted water or the other alternatives we have

discussed here before.

 

Slowly during the day I can drink more varied things. This helps with POTs and

my blood pressure is more stable.

 

As I rarely urinate in the day time this does help temporarily. The water does

tend to stay in my abdomen area and I swish like a hot-water bottle.

 

Once night comes sadly, I then loose all the water. Depending on how much I have

drunk this can seriously affect my sleep, having to go to the bathroom every

hour or so when it is bad.

 

Kindest regards,

Annette

[Guest guest]

i too have POTS/OI and can hardly drink or eat in the mornings as the nausea and

sickness is tremendous. i try to drink water hours later, but i notice that i am

never thirsty except in the middle of the night when i wake up from sleeping. It

is strange that i can hardly urinate during the day but need to urinate every

30-40minutes at nighttime. this kind of water retention and urinary frequency

seems to be symptoms of MS as well.

From: annette barclay <annettebarc@...>

Subject: Re: PLAIN water for POTS, Orthostatic Intolerance

or dysautonomia

Date: Friday, January 21, 2011, 8:38 AM

 

Hi Marti,

 

That is interesting. I use plain water in the morning as soon as I can sit up

and drink. It needs to be small sips as I tend to shake and throw up in the

mornings. Can't tolerate salted water or the other alternatives we have

discussed here before.

 

Slowly during the day I can drink more varied things. This helps with POTs and

my blood pressure is more stable.

 

As I rarely urinate in the day time this does help temporarily. The water does

tend to stay in my abdomen area and I swish like a hot-water bottle.

 

Once night comes sadly, I then loose all the water. Depending on how much I have

drunk this can seriously affect my sleep, having to go to the bathroom every

hour or so when it is bad.

 

Kindest regards,

Annette