Guest guest Posted September 24, 2010 Report Share Posted September 24, 2010 Hi Many of you long timers know me. I had CFS for about 10 years, fit all US and Canadian criteria, was on SSDI and private disability, tested positive on every CFS test I ever took (brain scans, immune function tests, presence of infections including HHV6, EBV, CMV, coag negative Staph), developed MCS, and had primarily the immune dysfunction pattern of CFS. Then I had my fillings removed and got very mercury poisoned. I found I had occupational exposure to mold, and tested as having a bad mold gene. I stopped the mold exposure and eventually had a full recovery. I was already getting better by the time the methylation pathways stuff started coming up, so I never got tested for that, but I suspect I have some polymorphisms which make it difficult for me to detox stuff like mycotoxins and mercury. Anyway, my doctor was participating in an XMRV study at the Whitmore group so I got tested. I just got my test results and I was negative by PCR/culture. I thought you might find this interesting. I'm not sure this proves I never had XMRV. They said some people who are negative test positive by antibodies. IF it just means I don't have it now, then maybe once I healed my immune system fought it off like all the other infections. IF it means I never had it, that might be a reason I was able to get better when other cannot. They learned a lot about AIDS from studying people with HIV who were relatively healthy. I wish someone would study people who had CFS and got better. It seems like it would be a big help. I have a lot of documentation. Doris Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.